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DTSTART;TZID=America/Los_Angeles:20220817T190000
DTEND;TZID=America/Los_Angeles:20220817T203000
DTSTAMP:20260513T124539
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SUMMARY:emPOWERment Webinar Series - "Mild Matters"
DESCRIPTION:“Mild Matters\,” Bekah Heckathorne\, RN\nMild bleeding disorders are sometimes regarded as less serious\, which is a barrier for some people when seeking diagnosis and care. Learn about the changing landscape of mild bleeding disorders\, types of mild bleeding disorders and issues patients face\, how to determine if a person is having a bleeding episode\, being prepared for bleeding episodes\, and how to advocate for care for a mild bleeding disorder. This session is for patients\, caregivers\, and providers and includes all mild bleeding disorders\, including vWD\, hemophilia\, platelet disorders\, rare bleeding disorders\, and those who consider themselves carriers or symptomatic carriers. \nPLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD\nWe’ll be meeting virtually through ZOOM and will send you a link to access the discussion after registration (you can use your phone or laptop). Please reach out to us if you need technological assistance with ZOOM via email at laura@hemosocal.org or call 626-765-6656. \nThis educational webinar is open to people with genetic bleeding disorders and their immediate family only. YOU MUST BE ON THE WEBINAR no later than 7:10PM to receive a $25 Amazon gift card. One gift card per household. \nBekah Heckathorne\, RN \nBekah Heckathorne is the lead nurse at The Hemophilia Center at Oregon Health and Science University. She’s worked in the bleeding disorder community for 5 years and prior to that\, spent 10 years working primarily in pediatric hematology/oncology. She lives in Portland with her fiancé and their pets (Winnie and Lily). When she’s not at work\, she enjoys spending time outdoors in the beautiful Pacific Northwest and hosting dinner parties for friends.
URL:https://hemosocal.org/event/12031/
CATEGORIES:emPOWERment
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220713T190000
DTEND;TZID=America/Los_Angeles:20220713T203000
DTSTAMP:20260513T124539
CREATED:20220506T001039Z
LAST-MODIFIED:20220506T001039Z
UID:10000143-1657738800-1657744200@hemosocal.org
SUMMARY:emPOWERment Webinar Series: "Financial Wellness for People with Chronic Disorders"
DESCRIPTION:What does it mean to be “financially well?” What steps can you take to achieve financial wellness in today’s stressful environment?\nIn this workshop\, we’ll review:\n• The impact of fixed money mindsets and how changing our stories around money can change our actions (and our lives)\n• The power of values-based spending\n• A few steps you can start taking today to secure your future\, no matter your income level\nYou’ll come away from the workshop with some new ideas about money\, a template for making financial decisions\, and actionable steps to start creating wealth and reducing money stress in your life.\nPLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD\nWe’ll be meeting virtually through ZOOM and will send you a link to access the discussion after registration (you can use your phone or laptop). Please reach out to us if you need technological assistance with ZOOM via email at laura@hemosocal.org or call 626-765-6656.\nThis educational webinar is open to people with genetic bleeding disorders and their immediate family only. YOU MUST BE ON THE WEBINAR no later than 7:10PM to receive a $25 Amazon gift card. One gift card per household.\nDebra Jacobs is a financial coach who helps people overcome shame\, fear\, and who are overwhelmed around money and take action to master their personal finances.\nShe has developed financial literacy curricula\, taught classes to teens and adults\, presented financial wellness workshops around the country\, and worked with many clients to achieve positive\, measurable results. Those results include\, among others\, moving beyond limiting money mindsets\, becoming intentional with values-based budgeting\, making and carrying out savings and debt pay-down plans\, and achieving financial goals.\nPrior to starting Money Smart for Life\, her financial coaching business\, Debra owned and operated a preschool and worked as a parent coach and preschool consultant. She is also a published author and editor\, and holds an Ed.M. from Harvard University’s Graduate School of Education. The most important job she’s ever had is being mom to two (now young adult) daughters.
URL:https://hemosocal.org/event/empowerment-webinar-series-financial-wellness-for-people-with-chronic-disorders/
CATEGORIES:emPOWERment
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220628T180000
DTEND;TZID=America/Los_Angeles:20220628T193000
DTSTAMP:20260513T124539
CREATED:20220425T190301Z
LAST-MODIFIED:20220610T170602Z
UID:10000241-1656439200-1656444600@hemosocal.org
SUMMARY:emPOWERment Webinar Series: "Estate Planning for People with Chronic Disorders"
DESCRIPTION:“Estate Planning for people with Chronic Disorders\,” Steven P. Beltran\, Esq. \nTrust and Estate Planning can sound intimidating or complicated\, however parents of children with rare diseases should consider their importance. For example\, if you die without a will in California\, the care and destiny of your minor children will be out of your control and the decision will be left to the court. This critical session discusses the steps to take now to ensure your children are cared for in the event of your death. \nPLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD\nWe’ll be meeting virtually through ZOOM and will send you a link to access the discussion after registration (you can use your phone or laptop). Please reach out to us if you need technological assistance with ZOOM via email at laura@hemosocal.org or call 626-765-6656. \nThis educational webinar is open to people with genetic bleeding disorders and their immediate family only. YOU MUST BE ON THE WEBINAR no later than 7:10PM to receive a $25 Amazon gift card. One gift card per household. \nSteven P. Beltran\, Senior Partner of Beltran Smith LLP. \nMr. Beltran represents people with special needs in Plaintiffs’ Personal Injury & Governmental Tort Litigation\, Special Needs Trusts\, Probate and Mental Health proceedings. He represents approximately 60 Trustees in Court Supervised Special Needs Trusts. He also serves as a private Mediator\, as a Los Angeles Superior Court Appointed Counsel\, and as a Volunteer Settlement Attorney in the Probate Department of the Los Angeles County Superior Court. He is a current Chair of the Board of Directors of the Exceptional Children’s Foundation\, a past President and member of the Board of Directors of the Frank D. Lanterman Regional Center for the Developmentally Disabled. \nMr. Beltran received his J.D. degree from Hastings College of Law in San Francisco\, California. He is licensed to practice in the State of California\, the District Court for the Central & Eastern Districts of California\, and before the United States Supreme Court.
URL:https://hemosocal.org/event/empowerment-webinar-series-estate-planning-for-people-with-chronic-disorders/
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2022/04/Estate-Planning-Graphic.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220420T190000
DTEND;TZID=America/Los_Angeles:20220420T203000
DTSTAMP:20260513T124539
CREATED:20220207T220855Z
LAST-MODIFIED:20220303T200022Z
UID:10000232-1650481200-1650486600@hemosocal.org
SUMMARY:emPOWERment Webinar Series: "The Power of Empowerment"
DESCRIPTION:“The Power of Empowerment” Sponsored by Sanofi Genzyme.\n\nLearn about acknowledging strengths\, embracing individuality\, establishing supporting partnerships\, and more.\n\nPLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD\n\nWe’ll be meeting virtually through ZOOM and will send you a link to access the discussion after registration (you can use your phone or laptop). Please reach out to us if you need technological assistance with ZOOM via email at laura@hemosocal.org or call 626-765-6656.\n\nThis educational webinar is open to people with genetic bleeding disorders and their immediate family only. YOU MUST BE ON THE WEBINAR no later than 7:10PM to receive a $25 Amazon gift card. One gift card per household.
URL:https://hemosocal.org/event/empowerment-webinar-series-the-power-of-empowerment/
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2022/02/Emp_4.20.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220323T190000
DTEND;TZID=America/Los_Angeles:20220323T203000
DTSTAMP:20260513T124539
CREATED:20220113T205111Z
LAST-MODIFIED:20220303T195236Z
UID:10000229-1648062000-1648067400@hemosocal.org
SUMMARY:emPOWERment Webinar Series: Surgical Interventions for Pain Management
DESCRIPTION:Join HFSC for our second webinar in our emPOWERment Webinar Series on Wednesday\, March 23!\n\nPLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD\n\n“Surgical Interventions for Pain”\nSpeaker: James Luck\, Jr.\, MD\, Director of Surgical Services and Rehabilitation\, Orthopaedic Hemophilia Treatment Center\n\nDr. Luck is a board-certified orthopedic surgeon specializing in hemophilia disorders\, bone and soft tissue tumors and joint reconstruction and the current Director of Surgical Services. Dr. Luck has been actively involved with the Hemophilia Treatment Center since 1968 and has performed more reconstructive surgeries on hemophilia patients than almost any other surgeon in the world.\n\nWe’ll be meeting virtually through ZOOM and will send you a link to access the discussion after registration (you can use your phone or laptop). Please reach out to us if you need technological assistance with ZOOM via email at laura@hemosocal.org or call 626-765-6656.\n\nThis educational webinar is open to people with genetic bleeding disorders and their immediate family only. YOU MUST BE ON THE WEBINAR no later than 7:10PM to receive a $20 Amazon gift card. One gift card per household.
URL:https://hemosocal.org/event/empowerment-webinar-surgical-interventions-for-pain-management/
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2022/01/PainWebinar.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220209T070000
DTEND;TZID=America/Los_Angeles:20220209T203000
DTSTAMP:20260513T124539
CREATED:20211217T225500Z
LAST-MODIFIED:20220210T214603Z
UID:10000226-1644390000-1644438600@hemosocal.org
SUMMARY:emPOWERment Webinar Series: What's New in Legislative Advocacy?
DESCRIPTION:“What’s New in Legislative Advocacy?” Speakers: Hemophilia Council of CA\, and Nathan Schafer\, MSW\, Vice President of Public Policy\, NHF.\n\nJoin HFSC for our first webinar in our emPOWERment Webinar Series on Wednesday\, February 9!\n\nPLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD\n\nWe’ll be meeting virtually through ZOOM and will send you a link to access the discussion after registration (you can use your phone or laptop). Please reach out to us if you need technological assistance with ZOOM via email at laura@hemosocal.org or call 626-765-6656.\n\nThis educational webinar is open to people with genetic bleeding disorders and their immediate family only. YOU MUST BE ON THE WEBINAR no later than 7:10PM to receive a $25 Amazon gift card. One gift card per household.
URL:https://hemosocal.org/event/empowerment-webinar-series/
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2021/12/empowerment.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20210225T083000
DTEND;TZID=America/Los_Angeles:20210409T123000
DTSTAMP:20260513T124539
CREATED:20210221T040804Z
LAST-MODIFIED:20220210T215814Z
UID:10000201-1614241800-1617971400@hemosocal.org
SUMMARY:emPOWERment Forum & World Hemophilia Day
DESCRIPTION:Celebrate World Hemophilia Day and Learn to be a Stronger Advocate! \nGrab your best Red outfit for our Light It Up Red Fashion Show\, and play our Booth Trivia Game for a chance to win prizes! \nEach household will receive a $50 Walmart gift card after attending the event. \nSchedule8:30 -10:00amBooths Open – Play Our Booth Trivia Game! \n10:00am -12:30pmProgram
URL:https://hemosocal.org/event/empowerment-forum-world-hemophilia-day/
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2021/02/test-event-image.jpg
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