HFSC Community Dinner – Riverside
Palenque 3737 Main St #100, Riverside, CA, United StatesPlease join us for a community dinner! "My Journey to Jivi with Austin Caldwell" Thank you to Bayer for your sponsorship!
Please join us for a community dinner! "My Journey to Jivi with Austin Caldwell" Thank you to Bayer for your sponsorship!
Join us for our Family Retreat Weekend at the Pali Retreat Center in the San Bernardino National Forest. HFSC invites families living with a rare bleeding disorder to enjoy a weekend in the mountains for family camp. Sample activities for kids and parents include a campfire, arts and crafts, ropes course, archery, and talent show. Teen and parent […]
Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A. Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Dr. Vanessa K. Salinas-Luna Pediatric Hematology Center for Inherited Blood Disorders and Andrew W. Clinical Trial Participant Thank you to BioMarin for your sponsorship! […]
Join us for a Community Dinner in Monterey Park! Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A. Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Billy Duckworth Sr. Account Manager, Gene Therapy BioMarin Pharmaceutical, Inc. and Andrew W. Clinical […]
Join us for a Community Dinner in Bakersfield! HEMGENIX (ETRANACOGENE DEZAPARVOVEC-DRLB) The first and only FDA-approved gene therapy for hemophilia B. Speaker: Dr. Doris Quon This educational program offers you and your family members the opportunity to: Learn about HEMGENIX, the first and only gene therapy approved for hemophilia B Gain insightful information and deepen […]
Please join us for a Community Dinner in Lancaster! “Introducing Investigational Gene Therapy Clinical Trials for Hemophilia” Presented by Guillermo Campillo, Lead Patient Education Liaison, Spark Therapeutics Do you have questions about the clinical trial process for hemophilia gene therapy research? Join us for a 45-minute interactive session which dives into the journey of considering, […]
Registration will open soon! Join us in Santa Monica for surf lessons and a fun family day at the beach! Surfing lessons are available for kids ages 5+ for a nominal administrative fee of $5/child and no experience is needed (Note: participants must know how to swim). **THIS EVENT IS FOR COMMUNITY MEMBERS WITH BLEEDING […]
Camp Blood Brothers and Sisters at The Painted Turtle July 16-21, 2024 APPLY NOW at www.thepaintedturtle.org/apply Application Checklist: Clearance from Camper's Medical Provider Copy of most recent Progress Notes Immunization Record (please note - COVID-19 vaccine is no longer required) Camper Health History Medication List Allergies (if any) 2024 TPT Policy Forms (available on The […]
Marquen sus calendarios para Familia de Sangre 2024, una celebración de conexión, cultura y comunidad. 🗓️ Reserve la fecha: Del 6 al 8 de septiembre 📍 Lugar: Anaheim Marriott No podemos esperar para compartir esta conferencia especial con todos y cada uno de ustedes una vez más. ¡Estén atentos para más detalles y anuncios emocionantes! […]
More details coming soon!
About HFSC's 16th Annual Unite for Bleeding Disorders Walk & Health Fair Each year, the Hemophilia Foundation of Southern California hosts an annual Walk to raise crucial funds in support of our mission to “improve the quality of life and build community for those living with inherited bleeding disorders in Southern California.” 100% of all individual donations raised go […]