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X-WR-CALNAME:Hemophilia Foundation of Southern California
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X-WR-CALDESC:Events for Hemophilia Foundation of Southern California
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250313
DTEND;VALUE=DATE:20250314
DTSTAMP:20260525T162643
CREATED:20250212T163310Z
LAST-MODIFIED:20250212T163310Z
UID:10000294-1741824000-1741910399@hemosocal.org
SUMMARY:HFSC + Panda Express Virtual Community Fundraiser
DESCRIPTION:Panda Express will donate 28% of sales to the Hemophilia Foundation of Southern California in support of those living with and who are affected by inherited bleeding disorders in Southern California!\nWHEN: Thursday\, March 13\, 2025\nWHERE: Available at Panda Express Locations nationwide: www.pandaexpress.com\nHOW: Online orders ONLY – Apply code 9002092 in the Fundraiser Code box during online checkout at www.pandaexpress.com or via Panda Express App. 
URL:https://hemosocal.org/event/hfsc-panda-express-virtual-community-fundraiser/
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2025/02/PandaExpress_March132025_CommFundraiser_WebsiteGraphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250305
DTEND;VALUE=DATE:20250308
DTSTAMP:20260525T162643
CREATED:20241210T182318Z
LAST-MODIFIED:20241210T182318Z
UID:10000287-1741132800-1741391999@hemosocal.org
SUMMARY:NBDF's Washington Days
DESCRIPTION:We want to share an important update about Washington Days from the National Bleeding Disorders Foundation (NBDF). \nNBDF has announced changes to their Washington Days registration process including a shortened deadline and limited spaces for each state. \nThe changes are as follows:\n\nAnyone living in the 9 counties (Orange\, Riverside\, San Bernardino\, Los Angeles\, Ventura\, Santa Barbara\, San Luis Obispo\, Kern\, & Inyo) who is interested in attending this event must submit an application to HFSC\, by clicking below.\nThis includes all Southern California community members who are attending on their own.\nCalifornia has been given 20 spots by NBDF. This includes the 4 bleeding disorder organizations (HASDC\, HFSC\, CCBDF\, HFNC) and HCC.\n\nDeadline to register is December 18\, 2024.\n\n\nAs directed by NBDF\, priority for registration will be given to constituents who (that are not employed or compensated by industry) have actively participated in previous advocacy initiatives. We encourage you to reach out promptly if you’d like to take part in this impactful event. \nIf you are interested in attending Washington Days\, please complete the application in the link below. \nFor questions contact Rigo Garcia at rigo@hemosocal.org or 626-765-6656.
URL:https://hemosocal.org/event/nbdfs-washington-days/
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Washington-Days-Website-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250301T090000
DTEND;TZID=America/Los_Angeles:20250301T130000
DTSTAMP:20260525T162643
CREATED:20241204T213929Z
LAST-MODIFIED:20250208T002414Z
UID:10000283-1740819600-1740834000@hemosocal.org
SUMMARY:2025 Industry Forum
DESCRIPTION:2025 INDUSTRY FORUM \nThe purpose of Industry Forum is to present information on new and pipeline products that treat rare bleeding disorders.\nOften the presentations are given directly by pharmaceutical companies and may include investigational therapies such as gene therapy.\nHFSC’s Medical Advisor is always present at this conference to answer any medical questions including those regarding clinical trials.\nIt is important to stay informed about new therapies that arise\, and we hope to see you there!\nSCHEDULE:\n9:00AM – Registration\, Industry Booth Time  (Creveling Room)\n10:00AM – Youth Activity check-in (Circadian Room)\n10:30AM – 12:30PM – Breakout Sessions\n12:30PM-1:00PM – Boxed Lunch To Go\nYouth Activities with The Painted Turtle for ages 5-12 will be available from 10:00AM-12:30PM in Circadian Room. Please promptly collect your children when the breakout sessions end. 
URL:https://hemosocal.org/event/save-the-date-2025-industry-forum/
LOCATION:Pasadena City College\, 1570 East Colorado Boulevard\, Pasadena\, CA\, 91106\, United States
CATEGORIES:Industry Forum
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Website-Graphic-Ind-Forum-25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250301
DTSTAMP:20260525T162643
CREATED:20241211T190544Z
LAST-MODIFIED:20241211T191155Z
UID:10000292-1740700800-1740787199@hemosocal.org
SUMMARY:SAVE THE DATE: Rare Disease Day 2025
DESCRIPTION:Rare Disease Day is the official international awareness-raising campaign for rare diseases observed annually on the last day of February.\nWith over 300 million people globally living with a rare disease\, we join hands across borders and amidst the 6000+ rare diseases to advocate for equitable access to diagnosis\, treatment\, care\, and social opportunities. Our key message for Rare Disease Day 2025 is “More than you can imagine!”
URL:https://hemosocal.org/event/save-the-date-rare-disease-day-2025/
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/12/Rare-Disease-Day-2025-Website-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241212T180000
DTEND;TZID=America/Los_Angeles:20241212T200000
DTSTAMP:20260525T162643
CREATED:20241108T225819Z
LAST-MODIFIED:20241204T214453Z
UID:10000282-1734026400-1734033600@hemosocal.org
SUMMARY:Snowflake Dinners
DESCRIPTION:Join one of 7 small community gatherings to celebrate the end of the year!\nClick link for more details. For those with bleeding disorders and their immediate family only.\nMake sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!\nThank you for choosing one location: all children ages 0-18 will receive a $25 Amazon gift card in lieu of a gift.\nSpaces are limited and will be first come\, first served.  All dinners are scheduled from 6-8 p.m.\n  \n12/3/2024: Lancaster\, CA  (La Papillon – 858 W Lancaster Blvd.\, Lancaster CA 93534)\n12/4/2024: Irvine\, CA (Del Frisco’s Grille – 772 Spectrum Center Dr.\, Irvine CA 92618)\n12/5/2024: Riverside\, CA (Palenque Kitchen – 3737 Main St #100\, Riverside CA 92501)\n12/8/2024: Bakersfield\, CA (The Hungry Hunter Steakhouse – 3580 Rosedale Hwy\, Bakersfield CA 93308)\n12/9/2024: Santa Barbara\, CA (Opal Restaurant & Bar – 1325 State St\, Santa Barbara CA 93101)\n12/12/2024: Glendale\, CA (Shiraz Restaurant – 211 S Glendale Ave\, Glendale CA 91205)\n12/12/2024: Pomona\, CA (Vita Italian Bar and Grill – 3101 W Temple Ave\, Pomona CA 91768)
URL:https://hemosocal.org/event/snowflake-dinners/
CATEGORIES:Snowflake Festival Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/11/Snowflake-Dinners-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241116
DTEND;VALUE=DATE:20241117
DTSTAMP:20260525T162643
CREATED:20240412T221435Z
LAST-MODIFIED:20240612T190410Z
UID:10000275-1731715200-1731801599@hemosocal.org
SUMMARY:Unite for Bleeding Disorders Walk & Health Fair
DESCRIPTION:About HFSC’s 16th Annual Unite for Bleeding Disorders Walk & Health Fair\nEach year\, the Hemophilia Foundation of Southern California hosts an annual Walk to raise crucial funds in support of our mission to “improve the quality of life and build community for those living with inherited bleeding disorders in Southern California.” 100% of all individual donations raised go directly to HFSC’s services and programs.\nPlease consider starting a team\, joining an existing team\, or making a donation\, in support of:\n\nAdvocacy and Access to Care\nEducational and Support Programs\nEmergency Financial Assistance\nCamp Blood Brothers & Sisters\nScholarships\nResearch\n\nAny amount you raise will make a huge difference and will help us continue to assist\, advocate\, and serve those living with bleeding disorders in Southern California. \nTHANK YOU!\nCada año\, la Fundación de Hemofilia del Sur de California organiza una Caminata anual para recaudar fondos cruciales en apoyo de nuestra misión de “mejorar la calidad de vida y construir una comunidad para quienes viven con trastornos de la coagulación hereditarios en el sur de California”. El 100% de todas las donaciones individuales recaudadas van directamente a los servicios y programas de HFSC.\nConsidere comenzar un equipo\, unirse a un equipo existente o hacer una donación\, en apoyo de la abogació y el acceso a la atención\, programas educativos y de apoyo\, investigación y el campamento de Camp Blood Brothers & Sisters. Cualquier cantidad que recaude marcará una gran diferencia y nos ayudará a continuar asistiendo\, abogando y sirviendo a las personas que viven con trastornos hemorrágicos en el sur de California.\n¡GRACIAS!\n \nWhen making a donation via check\, please be sure to make checks payable to Hemophilia Foundation of Southern California and please include the name of the Team or Individual Walker you are supporting. Checks may be sent to:\nCuando haga una donación mediante cheque\, asegúrese de hacer los cheques pagaderos a la Fundación de Hemofilia del Sur de California e incluya el nombre del Equipo o Caminante individual que está apoyando. Los cheques pueden enviarse a:\nHemophilia Foundation of Southern California\nAttn: Walk\n959 E. Walnut Street\, Suite 114\nPasadena\, CA 91106\nQuestions? Please contact Michele Warner\, Director of Development\, at mwarner@hemosocal.org or 310-415-2390.\n¿Preguntas? Por favor de contactar a Michele Warner\, Directora de Desarrollo\, at mwarner@hemosocal.org o 310-415-2390.\nWe can’t wait to see you on November 16! ¡Estamos ansiosos por verlos el 16 de noviembre!
URL:https://hemosocal.org/event/unite-for-bleeding-disorders-walk-health-fair/
LOCATION:The Meadows at Whittier Narrows\, 751 S. Santa Anita Ave.\, South El Monte\, CA\, 91733\, United States
CATEGORIES:Unite for Bleeding Disorders Walk
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/04/Website-Thumbnail_Walk24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241107T180000
DTEND;TZID=America/Los_Angeles:20241107T200000
DTSTAMP:20260525T162643
CREATED:20240920T174147Z
LAST-MODIFIED:20240930T202338Z
UID:10000190-1731002400-1731009600@hemosocal.org
SUMMARY:HFSC Cena de Mujeres Enlazadas por Sangre
DESCRIPTION:“Involúcrense: divulgación y defensa de los trastornos sanguíneos”\nTodos tienen una historia para contar. Es importante que personas reales compartan sus experiencias con el fin de abogar por las personas de la comunidad con trastornos sanguíneos y por ellos mismos. Ganen confianza\, mejoren las habilidades de comunicación y hagan conexiones.\n¡Gracias a TAKEDA por su patrocinio!
URL:https://hemosocal.org/event/hfsc-cena-de-mujeres-enlazadas-por-sangre/
LOCATION:El Paseo Inn\, 11 E Olvera St\, Los Angeles\, CA\, 90012
CATEGORIES:Mujeres Enlazadas por Sangre Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/09/HFSC-Cena-de-Mujeres-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241023T180000
DTEND;TZID=America/Los_Angeles:20241023T200000
DTSTAMP:20260525T162643
CREATED:20241004T203114Z
LAST-MODIFIED:20241004T203114Z
UID:10000191-1729706400-1729713600@hemosocal.org
SUMMARY:HFSC Community Dinner: "Hear from a Gene Therapy Patient"
DESCRIPTION:Please join us for an educational dinner\, “Hear from a Gene Therapy Patient!”\nLearn more about gene therapy and the patient experience in an informational session. \nThis live session will feature information about gene therapy as well as a question and answer segment with a patient and a Pfizer medical colleague.\nThank you to Pfizer for your sponsorship!\n 
URL:https://hemosocal.org/event/hfsc-community-dinner-hear-from-a-gene-therapy-patient/
LOCATION:The Hacienda\, 1725 College Ave\, Santa Ana\, CA\, 92706\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/10/Santa-Ana-102324.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241019T100000
DTEND;TZID=America/Los_Angeles:20241019T130000
DTSTAMP:20260525T162643
CREATED:20240912T220947Z
LAST-MODIFIED:20241008T225508Z
UID:10000188-1729332000-1729342800@hemosocal.org
SUMMARY:Gettin' In the Game
DESCRIPTION:Please join us at Top Golf Ontario for an educational breakfast with a Gettin’ in the Game athlete followed by hitting bay time. \nRegistration starts at 10:00AM.\nThank you to CSL Behring for your sponsorship!
URL:https://hemosocal.org/event/gettin-in-the-game/
LOCATION:Top Golf Ontario\, 1050 N Archibald Ave\, Ontario\, CA\, 91764\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/09/Top-Golf-Header_Oct2024_Rev2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241009T190000
DTEND;TZID=America/Los_Angeles:20241009T203000
DTSTAMP:20260525T162643
CREATED:20240913T003949Z
LAST-MODIFIED:20241008T214256Z
UID:10000189-1728500400-1728505800@hemosocal.org
SUMMARY:emPOWERment Webinar Series - "Advocacy"
DESCRIPTION:Please join us for our emPOWERment Webinar on “Advocacy” with Lindsey Viscarra (State Policy Manager\, National Organization for Rare Disorders).\nAre you passionate about making a difference in your community? Join Lindsey Viscarra\, State Policy Manager at the National Organization of Rare Disorders\, to gain the skills and knowledge to effectively champion the issues that matter most. Whether you’re new to advocacy or looking to enhance your current efforts\, this training will equip you with practical tools for engaging with policymakers\, raising awareness\, and driving meaningful change. Don’t miss this opportunity to strengthen your voice and become a more impactful advocate.
URL:https://hemosocal.org/event/empowerment-webinar-series-advocacy/
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/09/Advocacy-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241005T170000
DTEND;TZID=America/Los_Angeles:20241005T220000
DTSTAMP:20260525T162643
CREATED:20240412T222606Z
LAST-MODIFIED:20240924T162305Z
UID:10000276-1728147600-1728165600@hemosocal.org
SUMMARY:HFSC 70th Anniversary Gala
DESCRIPTION:Please join us to celebrate the Hemophilia Foundation of Southern California’s 70th Anniversary!\n5:00PM-7:00PM: Check-In and Cocktail Reception\n7:00PM-8:30PM: Dinner\n8:30PM-9:30PM: Award Ceremony\n9:30PM: Guest Check-Out\n10:00PM: Event Concludes\n \n\n 
URL:https://hemosocal.org/event/save-the-date-70th-anniversary-gala/
LOCATION:Noor\, 300 E Colorado Blvd Suite 200\, Pasadena\, CA\, 91101\, United States
CATEGORIES:70th Gala
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/04/70th-Anniversary.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240924T180000
DTEND;TZID=America/Los_Angeles:20240924T200000
DTSTAMP:20260525T162643
CREATED:20240808T181403Z
LAST-MODIFIED:20240912T221247Z
UID:10000187-1727200800-1727208000@hemosocal.org
SUMMARY:HFSC Community Dinner - "Science of Gene Therapy"
DESCRIPTION:“Science of Gene Therapy”\nWith recent approvals of gene therapy in hemophilia\, you may be wondering what is gene\ntherapy and where is the science now? This educational session examines how gene therapy is\ndelivered into the body\, what happens afterwards\, what makes it a potential treatment option\nin hemophilia\, and who might be a candidate? Let’s break down the key principles and explore\nkey considerations together.\nThank you to Pfizer for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-hemophilia-gene-therapy/
LOCATION:Cara Mia\, 7945 Vineyard Ave Ste D7\, Rancho Cucumonga\, CA\, 91730\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/08/Community-Dinner-Rancho-Cucamonga-Image-for-Website-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240906
DTEND;VALUE=DATE:20240909
DTSTAMP:20260525T162643
CREATED:20240105T234447Z
LAST-MODIFIED:20240808T233055Z
UID:10000176-1725580800-1725839999@hemosocal.org
SUMMARY:SOLD OUT - Familia de Sangre 2024
DESCRIPTION:Familia de Sangre está AGOTADA. Haga clic en el enlace a continuación para agregar su grupo a la lista de espera.\nAcompáñenos en la conferencia sobre trastornos hemorrágicos de habla hispana más grande del país. Regístrese antes del 30 de junio para precios “Early Bird.”\nPara obtener más información e inscribirse\, visite: www.familiadesangre.org\nPrecios de inscripción\nLa inscripción “Early Bird”: 1 de mayo al 30 de junio\n(Precio por edad basado en la entrada de Disneyland)\nAdultos (edades de 10+): $89\nNiños (edades de 3-9): $59\nBebes (edades de 0-2): Gratis\nLas inscripciones regulares: 1 de julio al 9 de agosto\n(Precio por edad basado en la entrada de Disneyland)\nAdultos (edades de 10+): $99\nNiños (edades de 3-9): $69\nBebes (edades de 0-2): Gratis\n~~~~~~~~~~~~~~~~~~~~~~~\nFamilia de Sangre is SOLD OUT. Please click the link below to add your group to the Waitlist. \nJoin us at the largest all Spanish speaking bleeding disorders conference in the nation. Register before June 30th for Early Bird pricing.\nFor more information and to register\, please visit: www.familiadesangre.org\nRegistration Pricing\nEarly Bird Pricing: May 1st to June 30th\n(Pricing age based on Disneyland ticket distribution)\nAdults (ages 10+): $89\nChildren (ages 3-9): $59\nBabies (ages 0-2): Free\nRegular Pricing: July 1st to August 9th\n(Pricing age based on Disneyland ticket distribution)\nAdults (ages 10+): $99\nChildren (ages 3-9): $69\nBabies (ages 0-2): Free
URL:https://hemosocal.org/event/familia-de-sangre-2024-marquen-sus-calendarios/
LOCATION:Anaheim Marriott\, 700 W Convention Way\, Anaheim\, CA\, 92802\, United States
CATEGORIES:Familia de Sangre
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/01/FDSLogo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240821T180000
DTEND;TZID=America/Los_Angeles:20240821T193000
DTSTAMP:20260525T162643
CREATED:20240715T191059Z
LAST-MODIFIED:20240808T232936Z
UID:10000186-1724263200-1724268600@hemosocal.org
SUMMARY:emPOWERment Webinar Series: Gene therapy information session featuring Pfizer
DESCRIPTION:Hearing from real patients in their own words can be important.\nThat’s why Pfizer is hosting a virtual informational session to hear about the gene therapy patient experience from someone who has received it.\nThis session will feature information on gene therapy as well as questions and answers with a patient\, led by a Pfizer medical colleague.\nThis session is also open to those affected by Hemophilia A or anyone interested to hear about one patient’s experience with gene therapy.\nSponsored by Pfizer
URL:https://hemosocal.org/event/empowerment-webinar-series-learn-how-gene-therapy-is-changing-the-hemophilia-b-landscape-a-patients-perspective/
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/07/PfizerGraphic_Aug21Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240815T180000
DTEND;TZID=America/Los_Angeles:20240815T210000
DTSTAMP:20260525T162643
CREATED:20240715T183945Z
LAST-MODIFIED:20240808T232844Z
UID:10000185-1723744800-1723755600@hemosocal.org
SUMMARY:SOLD OUT - HFSC Community Dinner - Buena Park - "Kinesiology Taping"
DESCRIPTION:Please join us for an HFSC Community Dinner in Buena Park!\n“Kinesiology Taping”\nDr. Mike Zolo will be presenting on Kinesiology Taping – an interactive presentation where demonstrations of how to tape the shoulder\, elbow\, wrist\, neck\, low back\, knee\, and ankle will be performed while discussing the indications during acute injury. Taping will be demonstrated how to reduce swelling\, improve range of motion\, and improve overall stability to reduce pain.\nThank you to Octapharma for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-buena-park-kinesiology-taping/
LOCATION:Medieval Times\, 7662 Beach Blvd\, Buena Park\, CA\, 90620\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/06/OrangeCountyCommDinner_Octapharma_08.15.24-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240811T110000
DTEND;TZID=America/Los_Angeles:20240811T163000
DTSTAMP:20260525T162643
CREATED:20240715T175537Z
LAST-MODIFIED:20240808T232732Z
UID:10000184-1723374000-1723393800@hemosocal.org
SUMMARY:SOLD OUT - HFSC Women's Group Dodgers Game Outing
DESCRIPTION:For all women (and those who identify as women) with bleeding disorders as well as their daughters\, female spouses/partners\, female caregivers/parents to those with bleeding disorders.\nEl Paseo Inn | 11 E Olvera St. Los Angeles CA 90012 – and – Dodger Stadium | 1000 Vin Scully Dr. Los Angeles CA 90012 \nJoin us for an educational lunch\, sponsored by Octapharma\, at El Paseo Inn\, followed by a Dodgers game! Dr. Mike Zolo will be presenting on Kinesiology taping – an interactive presentation where demonstrations of how to tape the shoulder\, elbow\, wrist\, neck\, low back\, knee\, and ankle will be performed while discussing the indications during acute injury. Taping will be demonstrated how to reduce swelling\, improve range of motion\, and improve overall stability to reduce pain. \nThank you to Octapharma for your sponsorship!
URL:https://hemosocal.org/event/hfsc-womens-group-dodgers-game-outing/
LOCATION:El Paseo Inn\, 11 E Olvera St\, Los Angeles\, CA\, 90012
CATEGORIES:Women's Group
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/07/WomensDodgersGame_081124.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240807T180000
DTEND;TZID=America/Los_Angeles:20240807T200000
DTSTAMP:20260525T162643
CREATED:20240614T175321Z
LAST-MODIFIED:20240709T211118Z
UID:10000183-1723053600-1723060800@hemosocal.org
SUMMARY:HFSC Community Dinner - San Luis Obispo - "Shared Decision Making"
DESCRIPTION:Please join us for an HFSC Community Dinner in San Luis Obispo!\n“Shared Decision Making”\n\n\nA partnership between patient (and/or care partner or caregiver) and healthcare provider\n\n\nUsed to find therapies that are the best fit\, lifestyle changes that are effective but also realistic options for care that are cost effective\n\n\nUncovers patient treatment goals and takes them into account\n\n\nThank you to Pfizer for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-san-luis-obispo-shared-decision-making/
LOCATION:Cafe Roma\, 1020 Railroad Ave\, San Luis Obispo\, CA\, 93401\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/06/Community-Dinner_Pfizer_SLO_08.07.24_NOLOCATION.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240803T083000
DTEND;TZID=America/Los_Angeles:20240803T133000
DTSTAMP:20260525T162643
CREATED:20240612T201127Z
LAST-MODIFIED:20240715T183744Z
UID:10000182-1722673800-1722691800@hemosocal.org
SUMMARY:10th Annual Educational Symposium - "Back to School"
DESCRIPTION:Join us for our 10th Annual Educational Symposium!\nAgenda \n8:30AM – Booths Open\, Registration\, Continental Breakfast \n9:30AM – Childcare Check-In (ages 0-11\, must pre-register; spaces are limited) \n10:00AM – General Sessions; Teen Program \n12:00PM – Backpack Distribution\, Boxed Lunch\, Sponsor Booths open; Childcare Pick up \n1:30PM – Event Concludes
URL:https://hemosocal.org/event/save-the-date-10th-annual-educational-symposium-back-to-school/
LOCATION:Cal State Los Angeles – Golden Eagle Building\, 5151 State University Dr\, Los Angeles\, CA\, 90032\, United States
CATEGORIES:Back to School
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/06/BackToSchool2024_Square.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240716
DTEND;VALUE=DATE:20240722
DTSTAMP:20260525T162643
CREATED:20240105T230750Z
LAST-MODIFIED:20240412T223121Z
UID:10000173-1721088000-1721606399@hemosocal.org
SUMMARY:Camp Blood Brothers and Sisters at The Painted Turtle
DESCRIPTION:Camp Blood Brothers and Sisters at The Painted Turtle\nJuly 16-21\, 2024\nAPPLY NOW at www.thepaintedturtle.org/apply\nApplication Checklist: \n\nClearance from Camper’s Medical Provider\nCopy of most recent Progress Notes\nImmunization Record (please note – COVID-19 vaccine is no longer required)\nCamper Health History\nMedication List\nAllergies (if any)\n2024 TPT Policy Forms (available on The Painted Turtle website)\n\nQUESTIONS? Please contact Omar Torres (omar@hemosocal.org)!\n\n___________________________________________________________________\n¡Está abierta la inscripción para el Campamento Blood Brothers and Sisters 2024 en The Painted Turtle!\n\nÚnase con nosotros julio 16-21\, 2024\, para una semana de diversión\, amistad\, y habilidades para la vida.\nInscríbase en thepaintedturtle.org/apply.\n¡Date prisa\, las plazas son limitadas!\n\n¿Preguntas? Contacte con nosotros a omar@hemosocal.org
URL:https://hemosocal.org/event/camp-blood-brothers-and-sisters-at-the-painted-turtle/
LOCATION:The Painted Turtle\, 17000 Elizabeth Lake Road\, Lake Hughes\, CA\, 93532\, United States
CATEGORIES:Camp Blood Brothers and Sisters
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/01/CampPic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240713T100000
DTEND;TZID=America/Los_Angeles:20240713T150000
DTSTAMP:20260525T162643
CREATED:20240612T155054Z
LAST-MODIFIED:20240612T155054Z
UID:10000281-1720864800-1720882800@hemosocal.org
SUMMARY:BRO Men's Retreat
DESCRIPTION:Men’s Retreat 2024\nJuly 13\, 2024 | The Boathouse on the Bay | 190 N Marina Dr\, Long Beach\, CA 90803\n\n\n\n\n\n\n\nJoin us for our Men’s Retreat at The Boathouse on the Bay in Long Beach! For all men (and those who identify as men) age 18+ with bleeding disorders as well as spouses/partners\, caregivers/parents to those with bleeding disorders. \nAGENDA (subject to change) \n10:00AM: Booths Open\, Registration \n11:30PM: Welcome/Booths Open \n12:00PM: Lunch and Presentation \n1:30PM: Group Photo \n1:45PM: Optional Activity – Hydrobiking
URL:https://hemosocal.org/event/bro-mens-retreat/
LOCATION:The Boathouse on the Bay\, 190 N Marina Dr\, Long Beach\, CA\, 90803\, United States
CATEGORIES:BRO Gathering
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/06/2024-Mens-Retreat-Instagram-Post-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240622T093000
DTEND;TZID=America/Los_Angeles:20240622T133000
DTSTAMP:20260525T162643
CREATED:20240408T180200Z
LAST-MODIFIED:20240620T183009Z
UID:10000274-1719048600-1719063000@hemosocal.org
SUMMARY:EVENT CANCELED: Shaka Surf Fest and Beach Day
DESCRIPTION:Event Canceled \n\n\nWe regret to inform you that the Shaka Surf Fest and Beach Day 2024 on June 22 at Santa Monica Beach has been CANCELED due to health and safety concerns over elevated water quality levels reported by the Los Angeles County Public Health.\n\n\nThe safety and well-being of our community members are our top priorities. Therefore\, we believe this precautionary measure is necessary to ensure everyone’s health and safety.\n\n\nRefunds for surfing lessons will be processed within two weeks. We are working on rescheduling the event with our sponsors\, Aqua Surf Team\, and medical committee and will keep you updated.\n\n\nThank you for your understanding and support.\n~~~~~~~~~~~\n Evento Cancelado \n\n\nLamentamos informarles que el Shaka Surf Fest y Beach Day 2024 del 22 de junio en la playa de Santa Mónica ha sido cancelado debido a preocupaciones de salud y seguridad por los elevados niveles de calidad del agua reportados por la Salud Pública del Condado de Los Ángeles.\n\n\nLa seguridad y el bienestar de los miembros de nuestra comunidad son nuestras principales prioridades. Por lo tanto\, creemos que esta medida de precaución es necesaria para asegurar la salud y la seguridad de todos.\n\n\nLos reembolsos de las clases de surf se procesarán dentro de dos semanas. Estamos trabajando para reprogramar el evento con nuestros patrocinadores\, Aqua Surf Team y el comité médico y les mantendremos informados.\n\n\nGracias por su comprensión y apoyo.\n\n—————————————————-\nJoin us in Santa Monica for surf lessons and a fun family day at the beach! Surfing lessons are available for kids ages 5+ for a nominal administrative fee of $5/child and no experience is needed (Note: participants must know how to swim).\n**THIS EVENT IS FOR COMMUNITY MEMBERS WITH BLEEDING DISORDERS AND THEIR IMMEDIATE FAMILY ONLY**\n\nEvent Day Details:\n\n9:30am: Registration\n\n10:00am-12:00pm: Surf Lesson Session\n\nLessons $5.00 per person. Registration will be first come\, first served.\n\n12:00pm: Lunch Served\n\nParking: $12 in South Lot 5\, 2701 Barnard Way\, Santa Monica\, CA 90405. Look for the Aqua Surf tents on the beach!\n\nFood: Lunch and snacks will be provided!\n\nSurfers: Surfers CANNOT be late for the lesson which will begin strictly on time. Please do not sign up if you are unsure you will be unable to fulfill the reservation as spaces are limited. Have a bleeding disorder and on prophy? Please take your prophy dose in the morning prior to your surf lesson and bring an extra emergency dose in a cooler with supplies!\n\nBeach Day Ticket: Bring your blanket and some sunscreen\, and enjoy a day at the beach!\n\n** HFSC collects data from visitors to this site. Information collected is entered into the HFSC database. The visitor will be placed on a list to receive HFSC e-mail communications (HFSC once a month event notices and any other notices of importance to the bleeding disorders community and others)\, as well as occasional communications by regular mail. Visitors who do not wish to receive communications from HFSC have the opportunity to opt out at any time.\n\n——–\n\nÚnase con nosotros en Santa Mónica para tomar clases de surf y pasar un divertido día familiar en la playa. Clases de surf están disponibles para niños mayores de 5 años por un costo administrativo de $ 5 / niño y no es necesario tener experiencia (debe saber nadar).\n\n**ESTE EVENTO ES SÓLO PARA MIEMBROS DE LA COMUNIDAD CON TRASTORNOS HEMORRÁGICOS Y SU FAMILIA INMEDIATA **.\n\nDetalles del día del evento:\n\n9:30am: Registro\n\n10:00am-12:00pm: Sesión de Clases de Surf\n\nLas clases cuestan $5.00 por persona. La registración será por orden de llegada.\n\n12:00pm: Almuerzo servido\n\nEstacionamiento: $12 en South Lot 5\, 2701 Barnard Way\, Santa Monica\, CA 90405. Busca las carpas de Aqua Surf en la playa.\n\nComida: ¡Almuerzo y aperitivos serán proporcionados!\n\nSurfistas: Los surfistas NO PUEDEN llegar tarde a la clase que empezará a la hora estricta. Por favor\, no se registre si no está seguro de que será capaz de cumplir con la reserva\, como los espacios son limitados. ¿Tiene un trastorno hemorrágico y en profilaxis? ¡Por favor\, tome su dosis de profilaxis en la mañana antes de su clase de surf y traiga una dosis extra de emergencia en una hielera con los suministros!\n\nEntrada para el día de playa: ¡Traiga su manta y algo de crema solar\, y disfrute de un día en la playa!\n\n** El HFSC recopila datos de los visitantes de este sitio. La información recogida se introduce en la base de datos del HFSC. El visitante será incluido en una lista para recibir comunicaciones de HFSC por correo electrónico (avisos de eventos de HFSC una vez al mes y cualquier otro aviso de importancia para la comunidad de trastornos hemorrágicos y otros)\, así como comunicaciones ocasionales por correo ordinario. Los visitantes que no deseen recibir comunicaciones de la HFSC tienen la oportunidad de darse de baja en cualquier momento.
URL:https://hemosocal.org/event/save-the-date-shaka-surf-fest-and-beach-day/
LOCATION:Santa Monica Beach 2701 Barnard Way Santa Monica\, CA 90405\, 2701 Barnard Way\, Santa Monica\, CA\, 90405
CATEGORIES:Surf Fest
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/04/Shaka-Surf-Canceled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240613T180000
DTEND;TZID=America/Los_Angeles:20240613T200000
DTSTAMP:20260525T162643
CREATED:20240417T234730Z
LAST-MODIFIED:20240417T235322Z
UID:10000280-1718301600-1718308800@hemosocal.org
SUMMARY:HFSC Community Dinner - Lancaster
DESCRIPTION:Please join us for a Community Dinner in Lancaster!\n“Introducing Investigational Gene Therapy Clinical Trials for Hemophilia”\nPresented by Guillermo Campillo\, Lead Patient Education Liaison\, Spark Therapeutics\nDo you have questions about the clinical trial process for hemophilia gene therapy research? Join us for a 45-minute interactive session which dives into the journey of considering\, deciding about\, or participating in an investigational hemophilia gene therapy clinical trial. This session is intended for any hemophilia community members\, those who are affected by hemophilia and those who support them. Our aim is to provide a space for active consideration so that session participants walk away feeling more informed and empowered.\nThank you to Spark Therapeutics for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-lancaster/
LOCATION:La Papillon\, 858 W Lancaster Blvd\, Lancaster\, CA\, 93534\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/04/CommDinner-Spark-6.13_Header.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240611T180000
DTEND;TZID=America/Los_Angeles:20240611T200000
DTSTAMP:20260525T162643
CREATED:20240417T161013Z
LAST-MODIFIED:20240417T161133Z
UID:10000277-1718128800-1718136000@hemosocal.org
SUMMARY:HFSC Community Dinner - Bakersfield
DESCRIPTION:Join us for a Community Dinner in Bakersfield!\nHEMGENIX (ETRANACOGENE DEZAPARVOVEC-DRLB) The first and only FDA-approved gene therapy for hemophilia B.\nSpeaker: Dr. Doris Quon\nThis educational program offers you and your family members the opportunity to:\n\nLearn about HEMGENIX\, the first and only gene therapy approved for hemophilia B\nGain insightful information and deepen your understanding of HEMGENIX through a LIVE Q&A session\nAsk questions and receive new resources on gene therapy\n\nThank you to CSL Behring for your sponsorship! 
URL:https://hemosocal.org/event/hfsc-community-dinner-bakersfield-2/
LOCATION:DoubleTree by Hilton Bakersfield\, 3100 Camino del Rio Court\, Bakersfield\, CA\, 93308\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/03/CommDinner-CSL-6.11.24.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240609T180000
DTEND;TZID=America/Los_Angeles:20240609T200000
DTSTAMP:20260525T162643
CREATED:20240417T161555Z
LAST-MODIFIED:20240417T161637Z
UID:10000278-1717956000-1717963200@hemosocal.org
SUMMARY:HFSC Community Dinner - Monterey Park - English Session
DESCRIPTION:Join us for a Community Dinner in Monterey Park!\nLearn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox)\, for adults with severe hemophilia A. \n\nHear one person’s experience with ROCTAVIAN\nLearn what’s possible with ROCTAVIAN\nSee how you could get started today\n\nPresented By:\nBilly Duckworth \nSr. Account Manager\, Gene Therapy\nBioMarin Pharmaceutical\, Inc.\nand\nAndrew W. \nClinical Trial Participant\nThis session will be presented in English.\nThank you to BioMarin for your sponsorship! 
URL:https://hemosocal.org/event/hfsc-community-dinner-monterey-park-english-session/
LOCATION:Luminarias\, 3500 W Ramona Blvd\, Monterey Park\, CA\, 91754\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/04/CommDinner-BioMarin-6.9.24_English.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240609T173000
DTEND;TZID=America/Los_Angeles:20240609T193000
DTSTAMP:20260525T162643
CREATED:20240417T162209Z
LAST-MODIFIED:20240417T162959Z
UID:10000279-1717954200-1717961400@hemosocal.org
SUMMARY:HFSC Community Dinner - Monterey Park - Spanish Session
DESCRIPTION:Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox)\, for adults with severe hemophilia A. \n\nHear one person’s experience with ROCTAVIAN\nLearn what’s possible with ROCTAVIAN\nSee how you could get started today\n\nPresented By:\nDr. Vanessa K. Salinas-Luna\nPediatric Hematology\nCenter for Inherited Blood Disorders\nand\nAndrew W. \nClinical Trial Participant\nThank you to BioMarin for your sponsorship! \nThis session will be presented in Spanish.\n______ \nÚnase a nosotros para una cena comunitaria en Luminarias en Monterey Park.\n\nLa presentación se ofrecerá en español.\nGracias a BioMarin por su patrocinio.
URL:https://hemosocal.org/event/hfsc-community-dinner-monterey-park-spanish-session/
LOCATION:Luminarias\, 3500 W Ramona Blvd\, Monterey Park\, CA\, 91754\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/04/CommDinner-BioMarin-6.9.24_Spanish.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240601
DTEND;VALUE=DATE:20240603
DTSTAMP:20260525T162643
CREATED:20240105T231428Z
LAST-MODIFIED:20240501T223821Z
UID:10000174-1717200000-1717372799@hemosocal.org
SUMMARY:Family Retreat Weekend
DESCRIPTION:Join us for our Family Retreat Weekend at the Pali Retreat Center in the San Bernardino National Forest.  \nHFSC invites families living with a rare bleeding disorder to enjoy a weekend in the mountains for family camp. Sample activities for kids and parents include a campfire\, arts and crafts\, ropes course\, archery\, and talent show. Teen and parent activities also are offered throughout the weekend including self-infusion instruction. This special weekend offers much-needed respite\, recreation\, and family time while also allowing children attending summer camp to get to know each other before leaving for camp.  \n\n\n\n\n\n\nPlease register all members of your party together. HFSC will make cabin assignments based on what type of cabins are available at the time of registration. Each cabin must have at least one person age 18+. Adding participants to your group after initial registration will be based on availability and is not guaranteed. Please note that bedding and towels are not provided by Pali. Thank you!
URL:https://hemosocal.org/event/save-the-date-family-retreat-weekend/
LOCATION:Pali Mountain Retreat\, 30778 CA-18\, Running Springs\, CA\, 92382\, United States
CATEGORIES:Family Retreat
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/01/HFSC-Family-Retreat-2023.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240516T180000
DTEND;TZID=America/Los_Angeles:20240516T200000
DTSTAMP:20260525T162643
CREATED:20240327T181802Z
LAST-MODIFIED:20240403T173927Z
UID:10000273-1715882400-1715889600@hemosocal.org
SUMMARY:HFSC Community Dinner - Riverside
DESCRIPTION:Please join us for a community dinner!\n“My Journey to Jivi with Austin Caldwell”\nThank you to Bayer for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-riverside/
LOCATION:Palenque\, 3737 Main St #100\, Riverside\, CA\, 92501\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/03/CommDinner-Bayer-5.16.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240515T190000
DTEND;TZID=America/Los_Angeles:20240515T203000
DTSTAMP:20260525T162643
CREATED:20240307T010540Z
LAST-MODIFIED:20240307T010540Z
UID:10000180-1715799600-1715805000@hemosocal.org
SUMMARY:emPOWERment Webinar Series: "Big Goals\, Small Steps"
DESCRIPTION:In this interactive session we’ll discern your goals and break down how to make then a reality\, including identifying the skills you’ll need and how to build them.
URL:https://hemosocal.org/event/empowerment-webinar-series-big-goals-small-steps/
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/02/Goals.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240504
DTEND;VALUE=DATE:20240505
DTSTAMP:20260525T162643
CREATED:20240105T225519Z
LAST-MODIFIED:20240416T211315Z
UID:10000172-1714780800-1714867199@hemosocal.org
SUMMARY:SOLD OUT - Family Information Day and Annual Meeting 2024
DESCRIPTION:Join us for our Family Information Day and Annual Meeting on May 4\, 2024.\n \nThank you for your interest in Family Information Day 2024. The event is currently SOLD OUT. \nPlease contact Omar Torres\, Outreach Coordinator\, to be placed on the waitlist. \n(omar@hemosocal.org or 626-765-6656)
URL:https://hemosocal.org/event/save-the-date-family-information-day-and-annual-meeting-2024/
LOCATION:Knott’s Hotel\, 7675 Crescent Ave\, Buena Park\, CA\, 90620\, United States
CATEGORIES:Family Information Day/Annual Meeting
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/01/FID-Banner.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240427T120000
DTEND;TZID=America/Los_Angeles:20240427T150000
DTSTAMP:20260525T162643
CREATED:20240321T224912Z
LAST-MODIFIED:20240322T212055Z
UID:10000272-1714219200-1714230000@hemosocal.org
SUMMARY:BRO Outing - Top Golf (El Segundo)
DESCRIPTION:Join us for a Bleeders Reaching Out (“BRO”) group outing to TOP GOLF in El Segundo!\n“Turning Stumbling Blocks into Stepping Stones” \nPerry thinks of himself as a very lucky guy – but he’s also a firm believer that people make their own luck. Growing up with Hemophilia A\, Perry was told many times by his doctors and nurses that he couldn’t do things\, particularly when it came to sports. But his parents wanted Perry and his brother – who also has hemophilia – to have freedom to make their own good choices. So\, with their emotional support and encouragement\, Perry pushed himself to explore what he could do\, which led to a lifelong love of golf. When he started playing golf professionally\, he was reluctant to tell the other players he toured with about his hemophilia\, fearing they’d think less of him. But when he finally did talk to them about it\, they were impressed with his perseverance.\nThe educational session will be followed with time at the Driving Range to improve your swing and bond with Blood Brothers.\nThis event is open to adults who identify as male (ages 18+) as well as teens who identify as male with a bleeding disorder diagnosis. Teens must be accompanied by a male adult.\nThank  you to CSL Behring for your sponsorship of this event! 
URL:https://hemosocal.org/event/bro-outing-top-golf-el-segundo/
LOCATION:Top Golf El Segundo\, 400 S Pacific Coast Hwy\, El Segundo\, CA\, 90245\, United States
CATEGORIES:BRO Gathering
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/02/Top-Golf-4.27.24-Website-Square.png
END:VEVENT
END:VCALENDAR