BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Hemophilia Foundation of Southern California - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://hemosocal.org
X-WR-CALDESC:Events for Hemophilia Foundation of Southern California
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Los_Angeles
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20210314T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20211107T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20220313T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20221106T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20230312T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20231105T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20240310T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20241103T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20250309T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20251102T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20260308T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20261101T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20270314T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20271107T090000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260326T180000
DTEND;TZID=America/Los_Angeles:20260326T200000
DTSTAMP:20260505T031400
CREATED:20260219T003255Z
LAST-MODIFIED:20260220T173043Z
UID:10000332-1774548000-1774555200@hemosocal.org
SUMMARY:HFSC Community Dinner - Claremont
DESCRIPTION:Educational Session on Hemlibra\nHosted by Mark Siy (Genentech) | Speakers: Mark Siy (Genentech) and Patient Ambassador Gabe\nEl Ranchero Mexican Food & Margaritas | 984 W Foothill Blvd Claremont CA 91711\nFor people with hemophilia A with or without factor VIII inhibitors\nWhat is HEMLIBRA?\nHEMLIBRA is a prescription medicine used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children\, ages newborn and older\, with hemophilia A with or without factor VIII inhibitors. What is the most important information I should know about HEMLIBRA? HEMLIBRA increases the potential for your blood to clot. People who use activated prothrombin complex concentrate (aPCC; Feiba ® ) to treat breakthrough bleeds while taking HEMLIBRA may be at risk of serious side effects related to blood clots. \nThese serious side effects include:\n• Thrombotic microangiopathy (TMA)\, a condition involving blood clots and injury to small blood vessels that may cause harm to your kidneys\, brain\, and other organs\n• Blood clots (thrombotic events)\, which may form in blood vessels in your arm\, leg\, lung\, or head\nPlease see Important Safety Information\, including Serious Side Effects\, as well as the accompanying HEMLIBRA full Prescribing Information and Medication Guide. \nThis program\, sponsored by Genentech\, will not provide medical advice. Speak with your healthcare provider if you have questions about your medical condition or treatment. [CEMs] are Genentech employees. [CEMs] do not provide medical advice. \nWhat is the most important information I should know about HEMLIBRA? (continued)\nCarefully follow your healthcare provider’s instructions regarding when to use an on-demand bypassing agent or factor VIII\, and the dose and schedule to use for breakthrough bleed treatment. If aPCC (Feiba® ) is needed\, talk to your healthcare provider in case you feel you need more than 100 U/kg of aPCC (Feiba® ) total. Your body may make antibodies against HEMLIBRA\, which may stop HEMLIBRA from working properly. Contact your healthcare provider immediately if you notice that HEMLIBRA has stopped working for you (eg\, increase in bleeds). The most common side effects of HEMLIBRA include: injection site reactions (redness\, tenderness\, warmth\, or itching at the site of injection)\, headache\, and joint pain. These are not all of the possible side effects of HEMLIBRA. You can speak with your healthcare provider for more information.\nWhat else should I know about HEMLIBRA?\nSee the detailed “Instructions for Use” that comes with your HEMLIBRA for information on how to prepare and inject a dose of HEMLIBRA\, and how to properly throw away (dispose of) used needles and syringes.\n• Stop taking your prophylactic bypassing therapy the day before you start HEMLIBRA\n• You may continue taking your prophylactic factor VIII for the first week of HEMLIBRA\nHEMLIBRA may interfere with laboratory tests that measure how well your blood is clotting and create an inaccurate result. Speak with your healthcare provider about how this may affect your care.\nThese are not all of the possible side effects of HEMLIBRA. Speak to your healthcare provider for medical advice about side effects.\nSide effects may be reported to the FDA at (800) FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Genentech\nat (888) 835-2555.\nPlease see Important Safety Information\, including Serious Side Effects\, as well as the accompanying\nHEMLIBRA full Prescribing Information and Medication Guide. \nThank you to Genentech for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-claremont/
LOCATION:El Ranchero Mexican Food\, 984 W. Foothill Blvd\, Claremont\, CA\, 91711\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2026/02/Restaurant-Template.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260319T183000
DTEND;TZID=America/Los_Angeles:20260319T203000
DTSTAMP:20260505T031400
CREATED:20260130T174801Z
LAST-MODIFIED:20260224T211826Z
UID:10000326-1773945000-1773952200@hemosocal.org
SUMMARY:HFSC Community Dinner - Riverside
DESCRIPTION:Join us for a Community Dinner: Understanding HYMPAVZI (marstacimab-hncq)\nJoin us for an educational session exploring a rebalancing treatment option for hemophilia. \nYou’ll hear: \n\nThe science behind rebalancing therapy\nClinical trial data\nSafety information\nInformation on administration\nShared decision-making tips for patients and caregivers\n\n  \nSpeaker: Zuiho “Z” Taniguchi\, Patient Navigator \nUnderstanding a Rebalancing Therapy Option for Hemophilia: In this session\, we’ll dive into a rebalancing treatment option. From how it works to clinical trial learnings\, you’ll gain the latest information to help you or your loved ones understand this treatment option with confidence. \nThank you to Pfizer for your support!\n \n 
URL:https://hemosocal.org/event/hfsc-community-dinner-riverside-2/
LOCATION:Palenque\, 3737 Main St #100\, Riverside\, CA\, 92501\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2026/01/HFSC-Community-Dinner-Palenque.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260226T180000
DTEND;TZID=America/Los_Angeles:20260226T200000
DTSTAMP:20260505T031400
CREATED:20260105T190903Z
LAST-MODIFIED:20260105T190903Z
UID:10000324-1772128800-1772136000@hemosocal.org
SUMMARY:HFSC Cena comunitaria - HOLA PLÁTICA: Involúcrense: divulgación y defensa de los trastornos sanguíneos
DESCRIPTION:Información sobre el evento \nTodos tienen una historia para contar. Es importante que personas reales compartan sus experiencias con el finde abogar por las personas de la comunidad con trastornos sanguíneos y por ellos mismos. Ganen confianza\,mejoren las habilidades de comunicación y hagan conexiones. \nNota:La sesión se impartirá en español. \nPRESENTADORA: Annabelle Garcia \n¡Gracias a Takeda por su patrocinio! \n\nEVENT INFORMATION \nEveryone has a story to tell. It is important for real people to share their experiences in order to advocate for people in the community with blood disorders and for themselves. Gain confidence\, improve communication skills\, and make connections. \nSPEAKER: Annabelle Garcia \nNote: Session will be presented in Spanish. \nThank you to Takeda for your sponsorship!
URL:https://hemosocal.org/event/hfsc-cena-comunitaria-hola-platica-involucrense-divulgacion-y-defensa-de-los-trastornos-sanguineos/
LOCATION:Luminarias\, 3500 W Ramona Blvd\, Monterey Park\, CA\, 91754\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251008T180000
DTEND;TZID=America/Los_Angeles:20251008T200000
DTSTAMP:20260505T031400
CREATED:20250912T203630Z
LAST-MODIFIED:20250930T224551Z
UID:10000307-1759946400-1759953600@hemosocal.org
SUMMARY:Community Dinner - Westlake Village - 10/8/2025
DESCRIPTION:Shared Decision Making\nShared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team\, discuss therapy considerations\, and find quality sources of information.\nThank you to Pfizer for your sponsorship!
URL:https://hemosocal.org/event/community-dinner-westlake-village-10-8-2025/
LOCATION:Marmalade Cafe\, 140 Promenade Way\, Westlake Village\, 91362\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250924T180000
DTEND;TZID=America/Los_Angeles:20250924T200000
DTSTAMP:20260505T031400
CREATED:20250805T222105Z
LAST-MODIFIED:20250805T222105Z
UID:10000306-1758736800-1758744000@hemosocal.org
SUMMARY:Dinner - Costa Mesa
DESCRIPTION:Please join us for an educational dinner\, “It’s a Feeling. If you Know You Know\,” with Mark Siy (Genentech ACM) and Patient Ambassador\, Louis.\nThank you to Genentech for your sponsorship!
URL:https://hemosocal.org/event/dinner-costa-mesa/
LOCATION:Maggiano’s Little Italy\, 3333 Bristol St\, Costa Mesa\, CA\, 92626\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250813T180000
DTEND;TZID=America/Los_Angeles:20250813T200000
DTSTAMP:20260505T031400
CREATED:20250620T211737Z
LAST-MODIFIED:20250716T170637Z
UID:10000304-1755108000-1755115200@hemosocal.org
SUMMARY:Dinner - Montebello
DESCRIPTION:Please join us for an educational dinner at Salvatore Restaurant in Montebello!\nHEMGENIX – Steps to Treatment\nThank you to CSL Behring for your sponsorship!
URL:https://hemosocal.org/event/dinner-montebello/
LOCATION:Salvatore Italian Restaurant\, 125 N 6th St\, Montebello\, CA\, 90640
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250521T180000
DTEND;TZID=America/Los_Angeles:20250521T200000
DTSTAMP:20260505T031400
CREATED:20250404T005249Z
LAST-MODIFIED:20250410T234139Z
UID:10000300-1747850400-1747857600@hemosocal.org
SUMMARY:Dinner
DESCRIPTION:Please join us for an educational dinner\, “Experience Gene Therapy for Hemophilia – One Patient’s Journey: Treatment Decision\, Infusion and Beyond\,” with Billy Duckworth (BioMarin) and Clinical Trial Participant\, Andrew S.\nLearn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox)\, for adults with severe hemophilia A.\nThank you to BioMarin for your sponsorship!
URL:https://hemosocal.org/event/dinner/
LOCATION:Gaucho Grill\, 5980 Orangethorpe Ave\, Buena Park\, CA\, 90620
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250515T180000
DTEND;TZID=America/Los_Angeles:20250515T200000
DTSTAMP:20260505T031400
CREATED:20250404T005306Z
LAST-MODIFIED:20250423T223853Z
UID:10000299-1747332000-1747339200@hemosocal.org
SUMMARY:Dinner
DESCRIPTION:Please join us for an educational dinner\, “CelebrVIIIte ALTUVIIIO.”\nThank you to Sanofi for your sponsorship!\nParking: Please note that Public parking is owned and managed by Shoreline Village and available at a discounted rate with Shoreline Village validation.\nWith Validation: $2.00 per hour for first 2 hours\, $2.00 every additional 20 minutes\nWithout Validation: $2.00 every 20 minutes\nLost Ticket: $24.00
URL:https://hemosocal.org/event/dinner-2/
LOCATION:Parkers’ Lighthouse\, 435 Shoreline Drive #1\, Long Beach\, CA\, 90802\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250501T170000
DTEND;TZID=America/Los_Angeles:20250501T190000
DTSTAMP:20260505T031400
CREATED:20250404T005342Z
LAST-MODIFIED:20250422T153834Z
UID:10000298-1746118800-1746126000@hemosocal.org
SUMMARY:Dinner - Bakersfield
DESCRIPTION:“Qfitlia” – Join Sanofi for a dinner to explore the treatment of hemophilia A and B\, with or without inhibitors\, and to discuss how shared decision making with your healthcare provider can improve your hemophilia management experience.\nThank you to Sanofi for your sponsorship!
URL:https://hemosocal.org/event/dinner-bakersfield/
LOCATION:Mama Tosca’s Italian Restaurant\, 9000 Ming Ave Ste K2K3\, Bakersfield\, CA\, 93311
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241023T180000
DTEND;TZID=America/Los_Angeles:20241023T200000
DTSTAMP:20260505T031400
CREATED:20241004T203114Z
LAST-MODIFIED:20241004T203114Z
UID:10000191-1729706400-1729713600@hemosocal.org
SUMMARY:HFSC Community Dinner: "Hear from a Gene Therapy Patient"
DESCRIPTION:Please join us for an educational dinner\, “Hear from a Gene Therapy Patient!”\nLearn more about gene therapy and the patient experience in an informational session. \nThis live session will feature information about gene therapy as well as a question and answer segment with a patient and a Pfizer medical colleague.\nThank you to Pfizer for your sponsorship!\n 
URL:https://hemosocal.org/event/hfsc-community-dinner-hear-from-a-gene-therapy-patient/
LOCATION:The Hacienda\, 1725 College Ave\, Santa Ana\, CA\, 92706\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/10/Santa-Ana-102324.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241019T100000
DTEND;TZID=America/Los_Angeles:20241019T130000
DTSTAMP:20260505T031400
CREATED:20240912T220947Z
LAST-MODIFIED:20241008T225508Z
UID:10000188-1729332000-1729342800@hemosocal.org
SUMMARY:Gettin' In the Game
DESCRIPTION:Please join us at Top Golf Ontario for an educational breakfast with a Gettin’ in the Game athlete followed by hitting bay time. \nRegistration starts at 10:00AM.\nThank you to CSL Behring for your sponsorship!
URL:https://hemosocal.org/event/gettin-in-the-game/
LOCATION:Top Golf Ontario\, 1050 N Archibald Ave\, Ontario\, CA\, 91764\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/09/Top-Golf-Header_Oct2024_Rev2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240924T180000
DTEND;TZID=America/Los_Angeles:20240924T200000
DTSTAMP:20260505T031400
CREATED:20240808T181403Z
LAST-MODIFIED:20240912T221247Z
UID:10000187-1727200800-1727208000@hemosocal.org
SUMMARY:HFSC Community Dinner - "Science of Gene Therapy"
DESCRIPTION:“Science of Gene Therapy”\nWith recent approvals of gene therapy in hemophilia\, you may be wondering what is gene\ntherapy and where is the science now? This educational session examines how gene therapy is\ndelivered into the body\, what happens afterwards\, what makes it a potential treatment option\nin hemophilia\, and who might be a candidate? Let’s break down the key principles and explore\nkey considerations together.\nThank you to Pfizer for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-hemophilia-gene-therapy/
LOCATION:Cara Mia\, 7945 Vineyard Ave Ste D7\, Rancho Cucumonga\, CA\, 91730\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/08/Community-Dinner-Rancho-Cucamonga-Image-for-Website-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240815T180000
DTEND;TZID=America/Los_Angeles:20240815T210000
DTSTAMP:20260505T031400
CREATED:20240715T183945Z
LAST-MODIFIED:20240808T232844Z
UID:10000185-1723744800-1723755600@hemosocal.org
SUMMARY:SOLD OUT - HFSC Community Dinner - Buena Park - "Kinesiology Taping"
DESCRIPTION:Please join us for an HFSC Community Dinner in Buena Park!\n“Kinesiology Taping”\nDr. Mike Zolo will be presenting on Kinesiology Taping – an interactive presentation where demonstrations of how to tape the shoulder\, elbow\, wrist\, neck\, low back\, knee\, and ankle will be performed while discussing the indications during acute injury. Taping will be demonstrated how to reduce swelling\, improve range of motion\, and improve overall stability to reduce pain.\nThank you to Octapharma for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-buena-park-kinesiology-taping/
LOCATION:Medieval Times\, 7662 Beach Blvd\, Buena Park\, CA\, 90620\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/06/OrangeCountyCommDinner_Octapharma_08.15.24-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240807T180000
DTEND;TZID=America/Los_Angeles:20240807T200000
DTSTAMP:20260505T031400
CREATED:20240614T175321Z
LAST-MODIFIED:20240709T211118Z
UID:10000183-1723053600-1723060800@hemosocal.org
SUMMARY:HFSC Community Dinner - San Luis Obispo - "Shared Decision Making"
DESCRIPTION:Please join us for an HFSC Community Dinner in San Luis Obispo!\n“Shared Decision Making”\n\n\nA partnership between patient (and/or care partner or caregiver) and healthcare provider\n\n\nUsed to find therapies that are the best fit\, lifestyle changes that are effective but also realistic options for care that are cost effective\n\n\nUncovers patient treatment goals and takes them into account\n\n\nThank you to Pfizer for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-san-luis-obispo-shared-decision-making/
LOCATION:Cafe Roma\, 1020 Railroad Ave\, San Luis Obispo\, CA\, 93401\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/06/Community-Dinner_Pfizer_SLO_08.07.24_NOLOCATION.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240613T180000
DTEND;TZID=America/Los_Angeles:20240613T200000
DTSTAMP:20260505T031400
CREATED:20240417T234730Z
LAST-MODIFIED:20240417T235322Z
UID:10000280-1718301600-1718308800@hemosocal.org
SUMMARY:HFSC Community Dinner - Lancaster
DESCRIPTION:Please join us for a Community Dinner in Lancaster!\n“Introducing Investigational Gene Therapy Clinical Trials for Hemophilia”\nPresented by Guillermo Campillo\, Lead Patient Education Liaison\, Spark Therapeutics\nDo you have questions about the clinical trial process for hemophilia gene therapy research? Join us for a 45-minute interactive session which dives into the journey of considering\, deciding about\, or participating in an investigational hemophilia gene therapy clinical trial. This session is intended for any hemophilia community members\, those who are affected by hemophilia and those who support them. Our aim is to provide a space for active consideration so that session participants walk away feeling more informed and empowered.\nThank you to Spark Therapeutics for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-lancaster/
LOCATION:La Papillon\, 858 W Lancaster Blvd\, Lancaster\, CA\, 93534\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/04/CommDinner-Spark-6.13_Header.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240611T180000
DTEND;TZID=America/Los_Angeles:20240611T200000
DTSTAMP:20260505T031400
CREATED:20240417T161013Z
LAST-MODIFIED:20240417T161133Z
UID:10000277-1718128800-1718136000@hemosocal.org
SUMMARY:HFSC Community Dinner - Bakersfield
DESCRIPTION:Join us for a Community Dinner in Bakersfield!\nHEMGENIX (ETRANACOGENE DEZAPARVOVEC-DRLB) The first and only FDA-approved gene therapy for hemophilia B.\nSpeaker: Dr. Doris Quon\nThis educational program offers you and your family members the opportunity to:\n\nLearn about HEMGENIX\, the first and only gene therapy approved for hemophilia B\nGain insightful information and deepen your understanding of HEMGENIX through a LIVE Q&A session\nAsk questions and receive new resources on gene therapy\n\nThank you to CSL Behring for your sponsorship! 
URL:https://hemosocal.org/event/hfsc-community-dinner-bakersfield-2/
LOCATION:DoubleTree by Hilton Bakersfield\, 3100 Camino del Rio Court\, Bakersfield\, CA\, 93308\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/03/CommDinner-CSL-6.11.24.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240609T180000
DTEND;TZID=America/Los_Angeles:20240609T200000
DTSTAMP:20260505T031400
CREATED:20240417T161555Z
LAST-MODIFIED:20240417T161637Z
UID:10000278-1717956000-1717963200@hemosocal.org
SUMMARY:HFSC Community Dinner - Monterey Park - English Session
DESCRIPTION:Join us for a Community Dinner in Monterey Park!\nLearn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox)\, for adults with severe hemophilia A. \n\nHear one person’s experience with ROCTAVIAN\nLearn what’s possible with ROCTAVIAN\nSee how you could get started today\n\nPresented By:\nBilly Duckworth \nSr. Account Manager\, Gene Therapy\nBioMarin Pharmaceutical\, Inc.\nand\nAndrew W. \nClinical Trial Participant\nThis session will be presented in English.\nThank you to BioMarin for your sponsorship! 
URL:https://hemosocal.org/event/hfsc-community-dinner-monterey-park-english-session/
LOCATION:Luminarias\, 3500 W Ramona Blvd\, Monterey Park\, CA\, 91754\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/04/CommDinner-BioMarin-6.9.24_English.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240609T173000
DTEND;TZID=America/Los_Angeles:20240609T193000
DTSTAMP:20260505T031400
CREATED:20240417T162209Z
LAST-MODIFIED:20240417T162959Z
UID:10000279-1717954200-1717961400@hemosocal.org
SUMMARY:HFSC Community Dinner - Monterey Park - Spanish Session
DESCRIPTION:Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox)\, for adults with severe hemophilia A. \n\nHear one person’s experience with ROCTAVIAN\nLearn what’s possible with ROCTAVIAN\nSee how you could get started today\n\nPresented By:\nDr. Vanessa K. Salinas-Luna\nPediatric Hematology\nCenter for Inherited Blood Disorders\nand\nAndrew W. \nClinical Trial Participant\nThank you to BioMarin for your sponsorship! \nThis session will be presented in Spanish.\n______ \nÚnase a nosotros para una cena comunitaria en Luminarias en Monterey Park.\n\nLa presentación se ofrecerá en español.\nGracias a BioMarin por su patrocinio.
URL:https://hemosocal.org/event/hfsc-community-dinner-monterey-park-spanish-session/
LOCATION:Luminarias\, 3500 W Ramona Blvd\, Monterey Park\, CA\, 91754\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/04/CommDinner-BioMarin-6.9.24_Spanish.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240516T180000
DTEND;TZID=America/Los_Angeles:20240516T200000
DTSTAMP:20260505T031400
CREATED:20240327T181802Z
LAST-MODIFIED:20240403T173927Z
UID:10000273-1715882400-1715889600@hemosocal.org
SUMMARY:HFSC Community Dinner - Riverside
DESCRIPTION:Please join us for a community dinner!\n“My Journey to Jivi with Austin Caldwell”\nThank you to Bayer for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-riverside/
LOCATION:Palenque\, 3737 Main St #100\, Riverside\, CA\, 92501\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/03/CommDinner-Bayer-5.16.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240424T180000
DTEND;TZID=America/Los_Angeles:20240424T200000
DTSTAMP:20260505T031400
CREATED:20240321T224757Z
LAST-MODIFIED:20240322T210848Z
UID:10000181-1713981600-1713988800@hemosocal.org
SUMMARY:HFSC Community Dinner - Santa Barbara
DESCRIPTION:Join us for a Community Dinner in Santa Barbara!\nFactor Up: Discover the Possibility of Higher Factor VIII Levels for Longer\nLearn about the importance of Factor VIII levels and what a first-in-class treatment could mean for your management plan. \nThank you to Sanofi for your sponsorship! \n 
URL:https://hemosocal.org/event/hfsc-community-dinner-santa-barbara/
LOCATION:Convivo\, 901 E Cabrillo Blvd\, Santa Barbara\, CA\, 93103\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/03/CommDinner-Sanofi-4.24.24.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230928T180000
DTEND;TZID=America/Los_Angeles:20230928T200000
DTSTAMP:20260505T031400
CREATED:20230815T233918Z
LAST-MODIFIED:20230815T233918Z
UID:10000168-1695924000-1695931200@hemosocal.org
SUMMARY:HFSC Community Dinner: "Caregivers\, Make Yourself a Priority"
DESCRIPTION:Please join HFSC in Simi Valley for a Community Dinner\, “Caregivers\, Make Yourself a Priority.” This presentation explores how it is okay to say no sometimes\, even as a caregiver to a child with a bleeding disorder. This program discusses the importance of making time for yourself as a caregiver.\nThank you to CSL Behring for sponsoring this dinner.\nNote: Event will be outside on the patio so please dress accordingly.
URL:https://hemosocal.org/event/hfsc-community-dinner-caregivers-make-yourself-a-priority/
LOCATION:Viva LaPasta! Kitchen of Italy\, 525 Country Club Dr\, Simi Valley\, 93065
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/08/patio-photo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230921T180000
DTEND;TZID=America/Los_Angeles:20230921T200000
DTSTAMP:20260505T031400
CREATED:20230719T173314Z
LAST-MODIFIED:20230719T173314Z
UID:10000164-1695319200-1695326400@hemosocal.org
SUMMARY:HFSC Community Dinner: Guiding Young Person with Hemophilia to Independence
DESCRIPTION:Join us at Gino’s Italian Restaurant in Lancaster for a Community Dinner on “Transitioning: Guiding a Young Person with Hemophilia Towards Independence.”\nThis interactive\, engaging\, and practical program discusses helpful tips and resources for beginning or reinforcing a successful transition to self-management—ideal for both parents and their son with hemophilia.\nThank you to Bayer for sponsoring this dinner!\n**THIS EVENT IS FOR COMMUNITY MEMBERS WITH BLEEDING DISORDERS AND THEIR IMMEDIATE FAMILY ONLY**\nParking: Free in the lot.
URL:https://hemosocal.org/event/hfsc-community-dinner-guiding-young-person-with-hemophilia-to-independence/
LOCATION:Gino’s Italian Restaurant\, 44343 Challenger Way\, Lancaster\, CA\, 93535\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/07/Screenshot-2023-07-06-094256.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230831T180000
DTEND;TZID=America/Los_Angeles:20230831T200000
DTSTAMP:20260505T031400
CREATED:20230701T003337Z
LAST-MODIFIED:20230701T003542Z
UID:10000163-1693504800-1693512000@hemosocal.org
SUMMARY:HFSC Women's Community Dinner: Tell Your Story
DESCRIPTION:Please join HFSC in Huntington Beach for a Women’s Community Dinner\, “Tell Your Story!” \nLiving with hemophilia means that you will often have to advocate for yourself. Learn how to tell your story by crafting meaningful and compelling personal messages. \nThank you to Sanofi for sponsoring this dinner. \nParking: Parking in plaza lot.
URL:https://hemosocal.org/event/hfsc-womens-community-dinner-tell-your-story/
LOCATION:Solita\, 7631 Edinger Ave\, Huntington Beach\, CA\, 92647\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2023/06/solitahuntington.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230727T180000
DTEND;TZID=America/Los_Angeles:20230727T200000
DTSTAMP:20260505T031400
CREATED:20230505T232359Z
LAST-MODIFIED:20230727T162903Z
UID:10000258-1690480800-1690488000@hemosocal.org
SUMMARY:HFSC Community Dinner: "Understanding Gene Therapy Research and its Potential Application to Hemophilia"
DESCRIPTION:Please join HFSC at Palenque in Riverside for a Community Dinner\, “Understanding Gene Therapy Research and Its Potential Application to Hemophilia.” \nThis presentation will help understand genetics; look at what investigational gene therapy is meant to do; review history\, past research\, and some challenges of gene therapy; and\, consider the potential of gene therapy research for those living with hemophilia. \nThank you to Spark Therapeutics for sponsoring this dinner!
URL:https://hemosocal.org/event/hfsc-community-dinner-understanding-gene-therapy-research-and-its-potential-application-to-hemophilia/
LOCATION:Palenque\, 3737 Main St #100\, Riverside\, CA\, 92501\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2023/05/Palenque.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230608T183000
DTEND;TZID=America/Los_Angeles:20230608T200000
DTSTAMP:20260505T031400
CREATED:20230506T000648Z
LAST-MODIFIED:20230509T165632Z
UID:10000259-1686249000-1686254400@hemosocal.org
SUMMARY:HFSC Community Dinner: "A Focus on Mental Well-Being"
DESCRIPTION:Please join HFSC in Bakersfield for a Community Dinner\, “A Focus on Mental Well-Being.” \nMental health is a state of well-being and is an important topic to talk about for everyone\, including those living with a bleeding disorder. This dinner will discuss ways to navigate mental health\, as it includes our emotional\, psychological\, and social well-being. \nThank you to Novo Nordisk for sponsoring this dinner!
URL:https://hemosocal.org/event/hfsc-community-dinner-a-focus-on-mental-well-being/
LOCATION:Frugatti’s Italian Restaurant\, 8109 Brimhall Rd\, Bakersfield\, 93312
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/04/Untitled-design-24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230523T180000
DTEND;TZID=America/Los_Angeles:20230523T200000
DTSTAMP:20260505T031400
CREATED:20230405T221809Z
LAST-MODIFIED:20230425T230759Z
UID:10000254-1684864800-1684872000@hemosocal.org
SUMMARY:HFSC Community Dinner: Raising Resilience
DESCRIPTION:Please join HFSC at Cafe Roma in San Luis Obispo for a Community Dinner\, “Raising Resilience.” \nExplore aspects of resilient behavior and thoughts\, learn how to build resilience\, and discuss how resilience may play a part in hemophilia management. \nThank you to Sanofi for sponsoring this dinner!
URL:https://hemosocal.org/event/hfsc-community-dinner-2/
LOCATION:Cafe Roma\, 1020 Railroad Ave\, San Luis Obispo\, CA\, 93401\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2023/03/caferoma.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230510T180000
DTEND;TZID=America/Los_Angeles:20230510T200000
DTSTAMP:20260505T031400
CREATED:20230301T190236Z
LAST-MODIFIED:20230306T211343Z
UID:10000160-1683741600-1683748800@hemosocal.org
SUMMARY:HFSC Women's Community Dinner
DESCRIPTION:Join us at Maggiano’s in Costa Mesa for a Women’s Community Dinner\, sponsored by Takeda! \n“Emotional Health and Well-being: Exploring the Mind-Body Connection” This presentation explores how living with a bleeding disorder can affect one’s general mental health and well-being\, and how emotional health can affect someone’s quality of life. \nNOTE: free parking  \n** HFSC collects data from visitors to this site. Information collected is entered into the HFSC database. The visitor will be placed on a list to receive HFSC e-mail communications (HFSC once a month event notices and any other notices of importance to the bleeding disorders community and others)\, as well as occasional communications by regular mail. Visitors who do not wish to receive communications from HFSC have the opportunity to opt out at any time.
URL:https://hemosocal.org/event/hfsc-community-dinner/
LOCATION:Maggiano’s Little Italy\, 3333 Bristol St\, Costa Mesa\, CA\, 92626\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2022/08/Maggiano.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221109T180000
DTEND;TZID=America/Los_Angeles:20221109T200000
DTSTAMP:20260505T031400
CREATED:20221004T224831Z
LAST-MODIFIED:20221004T224907Z
UID:10000149-1668016800-1668024000@hemosocal.org
SUMMARY:HFSC Community Dinner: "And Now Back to You"
DESCRIPTION:Join us at the well known restaurant\, Maggiano’s\, for a community Dinner sponsored by Bayer!\n“And Now Back to You” | Presented by Bayer\nDesigned to help adults with hemophilia\, rediscover goals related to their career\, education or passions\, and to create a plan of action to help them succeed. \nNOTE: free parking \nPer HFSC policy\, upon arrival all attendees are required to present a COVID-19 vaccination card (booster shots are highly recommended) or a negative COVID-19 test within 72 hours prior to entry. All attendees must continue to wear masks/face coverings at all times\, regardless of vaccination status\, unless actively eating or drinking.
URL:https://hemosocal.org/event/hfsc-community-dinner-and-now-back-to-you/
LOCATION:Maggiano’s Little Italy\, 3333 Bristol St\, Costa Mesa\, CA\, 92626\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2022/08/Maggiano.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220823T180000
DTEND;TZID=America/Los_Angeles:20220823T200000
DTSTAMP:20260505T031400
CREATED:20220802T163222Z
LAST-MODIFIED:20220802T163314Z
UID:10000147-1661277600-1661284800@hemosocal.org
SUMMARY:HFSC Community Dinner: "Women Who Bleed and Are Caregivers"
DESCRIPTION:Join us at the well known restaurant\, Maggiano’s\, for a community Dinner sponsored by Octapharma! \n“Women who Bleed and are Caregivers of an Individual with a Bleeding Disorder”\nPresented by Octapharma\nThis presentation provides information on the different types of bleeding disorders that affect women. It gives an overall review of the available treatments for women who are affected with a bleeding disorder. It also discusses some non-medical options for treatment. \nNOTE: free parking \nPer HFSC policy\, upon arrival all attendees are required to present a COVID-19 vaccination card (booster shots are highly recommended) or a negative COVID-19 test within 72 hours prior to entry. All attendees must continue to wear masks/face coverings at all times\, regardless of vaccination status\, unless actively eating or drinking. \n** HFSC collects data from visitors to this site. Information collected is entered into the HFSC database. The visitor will be placed on a list to receive HFSC e-mail communications (HFSC once a month event notices and any other notices of importance to the bleeding disorders community and others)\, as well as occasional communications by regular mail. Visitors who do not wish to receive communications from HFSC have the opportunity to opt out at any time.
URL:https://hemosocal.org/event/hfsc-community-dinner-women-who-bleed-and-are-caregivers/
LOCATION:Maggiano’s Little Italy\, 3333 Bristol St\, Costa Mesa\, CA\, 92626\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2022/08/Maggiano.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220614T180000
DTEND;TZID=America/Los_Angeles:20220614T200000
DTSTAMP:20260505T031400
CREATED:20220401T184527Z
LAST-MODIFIED:20220401T184623Z
UID:10000240-1655229600-1655236800@hemosocal.org
SUMMARY:HFSC Community Dinner: "Giving Voice to Your Strength"
DESCRIPTION:Join us at the well known restaurant\, Tamayo\, for a community Dinner sponsored by Bayer! \n“Giving Voice to your Strength\,”\nPresented by Lisa Gonzalez\, Bayer.\nThis session will offer parents\, caregivers and spouses a space to share their hemophilia experiences\, shift their mindset and acknowledge their power.\nNOTE: free street parking \nPer HFSC policy\, upon arrival all attendees are required to present a COVID-19 vaccination card (booster shots are highly recommended) or a negative COVID-19 test within 72 hours prior to entry. All attendees must continue to wear masks/face coverings at all times\, regardless of vaccination status\, unless actively eating or drinking.
URL:https://hemosocal.org/event/hfsc-community-dinner-giving-voice-to-your-strength/
LOCATION:Tamayo Restaurant and Art Gallery\, 5300 E Olympic Blvd\, Los Angeles\, CA\, 90022\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2022/04/tamayo_restaurant_outside.png
END:VEVENT
END:VCALENDAR