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X-WR-CALNAME:Hemophilia Foundation of Southern California
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DTSTART;TZID=America/Los_Angeles:20260319T183000
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DTSTAMP:20260505T044700
CREATED:20260130T174801Z
LAST-MODIFIED:20260224T211826Z
UID:10000326-1773945000-1773952200@hemosocal.org
SUMMARY:HFSC Community Dinner - Riverside
DESCRIPTION:Join us for a Community Dinner: Understanding HYMPAVZI (marstacimab-hncq)\nJoin us for an educational session exploring a rebalancing treatment option for hemophilia. \nYou’ll hear: \n\nThe science behind rebalancing therapy\nClinical trial data\nSafety information\nInformation on administration\nShared decision-making tips for patients and caregivers\n\n  \nSpeaker: Zuiho “Z” Taniguchi\, Patient Navigator \nUnderstanding a Rebalancing Therapy Option for Hemophilia: In this session\, we’ll dive into a rebalancing treatment option. From how it works to clinical trial learnings\, you’ll gain the latest information to help you or your loved ones understand this treatment option with confidence. \nThank you to Pfizer for your support!\n \n 
URL:https://hemosocal.org/event/hfsc-community-dinner-riverside-2/
LOCATION:Palenque\, 3737 Main St #100\, Riverside\, CA\, 92501\, United States
CATEGORIES:HFSC Community Dinner
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DTSTART;TZID=America/Los_Angeles:20260326T180000
DTEND;TZID=America/Los_Angeles:20260326T200000
DTSTAMP:20260505T044700
CREATED:20260219T003255Z
LAST-MODIFIED:20260220T173043Z
UID:10000332-1774548000-1774555200@hemosocal.org
SUMMARY:HFSC Community Dinner - Claremont
DESCRIPTION:Educational Session on Hemlibra\nHosted by Mark Siy (Genentech) | Speakers: Mark Siy (Genentech) and Patient Ambassador Gabe\nEl Ranchero Mexican Food & Margaritas | 984 W Foothill Blvd Claremont CA 91711\nFor people with hemophilia A with or without factor VIII inhibitors\nWhat is HEMLIBRA?\nHEMLIBRA is a prescription medicine used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children\, ages newborn and older\, with hemophilia A with or without factor VIII inhibitors. What is the most important information I should know about HEMLIBRA? HEMLIBRA increases the potential for your blood to clot. People who use activated prothrombin complex concentrate (aPCC; Feiba ® ) to treat breakthrough bleeds while taking HEMLIBRA may be at risk of serious side effects related to blood clots. \nThese serious side effects include:\n• Thrombotic microangiopathy (TMA)\, a condition involving blood clots and injury to small blood vessels that may cause harm to your kidneys\, brain\, and other organs\n• Blood clots (thrombotic events)\, which may form in blood vessels in your arm\, leg\, lung\, or head\nPlease see Important Safety Information\, including Serious Side Effects\, as well as the accompanying HEMLIBRA full Prescribing Information and Medication Guide. \nThis program\, sponsored by Genentech\, will not provide medical advice. Speak with your healthcare provider if you have questions about your medical condition or treatment. [CEMs] are Genentech employees. [CEMs] do not provide medical advice. \nWhat is the most important information I should know about HEMLIBRA? (continued)\nCarefully follow your healthcare provider’s instructions regarding when to use an on-demand bypassing agent or factor VIII\, and the dose and schedule to use for breakthrough bleed treatment. If aPCC (Feiba® ) is needed\, talk to your healthcare provider in case you feel you need more than 100 U/kg of aPCC (Feiba® ) total. Your body may make antibodies against HEMLIBRA\, which may stop HEMLIBRA from working properly. Contact your healthcare provider immediately if you notice that HEMLIBRA has stopped working for you (eg\, increase in bleeds). The most common side effects of HEMLIBRA include: injection site reactions (redness\, tenderness\, warmth\, or itching at the site of injection)\, headache\, and joint pain. These are not all of the possible side effects of HEMLIBRA. You can speak with your healthcare provider for more information.\nWhat else should I know about HEMLIBRA?\nSee the detailed “Instructions for Use” that comes with your HEMLIBRA for information on how to prepare and inject a dose of HEMLIBRA\, and how to properly throw away (dispose of) used needles and syringes.\n• Stop taking your prophylactic bypassing therapy the day before you start HEMLIBRA\n• You may continue taking your prophylactic factor VIII for the first week of HEMLIBRA\nHEMLIBRA may interfere with laboratory tests that measure how well your blood is clotting and create an inaccurate result. Speak with your healthcare provider about how this may affect your care.\nThese are not all of the possible side effects of HEMLIBRA. Speak to your healthcare provider for medical advice about side effects.\nSide effects may be reported to the FDA at (800) FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Genentech\nat (888) 835-2555.\nPlease see Important Safety Information\, including Serious Side Effects\, as well as the accompanying\nHEMLIBRA full Prescribing Information and Medication Guide. \nThank you to Genentech for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-claremont/
LOCATION:El Ranchero Mexican Food\, 984 W. Foothill Blvd\, Claremont\, CA\, 91711\, United States
CATEGORIES:HFSC Community Dinner
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