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X-WR-CALDESC:Events for Hemophilia Foundation of Southern California
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DTSTART;TZID=America/Los_Angeles:20260226T180000
DTEND;TZID=America/Los_Angeles:20260226T200000
DTSTAMP:20260525T161550
CREATED:20260105T190903Z
LAST-MODIFIED:20260105T190903Z
UID:10000324-1772128800-1772136000@hemosocal.org
SUMMARY:HFSC Cena comunitaria - HOLA PLÁTICA: Involúcrense: divulgación y defensa de los trastornos sanguíneos
DESCRIPTION:Información sobre el evento \nTodos tienen una historia para contar. Es importante que personas reales compartan sus experiencias con el finde abogar por las personas de la comunidad con trastornos sanguíneos y por ellos mismos. Ganen confianza\,mejoren las habilidades de comunicación y hagan conexiones. \nNota:La sesión se impartirá en español. \nPRESENTADORA: Annabelle Garcia \n¡Gracias a Takeda por su patrocinio! \n\nEVENT INFORMATION \nEveryone has a story to tell. It is important for real people to share their experiences in order to advocate for people in the community with blood disorders and for themselves. Gain confidence\, improve communication skills\, and make connections. \nSPEAKER: Annabelle Garcia \nNote: Session will be presented in Spanish. \nThank you to Takeda for your sponsorship!
URL:https://hemosocal.org/event/hfsc-cena-comunitaria-hola-platica-involucrense-divulgacion-y-defensa-de-los-trastornos-sanguineos/
LOCATION:Luminarias\, 3500 W Ramona Blvd\, Monterey Park\, CA\, 91754\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260225T190000
DTEND;TZID=America/Los_Angeles:20260225T201500
DTSTAMP:20260525T161550
CREATED:20260110T041856Z
LAST-MODIFIED:20260113T012514Z
UID:10000325-1772046000-1772050500@hemosocal.org
SUMMARY:HFSC Community Webinar
DESCRIPTION:WEBINAR INFORMATION \n“Discover a New Investigational Approach to VWD Treatment” \nStar Therapeutics’ is investigating a once-monthly subcutaneous prophylactic treatment for VWD called VGA039. \nIf you or someone in your family has any type of VWD\, please join us for an engaging session as Dr. Laura Guido\, Head of Medical Affairs at Star Therapeutics\, shares how VGA039 works\, its clinical development path\, and early trial results. Dr. Guido will also discuss our VIVID Clinical Trials and how to explore eligibility and participate. Bring your competitive spirit as you learn more through our interactive trivia! \nABOUT THE SPEAKER:  Laura Guido PharmD\, MBA\, BCPS\, Executive Director\, Medical Affairs at Star Therapeutics. Dr. Guido is a clinical pharmacist and leads Medical Affairs for VGA039 at Star Therapeutics. Previously\, she supported clinical development for hemophilia A gene therapy trials at BioMarin and spent numerous years in anticoagulation at Boehringer Ingelheim. Prior to joining industry\, Dr. Guido was a clinical pharmacist. \nTHANK YOU TO STAR THERAPEUTICS FOR YOUR SPONSORSHIP! \nNote: Session will be presented in English. Zoom link will be sent out prior to the meeting.
URL:https://hemosocal.org/event/hfsc-community-webinar/
LOCATION:CA
CATEGORIES:HFSC Community Webinar
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2026/01/VWD-Webinar-2.25.26-Website-Graphic-v2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260131T100000
DTEND;TZID=America/Los_Angeles:20260131T123000
DTSTAMP:20260525T161550
CREATED:20251212T194056Z
LAST-MODIFIED:20260129T191849Z
UID:10000317-1769853600-1769862600@hemosocal.org
SUMMARY:Industry Forum - 2026
DESCRIPTION:UPDATE: Industry Forum Goes Virtual\nHFSC’s Industry Forum is moving to an ONLINE ONLY EVENT making it easier for all to attend.\nAfter thoughtful consideration of our community and the current environment\, our Board of Directors has decided to transition the Industry Forum from an in-person event to a virtual format. This change will allow us to broaden access and participation while continuing to deliver high-quality educational content to our community.\nThis virtual educational event will highlight new and emerging treatments for Hemophilia A\, Hemophilia B\, and von Willebrand disease\, with insights directly from medical & pharmaceutical experts.\nStay informed about advances in care and what’s on the horizon without the need to travel.\nEvery household that registers and attends will receive a $25 gift card.\n*Note: Zoom link will be emailed prior to event. \nMust be logged on by 10AM and an HFSC member to be eligible for gift card. \nAgenda: \n10:00AM – Welcome \n10:30AM – Breakout Sessions \n12:30PM – Event Ends \nThank you to our Platinum Sponsors! \n \nForo de la Industria 2026 – SE VUELVE VIRTUAL\nSE VUELVE VIRTUAL Sábado\, 31 de enero\nEl Foro de la Industria de HFSC se realizará como un EVENTO EXCLUSIVAMENTE EN LÍNEA\, lo que facilita la participación de toda nuestra comunidad.\nEste evento educativo virtual destacará tratamientos nuevos y emergentes para la Hemofilia A\, Hemofilia B y la enfermedad de von Willebrand\, con información directamente de expertos médicos y de la industria farmacéutica.\nManténgase informado sobre los avances en la atención y lo que está por venir\, sin necesidad de viajar. Las sesiones se ofrecerán en inglés y en español.\nCada hogar que se registre y asista recibirá una tarjeta de regalo de $25. Debe iniciar sesión antes de las 10:00 a. m. y ser miembro de HFSC para poder optar a la tarjeta regalo.\nAGENDA – ¡Inicie sesión antes de las 10:00 a. m.!\n10:00 a. m. – Bienvenida\n10:30 a. m. – Sesiones paralelas\n12:30 p. m. – Fin del evento
URL:https://hemosocal.org/event/industry-forum-2026/
LOCATION:CA
CATEGORIES:Industry Forum
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/12/Industry-Forum-2026-Virtual-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251211T180000
DTEND;TZID=America/Los_Angeles:20251211T200000
DTSTAMP:20260525T161550
CREATED:20251105T185425Z
LAST-MODIFIED:20251106T183910Z
UID:10000316-1765476000-1765483200@hemosocal.org
SUMMARY:Snowflake Dinner - 12/11/2025 - Rancho Cucamonga
DESCRIPTION:LET’S PLAY BLEEDING DISORDERS FAMILY FEUD!\nThank you to Octapharma for your sponsorship! \nGift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!
URL:https://hemosocal.org/event/snowflake-dinner-12-11-2025-rancho-cucamonga/
LOCATION:PV’s Prime Grill\, 10742 Foothill Blvd\, Rancho Cucamonga\, CA\, 91730\, United States
CATEGORIES:HFSC Snowflake Dinner,Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/10/SnowflakeGrahic_WebsiteThumbnail.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251210T180000
DTEND;TZID=America/Los_Angeles:20251210T200000
DTSTAMP:20260525T161550
CREATED:20251105T185404Z
LAST-MODIFIED:20251106T183544Z
UID:10000311-1765389600-1765396800@hemosocal.org
SUMMARY:Snowflake Dinner - 12/10/2025 - Bakersfield
DESCRIPTION:Family Connection \nBetter communication as a family living with hemophilia is possible. Topics covered in this overview include learning to manage care\, communication outside of the the immediate family\, use of social media\, and disclosure at work and school. Role play activities are integrated into the presentation to make it engaging. \nThank you to Pfizer for your sponsorship! \nGift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!
URL:https://hemosocal.org/event/snowflake-dinner-12-10-2025-bakersfield/
LOCATION:Hodel’s Country Dining\, 5917 Knudsen Dr\, Bakersfield\, CA\, 93308\, United States
CATEGORIES:HFSC Snowflake Dinner,Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/10/SnowflakeGrahic_WebsiteThumbnail.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251209T190000
DTEND;TZID=America/Los_Angeles:20251209T210000
DTSTAMP:20260525T161550
CREATED:20251105T185341Z
LAST-MODIFIED:20251106T183851Z
UID:10000312-1765306800-1765314000@hemosocal.org
SUMMARY:Snowflake Dinner - 12/09/2025 - Costa Mesa
DESCRIPTION:Art of Gratitude – Explore how practicing gratitude can support well-being for those with chronic conditions by creating a personal\, gratitude-inspired painting.\nThank you to Sanofi for your sponsorship! \nGift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!
URL:https://hemosocal.org/event/snowflake-dinner-12-09-2025-costa-mesa/
LOCATION:Maggiano’s Little Italy\, 3333 Bristol St\, Costa Mesa\, CA\, 92626\, United States
CATEGORIES:HFSC Snowflake Dinner,Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/10/SnowflakeGrahic_WebsiteThumbnail.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251209T180000
DTEND;TZID=America/Los_Angeles:20251209T200000
DTSTAMP:20260525T161550
CREATED:20251105T185132Z
LAST-MODIFIED:20251124T211957Z
UID:10000315-1765303200-1765310400@hemosocal.org
SUMMARY:Snowflake Dinner - 12/09/2025 - Culver City
DESCRIPTION:THIS DINNER IS SOLD OUT – Please email info@hemosocal.org to be added to the waitlist. Thanks!\nGAME ON\nSpeaker: Carter Anderson\nEmpowers young adults with hemophilia A to be accountable for their treatment\, stay healthy\, maintain insurance coverage\, and plan for college and a career afterward. \nThank you to Bayer for your sponsorship! \nGift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game! \nLocation will be announced soon!
URL:https://hemosocal.org/event/snowflake-dinner-12-09-2025-culver-city/
LOCATION:Carasau Ristorante\, 3918 Van Buren Pl\, Culver CIty\, CA\, 90232\, United States
CATEGORIES:HFSC Snowflake Dinner,Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/10/SnowflakeGrahic_WebsiteThumbnail.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251204T180000
DTEND;TZID=America/Los_Angeles:20251204T200000
DTSTAMP:20260525T161550
CREATED:20251105T185026Z
LAST-MODIFIED:20251106T183807Z
UID:10000314-1764871200-1764878400@hemosocal.org
SUMMARY:Snowflake Dinner - 12/04/2025 - Downey
DESCRIPTION:YOUR TIME TO THRIVE: HARNESS THE POWER OF JOY\nJoin us for an educational program for patients and caregivers about how to harness the power of Joy – a skill that can help attendees stay positive while navigating change. This program was developed in partnership with University of Pennsylvania Positive Psychology Center. \nThank you to Genentech for your sponsorship! \nGift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!
URL:https://hemosocal.org/event/snowflake-dinner-12-04-2025-downey/
LOCATION:The Chicken Koop\, 10000 Paramount Blvd\, Downey\, CA\, 90240\, United States
CATEGORIES:HFSC Snowflake Dinner,Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/10/SnowflakeGrahic_WebsiteThumbnail.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251203T180000
DTEND;TZID=America/Los_Angeles:20251203T200000
DTSTAMP:20260525T161550
CREATED:20251105T185004Z
LAST-MODIFIED:20251120T171946Z
UID:10000313-1764784800-1764792000@hemosocal.org
SUMMARY:Snowflake Dinner - 12/03/2025 - Riverside
DESCRIPTION:THIS DINNER IS SOLD OUT – Please email info@hemosocal.org to be added to the waitlist. Thanks!\n\nCREATING GOALS\, UNDERSTANDING THE SCIENCE AND COMMUNICATING WITH YOUR HEALTHCARE TEAM\n• Please join us for a presentation about creating goals\, understanding the science of gene therapy\, and communicating with your healthcare team\n• Hear firsthand from someone who has undergone gene therapy for hemophilia B\nThank you to CSL Behring for your sponsorship! \nGift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!
URL:https://hemosocal.org/event/snowflake-dinner-12-03-2025-riverside/
LOCATION:Palenque\, 3737 Main St #100\, Riverside\, CA\, 92501\, United States
CATEGORIES:HFSC Snowflake Dinner,Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/10/SnowflakeGrahic_WebsiteThumbnail.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251202T180000
DTEND;TZID=America/Los_Angeles:20251202T200000
DTSTAMP:20260525T161550
CREATED:20251105T184949Z
LAST-MODIFIED:20251106T183716Z
UID:10000309-1764698400-1764705600@hemosocal.org
SUMMARY:Snowflake Dinner 12/02/2025 - Santa Barbara
DESCRIPTION:PAIN MATTERS\nPain can affect everyday life for people with hemophilia. \nLean about pain management options and tools to help talk about pain with health care providers. \nThank you to Novo Nordisk for your sponsorship! \nGift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!
URL:https://hemosocal.org/event/snowflake-dinner-12-02-2025-santa-barbara/
LOCATION:Harry’s Plaza Cafe\, 3313 State St\, Santa Barbara\, CA\, 93105\, United States
CATEGORIES:HFSC Snowflake Dinner,Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/10/SnowflakeGrahic_WebsiteThumbnail.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251116T093000
DTEND;TZID=America/Los_Angeles:20251116T140000
DTSTAMP:20260525T161550
CREATED:20250530T211634Z
LAST-MODIFIED:20251027T161625Z
UID:10000303-1763285400-1763301600@hemosocal.org
SUMMARY:HFSC's 17th Annual Unite for Bleeding Disorders Walk & Health Fair
DESCRIPTION:Each year\, the Hemophilia Foundation of Southern California hosts an annual Walk to raise crucial funds in support of our mission to “improve the quality of life and build community for those living with inherited bleeding disorders in Southern California.” \n100% of all individual donations raised go directly to HFSC’s services and programs.\nPlease consider starting a team\, joining an existing team\, or making a donation\, in support of:\n\nAdvocacy and Access to Care\nEducational and Support Programs\nEmergency Financial Assistance\nCamp Blood Brothers & Sisters\nScholarships\nResearch\n\nAny amount you raise will make a huge difference and will help us continue to assist\, advocate\, and serve those living with bleeding disorders in Southern California.\n\nCada año\, la Fundación de Hemofilia del Sur de California organiza una Caminata anual para recaudar fondos cruciales en apoyo de nuestra misión de “mejorar la calidad de vida y construir una comunidad para quienes viven con trastornos de la coagulación hereditarios en el sur de California”. El 100% de todas las donaciones individuales recaudadas van directamente a los servicios y programas de HFSC.\nConsidere comenzar un equipo\, unirse a un equipo existente o hacer una donación\, en apoyo de la abogació y el acceso a la atención\, programas educativos y de apoyo\, investigación y el campamento de Camp Blood Brothers & Sisters. Cualquier cantidad que recaude marcará una gran diferencia y nos ayudará a continuar asistiendo\, abogando y sirviendo a las personas que viven con trastornos hemorrágicos en el sur de California.
URL:https://hemosocal.org/event/hfscs-17th-annual-unite-for-bleeding-disorders-walk-health-fair/
LOCATION:Oak Canyon Park\, 5305 Santiago Cyn Rd\, Silverado\, CA\, 92676\, United States
CATEGORIES:Unite for Bleeding Disorders Walk
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/05/Walk-Flyer-10-16-25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251008T180000
DTEND;TZID=America/Los_Angeles:20251008T200000
DTSTAMP:20260525T161550
CREATED:20250912T203630Z
LAST-MODIFIED:20250930T224551Z
UID:10000307-1759946400-1759953600@hemosocal.org
SUMMARY:Community Dinner - Westlake Village - 10/8/2025
DESCRIPTION:Shared Decision Making\nShared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team\, discuss therapy considerations\, and find quality sources of information.\nThank you to Pfizer for your sponsorship!
URL:https://hemosocal.org/event/community-dinner-westlake-village-10-8-2025/
LOCATION:Marmalade Cafe\, 140 Promenade Way\, Westlake Village\, 91362\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250924T180000
DTEND;TZID=America/Los_Angeles:20250924T200000
DTSTAMP:20260525T161550
CREATED:20250805T222105Z
LAST-MODIFIED:20250805T222105Z
UID:10000306-1758736800-1758744000@hemosocal.org
SUMMARY:Dinner - Costa Mesa
DESCRIPTION:Please join us for an educational dinner\, “It’s a Feeling. If you Know You Know\,” with Mark Siy (Genentech ACM) and Patient Ambassador\, Louis.\nThank you to Genentech for your sponsorship!
URL:https://hemosocal.org/event/dinner-costa-mesa/
LOCATION:Maggiano’s Little Italy\, 3333 Bristol St\, Costa Mesa\, CA\, 92626\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250920T153000
DTEND;TZID=America/Los_Angeles:20250920T183000
DTSTAMP:20260525T161550
CREATED:20250806T220548Z
LAST-MODIFIED:20250806T220548Z
UID:10000305-1758382200-1758393000@hemosocal.org
SUMMARY:Men's Retreat 2025
DESCRIPTION:Join fellow community members for engaging educational discussions\, impactful presentations from expert speakers\, and dedicated time to connect with event sponsors who support the bleeding disorders community.\nWhether you’re a patient\, caregiver\, or advocate\, this retreat is for you.\nAGENDA\n3:30PM – Registration Opens\n4:00PM – 5:30PM – Welcome and Industry Booths Open\n5:30PM – 6:30PM – Dinner and Presentation\n6:30PM – 6:45PM – Group Photo/End of Event\n*Please join us for an optional outing to a Los Angeles Galaxy v FC Cincinnati game at Dignity Health Sports Park. Kickoff at 7:30PM.\nThis special event is designed for all men (and those who identify as men) and male teens with bleeding disorders as well as male spouses\, partners\, caregivers\, and parents to those with bleeding disorders. Children under age 18 must be accompanied by an adult at all times.
URL:https://hemosocal.org/event/mens-retreat-2025/
LOCATION:Socal Vibes Co.\, 17812 Main St\, Carson\, CA\, 90248\, United States
CATEGORIES:BRO Gathering
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2025/08/2025-Mens-Retreat-Soccer-Lowestest-Res.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250905T150000
DTEND;TZID=America/Los_Angeles:20250907T100000
DTSTAMP:20260525T161550
CREATED:20241205T172118Z
LAST-MODIFIED:20250801T162454Z
UID:10000286-1757084400-1757239200@hemosocal.org
SUMMARY:Familia de Sangre 2025
DESCRIPTION:Únase a nosotros en la mayor conferencia de trastornos hemorrágicos de habla hispana del país. ¡Más detalles próximamente!\nJoin us for the largest Spanish-speaking bleeding disorders conference in the country. 
URL:https://hemosocal.org/event/reserva-la-fecha-save-the-date-familia-de-sangre-2025/
LOCATION:Anaheim Marriott\, 700 W Convention Way\, Anaheim\, CA\, 92802\, United States
CATEGORIES:Familia de Sangre
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/01/FDSLogo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250821
DTEND;VALUE=DATE:20250824
DTSTAMP:20260525T161550
CREATED:20241211T182445Z
LAST-MODIFIED:20250530T194722Z
UID:10000290-1755734400-1755993599@hemosocal.org
SUMMARY:NBDF Bleeding Disorders Conference
DESCRIPTION:Join the National Bleeding Disorders Foundation’s premier event dedicated to the bleeding disorders community. \nThe National Bleeding Disorders Foundation’s 77th annual Bleeding Disorders Conference will take place from August 21-23\, 2025. \nWe hope you join us in Aurora\, Colorado for our premiere three-day event designed to connect\, educate\, and empower those in the Bleeding Disorders community. \nWe offer a program full of rich educational sessions\, engaging networking opportunities\, and a vibrant exhibit hall showcasing the latest advancements in research and patient care. \nAurora’s stunning scenery and our family-friendly venue will make this an unforgettable experience for both professional development and relaxation. Don’t miss out – register today! \n 
URL:https://hemosocal.org/event/save-the-date-nbdf-bleeding-disorders-conference/
LOCATION:Aurora-Denver\, Colorado
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/NBDF-BDC-Website-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250813T180000
DTEND;TZID=America/Los_Angeles:20250813T200000
DTSTAMP:20260525T161550
CREATED:20250620T211737Z
LAST-MODIFIED:20250716T170637Z
UID:10000304-1755108000-1755115200@hemosocal.org
SUMMARY:Dinner - Montebello
DESCRIPTION:Please join us for an educational dinner at Salvatore Restaurant in Montebello!\nHEMGENIX – Steps to Treatment\nThank you to CSL Behring for your sponsorship!
URL:https://hemosocal.org/event/dinner-montebello/
LOCATION:Salvatore Italian Restaurant\, 125 N 6th St\, Montebello\, CA\, 90640
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250802T093000
DTEND;TZID=America/Los_Angeles:20250802T120000
DTSTAMP:20260525T161550
CREATED:20250328T221128Z
LAST-MODIFIED:20250724T003118Z
UID:10000296-1754127000-1754136000@hemosocal.org
SUMMARY:Back to School - 11th Annual Educational Symposium - VIRTUAL
DESCRIPTION:At the Hemophilia Foundation of Southern California\, we believe that students with bleeding disorders should receive an education equal to their peers and be encouraged to maintain as normal a school life as possible. All our students are different. Some students with bleeding disorders may have no issues with school throughout their lifespan while others may need much more assistance\, and varying degrees of accommodations and modifications. To this end\, we believe communication with the school about your child’s condition and communicating in writing are two strategies that can work to create a successful academic career.\nGet equipped by learning about 504 Plans\, IEPs\, and IHPs and how they may be helpful for your student with a bleeding disorder.\nBACK TO SCHOOL EVENT UPDATE (7/15/2025): In an effort to reach more families across our community and provide greater access to educational resources\, we’ve made the decision to shift this year’s Back to School event to a virtual format.\nThis change allows us to connect with more families within our 9 counties\, including those who may not have been able to travel.\nA gift card for backpack/school supplies will be provided to all students who register (TK-College\, ages 0-25).\nStay tuned for the updated agenda. We can’t wait to “see” you online and support you as you prepare for a strong and successful school year.\n~The HFSC Team\nACTUALIZACIÓN DEL EVENTO DE VUELTA AL COLE: En un esfuerzo por llegar a más familias en toda nuestra comunidad y proporcionar un mayor acceso a los recursos educativos\, hemos tomado la decisión de cambiar el evento de regreso a la escuela de este año a un formato virtual. Este cambio nos permite conectar con más familias dentro de nuestros 9 condados\, incluyendo aquellos que no han podido viajar. Una tarjeta de regalo para la mochila / útiles escolares se proporcionará a todos los estudiantes que se inscriban (Del jardín de infancia a la Universidad\, edades 0-25). Manténgase en sintonía para la agenda final. \nNo podemos esperar a «verte» en línea y apoyarte mientras te preparas para un año escolar fuerte y exitoso.\n~El equipo de HFSC\nJoin us for our Virtual Back to School Educational Symposium! \nAgenda \n9:30AM: Welcome\, Sponsor Welcome\n9:55AM: Presentation on 504\, Individualized Education Plan\, and Individualized Healthcare Plan as well as transition (English with Spanish translation option)\n10:35AM: Panel Discussion \n11:35AM: Virtual Sponsor Booths – 5 minute presentations\n12:00PM: Event ends\n~~~~~~~~~ \nÚnase con nosotros para nuestra Back to School 2025 en linea. \nAgenda \n9:30AM: Bienvenida\, bienvenida de los patrocinadores\n9:55AM: Presentación sobre 504\, Plan de Educación Individualizado\, y Plan de Salud Individualizado\, así como la transición (Inglés con opción de traducción al español)\n10:35AM: Panel de Discusión\n11:35AM: Cabinas Virtuales de Patrocinadores – Presentaciones de 5 minutos\n12:00PM – Fin del evento\n \nBackpack/supply gift cards will be distributed after the event to the primary registrant’s email. Please ensure all students attending are registered as gift cards will be based on your registration form. Please allow 2 weeks after the event to receive your backpack/supply card. Attendees must be logged on by 9:45AM and remain through the end of the event to be eligible for backpack/supply gift card.~~~~~~~~~~~~~~~~~~~ \nLas tarjetas regalo para mochilas/suministros se distribuirán después del evento al correo electrónico del inscrito principal. Por favor\, asegúrese de que todos los estudiantes que asisten están registrados como tarjetas de regalo se basará en su formulario de inscripción. Por favor\, espere 2 semanas después del evento para recibir su mochila / tarjeta de suministro. Los asistentes deben estar registrados a las 9:45 de la mañana y permanecer hasta el final del evento para poder optar a la mochila/tarjeta regalo.
URL:https://hemosocal.org/event/back-to-school-11th-annual-educational-symposium/
LOCATION:CA
CATEGORIES:Back to School
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/03/Back-To-School-2025-Website-Graphic_lowres.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250719T110000
DTEND;TZID=America/Los_Angeles:20250724T110000
DTSTAMP:20260525T161550
CREATED:20241210T201026Z
LAST-MODIFIED:20250609T155316Z
UID:10000288-1752922800-1753354800@hemosocal.org
SUMMARY:Camp Blood Brothers and Sisters at The Painted Turtle
DESCRIPTION:Join us for our 46th year of Camp Blood Brothers and Sisters! \nIn partnership with and hosted by The Painted Turtle\, our summer camp provides a safe and exciting camp experience for children ages 7-16 with a rare genetic blood disorder. Teens aged 17-18 are also welcome to attend camp as Leaders in Training (LIT). In each session\, between morning horseback rides and evening campfires\, children become artists\, swimmers\, athletes\, canoe paddlers\, stargazers\, actors on stage\, adventurers\, and\, most importantly\, friends. Our campers form a unique community\, living in cabins alongside other kids coping with similar medical conditions. With the support of both counselors and cabin mates\, kids discover they are capable of doing things they never dreamed possible. Our campers experience a magical transformation\, as they sing and dance\, paint\, play\, and develop important friendships. Life outside of camp may mean a series of medical procedures and hospital stays\, but camp is an opportunity for kids to just be kids. With the support of peers\, counselors\, and on-site medical staff\, campers are free to be themselves.\nFor more information and to apply: www.thepaintedturtle.org/apply\nApplications will be open on The Painted Turtle’s site on January 1\, 2025\, and will close for our session on July 9\, 2025.\nPlease start the application process early and reach out to our Outreach Coordinator\, Omar Torres (omar@hemosocal.org) if you need assistance navigating the application process.\nApplication Requirements:\n\n\nClearance from Camper’s Medical Provider\nCopy of most recent Progress Notes\nImmunization Record\nCamper Health History\nMedications\nAllergies (if any)\n2025 TPT Policy Forms (available through the CampSite database)
URL:https://hemosocal.org/event/save-the-date-camp-blood-brothers-and-sisters-at-the-painted-turtle/
LOCATION:The Painted Turtle\, 17000 Elizabeth Lake Road\, Lake Hughes\, CA\, 93532\, United States
CATEGORIES:Camp Blood Brothers and Sisters
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Camp-Blood-Brothers-and-Sisters-Thumbnail-6.9.25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250712T100000
DTEND;TZID=America/Los_Angeles:20250712T150000
DTSTAMP:20260525T161550
CREATED:20250530T204836Z
LAST-MODIFIED:20250611T232925Z
UID:10000302-1752314400-1752332400@hemosocal.org
SUMMARY:von Willebrand Disease (VWD) Educational Forum
DESCRIPTION:Please join us for our VWD Educational Forum on July 12!\nAgenda (Subject to Change): \n10:00AM  Registration \n10:30AM  VWD A to Z  (Session will be offered in English and Spanish concurrently. Las sesiones se ofrecerán en inglés y español simultáneamente.) \n11:30AM  Community Connection and Break \n12:00PM  Lunch \n1:00PM  Beyond Bleeding Disorders Workbook (Session will be offered in English and Spanish concurrently. Las sesiones se ofrecerán en inglés y español simultáneamente.) \n2:00PM Q&A Session \n2:45PM Closing Remarks  \n \n 
URL:https://hemosocal.org/event/von-willebrand-disease-vwd-educational-forum/
LOCATION:Brookside Country Club\, 1133 Rosemont Ave\, Pasadena\, CA\, 91103\, United States
CATEGORIES:von Willebrand Disease (vWD) Event
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250628T093000
DTEND;TZID=America/Los_Angeles:20250628T150000
DTSTAMP:20260525T161550
CREATED:20250424T205209Z
LAST-MODIFIED:20250609T195703Z
UID:10000301-1751103000-1751122800@hemosocal.org
SUMMARY:Family Retreat 2025
DESCRIPTION:Join us for our Family Retreat 2025 in Silverado! \nAgenda \n9:30AM – Industry Booths\, Registration\, Welcome\n10:30AM – Educational Sessions\n12:30PM – Lunch\, Industry Booths\n1:30PM – Family Activities\n3:00PM – Event Ends\n~~~~~~~~~ \nÚnase con nosotros para nuestra Retiro Familiar 2025 en Silverado. \nAgenda \n9:30AM – Apertura de stands\, inscripción\n10:30AM – Sesión General\n12:30PM – Almuerzo\n1:30PM – Actividades Familiares\n3:00PM – Fin del evento
URL:https://hemosocal.org/event/save-the-date-family-retreat-2025/
LOCATION:Lakeview Park\, 5305 Santiago Canyon Rd\, Silverado\, CA\, 92676\, United States
CATEGORIES:Family Retreat
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/Family-Retreat-25-English-Website-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250521T180000
DTEND;TZID=America/Los_Angeles:20250521T200000
DTSTAMP:20260525T161550
CREATED:20250404T005249Z
LAST-MODIFIED:20250410T234139Z
UID:10000300-1747850400-1747857600@hemosocal.org
SUMMARY:Dinner
DESCRIPTION:Please join us for an educational dinner\, “Experience Gene Therapy for Hemophilia – One Patient’s Journey: Treatment Decision\, Infusion and Beyond\,” with Billy Duckworth (BioMarin) and Clinical Trial Participant\, Andrew S.\nLearn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox)\, for adults with severe hemophilia A.\nThank you to BioMarin for your sponsorship!
URL:https://hemosocal.org/event/dinner/
LOCATION:Gaucho Grill\, 5980 Orangethorpe Ave\, Buena Park\, CA\, 90620
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250515T180000
DTEND;TZID=America/Los_Angeles:20250515T200000
DTSTAMP:20260525T161550
CREATED:20250404T005306Z
LAST-MODIFIED:20250423T223853Z
UID:10000299-1747332000-1747339200@hemosocal.org
SUMMARY:Dinner
DESCRIPTION:Please join us for an educational dinner\, “CelebrVIIIte ALTUVIIIO.”\nThank you to Sanofi for your sponsorship!\nParking: Please note that Public parking is owned and managed by Shoreline Village and available at a discounted rate with Shoreline Village validation.\nWith Validation: $2.00 per hour for first 2 hours\, $2.00 every additional 20 minutes\nWithout Validation: $2.00 every 20 minutes\nLost Ticket: $24.00
URL:https://hemosocal.org/event/dinner-2/
LOCATION:Parkers’ Lighthouse\, 435 Shoreline Drive #1\, Long Beach\, CA\, 90802\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250510T120000
DTEND;TZID=America/Los_Angeles:20250510T140000
DTSTAMP:20260525T161550
CREATED:20250403T232923Z
LAST-MODIFIED:20250403T234606Z
UID:10000297-1746878400-1746885600@hemosocal.org
SUMMARY:BRO Lunch
DESCRIPTION:Please join us for an educational lunch\, where we will hear from patient speaker\, Daniel\, on “My Kovaltry® Conversation | Kovaltry® Antihemophilic Factor (Recombinant).”\nThis event is for men and those who identify as men age 18+ with a bleeding disorder\, spouse/partner to someone with a bleeding disorder\, or parent/caregiver to someone with a bleeding disorder\, or teens who are male or identify as male. Teens must be accompanied by a male adult.\nThank you to Bayer for your sponsorship!
URL:https://hemosocal.org/event/bro-lunch/
LOCATION:Sycamore Inn\, 8318 Foothill Blvd\, Rancho Cucamonga\, CA\, 91730
CATEGORIES:BRO Gathering
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/BRO_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250503T083000
DTEND;TZID=America/Los_Angeles:20250503T143000
DTSTAMP:20260525T161550
CREATED:20241205T175856Z
LAST-MODIFIED:20250403T183012Z
UID:10000285-1746261000-1746282600@hemosocal.org
SUMMARY:Family Information Day 2025
DESCRIPTION:Please join us for HFSC’s annual event where the community comes together to learn about updates and strategic goals of the foundation and exciting issues that span medical\, psychological\, and physical well-being. Come and welcome new community members and see old friends. HFSC also presents its annual awards and recognizes its prolific scholarship winners.\nWe hope to see you there!\nAgenda \n8:30AM – Booths Open\, Registration\, Breakfast\n9:30AM – Childcare Check-In (ages 0-11\, must pre-register)\n10:00AM – General Session\n12:30PM – Lunch\n1:00PM – HFSC Highlights\n2:00PM – Booths Open\, Knott’s Ticket Distribution\, Childcare Pick-Up\n2:30PM – Event Ends\n \n~~~~~~~~~ \nÚnase con nosotros para nuestra FID 2025 en Buena Park. \nAgenda \n8:30AM – Apertura de stands\, inscripción\, desayuno\n9:30AM: Registro de guardería (de 0 a 11 años\, debe registrarse previamente)\n10:00AM – Sesión General\n12:30PM. – Almuerzo\n1:00PM – Lo más destacado del HFSC\n2:00PM – Apertura de stands\, distribución de boletos de Knott’s\, Recogida de cuidado infantil\n2:30PM – Fin del evento\n 
URL:https://hemosocal.org/event/save-the-date-family-information-day-2025/
LOCATION:Knott’s Hotel\, 7675 Crescent Ave\, Buena Park\, CA\, 90620\, United States
CATEGORIES:Family Information Day/Annual Meeting
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/FID_WebsiteGraphic_Sponsor.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250501T170000
DTEND;TZID=America/Los_Angeles:20250501T190000
DTSTAMP:20260525T161550
CREATED:20250404T005342Z
LAST-MODIFIED:20250422T153834Z
UID:10000298-1746118800-1746126000@hemosocal.org
SUMMARY:Dinner - Bakersfield
DESCRIPTION:“Qfitlia” – Join Sanofi for a dinner to explore the treatment of hemophilia A and B\, with or without inhibitors\, and to discuss how shared decision making with your healthcare provider can improve your hemophilia management experience.\nThank you to Sanofi for your sponsorship!
URL:https://hemosocal.org/event/dinner-bakersfield/
LOCATION:Mama Tosca’s Italian Restaurant\, 9000 Ming Ave Ste K2K3\, Bakersfield\, CA\, 93311
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250417T180000
DTEND;TZID=America/Los_Angeles:20250417T200000
DTSTAMP:20260525T161550
CREATED:20250228T163215Z
LAST-MODIFIED:20250403T234125Z
UID:10000295-1744912800-1744920000@hemosocal.org
SUMMARY:World Hemophilia Day 2025 - San Bernardino County Celebration
DESCRIPTION:Join us for a celebration of our unbreakable bond.\nThe bleeding disorders community may be tied together by a diagnosis\, but the connections go even deeper. Our 2025 One Family program celebrates the bonds that come from living with hemophilia—with people at home\, on care teams\, around the world—and how no one is ever alone. RSVP today to join us for hands-on activities like:\n• Beaded bracelet making\n• Instant camera selfie stations\n• DIY photo frames\n• Photo prop crafts\n• Conversations and connections\nIt’s all happening on World Hemophilia Day.\nThank you to Sanofi for your sponsorship!
URL:https://hemosocal.org/event/world-hemophilia-day-2025-san-bernardino-celebration/
LOCATION:Napoli Italian Restaurant\, 24960 Redlands Blvd\, Loma Linda\, CA\, 92354
CATEGORIES:World Hemophilia Day
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/WHD2025-logo-vertical.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250412T100000
DTEND;TZID=America/Los_Angeles:20250412T140000
DTSTAMP:20260525T161550
CREATED:20241211T184551Z
LAST-MODIFIED:20250403T234027Z
UID:10000291-1744452000-1744466400@hemosocal.org
SUMMARY:World Hemophilia Day 2025 - Pasadena Celebration
DESCRIPTION:Join us for a celebration of our unbreakable bond.\nThe bleeding disorders community may be tied together by a diagnosis\, but the connections go even deeper. Our 2025 One Family program celebrates the bonds that come from living with hemophilia—with people at home\, on care teams\, around the world—and how no one is ever alone. RSVP today to join us for hands-on activities like:\n• Beaded bracelet making\n• Instant camera selfie stations\n• DIY photo frames\n• Photo prop crafts\n• Conversations and connections\nIt’s all happening on World Hemophilia Day.\nThank you to Sanofi for your sponsorship!
URL:https://hemosocal.org/event/save-the-date-world-hemophilia-day-2025/
LOCATION:Brookside Country Club\, 1133 Rosemont Ave\, Pasadena\, CA\, 91103\, United States
CATEGORIES:World Hemophilia Day
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/WHD2025-logo-vertical.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250327T080000
DTEND;TZID=America/Los_Angeles:20250330T170000
DTSTAMP:20260525T161550
CREATED:20241211T175644Z
LAST-MODIFIED:20241211T181038Z
UID:10000289-1743062400-1743354000@hemosocal.org
SUMMARY:SAVE THE DATE: HFA Symposium 2025
DESCRIPTION:HFA Symposium 2025 is coming to San Diego in 2025!\nConnect with your community at one of America’s most beautiful locations!\n\nValuable educational sessions for severes\, milds\, rares\, and more.\nRap sessions and information for men\, women\, parents and Spanish-speaking community members.\nConnect with friends\, who are like family\, and end with a fun Final Night Event\n\nTo register for HFA Symposium\, please go to HFA’s registration page: https://www.hfasymposium.org/\nHFA is Offering Room Scholarships for HFSC Community Members\nHFA is offering room scholarships for Southern California bleeding disorders community members. The scholarship is for one room\, for up to 3 nights.\nThe scholarship does not include the registration fee ($55/adult\, $20/child under 18). This scholarship is offered to make it easier for as many families as possible who live in the host state to attend. Eligibility criteria below: \n\nMembers of the bleeding disorders community that live in California and can drive to Symposium. Must also be coming as a general attendee.\nNot eligible at this time: Exhibitors\, medical personnel\, industry professionals\, and nonprofit staff.\nThis scholarship is for one (1) hotel room\, for up to three (3) nights. Any additional nights or rooms will be on your own.\nMust live a minimum of 45 minutes or more away from the Sheraton San Diego & Marina.\nA maximum of 4 individuals per scholarship (One hotel room per family).\nThis scholarship DOES NOT cover the registration fee(s).\nIf your scholarship is not granted and you are unable to attend\, your registration payment will be refunded (up until March 14\, 2025).\nPlease submit your interest in the room scholarship here by December 18\, 2024: https://www.cognitoforms.com/HemophiliaFoundationOfSouthernCalifornia/_2025HFASymposiumHotelScholarship
URL:https://hemosocal.org/event/14257/
LOCATION:Sheraton San Diego Hotel & Marina\, 1380 Harbor Island Dr\, San Diego\, CA\, 92101\, United States
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/HFA-Symposium-2025-Website-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250322T100000
DTEND;TZID=America/Los_Angeles:20250323T110000
DTSTAMP:20260525T161550
CREATED:20241205T005916Z
LAST-MODIFIED:20250121T191202Z
UID:10000284-1742637600-1742727600@hemosocal.org
SUMMARY:Women's Retreat 2025
DESCRIPTION:Women’s bleeding issues continue to present specific challenges with diagnosis\, treatment and access.  \nHeavy menstrual bleeding can lead to anemia (low red blood cell count/low blood iron levels)\, with symptoms of fatigue\, paleness\, lack of energy and shortness of breath.\nMany women with bleeding disorders are also caregivers of a child with a bleeding disorder and self-care can be challenging.\nThis retreat presents an opportunity to carve out time for yourself\, laugh with your blood sisters and learn how to advocate for your own treatment.\nOpen to women\, those who identify as women\, and teen girls ages 11+.\nA limited number of scholarships were available for the 2025 Women’s Retreat to cover registration fees. Application deadline has passed and were due January 17\, 2025.
URL:https://hemosocal.org/event/save-the-date-womens-retreat-2025/
LOCATION:Sheraton Grand Los Angeles\, 711 S Hope St\, CA\, 90017\, United States
CATEGORIES:Women's Retreat
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Website-Graphic-Womens-Retreat-2025.png
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END:VCALENDAR