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X-WR-CALDESC:Events for Hemophilia Foundation of Southern California
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250712T100000
DTEND;TZID=America/Los_Angeles:20250712T150000
DTSTAMP:20260525T153453
CREATED:20250530T204836Z
LAST-MODIFIED:20250611T232925Z
UID:10000302-1752314400-1752332400@hemosocal.org
SUMMARY:von Willebrand Disease (VWD) Educational Forum
DESCRIPTION:Please join us for our VWD Educational Forum on July 12!\nAgenda (Subject to Change): \n10:00AM  Registration \n10:30AM  VWD A to Z  (Session will be offered in English and Spanish concurrently. Las sesiones se ofrecerán en inglés y español simultáneamente.) \n11:30AM  Community Connection and Break \n12:00PM  Lunch \n1:00PM  Beyond Bleeding Disorders Workbook (Session will be offered in English and Spanish concurrently. Las sesiones se ofrecerán en inglés y español simultáneamente.) \n2:00PM Q&A Session \n2:45PM Closing Remarks  \n \n 
URL:https://hemosocal.org/event/von-willebrand-disease-vwd-educational-forum/
LOCATION:Brookside Country Club\, 1133 Rosemont Ave\, Pasadena\, CA\, 91103\, United States
CATEGORIES:von Willebrand Disease (vWD) Event
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/05/VWD-Educational-Forum-Square-06.11.25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250628T093000
DTEND;TZID=America/Los_Angeles:20250628T150000
DTSTAMP:20260525T153453
CREATED:20250424T205209Z
LAST-MODIFIED:20250609T195703Z
UID:10000301-1751103000-1751122800@hemosocal.org
SUMMARY:Family Retreat 2025
DESCRIPTION:Join us for our Family Retreat 2025 in Silverado! \nAgenda \n9:30AM – Industry Booths\, Registration\, Welcome\n10:30AM – Educational Sessions\n12:30PM – Lunch\, Industry Booths\n1:30PM – Family Activities\n3:00PM – Event Ends\n~~~~~~~~~ \nÚnase con nosotros para nuestra Retiro Familiar 2025 en Silverado. \nAgenda \n9:30AM – Apertura de stands\, inscripción\n10:30AM – Sesión General\n12:30PM – Almuerzo\n1:30PM – Actividades Familiares\n3:00PM – Fin del evento
URL:https://hemosocal.org/event/save-the-date-family-retreat-2025/
LOCATION:Lakeview Park\, 5305 Santiago Canyon Rd\, Silverado\, CA\, 92676\, United States
CATEGORIES:Family Retreat
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/Family-Retreat-25-English-Website-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250521T180000
DTEND;TZID=America/Los_Angeles:20250521T200000
DTSTAMP:20260525T153453
CREATED:20250404T005249Z
LAST-MODIFIED:20250410T234139Z
UID:10000300-1747850400-1747857600@hemosocal.org
SUMMARY:Dinner
DESCRIPTION:Please join us for an educational dinner\, “Experience Gene Therapy for Hemophilia – One Patient’s Journey: Treatment Decision\, Infusion and Beyond\,” with Billy Duckworth (BioMarin) and Clinical Trial Participant\, Andrew S.\nLearn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox)\, for adults with severe hemophilia A.\nThank you to BioMarin for your sponsorship!
URL:https://hemosocal.org/event/dinner/
LOCATION:Gaucho Grill\, 5980 Orangethorpe Ave\, Buena Park\, CA\, 90620
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250515T180000
DTEND;TZID=America/Los_Angeles:20250515T200000
DTSTAMP:20260525T153453
CREATED:20250404T005306Z
LAST-MODIFIED:20250423T223853Z
UID:10000299-1747332000-1747339200@hemosocal.org
SUMMARY:Dinner
DESCRIPTION:Please join us for an educational dinner\, “CelebrVIIIte ALTUVIIIO.”\nThank you to Sanofi for your sponsorship!\nParking: Please note that Public parking is owned and managed by Shoreline Village and available at a discounted rate with Shoreline Village validation.\nWith Validation: $2.00 per hour for first 2 hours\, $2.00 every additional 20 minutes\nWithout Validation: $2.00 every 20 minutes\nLost Ticket: $24.00
URL:https://hemosocal.org/event/dinner-2/
LOCATION:Parkers’ Lighthouse\, 435 Shoreline Drive #1\, Long Beach\, CA\, 90802\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250510T120000
DTEND;TZID=America/Los_Angeles:20250510T140000
DTSTAMP:20260525T153453
CREATED:20250403T232923Z
LAST-MODIFIED:20250403T234606Z
UID:10000297-1746878400-1746885600@hemosocal.org
SUMMARY:BRO Lunch
DESCRIPTION:Please join us for an educational lunch\, where we will hear from patient speaker\, Daniel\, on “My Kovaltry® Conversation | Kovaltry® Antihemophilic Factor (Recombinant).”\nThis event is for men and those who identify as men age 18+ with a bleeding disorder\, spouse/partner to someone with a bleeding disorder\, or parent/caregiver to someone with a bleeding disorder\, or teens who are male or identify as male. Teens must be accompanied by a male adult.\nThank you to Bayer for your sponsorship!
URL:https://hemosocal.org/event/bro-lunch/
LOCATION:Sycamore Inn\, 8318 Foothill Blvd\, Rancho Cucamonga\, CA\, 91730
CATEGORIES:BRO Gathering
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/BRO_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250503T083000
DTEND;TZID=America/Los_Angeles:20250503T143000
DTSTAMP:20260525T153453
CREATED:20241205T175856Z
LAST-MODIFIED:20250403T183012Z
UID:10000285-1746261000-1746282600@hemosocal.org
SUMMARY:Family Information Day 2025
DESCRIPTION:Please join us for HFSC’s annual event where the community comes together to learn about updates and strategic goals of the foundation and exciting issues that span medical\, psychological\, and physical well-being. Come and welcome new community members and see old friends. HFSC also presents its annual awards and recognizes its prolific scholarship winners.\nWe hope to see you there!\nAgenda \n8:30AM – Booths Open\, Registration\, Breakfast\n9:30AM – Childcare Check-In (ages 0-11\, must pre-register)\n10:00AM – General Session\n12:30PM – Lunch\n1:00PM – HFSC Highlights\n2:00PM – Booths Open\, Knott’s Ticket Distribution\, Childcare Pick-Up\n2:30PM – Event Ends\n \n~~~~~~~~~ \nÚnase con nosotros para nuestra FID 2025 en Buena Park. \nAgenda \n8:30AM – Apertura de stands\, inscripción\, desayuno\n9:30AM: Registro de guardería (de 0 a 11 años\, debe registrarse previamente)\n10:00AM – Sesión General\n12:30PM. – Almuerzo\n1:00PM – Lo más destacado del HFSC\n2:00PM – Apertura de stands\, distribución de boletos de Knott’s\, Recogida de cuidado infantil\n2:30PM – Fin del evento\n 
URL:https://hemosocal.org/event/save-the-date-family-information-day-2025/
LOCATION:Knott’s Hotel\, 7675 Crescent Ave\, Buena Park\, CA\, 90620\, United States
CATEGORIES:Family Information Day/Annual Meeting
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/FID_WebsiteGraphic_Sponsor.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250501T170000
DTEND;TZID=America/Los_Angeles:20250501T190000
DTSTAMP:20260525T153453
CREATED:20250404T005342Z
LAST-MODIFIED:20250422T153834Z
UID:10000298-1746118800-1746126000@hemosocal.org
SUMMARY:Dinner - Bakersfield
DESCRIPTION:“Qfitlia” – Join Sanofi for a dinner to explore the treatment of hemophilia A and B\, with or without inhibitors\, and to discuss how shared decision making with your healthcare provider can improve your hemophilia management experience.\nThank you to Sanofi for your sponsorship!
URL:https://hemosocal.org/event/dinner-bakersfield/
LOCATION:Mama Tosca’s Italian Restaurant\, 9000 Ming Ave Ste K2K3\, Bakersfield\, CA\, 93311
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/04/HFSC_Dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250417T180000
DTEND;TZID=America/Los_Angeles:20250417T200000
DTSTAMP:20260525T153453
CREATED:20250228T163215Z
LAST-MODIFIED:20250403T234125Z
UID:10000295-1744912800-1744920000@hemosocal.org
SUMMARY:World Hemophilia Day 2025 - San Bernardino County Celebration
DESCRIPTION:Join us for a celebration of our unbreakable bond.\nThe bleeding disorders community may be tied together by a diagnosis\, but the connections go even deeper. Our 2025 One Family program celebrates the bonds that come from living with hemophilia—with people at home\, on care teams\, around the world—and how no one is ever alone. RSVP today to join us for hands-on activities like:\n• Beaded bracelet making\n• Instant camera selfie stations\n• DIY photo frames\n• Photo prop crafts\n• Conversations and connections\nIt’s all happening on World Hemophilia Day.\nThank you to Sanofi for your sponsorship!
URL:https://hemosocal.org/event/world-hemophilia-day-2025-san-bernardino-celebration/
LOCATION:Napoli Italian Restaurant\, 24960 Redlands Blvd\, Loma Linda\, CA\, 92354
CATEGORIES:World Hemophilia Day
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/WHD2025-logo-vertical.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250412T100000
DTEND;TZID=America/Los_Angeles:20250412T140000
DTSTAMP:20260525T153453
CREATED:20241211T184551Z
LAST-MODIFIED:20250403T234027Z
UID:10000291-1744452000-1744466400@hemosocal.org
SUMMARY:World Hemophilia Day 2025 - Pasadena Celebration
DESCRIPTION:Join us for a celebration of our unbreakable bond.\nThe bleeding disorders community may be tied together by a diagnosis\, but the connections go even deeper. Our 2025 One Family program celebrates the bonds that come from living with hemophilia—with people at home\, on care teams\, around the world—and how no one is ever alone. RSVP today to join us for hands-on activities like:\n• Beaded bracelet making\n• Instant camera selfie stations\n• DIY photo frames\n• Photo prop crafts\n• Conversations and connections\nIt’s all happening on World Hemophilia Day.\nThank you to Sanofi for your sponsorship!
URL:https://hemosocal.org/event/save-the-date-world-hemophilia-day-2025/
LOCATION:Brookside Country Club\, 1133 Rosemont Ave\, Pasadena\, CA\, 91103\, United States
CATEGORIES:World Hemophilia Day
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/WHD2025-logo-vertical.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250327T080000
DTEND;TZID=America/Los_Angeles:20250330T170000
DTSTAMP:20260525T153453
CREATED:20241211T175644Z
LAST-MODIFIED:20241211T181038Z
UID:10000289-1743062400-1743354000@hemosocal.org
SUMMARY:SAVE THE DATE: HFA Symposium 2025
DESCRIPTION:HFA Symposium 2025 is coming to San Diego in 2025!\nConnect with your community at one of America’s most beautiful locations!\n\nValuable educational sessions for severes\, milds\, rares\, and more.\nRap sessions and information for men\, women\, parents and Spanish-speaking community members.\nConnect with friends\, who are like family\, and end with a fun Final Night Event\n\nTo register for HFA Symposium\, please go to HFA’s registration page: https://www.hfasymposium.org/\nHFA is Offering Room Scholarships for HFSC Community Members\nHFA is offering room scholarships for Southern California bleeding disorders community members. The scholarship is for one room\, for up to 3 nights.\nThe scholarship does not include the registration fee ($55/adult\, $20/child under 18). This scholarship is offered to make it easier for as many families as possible who live in the host state to attend. Eligibility criteria below: \n\nMembers of the bleeding disorders community that live in California and can drive to Symposium. Must also be coming as a general attendee.\nNot eligible at this time: Exhibitors\, medical personnel\, industry professionals\, and nonprofit staff.\nThis scholarship is for one (1) hotel room\, for up to three (3) nights. Any additional nights or rooms will be on your own.\nMust live a minimum of 45 minutes or more away from the Sheraton San Diego & Marina.\nA maximum of 4 individuals per scholarship (One hotel room per family).\nThis scholarship DOES NOT cover the registration fee(s).\nIf your scholarship is not granted and you are unable to attend\, your registration payment will be refunded (up until March 14\, 2025).\nPlease submit your interest in the room scholarship here by December 18\, 2024: https://www.cognitoforms.com/HemophiliaFoundationOfSouthernCalifornia/_2025HFASymposiumHotelScholarship
URL:https://hemosocal.org/event/14257/
LOCATION:Sheraton San Diego Hotel & Marina\, 1380 Harbor Island Dr\, San Diego\, CA\, 92101\, United States
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/HFA-Symposium-2025-Website-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250322T100000
DTEND;TZID=America/Los_Angeles:20250323T110000
DTSTAMP:20260525T153453
CREATED:20241205T005916Z
LAST-MODIFIED:20250121T191202Z
UID:10000284-1742637600-1742727600@hemosocal.org
SUMMARY:Women's Retreat 2025
DESCRIPTION:Women’s bleeding issues continue to present specific challenges with diagnosis\, treatment and access.  \nHeavy menstrual bleeding can lead to anemia (low red blood cell count/low blood iron levels)\, with symptoms of fatigue\, paleness\, lack of energy and shortness of breath.\nMany women with bleeding disorders are also caregivers of a child with a bleeding disorder and self-care can be challenging.\nThis retreat presents an opportunity to carve out time for yourself\, laugh with your blood sisters and learn how to advocate for your own treatment.\nOpen to women\, those who identify as women\, and teen girls ages 11+.\nA limited number of scholarships were available for the 2025 Women’s Retreat to cover registration fees. Application deadline has passed and were due January 17\, 2025.
URL:https://hemosocal.org/event/save-the-date-womens-retreat-2025/
LOCATION:Sheraton Grand Los Angeles\, 711 S Hope St\, CA\, 90017\, United States
CATEGORIES:Women's Retreat
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Website-Graphic-Womens-Retreat-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250315T100000
DTEND;TZID=America/Los_Angeles:20250315T140000
DTSTAMP:20260525T153453
CREATED:20241227T202242Z
LAST-MODIFIED:20250207T185811Z
UID:10000293-1742032800-1742047200@hemosocal.org
SUMMARY:New Families Meet & Greet
DESCRIPTION:We invite you to learn more about the Hemophilia Foundation of Southern California\, explore bleeding disorders\, and connect with your community.\nOpen to families who are new to Southern California or have a newly diagnosed family member.\nPlease reach out to Omar Torres\, HFSC Outreach Coordinator\, for registration link at omar@hemosocal.org or 626-765-6656.\nIf your family is interested in being a “Mentor Family” to help welcome our new community members\, please reach out to Omar.\n 
URL:https://hemosocal.org/event/save-the-date-new-families-meet-greet/
LOCATION:Los Angeles Zoo\, 5333 Zoo Dr\, Los Angeles\, CA\, 90027\, United States
CATEGORIES:New Families Meet & Greet
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/2025-HFSC-New-Families-Meet-Greet-Instagram-Post.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250313
DTEND;VALUE=DATE:20250314
DTSTAMP:20260525T153453
CREATED:20250212T163310Z
LAST-MODIFIED:20250212T163310Z
UID:10000294-1741824000-1741910399@hemosocal.org
SUMMARY:HFSC + Panda Express Virtual Community Fundraiser
DESCRIPTION:Panda Express will donate 28% of sales to the Hemophilia Foundation of Southern California in support of those living with and who are affected by inherited bleeding disorders in Southern California!\nWHEN: Thursday\, March 13\, 2025\nWHERE: Available at Panda Express Locations nationwide: www.pandaexpress.com\nHOW: Online orders ONLY – Apply code 9002092 in the Fundraiser Code box during online checkout at www.pandaexpress.com or via Panda Express App. 
URL:https://hemosocal.org/event/hfsc-panda-express-virtual-community-fundraiser/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/02/PandaExpress_March132025_CommFundraiser_WebsiteGraphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250305
DTEND;VALUE=DATE:20250308
DTSTAMP:20260525T153453
CREATED:20241210T182318Z
LAST-MODIFIED:20241210T182318Z
UID:10000287-1741132800-1741391999@hemosocal.org
SUMMARY:NBDF's Washington Days
DESCRIPTION:We want to share an important update about Washington Days from the National Bleeding Disorders Foundation (NBDF). \nNBDF has announced changes to their Washington Days registration process including a shortened deadline and limited spaces for each state. \nThe changes are as follows:\n\nAnyone living in the 9 counties (Orange\, Riverside\, San Bernardino\, Los Angeles\, Ventura\, Santa Barbara\, San Luis Obispo\, Kern\, & Inyo) who is interested in attending this event must submit an application to HFSC\, by clicking below.\nThis includes all Southern California community members who are attending on their own.\nCalifornia has been given 20 spots by NBDF. This includes the 4 bleeding disorder organizations (HASDC\, HFSC\, CCBDF\, HFNC) and HCC.\n\nDeadline to register is December 18\, 2024.\n\n\nAs directed by NBDF\, priority for registration will be given to constituents who (that are not employed or compensated by industry) have actively participated in previous advocacy initiatives. We encourage you to reach out promptly if you’d like to take part in this impactful event. \nIf you are interested in attending Washington Days\, please complete the application in the link below. \nFor questions contact Rigo Garcia at rigo@hemosocal.org or 626-765-6656.
URL:https://hemosocal.org/event/nbdfs-washington-days/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Washington-Days-Website-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250301T090000
DTEND;TZID=America/Los_Angeles:20250301T130000
DTSTAMP:20260525T153453
CREATED:20241204T213929Z
LAST-MODIFIED:20250208T002414Z
UID:10000283-1740819600-1740834000@hemosocal.org
SUMMARY:2025 Industry Forum
DESCRIPTION:2025 INDUSTRY FORUM \nThe purpose of Industry Forum is to present information on new and pipeline products that treat rare bleeding disorders.\nOften the presentations are given directly by pharmaceutical companies and may include investigational therapies such as gene therapy.\nHFSC’s Medical Advisor is always present at this conference to answer any medical questions including those regarding clinical trials.\nIt is important to stay informed about new therapies that arise\, and we hope to see you there!\nSCHEDULE:\n9:00AM – Registration\, Industry Booth Time  (Creveling Room)\n10:00AM – Youth Activity check-in (Circadian Room)\n10:30AM – 12:30PM – Breakout Sessions\n12:30PM-1:00PM – Boxed Lunch To Go\nYouth Activities with The Painted Turtle for ages 5-12 will be available from 10:00AM-12:30PM in Circadian Room. Please promptly collect your children when the breakout sessions end. 
URL:https://hemosocal.org/event/save-the-date-2025-industry-forum/
LOCATION:Pasadena City College\, 1570 East Colorado Boulevard\, Pasadena\, CA\, 91106\, United States
CATEGORIES:Industry Forum
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Website-Graphic-Ind-Forum-25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250301
DTSTAMP:20260525T153453
CREATED:20241211T190544Z
LAST-MODIFIED:20241211T191155Z
UID:10000292-1740700800-1740787199@hemosocal.org
SUMMARY:SAVE THE DATE: Rare Disease Day 2025
DESCRIPTION:Rare Disease Day is the official international awareness-raising campaign for rare diseases observed annually on the last day of February.\nWith over 300 million people globally living with a rare disease\, we join hands across borders and amidst the 6000+ rare diseases to advocate for equitable access to diagnosis\, treatment\, care\, and social opportunities. Our key message for Rare Disease Day 2025 is “More than you can imagine!”
URL:https://hemosocal.org/event/save-the-date-rare-disease-day-2025/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Rare-Disease-Day-2025-Website-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241212T180000
DTEND;TZID=America/Los_Angeles:20241212T200000
DTSTAMP:20260525T153453
CREATED:20241108T225819Z
LAST-MODIFIED:20241204T214453Z
UID:10000282-1734026400-1734033600@hemosocal.org
SUMMARY:Snowflake Dinners
DESCRIPTION:Join one of 7 small community gatherings to celebrate the end of the year!\nClick link for more details. For those with bleeding disorders and their immediate family only.\nMake sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!\nThank you for choosing one location: all children ages 0-18 will receive a $25 Amazon gift card in lieu of a gift.\nSpaces are limited and will be first come\, first served.  All dinners are scheduled from 6-8 p.m.\n  \n12/3/2024: Lancaster\, CA  (La Papillon – 858 W Lancaster Blvd.\, Lancaster CA 93534)\n12/4/2024: Irvine\, CA (Del Frisco’s Grille – 772 Spectrum Center Dr.\, Irvine CA 92618)\n12/5/2024: Riverside\, CA (Palenque Kitchen – 3737 Main St #100\, Riverside CA 92501)\n12/8/2024: Bakersfield\, CA (The Hungry Hunter Steakhouse – 3580 Rosedale Hwy\, Bakersfield CA 93308)\n12/9/2024: Santa Barbara\, CA (Opal Restaurant & Bar – 1325 State St\, Santa Barbara CA 93101)\n12/12/2024: Glendale\, CA (Shiraz Restaurant – 211 S Glendale Ave\, Glendale CA 91205)\n12/12/2024: Pomona\, CA (Vita Italian Bar and Grill – 3101 W Temple Ave\, Pomona CA 91768)
URL:https://hemosocal.org/event/snowflake-dinners/
LOCATION:CA
CATEGORIES:Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/11/Snowflake-Dinners-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241116
DTEND;VALUE=DATE:20241117
DTSTAMP:20260525T153453
CREATED:20240412T221435Z
LAST-MODIFIED:20240612T190410Z
UID:10000275-1731715200-1731801599@hemosocal.org
SUMMARY:Unite for Bleeding Disorders Walk & Health Fair
DESCRIPTION:About HFSC’s 16th Annual Unite for Bleeding Disorders Walk & Health Fair\nEach year\, the Hemophilia Foundation of Southern California hosts an annual Walk to raise crucial funds in support of our mission to “improve the quality of life and build community for those living with inherited bleeding disorders in Southern California.” 100% of all individual donations raised go directly to HFSC’s services and programs.\nPlease consider starting a team\, joining an existing team\, or making a donation\, in support of:\n\nAdvocacy and Access to Care\nEducational and Support Programs\nEmergency Financial Assistance\nCamp Blood Brothers & Sisters\nScholarships\nResearch\n\nAny amount you raise will make a huge difference and will help us continue to assist\, advocate\, and serve those living with bleeding disorders in Southern California. \nTHANK YOU!\nCada año\, la Fundación de Hemofilia del Sur de California organiza una Caminata anual para recaudar fondos cruciales en apoyo de nuestra misión de “mejorar la calidad de vida y construir una comunidad para quienes viven con trastornos de la coagulación hereditarios en el sur de California”. El 100% de todas las donaciones individuales recaudadas van directamente a los servicios y programas de HFSC.\nConsidere comenzar un equipo\, unirse a un equipo existente o hacer una donación\, en apoyo de la abogació y el acceso a la atención\, programas educativos y de apoyo\, investigación y el campamento de Camp Blood Brothers & Sisters. Cualquier cantidad que recaude marcará una gran diferencia y nos ayudará a continuar asistiendo\, abogando y sirviendo a las personas que viven con trastornos hemorrágicos en el sur de California.\n¡GRACIAS!\n \nWhen making a donation via check\, please be sure to make checks payable to Hemophilia Foundation of Southern California and please include the name of the Team or Individual Walker you are supporting. Checks may be sent to:\nCuando haga una donación mediante cheque\, asegúrese de hacer los cheques pagaderos a la Fundación de Hemofilia del Sur de California e incluya el nombre del Equipo o Caminante individual que está apoyando. Los cheques pueden enviarse a:\nHemophilia Foundation of Southern California\nAttn: Walk\n959 E. Walnut Street\, Suite 114\nPasadena\, CA 91106\nQuestions? Please contact Michele Warner\, Director of Development\, at mwarner@hemosocal.org or 310-415-2390.\n¿Preguntas? Por favor de contactar a Michele Warner\, Directora de Desarrollo\, at mwarner@hemosocal.org o 310-415-2390.\nWe can’t wait to see you on November 16! ¡Estamos ansiosos por verlos el 16 de noviembre!
URL:https://hemosocal.org/event/unite-for-bleeding-disorders-walk-health-fair/
LOCATION:The Meadows at Whittier Narrows\, 751 S. Santa Anita Ave.\, South El Monte\, CA\, 91733\, United States
CATEGORIES:Unite for Bleeding Disorders Walk
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/04/Website-Thumbnail_Walk24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241107T180000
DTEND;TZID=America/Los_Angeles:20241107T200000
DTSTAMP:20260525T153453
CREATED:20240920T174147Z
LAST-MODIFIED:20240930T202338Z
UID:10000190-1731002400-1731009600@hemosocal.org
SUMMARY:HFSC Cena de Mujeres Enlazadas por Sangre
DESCRIPTION:“Involúcrense: divulgación y defensa de los trastornos sanguíneos”\nTodos tienen una historia para contar. Es importante que personas reales compartan sus experiencias con el fin de abogar por las personas de la comunidad con trastornos sanguíneos y por ellos mismos. Ganen confianza\, mejoren las habilidades de comunicación y hagan conexiones.\n¡Gracias a TAKEDA por su patrocinio!
URL:https://hemosocal.org/event/hfsc-cena-de-mujeres-enlazadas-por-sangre/
LOCATION:El Paseo Inn\, 11 E Olvera St\, Los Angeles\, CA\, 90012
CATEGORIES:Mujeres Enlazadas por Sangre Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/09/HFSC-Cena-de-Mujeres-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241023T180000
DTEND;TZID=America/Los_Angeles:20241023T200000
DTSTAMP:20260525T153453
CREATED:20241004T203114Z
LAST-MODIFIED:20241004T203114Z
UID:10000191-1729706400-1729713600@hemosocal.org
SUMMARY:HFSC Community Dinner: "Hear from a Gene Therapy Patient"
DESCRIPTION:Please join us for an educational dinner\, “Hear from a Gene Therapy Patient!”\nLearn more about gene therapy and the patient experience in an informational session. \nThis live session will feature information about gene therapy as well as a question and answer segment with a patient and a Pfizer medical colleague.\nThank you to Pfizer for your sponsorship!\n 
URL:https://hemosocal.org/event/hfsc-community-dinner-hear-from-a-gene-therapy-patient/
LOCATION:The Hacienda\, 1725 College Ave\, Santa Ana\, CA\, 92706\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/10/Santa-Ana-102324.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241019T100000
DTEND;TZID=America/Los_Angeles:20241019T130000
DTSTAMP:20260525T153453
CREATED:20240912T220947Z
LAST-MODIFIED:20241008T225508Z
UID:10000188-1729332000-1729342800@hemosocal.org
SUMMARY:Gettin' In the Game
DESCRIPTION:Please join us at Top Golf Ontario for an educational breakfast with a Gettin’ in the Game athlete followed by hitting bay time. \nRegistration starts at 10:00AM.\nThank you to CSL Behring for your sponsorship!
URL:https://hemosocal.org/event/gettin-in-the-game/
LOCATION:Top Golf Ontario\, 1050 N Archibald Ave\, Ontario\, CA\, 91764\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/09/Top-Golf-Header_Oct2024_Rev2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241009T190000
DTEND;TZID=America/Los_Angeles:20241009T203000
DTSTAMP:20260525T153453
CREATED:20240913T003949Z
LAST-MODIFIED:20241008T214256Z
UID:10000189-1728500400-1728505800@hemosocal.org
SUMMARY:emPOWERment Webinar Series - "Advocacy"
DESCRIPTION:Please join us for our emPOWERment Webinar on “Advocacy” with Lindsey Viscarra (State Policy Manager\, National Organization for Rare Disorders).\nAre you passionate about making a difference in your community? Join Lindsey Viscarra\, State Policy Manager at the National Organization of Rare Disorders\, to gain the skills and knowledge to effectively champion the issues that matter most. Whether you’re new to advocacy or looking to enhance your current efforts\, this training will equip you with practical tools for engaging with policymakers\, raising awareness\, and driving meaningful change. Don’t miss this opportunity to strengthen your voice and become a more impactful advocate.
URL:https://hemosocal.org/event/empowerment-webinar-series-advocacy/
LOCATION:CA
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/09/Advocacy-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241005T170000
DTEND;TZID=America/Los_Angeles:20241005T220000
DTSTAMP:20260525T153453
CREATED:20240412T222606Z
LAST-MODIFIED:20240924T162305Z
UID:10000276-1728147600-1728165600@hemosocal.org
SUMMARY:HFSC 70th Anniversary Gala
DESCRIPTION:Please join us to celebrate the Hemophilia Foundation of Southern California’s 70th Anniversary!\n5:00PM-7:00PM: Check-In and Cocktail Reception\n7:00PM-8:30PM: Dinner\n8:30PM-9:30PM: Award Ceremony\n9:30PM: Guest Check-Out\n10:00PM: Event Concludes\n \n\n 
URL:https://hemosocal.org/event/save-the-date-70th-anniversary-gala/
LOCATION:Noor\, 300 E Colorado Blvd Suite 200\, Pasadena\, CA\, 91101\, United States
CATEGORIES:70th Gala
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/04/70th-Anniversary.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240924T180000
DTEND;TZID=America/Los_Angeles:20240924T200000
DTSTAMP:20260525T153453
CREATED:20240808T181403Z
LAST-MODIFIED:20240912T221247Z
UID:10000187-1727200800-1727208000@hemosocal.org
SUMMARY:HFSC Community Dinner - "Science of Gene Therapy"
DESCRIPTION:“Science of Gene Therapy”\nWith recent approvals of gene therapy in hemophilia\, you may be wondering what is gene\ntherapy and where is the science now? This educational session examines how gene therapy is\ndelivered into the body\, what happens afterwards\, what makes it a potential treatment option\nin hemophilia\, and who might be a candidate? Let’s break down the key principles and explore\nkey considerations together.\nThank you to Pfizer for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-hemophilia-gene-therapy/
LOCATION:Cara Mia\, 7945 Vineyard Ave Ste D7\, Rancho Cucumonga\, CA\, 91730\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/08/Community-Dinner-Rancho-Cucamonga-Image-for-Website-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240906
DTEND;VALUE=DATE:20240909
DTSTAMP:20260525T153453
CREATED:20240105T234447Z
LAST-MODIFIED:20240808T233055Z
UID:10000176-1725580800-1725839999@hemosocal.org
SUMMARY:SOLD OUT - Familia de Sangre 2024
DESCRIPTION:Familia de Sangre está AGOTADA. Haga clic en el enlace a continuación para agregar su grupo a la lista de espera.\nAcompáñenos en la conferencia sobre trastornos hemorrágicos de habla hispana más grande del país. Regístrese antes del 30 de junio para precios “Early Bird.”\nPara obtener más información e inscribirse\, visite: www.familiadesangre.org\nPrecios de inscripción\nLa inscripción “Early Bird”: 1 de mayo al 30 de junio\n(Precio por edad basado en la entrada de Disneyland)\nAdultos (edades de 10+): $89\nNiños (edades de 3-9): $59\nBebes (edades de 0-2): Gratis\nLas inscripciones regulares: 1 de julio al 9 de agosto\n(Precio por edad basado en la entrada de Disneyland)\nAdultos (edades de 10+): $99\nNiños (edades de 3-9): $69\nBebes (edades de 0-2): Gratis\n~~~~~~~~~~~~~~~~~~~~~~~\nFamilia de Sangre is SOLD OUT. Please click the link below to add your group to the Waitlist. \nJoin us at the largest all Spanish speaking bleeding disorders conference in the nation. Register before June 30th for Early Bird pricing.\nFor more information and to register\, please visit: www.familiadesangre.org\nRegistration Pricing\nEarly Bird Pricing: May 1st to June 30th\n(Pricing age based on Disneyland ticket distribution)\nAdults (ages 10+): $89\nChildren (ages 3-9): $59\nBabies (ages 0-2): Free\nRegular Pricing: July 1st to August 9th\n(Pricing age based on Disneyland ticket distribution)\nAdults (ages 10+): $99\nChildren (ages 3-9): $69\nBabies (ages 0-2): Free
URL:https://hemosocal.org/event/familia-de-sangre-2024-marquen-sus-calendarios/
LOCATION:Anaheim Marriott\, 700 W Convention Way\, Anaheim\, CA\, 92802\, United States
CATEGORIES:Familia de Sangre
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/01/FDSLogo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240821T180000
DTEND;TZID=America/Los_Angeles:20240821T193000
DTSTAMP:20260525T153453
CREATED:20240715T191059Z
LAST-MODIFIED:20240808T232936Z
UID:10000186-1724263200-1724268600@hemosocal.org
SUMMARY:emPOWERment Webinar Series: Gene therapy information session featuring Pfizer
DESCRIPTION:Hearing from real patients in their own words can be important.\nThat’s why Pfizer is hosting a virtual informational session to hear about the gene therapy patient experience from someone who has received it.\nThis session will feature information on gene therapy as well as questions and answers with a patient\, led by a Pfizer medical colleague.\nThis session is also open to those affected by Hemophilia A or anyone interested to hear about one patient’s experience with gene therapy.\nSponsored by Pfizer
URL:https://hemosocal.org/event/empowerment-webinar-series-learn-how-gene-therapy-is-changing-the-hemophilia-b-landscape-a-patients-perspective/
LOCATION:CA
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/07/PfizerGraphic_Aug21Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240815T180000
DTEND;TZID=America/Los_Angeles:20240815T210000
DTSTAMP:20260525T153453
CREATED:20240715T183945Z
LAST-MODIFIED:20240808T232844Z
UID:10000185-1723744800-1723755600@hemosocal.org
SUMMARY:SOLD OUT - HFSC Community Dinner - Buena Park - "Kinesiology Taping"
DESCRIPTION:Please join us for an HFSC Community Dinner in Buena Park!\n“Kinesiology Taping”\nDr. Mike Zolo will be presenting on Kinesiology Taping – an interactive presentation where demonstrations of how to tape the shoulder\, elbow\, wrist\, neck\, low back\, knee\, and ankle will be performed while discussing the indications during acute injury. Taping will be demonstrated how to reduce swelling\, improve range of motion\, and improve overall stability to reduce pain.\nThank you to Octapharma for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-buena-park-kinesiology-taping/
LOCATION:Medieval Times\, 7662 Beach Blvd\, Buena Park\, CA\, 90620\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/06/OrangeCountyCommDinner_Octapharma_08.15.24-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240811T110000
DTEND;TZID=America/Los_Angeles:20240811T163000
DTSTAMP:20260525T153453
CREATED:20240715T175537Z
LAST-MODIFIED:20240808T232732Z
UID:10000184-1723374000-1723393800@hemosocal.org
SUMMARY:SOLD OUT - HFSC Women's Group Dodgers Game Outing
DESCRIPTION:For all women (and those who identify as women) with bleeding disorders as well as their daughters\, female spouses/partners\, female caregivers/parents to those with bleeding disorders.\nEl Paseo Inn | 11 E Olvera St. Los Angeles CA 90012 – and – Dodger Stadium | 1000 Vin Scully Dr. Los Angeles CA 90012 \nJoin us for an educational lunch\, sponsored by Octapharma\, at El Paseo Inn\, followed by a Dodgers game! Dr. Mike Zolo will be presenting on Kinesiology taping – an interactive presentation where demonstrations of how to tape the shoulder\, elbow\, wrist\, neck\, low back\, knee\, and ankle will be performed while discussing the indications during acute injury. Taping will be demonstrated how to reduce swelling\, improve range of motion\, and improve overall stability to reduce pain. \nThank you to Octapharma for your sponsorship!
URL:https://hemosocal.org/event/hfsc-womens-group-dodgers-game-outing/
LOCATION:El Paseo Inn\, 11 E Olvera St\, Los Angeles\, CA\, 90012
CATEGORIES:Women's Group
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/07/WomensDodgersGame_081124.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240807T180000
DTEND;TZID=America/Los_Angeles:20240807T200000
DTSTAMP:20260525T153453
CREATED:20240614T175321Z
LAST-MODIFIED:20240709T211118Z
UID:10000183-1723053600-1723060800@hemosocal.org
SUMMARY:HFSC Community Dinner - San Luis Obispo - "Shared Decision Making"
DESCRIPTION:Please join us for an HFSC Community Dinner in San Luis Obispo!\n“Shared Decision Making”\n\n\nA partnership between patient (and/or care partner or caregiver) and healthcare provider\n\n\nUsed to find therapies that are the best fit\, lifestyle changes that are effective but also realistic options for care that are cost effective\n\n\nUncovers patient treatment goals and takes them into account\n\n\nThank you to Pfizer for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-san-luis-obispo-shared-decision-making/
LOCATION:Cafe Roma\, 1020 Railroad Ave\, San Luis Obispo\, CA\, 93401\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/06/Community-Dinner_Pfizer_SLO_08.07.24_NOLOCATION.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240803T083000
DTEND;TZID=America/Los_Angeles:20240803T133000
DTSTAMP:20260525T153453
CREATED:20240612T201127Z
LAST-MODIFIED:20240715T183744Z
UID:10000182-1722673800-1722691800@hemosocal.org
SUMMARY:10th Annual Educational Symposium - "Back to School"
DESCRIPTION:Join us for our 10th Annual Educational Symposium!\nAgenda \n8:30AM – Booths Open\, Registration\, Continental Breakfast \n9:30AM – Childcare Check-In (ages 0-11\, must pre-register; spaces are limited) \n10:00AM – General Sessions; Teen Program \n12:00PM – Backpack Distribution\, Boxed Lunch\, Sponsor Booths open; Childcare Pick up \n1:30PM – Event Concludes
URL:https://hemosocal.org/event/save-the-date-10th-annual-educational-symposium-back-to-school/
LOCATION:Cal State Los Angeles – Golden Eagle Building\, 5151 State University Dr\, Los Angeles\, CA\, 90032\, United States
CATEGORIES:Back to School
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/06/BackToSchool2024_Square.png
END:VEVENT
END:VCALENDAR