To improve the quality of life and build community for families and individuals living with hemophilia or other bleeding disorders by offering a variety of programs and services that educate, advocate and support the needs of the bleeding disorders community in Southern California.>> Learn More
Hemophilia Beach Walk
Crescent Bay Park, Santa Monica on October 19th.
This year we are taking to the beach to show our support for the Southern California's bleeding disorders community. Yes, you heard it! We will be strolling the white sands of Santa Monica Beach!
It is never too early to start fundraising! Our goal is to surpass all the success we achieved these past years and are counting on your support! We can not do this alone and need every bit of help we can get!
Please visit www.hemophilia.org/walk and click on "CA Los Angeles" to register. The web site is user friendly but if you need help registering, recruiting team members and donations, call the office and we will help you!
Suggested donation registration fee: $25. All Walkers receive an official walk t-shirt and goodie bags (while supplies last!). For all sponsorship opportunities available, click here.
We are pleased to announce a new program that will benefit all of our members and our community. CHPS otherwise known as California Hemophilia Program Support Inc. is a nonprofit tax except organization which has been created to aid in the quality of home care and support the community of bleeding disorders, through education support and high certification standards.
Qualifying home care companies need a good history of serving the community of bleeding disorders; demonstrate a working knowledge of hemophilia and bleeding disorder products and care, offer full range of services within the community, have inventory in stock to provide service, supply a 24 hour toll free number that will make pharmacists and shipments of medication available so that members can access their medication at any time, and provide for the fact that despite provided expected costs be expected to inform the consumer of any changes to costs, but make an effort to provide treatment and costs at lowest possible price. They must also fully comply with AB389. Need name of bill
We feel a great change is coming and with the introduction of the CHPS program we are well on our way to achieving our goals for the year of making the hemophilia community one joint family and raising awareness of the bleeding disorder community.
We are pleased to introduce four companies that have been certified.
Factor Support Network Pharmacy
Proud members of the CHPS program, one of the top four Certified Homecare Company’s recognized for our performance and quality standards by the Hemophilia Foundation of Southern California.
Factor Support Network is a patient centered full service specialty pharmacy serving the bleeding disorders community since 1994. Our Company was founded by eight individuals and their families who sought to confront the chronic nature of this condition.
At Factor Support Network we develop an individual relationship with every client to provide customized services that respond to the complex needs of hemophilia and other bleeding disorders.
CONTACT YOUR Client Services Representatives in your area
Randy DeSantis (805)402-5952 Edmund Merino (909)709-1083
**English & Spanish Speaking
What can you expect from Brothers Healthcare?
Expect answers: We will handle your insurance claims and navigate the billing process from beginning to end. Insurance plans can be difficult to understand, and our specialists are highly experienced with insurance plan challenges that can be associated with your bleeding disorder. If you have a question regarding your health insurance plan or need help with a problem, you can speak with our reimbursement specialists at anytime.
Expect options: We have all factor brands available. We also offer many options for your infusion supplies because we know you have preferences based on your unique home infusion experience. You choose the supplies you need, and we will deliver everything to your doorstep.
Expect action: We will coordinate your in-home nursing care as prescribed and will arrange for your visit at the most convenient time possible. This includes educational and emergency visits when needed. Let us know when and where, and we will do everything in our power to make it happen. We can even help monitor and track bleeding episodes, put into action useful practices to help minimize bleeding occurrences, and help to educate your friends and family about your bleeding disorder.
Expect support: Taking the time to provide opportunities for you and your children to interact with and form lasting bonds with other families facing the same challenges while enjoying the same victories is an essential part of the Brothers Healthcare support system. We organize fun, relaxing, and educational events for the entire family because we believe this is one of the most valuable ways to create healthy, happy, well adjusted families. These friendships and bonds create a concrete support system that is always there when you need it.
Expect more: We know life is not perfect and we understand firsthand many of the challenges that families face in our community. Because each family is unique, we have a team of family advocates and service coordinators who can provide our patients with referrals for personal, educational, physical and financial assistance. We can also provide referrals for job training programs, educational enrichment, scholarships, psychological services, drug dependency rehabilitation, pain management and adjunct therapies.Brothers Healthcare was founded upon the highest principles of providing patients with exemplary personal service and the opportunity to join into a brotherhood of friends and support. We know that sometimes having a bleeding disorder can complicate everyday life. Understanding insurance paperwork, introducing your child into a new school environment, or on the job complications can become overwhelming. We know your time is valuable and it helps to have options. We understand it is comforting to talk to someone who can relate to your situation, someone who can provide you with the support and information you need to get you through those trying times.
Kevin Shaughnessey: firstname.lastname@example.org
BioRx is a national provider and distributor of select specialty pharmaceuticals, related supplies, and clinical, reimbursement and in-home support services. BioRx specializes in the following disease/therapy areas: 1) hemophilia and related bleeding disorders, including the provision of anti-hemophilic clotting factors and highly customized support services.
Our hemophilia services are hallmarked by close community and patient involvement, highly customized supply management, and intense customer service. One of our primary missions is to promote patient independence and disease education in order to empower patients and their families. We expect to invest highly in the markets in which we participate.
BioRx is dedicated to caring for the patient with exceptional service!
June Reese: Toll Free: (866) 588-8470 Email: email@example.com
National Cornerstone Health Services
NCHS through its Divisional Support Teams, Reimbursement, Customer Service and its Specialty Pharmacy provides more than just your medication and supplies. When you become part of our team, you will have access to all of our services and be treated in a personalized friendly manner. Your treatment care plans will be developed with your involvement as well as your physician. We strongly endorse efforts to advocate on behalf of those persons we serve and are committed to a concept of open communication.
To learn more about NCHS and our Division Representatives please visit our website, Facebook page, Twitter or blog at www.nc-hs.com.
If you would like further assistance please contact Barbara Chang at 877.616.6247.
2013 Camp Malibu Family Retreat
The Wilshire Boulevard Temple and Hemophilia Foundation of Southern California will be hosting another wonderful retreat weekend for community members.
Call today to RSVP! (323) 525-0440
The Holiday's are right around the corner. Don't forget to RSVP for the Holiday Parties coming up- December 7 (LA Holiday Party) and December 14 (Orange County Holiday Party)! Remember parties are for Community Members only and you must be living in that area to attend! Please RSVP by calling the office at 323.525.0440 or emailing firstname.lastname@example.org. THANKS!
2014 Camp Blood Brothers
Camp Blood Brothers returns at Painted Turtle this summer kicking off on July 28th until August 2nd. Call to reserve your bunk today!
Hemophilia Foundation of Southern California
6720 Melrose Avenue,
Hollywood, CA 90038
Toll free: 800.371.4123