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X-WR-CALNAME:Hemophilia Foundation of Southern California
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X-WR-CALDESC:Events for Hemophilia Foundation of Southern California
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DTSTART;TZID=America/Los_Angeles:20251209T190000
DTEND;TZID=America/Los_Angeles:20251209T210000
DTSTAMP:20260525T165834
CREATED:20251105T185341Z
LAST-MODIFIED:20251106T183851Z
UID:10000312-1765306800-1765314000@hemosocal.org
SUMMARY:Snowflake Dinner - 12/09/2025 - Costa Mesa
DESCRIPTION:Art of Gratitude – Explore how practicing gratitude can support well-being for those with chronic conditions by creating a personal\, gratitude-inspired painting.\nThank you to Sanofi for your sponsorship! \nGift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!
URL:https://hemosocal.org/event/snowflake-dinner-12-09-2025-costa-mesa/
LOCATION:Maggiano’s Little Italy\, 3333 Bristol St\, Costa Mesa\, CA\, 92626\, United States
CATEGORIES:HFSC Snowflake Dinner,Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/10/SnowflakeGrahic_WebsiteThumbnail.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251209T180000
DTEND;TZID=America/Los_Angeles:20251209T200000
DTSTAMP:20260525T165834
CREATED:20251105T185132Z
LAST-MODIFIED:20251124T211957Z
UID:10000315-1765303200-1765310400@hemosocal.org
SUMMARY:Snowflake Dinner - 12/09/2025 - Culver City
DESCRIPTION:THIS DINNER IS SOLD OUT – Please email info@hemosocal.org to be added to the waitlist. Thanks!\nGAME ON\nSpeaker: Carter Anderson\nEmpowers young adults with hemophilia A to be accountable for their treatment\, stay healthy\, maintain insurance coverage\, and plan for college and a career afterward. \nThank you to Bayer for your sponsorship! \nGift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game! \nLocation will be announced soon!
URL:https://hemosocal.org/event/snowflake-dinner-12-09-2025-culver-city/
LOCATION:Carasau Ristorante\, 3918 Van Buren Pl\, Culver CIty\, CA\, 90232\, United States
CATEGORIES:HFSC Snowflake Dinner,Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/10/SnowflakeGrahic_WebsiteThumbnail.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251204T180000
DTEND;TZID=America/Los_Angeles:20251204T200000
DTSTAMP:20260525T165834
CREATED:20251105T185026Z
LAST-MODIFIED:20251106T183807Z
UID:10000314-1764871200-1764878400@hemosocal.org
SUMMARY:Snowflake Dinner - 12/04/2025 - Downey
DESCRIPTION:YOUR TIME TO THRIVE: HARNESS THE POWER OF JOY\nJoin us for an educational program for patients and caregivers about how to harness the power of Joy – a skill that can help attendees stay positive while navigating change. This program was developed in partnership with University of Pennsylvania Positive Psychology Center. \nThank you to Genentech for your sponsorship! \nGift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!
URL:https://hemosocal.org/event/snowflake-dinner-12-04-2025-downey/
LOCATION:The Chicken Koop\, 10000 Paramount Blvd\, Downey\, CA\, 90240\, United States
CATEGORIES:HFSC Snowflake Dinner,Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/10/SnowflakeGrahic_WebsiteThumbnail.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251203T180000
DTEND;TZID=America/Los_Angeles:20251203T200000
DTSTAMP:20260525T165834
CREATED:20251105T185004Z
LAST-MODIFIED:20251120T171946Z
UID:10000313-1764784800-1764792000@hemosocal.org
SUMMARY:Snowflake Dinner - 12/03/2025 - Riverside
DESCRIPTION:THIS DINNER IS SOLD OUT – Please email info@hemosocal.org to be added to the waitlist. Thanks!\n\nCREATING GOALS\, UNDERSTANDING THE SCIENCE AND COMMUNICATING WITH YOUR HEALTHCARE TEAM\n• Please join us for a presentation about creating goals\, understanding the science of gene therapy\, and communicating with your healthcare team\n• Hear firsthand from someone who has undergone gene therapy for hemophilia B\nThank you to CSL Behring for your sponsorship! \nGift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!
URL:https://hemosocal.org/event/snowflake-dinner-12-03-2025-riverside/
LOCATION:Palenque\, 3737 Main St #100\, Riverside\, CA\, 92501\, United States
CATEGORIES:HFSC Snowflake Dinner,Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/10/SnowflakeGrahic_WebsiteThumbnail.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251202T180000
DTEND;TZID=America/Los_Angeles:20251202T200000
DTSTAMP:20260525T165834
CREATED:20251105T184949Z
LAST-MODIFIED:20251106T183716Z
UID:10000309-1764698400-1764705600@hemosocal.org
SUMMARY:Snowflake Dinner 12/02/2025 - Santa Barbara
DESCRIPTION:PAIN MATTERS\nPain can affect everyday life for people with hemophilia. \nLean about pain management options and tools to help talk about pain with health care providers. \nThank you to Novo Nordisk for your sponsorship! \nGift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!
URL:https://hemosocal.org/event/snowflake-dinner-12-02-2025-santa-barbara/
LOCATION:Harry’s Plaza Cafe\, 3313 State St\, Santa Barbara\, CA\, 93105\, United States
CATEGORIES:HFSC Snowflake Dinner,Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/10/SnowflakeGrahic_WebsiteThumbnail.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251116T093000
DTEND;TZID=America/Los_Angeles:20251116T140000
DTSTAMP:20260525T165834
CREATED:20250530T211634Z
LAST-MODIFIED:20251027T161625Z
UID:10000303-1763285400-1763301600@hemosocal.org
SUMMARY:HFSC's 17th Annual Unite for Bleeding Disorders Walk & Health Fair
DESCRIPTION:Each year\, the Hemophilia Foundation of Southern California hosts an annual Walk to raise crucial funds in support of our mission to “improve the quality of life and build community for those living with inherited bleeding disorders in Southern California.” \n100% of all individual donations raised go directly to HFSC’s services and programs.\nPlease consider starting a team\, joining an existing team\, or making a donation\, in support of:\n\nAdvocacy and Access to Care\nEducational and Support Programs\nEmergency Financial Assistance\nCamp Blood Brothers & Sisters\nScholarships\nResearch\n\nAny amount you raise will make a huge difference and will help us continue to assist\, advocate\, and serve those living with bleeding disorders in Southern California.\n\nCada año\, la Fundación de Hemofilia del Sur de California organiza una Caminata anual para recaudar fondos cruciales en apoyo de nuestra misión de “mejorar la calidad de vida y construir una comunidad para quienes viven con trastornos de la coagulación hereditarios en el sur de California”. El 100% de todas las donaciones individuales recaudadas van directamente a los servicios y programas de HFSC.\nConsidere comenzar un equipo\, unirse a un equipo existente o hacer una donación\, en apoyo de la abogació y el acceso a la atención\, programas educativos y de apoyo\, investigación y el campamento de Camp Blood Brothers & Sisters. Cualquier cantidad que recaude marcará una gran diferencia y nos ayudará a continuar asistiendo\, abogando y sirviendo a las personas que viven con trastornos hemorrágicos en el sur de California.
URL:https://hemosocal.org/event/hfscs-17th-annual-unite-for-bleeding-disorders-walk-health-fair/
LOCATION:Oak Canyon Park\, 5305 Santiago Cyn Rd\, Silverado\, CA\, 92676\, United States
CATEGORIES:Unite for Bleeding Disorders Walk
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/05/Walk-Flyer-10-16-25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251008T180000
DTEND;TZID=America/Los_Angeles:20251008T200000
DTSTAMP:20260525T165834
CREATED:20250912T203630Z
LAST-MODIFIED:20250930T224551Z
UID:10000307-1759946400-1759953600@hemosocal.org
SUMMARY:Community Dinner - Westlake Village - 10/8/2025
DESCRIPTION:Shared Decision Making\nShared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team\, discuss therapy considerations\, and find quality sources of information.\nThank you to Pfizer for your sponsorship!
URL:https://hemosocal.org/event/community-dinner-westlake-village-10-8-2025/
LOCATION:Marmalade Cafe\, 140 Promenade Way\, Westlake Village\, 91362\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250924T180000
DTEND;TZID=America/Los_Angeles:20250924T200000
DTSTAMP:20260525T165834
CREATED:20250805T222105Z
LAST-MODIFIED:20250805T222105Z
UID:10000306-1758736800-1758744000@hemosocal.org
SUMMARY:Dinner - Costa Mesa
DESCRIPTION:Please join us for an educational dinner\, “It’s a Feeling. If you Know You Know\,” with Mark Siy (Genentech ACM) and Patient Ambassador\, Louis.\nThank you to Genentech for your sponsorship!
URL:https://hemosocal.org/event/dinner-costa-mesa/
LOCATION:Maggiano’s Little Italy\, 3333 Bristol St\, Costa Mesa\, CA\, 92626\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250920T153000
DTEND;TZID=America/Los_Angeles:20250920T183000
DTSTAMP:20260525T165834
CREATED:20250806T220548Z
LAST-MODIFIED:20250806T220548Z
UID:10000305-1758382200-1758393000@hemosocal.org
SUMMARY:Men's Retreat 2025
DESCRIPTION:Join fellow community members for engaging educational discussions\, impactful presentations from expert speakers\, and dedicated time to connect with event sponsors who support the bleeding disorders community.\nWhether you’re a patient\, caregiver\, or advocate\, this retreat is for you.\nAGENDA\n3:30PM – Registration Opens\n4:00PM – 5:30PM – Welcome and Industry Booths Open\n5:30PM – 6:30PM – Dinner and Presentation\n6:30PM – 6:45PM – Group Photo/End of Event\n*Please join us for an optional outing to a Los Angeles Galaxy v FC Cincinnati game at Dignity Health Sports Park. Kickoff at 7:30PM.\nThis special event is designed for all men (and those who identify as men) and male teens with bleeding disorders as well as male spouses\, partners\, caregivers\, and parents to those with bleeding disorders. Children under age 18 must be accompanied by an adult at all times.
URL:https://hemosocal.org/event/mens-retreat-2025/
LOCATION:Socal Vibes Co.\, 17812 Main St\, Carson\, CA\, 90248\, United States
CATEGORIES:BRO Gathering
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2025/08/2025-Mens-Retreat-Soccer-Lowestest-Res.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250905T150000
DTEND;TZID=America/Los_Angeles:20250907T100000
DTSTAMP:20260525T165834
CREATED:20241205T172118Z
LAST-MODIFIED:20250801T162454Z
UID:10000286-1757084400-1757239200@hemosocal.org
SUMMARY:Familia de Sangre 2025
DESCRIPTION:Únase a nosotros en la mayor conferencia de trastornos hemorrágicos de habla hispana del país. ¡Más detalles próximamente!\nJoin us for the largest Spanish-speaking bleeding disorders conference in the country. 
URL:https://hemosocal.org/event/reserva-la-fecha-save-the-date-familia-de-sangre-2025/
LOCATION:Anaheim Marriott\, 700 W Convention Way\, Anaheim\, CA\, 92802\, United States
CATEGORIES:Familia de Sangre
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/01/FDSLogo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250821
DTEND;VALUE=DATE:20250824
DTSTAMP:20260525T165834
CREATED:20241211T182445Z
LAST-MODIFIED:20250530T194722Z
UID:10000290-1755734400-1755993599@hemosocal.org
SUMMARY:NBDF Bleeding Disorders Conference
DESCRIPTION:Join the National Bleeding Disorders Foundation’s premier event dedicated to the bleeding disorders community. \nThe National Bleeding Disorders Foundation’s 77th annual Bleeding Disorders Conference will take place from August 21-23\, 2025. \nWe hope you join us in Aurora\, Colorado for our premiere three-day event designed to connect\, educate\, and empower those in the Bleeding Disorders community. \nWe offer a program full of rich educational sessions\, engaging networking opportunities\, and a vibrant exhibit hall showcasing the latest advancements in research and patient care. \nAurora’s stunning scenery and our family-friendly venue will make this an unforgettable experience for both professional development and relaxation. Don’t miss out – register today! \n 
URL:https://hemosocal.org/event/save-the-date-nbdf-bleeding-disorders-conference/
LOCATION:Aurora-Denver\, Colorado
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/NBDF-BDC-Website-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250813T180000
DTEND;TZID=America/Los_Angeles:20250813T200000
DTSTAMP:20260525T165834
CREATED:20250620T211737Z
LAST-MODIFIED:20250716T170637Z
UID:10000304-1755108000-1755115200@hemosocal.org
SUMMARY:Dinner - Montebello
DESCRIPTION:Please join us for an educational dinner at Salvatore Restaurant in Montebello!\nHEMGENIX – Steps to Treatment\nThank you to CSL Behring for your sponsorship!
URL:https://hemosocal.org/event/dinner-montebello/
LOCATION:Salvatore Italian Restaurant\, 125 N 6th St\, Montebello\, CA\, 90640
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250802T093000
DTEND;TZID=America/Los_Angeles:20250802T120000
DTSTAMP:20260525T165834
CREATED:20250328T221128Z
LAST-MODIFIED:20250724T003118Z
UID:10000296-1754127000-1754136000@hemosocal.org
SUMMARY:Back to School - 11th Annual Educational Symposium - VIRTUAL
DESCRIPTION:At the Hemophilia Foundation of Southern California\, we believe that students with bleeding disorders should receive an education equal to their peers and be encouraged to maintain as normal a school life as possible. All our students are different. Some students with bleeding disorders may have no issues with school throughout their lifespan while others may need much more assistance\, and varying degrees of accommodations and modifications. To this end\, we believe communication with the school about your child’s condition and communicating in writing are two strategies that can work to create a successful academic career.\nGet equipped by learning about 504 Plans\, IEPs\, and IHPs and how they may be helpful for your student with a bleeding disorder.\nBACK TO SCHOOL EVENT UPDATE (7/15/2025): In an effort to reach more families across our community and provide greater access to educational resources\, we’ve made the decision to shift this year’s Back to School event to a virtual format.\nThis change allows us to connect with more families within our 9 counties\, including those who may not have been able to travel.\nA gift card for backpack/school supplies will be provided to all students who register (TK-College\, ages 0-25).\nStay tuned for the updated agenda. We can’t wait to “see” you online and support you as you prepare for a strong and successful school year.\n~The HFSC Team\nACTUALIZACIÓN DEL EVENTO DE VUELTA AL COLE: En un esfuerzo por llegar a más familias en toda nuestra comunidad y proporcionar un mayor acceso a los recursos educativos\, hemos tomado la decisión de cambiar el evento de regreso a la escuela de este año a un formato virtual. Este cambio nos permite conectar con más familias dentro de nuestros 9 condados\, incluyendo aquellos que no han podido viajar. Una tarjeta de regalo para la mochila / útiles escolares se proporcionará a todos los estudiantes que se inscriban (Del jardín de infancia a la Universidad\, edades 0-25). Manténgase en sintonía para la agenda final. \nNo podemos esperar a «verte» en línea y apoyarte mientras te preparas para un año escolar fuerte y exitoso.\n~El equipo de HFSC\nJoin us for our Virtual Back to School Educational Symposium! \nAgenda \n9:30AM: Welcome\, Sponsor Welcome\n9:55AM: Presentation on 504\, Individualized Education Plan\, and Individualized Healthcare Plan as well as transition (English with Spanish translation option)\n10:35AM: Panel Discussion \n11:35AM: Virtual Sponsor Booths – 5 minute presentations\n12:00PM: Event ends\n~~~~~~~~~ \nÚnase con nosotros para nuestra Back to School 2025 en linea. \nAgenda \n9:30AM: Bienvenida\, bienvenida de los patrocinadores\n9:55AM: Presentación sobre 504\, Plan de Educación Individualizado\, y Plan de Salud Individualizado\, así como la transición (Inglés con opción de traducción al español)\n10:35AM: Panel de Discusión\n11:35AM: Cabinas Virtuales de Patrocinadores – Presentaciones de 5 minutos\n12:00PM – Fin del evento\n \nBackpack/supply gift cards will be distributed after the event to the primary registrant’s email. Please ensure all students attending are registered as gift cards will be based on your registration form. Please allow 2 weeks after the event to receive your backpack/supply card. Attendees must be logged on by 9:45AM and remain through the end of the event to be eligible for backpack/supply gift card.~~~~~~~~~~~~~~~~~~~ \nLas tarjetas regalo para mochilas/suministros se distribuirán después del evento al correo electrónico del inscrito principal. Por favor\, asegúrese de que todos los estudiantes que asisten están registrados como tarjetas de regalo se basará en su formulario de inscripción. Por favor\, espere 2 semanas después del evento para recibir su mochila / tarjeta de suministro. Los asistentes deben estar registrados a las 9:45 de la mañana y permanecer hasta el final del evento para poder optar a la mochila/tarjeta regalo.
URL:https://hemosocal.org/event/back-to-school-11th-annual-educational-symposium/
LOCATION:CA
CATEGORIES:Back to School
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/03/Back-To-School-2025-Website-Graphic_lowres.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250719T110000
DTEND;TZID=America/Los_Angeles:20250724T110000
DTSTAMP:20260525T165834
CREATED:20241210T201026Z
LAST-MODIFIED:20250609T155316Z
UID:10000288-1752922800-1753354800@hemosocal.org
SUMMARY:Camp Blood Brothers and Sisters at The Painted Turtle
DESCRIPTION:Join us for our 46th year of Camp Blood Brothers and Sisters! \nIn partnership with and hosted by The Painted Turtle\, our summer camp provides a safe and exciting camp experience for children ages 7-16 with a rare genetic blood disorder. Teens aged 17-18 are also welcome to attend camp as Leaders in Training (LIT). In each session\, between morning horseback rides and evening campfires\, children become artists\, swimmers\, athletes\, canoe paddlers\, stargazers\, actors on stage\, adventurers\, and\, most importantly\, friends. Our campers form a unique community\, living in cabins alongside other kids coping with similar medical conditions. With the support of both counselors and cabin mates\, kids discover they are capable of doing things they never dreamed possible. Our campers experience a magical transformation\, as they sing and dance\, paint\, play\, and develop important friendships. Life outside of camp may mean a series of medical procedures and hospital stays\, but camp is an opportunity for kids to just be kids. With the support of peers\, counselors\, and on-site medical staff\, campers are free to be themselves.\nFor more information and to apply: www.thepaintedturtle.org/apply\nApplications will be open on The Painted Turtle’s site on January 1\, 2025\, and will close for our session on July 9\, 2025.\nPlease start the application process early and reach out to our Outreach Coordinator\, Omar Torres (omar@hemosocal.org) if you need assistance navigating the application process.\nApplication Requirements:\n\n\nClearance from Camper’s Medical Provider\nCopy of most recent Progress Notes\nImmunization Record\nCamper Health History\nMedications\nAllergies (if any)\n2025 TPT Policy Forms (available through the CampSite database)
URL:https://hemosocal.org/event/save-the-date-camp-blood-brothers-and-sisters-at-the-painted-turtle/
LOCATION:The Painted Turtle\, 17000 Elizabeth Lake Road\, Lake Hughes\, CA\, 93532\, United States
CATEGORIES:Camp Blood Brothers and Sisters
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Camp-Blood-Brothers-and-Sisters-Thumbnail-6.9.25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250712T100000
DTEND;TZID=America/Los_Angeles:20250712T150000
DTSTAMP:20260525T165834
CREATED:20250530T204836Z
LAST-MODIFIED:20250611T232925Z
UID:10000302-1752314400-1752332400@hemosocal.org
SUMMARY:von Willebrand Disease (VWD) Educational Forum
DESCRIPTION:Please join us for our VWD Educational Forum on July 12!\nAgenda (Subject to Change): \n10:00AM  Registration \n10:30AM  VWD A to Z  (Session will be offered in English and Spanish concurrently. Las sesiones se ofrecerán en inglés y español simultáneamente.) \n11:30AM  Community Connection and Break \n12:00PM  Lunch \n1:00PM  Beyond Bleeding Disorders Workbook (Session will be offered in English and Spanish concurrently. Las sesiones se ofrecerán en inglés y español simultáneamente.) \n2:00PM Q&A Session \n2:45PM Closing Remarks  \n \n 
URL:https://hemosocal.org/event/von-willebrand-disease-vwd-educational-forum/
LOCATION:Brookside Country Club\, 1133 Rosemont Ave\, Pasadena\, CA\, 91103\, United States
CATEGORIES:von Willebrand Disease (vWD) Event
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/05/VWD-Educational-Forum-Square-06.11.25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250628T093000
DTEND;TZID=America/Los_Angeles:20250628T150000
DTSTAMP:20260525T165834
CREATED:20250424T205209Z
LAST-MODIFIED:20250609T195703Z
UID:10000301-1751103000-1751122800@hemosocal.org
SUMMARY:Family Retreat 2025
DESCRIPTION:Join us for our Family Retreat 2025 in Silverado! \nAgenda \n9:30AM – Industry Booths\, Registration\, Welcome\n10:30AM – Educational Sessions\n12:30PM – Lunch\, Industry Booths\n1:30PM – Family Activities\n3:00PM – Event Ends\n~~~~~~~~~ \nÚnase con nosotros para nuestra Retiro Familiar 2025 en Silverado. \nAgenda \n9:30AM – Apertura de stands\, inscripción\n10:30AM – Sesión General\n12:30PM – Almuerzo\n1:30PM – Actividades Familiares\n3:00PM – Fin del evento
URL:https://hemosocal.org/event/save-the-date-family-retreat-2025/
LOCATION:Lakeview Park\, 5305 Santiago Canyon Rd\, Silverado\, CA\, 92676\, United States
CATEGORIES:Family Retreat
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/Family-Retreat-25-English-Website-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250521T180000
DTEND;TZID=America/Los_Angeles:20250521T200000
DTSTAMP:20260525T165834
CREATED:20250404T005249Z
LAST-MODIFIED:20250410T234139Z
UID:10000300-1747850400-1747857600@hemosocal.org
SUMMARY:Dinner
DESCRIPTION:Please join us for an educational dinner\, “Experience Gene Therapy for Hemophilia – One Patient’s Journey: Treatment Decision\, Infusion and Beyond\,” with Billy Duckworth (BioMarin) and Clinical Trial Participant\, Andrew S.\nLearn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox)\, for adults with severe hemophilia A.\nThank you to BioMarin for your sponsorship!
URL:https://hemosocal.org/event/dinner/
LOCATION:Gaucho Grill\, 5980 Orangethorpe Ave\, Buena Park\, CA\, 90620
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250515T180000
DTEND;TZID=America/Los_Angeles:20250515T200000
DTSTAMP:20260525T165834
CREATED:20250404T005306Z
LAST-MODIFIED:20250423T223853Z
UID:10000299-1747332000-1747339200@hemosocal.org
SUMMARY:Dinner
DESCRIPTION:Please join us for an educational dinner\, “CelebrVIIIte ALTUVIIIO.”\nThank you to Sanofi for your sponsorship!\nParking: Please note that Public parking is owned and managed by Shoreline Village and available at a discounted rate with Shoreline Village validation.\nWith Validation: $2.00 per hour for first 2 hours\, $2.00 every additional 20 minutes\nWithout Validation: $2.00 every 20 minutes\nLost Ticket: $24.00
URL:https://hemosocal.org/event/dinner-2/
LOCATION:Parkers’ Lighthouse\, 435 Shoreline Drive #1\, Long Beach\, CA\, 90802\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250510T120000
DTEND;TZID=America/Los_Angeles:20250510T140000
DTSTAMP:20260525T165834
CREATED:20250403T232923Z
LAST-MODIFIED:20250403T234606Z
UID:10000297-1746878400-1746885600@hemosocal.org
SUMMARY:BRO Lunch
DESCRIPTION:Please join us for an educational lunch\, where we will hear from patient speaker\, Daniel\, on “My Kovaltry® Conversation | Kovaltry® Antihemophilic Factor (Recombinant).”\nThis event is for men and those who identify as men age 18+ with a bleeding disorder\, spouse/partner to someone with a bleeding disorder\, or parent/caregiver to someone with a bleeding disorder\, or teens who are male or identify as male. Teens must be accompanied by a male adult.\nThank you to Bayer for your sponsorship!
URL:https://hemosocal.org/event/bro-lunch/
LOCATION:Sycamore Inn\, 8318 Foothill Blvd\, Rancho Cucamonga\, CA\, 91730
CATEGORIES:BRO Gathering
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/BRO_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250503T083000
DTEND;TZID=America/Los_Angeles:20250503T143000
DTSTAMP:20260525T165834
CREATED:20241205T175856Z
LAST-MODIFIED:20250403T183012Z
UID:10000285-1746261000-1746282600@hemosocal.org
SUMMARY:Family Information Day 2025
DESCRIPTION:Please join us for HFSC’s annual event where the community comes together to learn about updates and strategic goals of the foundation and exciting issues that span medical\, psychological\, and physical well-being. Come and welcome new community members and see old friends. HFSC also presents its annual awards and recognizes its prolific scholarship winners.\nWe hope to see you there!\nAgenda \n8:30AM – Booths Open\, Registration\, Breakfast\n9:30AM – Childcare Check-In (ages 0-11\, must pre-register)\n10:00AM – General Session\n12:30PM – Lunch\n1:00PM – HFSC Highlights\n2:00PM – Booths Open\, Knott’s Ticket Distribution\, Childcare Pick-Up\n2:30PM – Event Ends\n \n~~~~~~~~~ \nÚnase con nosotros para nuestra FID 2025 en Buena Park. \nAgenda \n8:30AM – Apertura de stands\, inscripción\, desayuno\n9:30AM: Registro de guardería (de 0 a 11 años\, debe registrarse previamente)\n10:00AM – Sesión General\n12:30PM. – Almuerzo\n1:00PM – Lo más destacado del HFSC\n2:00PM – Apertura de stands\, distribución de boletos de Knott’s\, Recogida de cuidado infantil\n2:30PM – Fin del evento\n 
URL:https://hemosocal.org/event/save-the-date-family-information-day-2025/
LOCATION:Knott’s Hotel\, 7675 Crescent Ave\, Buena Park\, CA\, 90620\, United States
CATEGORIES:Family Information Day/Annual Meeting
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/FID_WebsiteGraphic_Sponsor.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250501T170000
DTEND;TZID=America/Los_Angeles:20250501T190000
DTSTAMP:20260525T165834
CREATED:20250404T005342Z
LAST-MODIFIED:20250422T153834Z
UID:10000298-1746118800-1746126000@hemosocal.org
SUMMARY:Dinner - Bakersfield
DESCRIPTION:“Qfitlia” – Join Sanofi for a dinner to explore the treatment of hemophilia A and B\, with or without inhibitors\, and to discuss how shared decision making with your healthcare provider can improve your hemophilia management experience.\nThank you to Sanofi for your sponsorship!
URL:https://hemosocal.org/event/dinner-bakersfield/
LOCATION:Mama Tosca’s Italian Restaurant\, 9000 Ming Ave Ste K2K3\, Bakersfield\, CA\, 93311
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250417T180000
DTEND;TZID=America/Los_Angeles:20250417T200000
DTSTAMP:20260525T165834
CREATED:20250228T163215Z
LAST-MODIFIED:20250403T234125Z
UID:10000295-1744912800-1744920000@hemosocal.org
SUMMARY:World Hemophilia Day 2025 - San Bernardino County Celebration
DESCRIPTION:Join us for a celebration of our unbreakable bond.\nThe bleeding disorders community may be tied together by a diagnosis\, but the connections go even deeper. Our 2025 One Family program celebrates the bonds that come from living with hemophilia—with people at home\, on care teams\, around the world—and how no one is ever alone. RSVP today to join us for hands-on activities like:\n• Beaded bracelet making\n• Instant camera selfie stations\n• DIY photo frames\n• Photo prop crafts\n• Conversations and connections\nIt’s all happening on World Hemophilia Day.\nThank you to Sanofi for your sponsorship!
URL:https://hemosocal.org/event/world-hemophilia-day-2025-san-bernardino-celebration/
LOCATION:Napoli Italian Restaurant\, 24960 Redlands Blvd\, Loma Linda\, CA\, 92354
CATEGORIES:World Hemophilia Day
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/WHD2025-logo-vertical.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250412T100000
DTEND;TZID=America/Los_Angeles:20250412T140000
DTSTAMP:20260525T165834
CREATED:20241211T184551Z
LAST-MODIFIED:20250403T234027Z
UID:10000291-1744452000-1744466400@hemosocal.org
SUMMARY:World Hemophilia Day 2025 - Pasadena Celebration
DESCRIPTION:Join us for a celebration of our unbreakable bond.\nThe bleeding disorders community may be tied together by a diagnosis\, but the connections go even deeper. Our 2025 One Family program celebrates the bonds that come from living with hemophilia—with people at home\, on care teams\, around the world—and how no one is ever alone. RSVP today to join us for hands-on activities like:\n• Beaded bracelet making\n• Instant camera selfie stations\n• DIY photo frames\n• Photo prop crafts\n• Conversations and connections\nIt’s all happening on World Hemophilia Day.\nThank you to Sanofi for your sponsorship!
URL:https://hemosocal.org/event/save-the-date-world-hemophilia-day-2025/
LOCATION:Brookside Country Club\, 1133 Rosemont Ave\, Pasadena\, CA\, 91103\, United States
CATEGORIES:World Hemophilia Day
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/WHD2025-logo-vertical.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250327T080000
DTEND;TZID=America/Los_Angeles:20250330T170000
DTSTAMP:20260525T165834
CREATED:20241211T175644Z
LAST-MODIFIED:20241211T181038Z
UID:10000289-1743062400-1743354000@hemosocal.org
SUMMARY:SAVE THE DATE: HFA Symposium 2025
DESCRIPTION:HFA Symposium 2025 is coming to San Diego in 2025!\nConnect with your community at one of America’s most beautiful locations!\n\nValuable educational sessions for severes\, milds\, rares\, and more.\nRap sessions and information for men\, women\, parents and Spanish-speaking community members.\nConnect with friends\, who are like family\, and end with a fun Final Night Event\n\nTo register for HFA Symposium\, please go to HFA’s registration page: https://www.hfasymposium.org/\nHFA is Offering Room Scholarships for HFSC Community Members\nHFA is offering room scholarships for Southern California bleeding disorders community members. The scholarship is for one room\, for up to 3 nights.\nThe scholarship does not include the registration fee ($55/adult\, $20/child under 18). This scholarship is offered to make it easier for as many families as possible who live in the host state to attend. Eligibility criteria below: \n\nMembers of the bleeding disorders community that live in California and can drive to Symposium. Must also be coming as a general attendee.\nNot eligible at this time: Exhibitors\, medical personnel\, industry professionals\, and nonprofit staff.\nThis scholarship is for one (1) hotel room\, for up to three (3) nights. Any additional nights or rooms will be on your own.\nMust live a minimum of 45 minutes or more away from the Sheraton San Diego & Marina.\nA maximum of 4 individuals per scholarship (One hotel room per family).\nThis scholarship DOES NOT cover the registration fee(s).\nIf your scholarship is not granted and you are unable to attend\, your registration payment will be refunded (up until March 14\, 2025).\nPlease submit your interest in the room scholarship here by December 18\, 2024: https://www.cognitoforms.com/HemophiliaFoundationOfSouthernCalifornia/_2025HFASymposiumHotelScholarship
URL:https://hemosocal.org/event/14257/
LOCATION:Sheraton San Diego Hotel & Marina\, 1380 Harbor Island Dr\, San Diego\, CA\, 92101\, United States
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/HFA-Symposium-2025-Website-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250322T100000
DTEND;TZID=America/Los_Angeles:20250323T110000
DTSTAMP:20260525T165834
CREATED:20241205T005916Z
LAST-MODIFIED:20250121T191202Z
UID:10000284-1742637600-1742727600@hemosocal.org
SUMMARY:Women's Retreat 2025
DESCRIPTION:Women’s bleeding issues continue to present specific challenges with diagnosis\, treatment and access.  \nHeavy menstrual bleeding can lead to anemia (low red blood cell count/low blood iron levels)\, with symptoms of fatigue\, paleness\, lack of energy and shortness of breath.\nMany women with bleeding disorders are also caregivers of a child with a bleeding disorder and self-care can be challenging.\nThis retreat presents an opportunity to carve out time for yourself\, laugh with your blood sisters and learn how to advocate for your own treatment.\nOpen to women\, those who identify as women\, and teen girls ages 11+.\nA limited number of scholarships were available for the 2025 Women’s Retreat to cover registration fees. Application deadline has passed and were due January 17\, 2025.
URL:https://hemosocal.org/event/save-the-date-womens-retreat-2025/
LOCATION:Sheraton Grand Los Angeles\, 711 S Hope St\, CA\, 90017\, United States
CATEGORIES:Women's Retreat
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Website-Graphic-Womens-Retreat-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250315T100000
DTEND;TZID=America/Los_Angeles:20250315T140000
DTSTAMP:20260525T165834
CREATED:20241227T202242Z
LAST-MODIFIED:20250207T185811Z
UID:10000293-1742032800-1742047200@hemosocal.org
SUMMARY:New Families Meet & Greet
DESCRIPTION:We invite you to learn more about the Hemophilia Foundation of Southern California\, explore bleeding disorders\, and connect with your community.\nOpen to families who are new to Southern California or have a newly diagnosed family member.\nPlease reach out to Omar Torres\, HFSC Outreach Coordinator\, for registration link at omar@hemosocal.org or 626-765-6656.\nIf your family is interested in being a “Mentor Family” to help welcome our new community members\, please reach out to Omar.\n 
URL:https://hemosocal.org/event/save-the-date-new-families-meet-greet/
LOCATION:Los Angeles Zoo\, 5333 Zoo Dr\, Los Angeles\, CA\, 90027\, United States
CATEGORIES:New Families Meet & Greet
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/2025-HFSC-New-Families-Meet-Greet-Instagram-Post.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250313
DTEND;VALUE=DATE:20250314
DTSTAMP:20260525T165834
CREATED:20250212T163310Z
LAST-MODIFIED:20250212T163310Z
UID:10000294-1741824000-1741910399@hemosocal.org
SUMMARY:HFSC + Panda Express Virtual Community Fundraiser
DESCRIPTION:Panda Express will donate 28% of sales to the Hemophilia Foundation of Southern California in support of those living with and who are affected by inherited bleeding disorders in Southern California!\nWHEN: Thursday\, March 13\, 2025\nWHERE: Available at Panda Express Locations nationwide: www.pandaexpress.com\nHOW: Online orders ONLY – Apply code 9002092 in the Fundraiser Code box during online checkout at www.pandaexpress.com or via Panda Express App. 
URL:https://hemosocal.org/event/hfsc-panda-express-virtual-community-fundraiser/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/02/PandaExpress_March132025_CommFundraiser_WebsiteGraphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250305
DTEND;VALUE=DATE:20250308
DTSTAMP:20260525T165834
CREATED:20241210T182318Z
LAST-MODIFIED:20241210T182318Z
UID:10000287-1741132800-1741391999@hemosocal.org
SUMMARY:NBDF's Washington Days
DESCRIPTION:We want to share an important update about Washington Days from the National Bleeding Disorders Foundation (NBDF). \nNBDF has announced changes to their Washington Days registration process including a shortened deadline and limited spaces for each state. \nThe changes are as follows:\n\nAnyone living in the 9 counties (Orange\, Riverside\, San Bernardino\, Los Angeles\, Ventura\, Santa Barbara\, San Luis Obispo\, Kern\, & Inyo) who is interested in attending this event must submit an application to HFSC\, by clicking below.\nThis includes all Southern California community members who are attending on their own.\nCalifornia has been given 20 spots by NBDF. This includes the 4 bleeding disorder organizations (HASDC\, HFSC\, CCBDF\, HFNC) and HCC.\n\nDeadline to register is December 18\, 2024.\n\n\nAs directed by NBDF\, priority for registration will be given to constituents who (that are not employed or compensated by industry) have actively participated in previous advocacy initiatives. We encourage you to reach out promptly if you’d like to take part in this impactful event. \nIf you are interested in attending Washington Days\, please complete the application in the link below. \nFor questions contact Rigo Garcia at rigo@hemosocal.org or 626-765-6656.
URL:https://hemosocal.org/event/nbdfs-washington-days/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Washington-Days-Website-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250301T090000
DTEND;TZID=America/Los_Angeles:20250301T130000
DTSTAMP:20260525T165834
CREATED:20241204T213929Z
LAST-MODIFIED:20250208T002414Z
UID:10000283-1740819600-1740834000@hemosocal.org
SUMMARY:2025 Industry Forum
DESCRIPTION:2025 INDUSTRY FORUM \nThe purpose of Industry Forum is to present information on new and pipeline products that treat rare bleeding disorders.\nOften the presentations are given directly by pharmaceutical companies and may include investigational therapies such as gene therapy.\nHFSC’s Medical Advisor is always present at this conference to answer any medical questions including those regarding clinical trials.\nIt is important to stay informed about new therapies that arise\, and we hope to see you there!\nSCHEDULE:\n9:00AM – Registration\, Industry Booth Time  (Creveling Room)\n10:00AM – Youth Activity check-in (Circadian Room)\n10:30AM – 12:30PM – Breakout Sessions\n12:30PM-1:00PM – Boxed Lunch To Go\nYouth Activities with The Painted Turtle for ages 5-12 will be available from 10:00AM-12:30PM in Circadian Room. Please promptly collect your children when the breakout sessions end. 
URL:https://hemosocal.org/event/save-the-date-2025-industry-forum/
LOCATION:Pasadena City College\, 1570 East Colorado Boulevard\, Pasadena\, CA\, 91106\, United States
CATEGORIES:Industry Forum
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Website-Graphic-Ind-Forum-25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250301
DTSTAMP:20260525T165834
CREATED:20241211T190544Z
LAST-MODIFIED:20241211T191155Z
UID:10000292-1740700800-1740787199@hemosocal.org
SUMMARY:SAVE THE DATE: Rare Disease Day 2025
DESCRIPTION:Rare Disease Day is the official international awareness-raising campaign for rare diseases observed annually on the last day of February.\nWith over 300 million people globally living with a rare disease\, we join hands across borders and amidst the 6000+ rare diseases to advocate for equitable access to diagnosis\, treatment\, care\, and social opportunities. Our key message for Rare Disease Day 2025 is “More than you can imagine!”
URL:https://hemosocal.org/event/save-the-date-rare-disease-day-2025/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Rare-Disease-Day-2025-Website-Graphic.png
END:VEVENT
END:VCALENDAR