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X-WR-CALNAME:Hemophilia Foundation of Southern California
X-ORIGINAL-URL:https://hemosocal.org
X-WR-CALDESC:Events for Hemophilia Foundation of Southern California
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240803T083000
DTEND;TZID=America/Los_Angeles:20240803T133000
DTSTAMP:20260525T210811
CREATED:20240612T201127Z
LAST-MODIFIED:20240715T183744Z
UID:10000182-1722673800-1722691800@hemosocal.org
SUMMARY:10th Annual Educational Symposium - "Back to School"
DESCRIPTION:Join us for our 10th Annual Educational Symposium!\nAgenda \n8:30AM – Booths Open\, Registration\, Continental Breakfast \n9:30AM – Childcare Check-In (ages 0-11\, must pre-register; spaces are limited) \n10:00AM – General Sessions; Teen Program \n12:00PM – Backpack Distribution\, Boxed Lunch\, Sponsor Booths open; Childcare Pick up \n1:30PM – Event Concludes
URL:https://hemosocal.org/event/save-the-date-10th-annual-educational-symposium-back-to-school/
LOCATION:Cal State Los Angeles – Golden Eagle Building\, 5151 State University Dr\, Los Angeles\, CA\, 90032\, United States
CATEGORIES:Back to School
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/06/BackToSchool2024_Square.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240716
DTEND;VALUE=DATE:20240722
DTSTAMP:20260525T210811
CREATED:20240105T230750Z
LAST-MODIFIED:20240412T223121Z
UID:10000173-1721088000-1721606399@hemosocal.org
SUMMARY:Camp Blood Brothers and Sisters at The Painted Turtle
DESCRIPTION:Camp Blood Brothers and Sisters at The Painted Turtle\nJuly 16-21\, 2024\nAPPLY NOW at www.thepaintedturtle.org/apply\nApplication Checklist: \n\nClearance from Camper’s Medical Provider\nCopy of most recent Progress Notes\nImmunization Record (please note – COVID-19 vaccine is no longer required)\nCamper Health History\nMedication List\nAllergies (if any)\n2024 TPT Policy Forms (available on The Painted Turtle website)\n\nQUESTIONS? Please contact Omar Torres (omar@hemosocal.org)!\n\n___________________________________________________________________\n¡Está abierta la inscripción para el Campamento Blood Brothers and Sisters 2024 en The Painted Turtle!\n\nÚnase con nosotros julio 16-21\, 2024\, para una semana de diversión\, amistad\, y habilidades para la vida.\nInscríbase en thepaintedturtle.org/apply.\n¡Date prisa\, las plazas son limitadas!\n\n¿Preguntas? Contacte con nosotros a omar@hemosocal.org
URL:https://hemosocal.org/event/camp-blood-brothers-and-sisters-at-the-painted-turtle/
LOCATION:The Painted Turtle\, 17000 Elizabeth Lake Road\, Lake Hughes\, CA\, 93532\, United States
CATEGORIES:Camp Blood Brothers and Sisters
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/01/CampPic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240713T100000
DTEND;TZID=America/Los_Angeles:20240713T150000
DTSTAMP:20260525T210811
CREATED:20240612T155054Z
LAST-MODIFIED:20240612T155054Z
UID:10000281-1720864800-1720882800@hemosocal.org
SUMMARY:BRO Men's Retreat
DESCRIPTION:Men’s Retreat 2024\nJuly 13\, 2024 | The Boathouse on the Bay | 190 N Marina Dr\, Long Beach\, CA 90803\n\n\n\n\n\n\n\nJoin us for our Men’s Retreat at The Boathouse on the Bay in Long Beach! For all men (and those who identify as men) age 18+ with bleeding disorders as well as spouses/partners\, caregivers/parents to those with bleeding disorders. \nAGENDA (subject to change) \n10:00AM: Booths Open\, Registration \n11:30PM: Welcome/Booths Open \n12:00PM: Lunch and Presentation \n1:30PM: Group Photo \n1:45PM: Optional Activity – Hydrobiking
URL:https://hemosocal.org/event/bro-mens-retreat/
LOCATION:The Boathouse on the Bay\, 190 N Marina Dr\, Long Beach\, CA\, 90803\, United States
CATEGORIES:BRO Gathering
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/06/2024-Mens-Retreat-Instagram-Post-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240622T093000
DTEND;TZID=America/Los_Angeles:20240622T133000
DTSTAMP:20260525T210811
CREATED:20240408T180200Z
LAST-MODIFIED:20240620T183009Z
UID:10000274-1719048600-1719063000@hemosocal.org
SUMMARY:EVENT CANCELED: Shaka Surf Fest and Beach Day
DESCRIPTION:Event Canceled \n\n\nWe regret to inform you that the Shaka Surf Fest and Beach Day 2024 on June 22 at Santa Monica Beach has been CANCELED due to health and safety concerns over elevated water quality levels reported by the Los Angeles County Public Health.\n\n\nThe safety and well-being of our community members are our top priorities. Therefore\, we believe this precautionary measure is necessary to ensure everyone’s health and safety.\n\n\nRefunds for surfing lessons will be processed within two weeks. We are working on rescheduling the event with our sponsors\, Aqua Surf Team\, and medical committee and will keep you updated.\n\n\nThank you for your understanding and support.\n~~~~~~~~~~~\n Evento Cancelado \n\n\nLamentamos informarles que el Shaka Surf Fest y Beach Day 2024 del 22 de junio en la playa de Santa Mónica ha sido cancelado debido a preocupaciones de salud y seguridad por los elevados niveles de calidad del agua reportados por la Salud Pública del Condado de Los Ángeles.\n\n\nLa seguridad y el bienestar de los miembros de nuestra comunidad son nuestras principales prioridades. Por lo tanto\, creemos que esta medida de precaución es necesaria para asegurar la salud y la seguridad de todos.\n\n\nLos reembolsos de las clases de surf se procesarán dentro de dos semanas. Estamos trabajando para reprogramar el evento con nuestros patrocinadores\, Aqua Surf Team y el comité médico y les mantendremos informados.\n\n\nGracias por su comprensión y apoyo.\n\n—————————————————-\nJoin us in Santa Monica for surf lessons and a fun family day at the beach! Surfing lessons are available for kids ages 5+ for a nominal administrative fee of $5/child and no experience is needed (Note: participants must know how to swim).\n**THIS EVENT IS FOR COMMUNITY MEMBERS WITH BLEEDING DISORDERS AND THEIR IMMEDIATE FAMILY ONLY**\n\nEvent Day Details:\n\n9:30am: Registration\n\n10:00am-12:00pm: Surf Lesson Session\n\nLessons $5.00 per person. Registration will be first come\, first served.\n\n12:00pm: Lunch Served\n\nParking: $12 in South Lot 5\, 2701 Barnard Way\, Santa Monica\, CA 90405. Look for the Aqua Surf tents on the beach!\n\nFood: Lunch and snacks will be provided!\n\nSurfers: Surfers CANNOT be late for the lesson which will begin strictly on time. Please do not sign up if you are unsure you will be unable to fulfill the reservation as spaces are limited. Have a bleeding disorder and on prophy? Please take your prophy dose in the morning prior to your surf lesson and bring an extra emergency dose in a cooler with supplies!\n\nBeach Day Ticket: Bring your blanket and some sunscreen\, and enjoy a day at the beach!\n\n** HFSC collects data from visitors to this site. Information collected is entered into the HFSC database. The visitor will be placed on a list to receive HFSC e-mail communications (HFSC once a month event notices and any other notices of importance to the bleeding disorders community and others)\, as well as occasional communications by regular mail. Visitors who do not wish to receive communications from HFSC have the opportunity to opt out at any time.\n\n——–\n\nÚnase con nosotros en Santa Mónica para tomar clases de surf y pasar un divertido día familiar en la playa. Clases de surf están disponibles para niños mayores de 5 años por un costo administrativo de $ 5 / niño y no es necesario tener experiencia (debe saber nadar).\n\n**ESTE EVENTO ES SÓLO PARA MIEMBROS DE LA COMUNIDAD CON TRASTORNOS HEMORRÁGICOS Y SU FAMILIA INMEDIATA **.\n\nDetalles del día del evento:\n\n9:30am: Registro\n\n10:00am-12:00pm: Sesión de Clases de Surf\n\nLas clases cuestan $5.00 por persona. La registración será por orden de llegada.\n\n12:00pm: Almuerzo servido\n\nEstacionamiento: $12 en South Lot 5\, 2701 Barnard Way\, Santa Monica\, CA 90405. Busca las carpas de Aqua Surf en la playa.\n\nComida: ¡Almuerzo y aperitivos serán proporcionados!\n\nSurfistas: Los surfistas NO PUEDEN llegar tarde a la clase que empezará a la hora estricta. Por favor\, no se registre si no está seguro de que será capaz de cumplir con la reserva\, como los espacios son limitados. ¿Tiene un trastorno hemorrágico y en profilaxis? ¡Por favor\, tome su dosis de profilaxis en la mañana antes de su clase de surf y traiga una dosis extra de emergencia en una hielera con los suministros!\n\nEntrada para el día de playa: ¡Traiga su manta y algo de crema solar\, y disfrute de un día en la playa!\n\n** El HFSC recopila datos de los visitantes de este sitio. La información recogida se introduce en la base de datos del HFSC. El visitante será incluido en una lista para recibir comunicaciones de HFSC por correo electrónico (avisos de eventos de HFSC una vez al mes y cualquier otro aviso de importancia para la comunidad de trastornos hemorrágicos y otros)\, así como comunicaciones ocasionales por correo ordinario. Los visitantes que no deseen recibir comunicaciones de la HFSC tienen la oportunidad de darse de baja en cualquier momento.
URL:https://hemosocal.org/event/save-the-date-shaka-surf-fest-and-beach-day/
LOCATION:Santa Monica Beach 2701 Barnard Way Santa Monica\, CA 90405\, 2701 Barnard Way\, Santa Monica\, CA\, 90405
CATEGORIES:Surf Fest
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/04/Shaka-Surf-Canceled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240613T180000
DTEND;TZID=America/Los_Angeles:20240613T200000
DTSTAMP:20260525T210811
CREATED:20240417T234730Z
LAST-MODIFIED:20240417T235322Z
UID:10000280-1718301600-1718308800@hemosocal.org
SUMMARY:HFSC Community Dinner - Lancaster
DESCRIPTION:Please join us for a Community Dinner in Lancaster!\n“Introducing Investigational Gene Therapy Clinical Trials for Hemophilia”\nPresented by Guillermo Campillo\, Lead Patient Education Liaison\, Spark Therapeutics\nDo you have questions about the clinical trial process for hemophilia gene therapy research? Join us for a 45-minute interactive session which dives into the journey of considering\, deciding about\, or participating in an investigational hemophilia gene therapy clinical trial. This session is intended for any hemophilia community members\, those who are affected by hemophilia and those who support them. Our aim is to provide a space for active consideration so that session participants walk away feeling more informed and empowered.\nThank you to Spark Therapeutics for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-lancaster/
LOCATION:La Papillon\, 858 W Lancaster Blvd\, Lancaster\, CA\, 93534\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/04/CommDinner-Spark-6.13_Header.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240611T180000
DTEND;TZID=America/Los_Angeles:20240611T200000
DTSTAMP:20260525T210811
CREATED:20240417T161013Z
LAST-MODIFIED:20240417T161133Z
UID:10000277-1718128800-1718136000@hemosocal.org
SUMMARY:HFSC Community Dinner - Bakersfield
DESCRIPTION:Join us for a Community Dinner in Bakersfield!\nHEMGENIX (ETRANACOGENE DEZAPARVOVEC-DRLB) The first and only FDA-approved gene therapy for hemophilia B.\nSpeaker: Dr. Doris Quon\nThis educational program offers you and your family members the opportunity to:\n\nLearn about HEMGENIX\, the first and only gene therapy approved for hemophilia B\nGain insightful information and deepen your understanding of HEMGENIX through a LIVE Q&A session\nAsk questions and receive new resources on gene therapy\n\nThank you to CSL Behring for your sponsorship! 
URL:https://hemosocal.org/event/hfsc-community-dinner-bakersfield-2/
LOCATION:DoubleTree by Hilton Bakersfield\, 3100 Camino del Rio Court\, Bakersfield\, CA\, 93308\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/03/CommDinner-CSL-6.11.24.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240609T180000
DTEND;TZID=America/Los_Angeles:20240609T200000
DTSTAMP:20260525T210811
CREATED:20240417T161555Z
LAST-MODIFIED:20240417T161637Z
UID:10000278-1717956000-1717963200@hemosocal.org
SUMMARY:HFSC Community Dinner - Monterey Park - English Session
DESCRIPTION:Join us for a Community Dinner in Monterey Park!\nLearn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox)\, for adults with severe hemophilia A. \n\nHear one person’s experience with ROCTAVIAN\nLearn what’s possible with ROCTAVIAN\nSee how you could get started today\n\nPresented By:\nBilly Duckworth \nSr. Account Manager\, Gene Therapy\nBioMarin Pharmaceutical\, Inc.\nand\nAndrew W. \nClinical Trial Participant\nThis session will be presented in English.\nThank you to BioMarin for your sponsorship! 
URL:https://hemosocal.org/event/hfsc-community-dinner-monterey-park-english-session/
LOCATION:Luminarias\, 3500 W Ramona Blvd\, Monterey Park\, CA\, 91754\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/04/CommDinner-BioMarin-6.9.24_English.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240609T173000
DTEND;TZID=America/Los_Angeles:20240609T193000
DTSTAMP:20260525T210811
CREATED:20240417T162209Z
LAST-MODIFIED:20240417T162959Z
UID:10000279-1717954200-1717961400@hemosocal.org
SUMMARY:HFSC Community Dinner - Monterey Park - Spanish Session
DESCRIPTION:Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox)\, for adults with severe hemophilia A. \n\nHear one person’s experience with ROCTAVIAN\nLearn what’s possible with ROCTAVIAN\nSee how you could get started today\n\nPresented By:\nDr. Vanessa K. Salinas-Luna\nPediatric Hematology\nCenter for Inherited Blood Disorders\nand\nAndrew W. \nClinical Trial Participant\nThank you to BioMarin for your sponsorship! \nThis session will be presented in Spanish.\n______ \nÚnase a nosotros para una cena comunitaria en Luminarias en Monterey Park.\n\nLa presentación se ofrecerá en español.\nGracias a BioMarin por su patrocinio.
URL:https://hemosocal.org/event/hfsc-community-dinner-monterey-park-spanish-session/
LOCATION:Luminarias\, 3500 W Ramona Blvd\, Monterey Park\, CA\, 91754\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/04/CommDinner-BioMarin-6.9.24_Spanish.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240601
DTEND;VALUE=DATE:20240603
DTSTAMP:20260525T210811
CREATED:20240105T231428Z
LAST-MODIFIED:20240501T223821Z
UID:10000174-1717200000-1717372799@hemosocal.org
SUMMARY:Family Retreat Weekend
DESCRIPTION:Join us for our Family Retreat Weekend at the Pali Retreat Center in the San Bernardino National Forest.  \nHFSC invites families living with a rare bleeding disorder to enjoy a weekend in the mountains for family camp. Sample activities for kids and parents include a campfire\, arts and crafts\, ropes course\, archery\, and talent show. Teen and parent activities also are offered throughout the weekend including self-infusion instruction. This special weekend offers much-needed respite\, recreation\, and family time while also allowing children attending summer camp to get to know each other before leaving for camp.  \n\n\n\n\n\n\nPlease register all members of your party together. HFSC will make cabin assignments based on what type of cabins are available at the time of registration. Each cabin must have at least one person age 18+. Adding participants to your group after initial registration will be based on availability and is not guaranteed. Please note that bedding and towels are not provided by Pali. Thank you!
URL:https://hemosocal.org/event/save-the-date-family-retreat-weekend/
LOCATION:Pali Mountain Retreat\, 30778 CA-18\, Running Springs\, CA\, 92382\, United States
CATEGORIES:Family Retreat
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/01/HFSC-Family-Retreat-2023.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240516T180000
DTEND;TZID=America/Los_Angeles:20240516T200000
DTSTAMP:20260525T210811
CREATED:20240327T181802Z
LAST-MODIFIED:20240403T173927Z
UID:10000273-1715882400-1715889600@hemosocal.org
SUMMARY:HFSC Community Dinner - Riverside
DESCRIPTION:Please join us for a community dinner!\n“My Journey to Jivi with Austin Caldwell”\nThank you to Bayer for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-riverside/
LOCATION:Palenque\, 3737 Main St #100\, Riverside\, CA\, 92501\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/03/CommDinner-Bayer-5.16.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240515T190000
DTEND;TZID=America/Los_Angeles:20240515T203000
DTSTAMP:20260525T210811
CREATED:20240307T010540Z
LAST-MODIFIED:20240307T010540Z
UID:10000180-1715799600-1715805000@hemosocal.org
SUMMARY:emPOWERment Webinar Series: "Big Goals\, Small Steps"
DESCRIPTION:In this interactive session we’ll discern your goals and break down how to make then a reality\, including identifying the skills you’ll need and how to build them.
URL:https://hemosocal.org/event/empowerment-webinar-series-big-goals-small-steps/
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/02/Goals.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240504
DTEND;VALUE=DATE:20240505
DTSTAMP:20260525T210811
CREATED:20240105T225519Z
LAST-MODIFIED:20240416T211315Z
UID:10000172-1714780800-1714867199@hemosocal.org
SUMMARY:SOLD OUT - Family Information Day and Annual Meeting 2024
DESCRIPTION:Join us for our Family Information Day and Annual Meeting on May 4\, 2024.\n \nThank you for your interest in Family Information Day 2024. The event is currently SOLD OUT. \nPlease contact Omar Torres\, Outreach Coordinator\, to be placed on the waitlist. \n(omar@hemosocal.org or 626-765-6656)
URL:https://hemosocal.org/event/save-the-date-family-information-day-and-annual-meeting-2024/
LOCATION:Knott’s Hotel\, 7675 Crescent Ave\, Buena Park\, CA\, 90620\, United States
CATEGORIES:Family Information Day/Annual Meeting
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/01/FID-Banner.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240427T120000
DTEND;TZID=America/Los_Angeles:20240427T150000
DTSTAMP:20260525T210811
CREATED:20240321T224912Z
LAST-MODIFIED:20240322T212055Z
UID:10000272-1714219200-1714230000@hemosocal.org
SUMMARY:BRO Outing - Top Golf (El Segundo)
DESCRIPTION:Join us for a Bleeders Reaching Out (“BRO”) group outing to TOP GOLF in El Segundo!\n“Turning Stumbling Blocks into Stepping Stones” \nPerry thinks of himself as a very lucky guy – but he’s also a firm believer that people make their own luck. Growing up with Hemophilia A\, Perry was told many times by his doctors and nurses that he couldn’t do things\, particularly when it came to sports. But his parents wanted Perry and his brother – who also has hemophilia – to have freedom to make their own good choices. So\, with their emotional support and encouragement\, Perry pushed himself to explore what he could do\, which led to a lifelong love of golf. When he started playing golf professionally\, he was reluctant to tell the other players he toured with about his hemophilia\, fearing they’d think less of him. But when he finally did talk to them about it\, they were impressed with his perseverance.\nThe educational session will be followed with time at the Driving Range to improve your swing and bond with Blood Brothers.\nThis event is open to adults who identify as male (ages 18+) as well as teens who identify as male with a bleeding disorder diagnosis. Teens must be accompanied by a male adult.\nThank  you to CSL Behring for your sponsorship of this event! 
URL:https://hemosocal.org/event/bro-outing-top-golf-el-segundo/
LOCATION:Top Golf El Segundo\, 400 S Pacific Coast Hwy\, El Segundo\, CA\, 90245\, United States
CATEGORIES:BRO Gathering
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/02/Top-Golf-4.27.24-Website-Square.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240424T180000
DTEND;TZID=America/Los_Angeles:20240424T200000
DTSTAMP:20260525T210811
CREATED:20240321T224757Z
LAST-MODIFIED:20240322T210848Z
UID:10000181-1713981600-1713988800@hemosocal.org
SUMMARY:HFSC Community Dinner - Santa Barbara
DESCRIPTION:Join us for a Community Dinner in Santa Barbara!\nFactor Up: Discover the Possibility of Higher Factor VIII Levels for Longer\nLearn about the importance of Factor VIII levels and what a first-in-class treatment could mean for your management plan. \nThank you to Sanofi for your sponsorship! \n 
URL:https://hemosocal.org/event/hfsc-community-dinner-santa-barbara/
LOCATION:Convivo\, 901 E Cabrillo Blvd\, Santa Barbara\, CA\, 93103\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2024/03/CommDinner-Sanofi-4.24.24.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240421T100000
DTEND;TZID=America/Los_Angeles:20240421T140000
DTSTAMP:20260525T210811
CREATED:20240207T164712Z
LAST-MODIFIED:20240222T003713Z
UID:10000179-1713693600-1713708000@hemosocal.org
SUMMARY:World Hemophilia Day Celebration - Burbank
DESCRIPTION:Please join us for a World Hemophilia Day celebration in Burbank! \n_____ \nÚnase con nosotros a nuestro para nuestra celebración WHD 2024 en Burbank.
URL:https://hemosocal.org/event/save-the-date-world-hemophilia-day-celebration-burbank/
LOCATION:Castaway Burbank\, 1250 East Harvard Rd\, Burbank\, CA\, 91501\, United States
CATEGORIES:World Hemophilia Day
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/02/WHD_EventLogoSquare.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240418T180000
DTEND;TZID=America/Los_Angeles:20240418T200000
DTSTAMP:20260525T210811
CREATED:20240207T164643Z
LAST-MODIFIED:20240327T194546Z
UID:10000178-1713463200-1713470400@hemosocal.org
SUMMARY:World Hemophilia Day Dinner - Santa Ana
DESCRIPTION:This event is currently SOLD OUT! \nPlease contact Omar (omar@hemosocal.org) to be placed on the waitlist. \nThank you! \n——– \nJoin us for our World Hemophilia Day 2024 Dinner in Santa Ana! \nThank you to Sanofi for your sponsorship! \n~~~~~~~~~ \nÚnase con nosotros a nuestro para nuestra celebración WHD 2024 en Santa Ana. \n¡Gracias Sanofi por su patrocinio!
URL:https://hemosocal.org/event/save-the-date-world-hemophilia-day-dinner-santa-ana/
LOCATION:The Hacienda\, 1725 College Ave\, Santa Ana\, CA\, 92706\, United States
CATEGORIES:World Hemophilia Day
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/02/WHD_EventLogoSquare.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240323T110000
DTEND;TZID=America/Los_Angeles:20240324T110000
DTSTAMP:20260525T210811
CREATED:20231128T194133Z
LAST-MODIFIED:20240223T233611Z
UID:10000271-1711191600-1711278000@hemosocal.org
SUMMARY:SOLD OUT - 2024 Women's Retreat
DESCRIPTION:Our 2024 Women’s Retreat is currently SOLD OUT\nIf you would like to be added to the Waitlist\, please contact Omar Torres – omar@hemosocal.org or call the HFSC office at 626-765-6656. \nThank you!\n—\nJoin us for our Annual Women’s Retreat at the Sheraton Grand Downtown Los Angeles!\nFor all women (and those who identify as women) and teen girls ages 11+ with bleeding disorders as well as spouses/partners\, caregivers/parents to those with bleeding disorders.\nIn order to create a special space for women and teens\, please refrain from bringing children to the event as there is not childcare provided at this event outside the Teen programming.\nAGENDA (subject to change) \nSATURDAY \n11:00AM: Booths Open\, Registration \n12:15PM: Lunch & Plenary Presentation \n1:30PM: Breakout Session 1 \n2:45PM: Breakout Session 2 \n3:45PM: Afternoon break; Check-In at Hotel \n5:30PM: Booths Open and Evening Reception \n6:30PM: Dinner & Plenary Presentation \n8:00PM: Event Concludes for Evening \nSUNDAY \n8:30AM: Booths open \n9:30AM: Breakfast & Plenary Presentation \n11:00AM: Event Concludes; Hotel Check-Out \n  \n 
URL:https://hemosocal.org/event/save-the-date-2024-womens-retreat/
LOCATION:Sheraton Grand Los Angeles\, 711 S Hope St\, CA\, 90017\, United States
CATEGORIES:Women's Retreat
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/11/2024-Womens-Retreat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240316
DTEND;VALUE=DATE:20240320
DTSTAMP:20260525T210811
CREATED:20240105T233020Z
LAST-MODIFIED:20240105T233020Z
UID:10000175-1710547200-1710892799@hemosocal.org
SUMMARY:Hemophilia Council of California Future Leaders Program
DESCRIPTION:Become a Hemophilia Council of California Future Leader! Applications are due January 26\, 2024\nThe 2024 Future Leaders is a four day\, in person program in Sacramento. Teens come together from across the State. You meet other youth in the bleeding disorders community\, make new friends and have fun! Future  Leaders find inspiration among other teens to be bold. You share your voice where it matters most!\nThe Hemophilia Council of California’s (HCC’s) Future Leaders Program provides leadership training and develops advocacy skills for teens affected by bleeding disorders. Leading up to Legislative Day\, you will find out more about your role in the government process. You will also learn to be an effective advocate for yourself and your family.Future Leaders will attend a pre-Legislative Day program in person on March 16 and 17th. There you will find out how to tell your story to legislators. You will also learn to advocate for yourself and your family in other areas of your life.\nFuture Leaders take part in leadership building games and activities. Other fun highlights include a visit to the Capitol and team building games! Most importantly\, teens learn about the legislative process and how it affects you!During Legislative Day on March 18th\, Future Leaders take a lead role in legislative meetings! You will tell your story and advocate for important legislation at the State level.\nBefore leaving for home  on March 19th\, the day after Legislative Day\, you will have a chance to share your Legislative Day experiences and discuss how to keep advocating during the rest of the year.\n\nWhere does the program take place? \n\nPre-Legislative Day orientation is virtual on March 13th\nAll other aspects of Future Leaders and Legislative Day are In person\, Sacramento (subject to change based on public health & safety)\n\n\nAre you in high school? If you have a bleeding disorder or have a sibling or parent with one\, we hope you\napply! Join us this March for the Future Leaders Program!  Application is below-\n\nRequirements to Apply: \n\n You must be a high school student (9th – 12th grade) at the time of the program.\n You must have a bleeding disorder or be a sibling or child of a person with a bleeding disorder.\n You must be able to commit to participating in all parts of the program.
URL:https://hemosocal.org/event/hemophilia-council-of-california-future-leaders-program/
LOCATION:Sacramento\, CA\, Sacramento\, CA\, United States
CATEGORIES:HCC Future Leaders
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/01/FutureLeadersFlyer2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240207T190000
DTEND;TZID=America/Los_Angeles:20240207T203000
DTSTAMP:20260525T210811
CREATED:20240111T004551Z
LAST-MODIFIED:20240125T171617Z
UID:10000177-1707332400-1707337800@hemosocal.org
SUMMARY:emPOWERment Webinar Series: "Medi-Cal Updates: What You Should Know"
DESCRIPTION:Please join us for the first in our 2024 emPOWERment Webinar series on February 7.\nMedi-Cal Renewals and Expansion are here for 2024! Join us to learn about what’s new and what’s changed!\n \n 
URL:https://hemosocal.org/event/empowerment-webinar-series-title/
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/01/Medi-Cal-Logo-e1704934902737.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240120T090000
DTEND;TZID=America/Los_Angeles:20240120T133000
DTSTAMP:20260525T210811
CREATED:20231121T201916Z
LAST-MODIFIED:20231121T201916Z
UID:10000270-1705741200-1705757400@hemosocal.org
SUMMARY:Industry Forum 2024 / Foro de Industria 2024
DESCRIPTION:Join us for our 8th Annual Industry Forum at Pasadena City College!\nAttend breakout sessions with companies of your choice and learn about pipeline and newer products to treat your bleeding disorder.\nAgenda \n9:00AM-10:30AM: Light Breakfast\, Booths Open\, Registration\, Welcome \n10:30AM-12:30PM: Breakout Sessions (Choose four classes. Some sessions will be provided in Spanish.) \n12:30PM-1:00PM: Closing Remarks\, Lunch to Go\, Ticket Distribution \nThank you for arriving by 10:00AM and attending all breakout sessions in order to receive your LA Zoo Ticket! \nYouth Program with The Painted Turtle (ages 5-11) \nParking is $2 in the PCC Lot. \n~~~~~~~~~ \nÚnase con nosotros a nuestro 8º Foro Anual de Industria en el Pasadena City College.\nAsista a las sesiones con las empresas de su elección y conozca los nuevos productos para tratar su trastorno hemorrágico.\nAgenda \n9: 00 AM – 10: 30 AM: Desayuno ligero\, apertura de puestos\, inscripción\, bienvenida \n10:30AM-12:30PM: Sesiones de grupos (Elija cuatro clases. Algunas sesiones se impartirán en español.) \n12:30PM-1:00PM: Palabras de clausura\, almuerzo para llevar\, distribución de entradas \nGracias por llegar antes de las 10:00AM y asistir a todas las sesiones para recibir su boleto para el Zoológico de Los Ángeles. \nPrograma Juvenil con “The Painted Turtle” (edades 5-11) \nEl estacionamiento cuesta $2 en el lote PCC.
URL:https://hemosocal.org/event/industry-forum-2024-foro-de-industria-2024/
LOCATION:Pasadena City College\, 1570 East Colorado Boulevard\, Pasadena\, CA\, 91106\, United States
CATEGORIES:Industry Forum
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2023/11/Industry-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231213T180000
DTEND;TZID=America/Los_Angeles:20231213T200000
DTSTAMP:20260525T210811
CREATED:20231110T003649Z
LAST-MODIFIED:20231110T003649Z
UID:10000269-1702490400-1702497600@hemosocal.org
SUMMARY:Snowflake Dinner - Orange County
DESCRIPTION:Please join us for a festive community educational dinner\, “Mild Matters – Recognize & Respond\,” white elephant gift exchange\, crafts\, and more!\nGift cards will be distributed to those ages 0-18.\nThank you to Takeda for your sponsorship! 
URL:https://hemosocal.org/event/snowflake-dinner-orange-county/
LOCATION:Seasons 52\, 3333 Bristol St Ste 2802\, Costa Mesa\, CA\, 92626\, United States
CATEGORIES:Snowflake Festival Dinner
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231207T180000
DTEND;TZID=America/Los_Angeles:20231207T200000
DTSTAMP:20260525T210811
CREATED:20231110T003640Z
LAST-MODIFIED:20231110T003640Z
UID:10000268-1701972000-1701979200@hemosocal.org
SUMMARY:Snowflake Dinner - Lancaster
DESCRIPTION:Please join us for a festive community educational dinner\, “Stop Waiting to Thrive: 6 Principles of Empowerment\,” white elephant gift exchange\, crafts\, and more!\nGift cards will be distributed to those ages 0-18.\nThank you to Novo Nordisk for your sponsorship!
URL:https://hemosocal.org/event/snowflake-dinner-lancaster/
LOCATION:La Papillon\, 858 W Lancaster Blvd\, Lancaster\, CA\, 93534\, United States
CATEGORIES:Snowflake Festival Dinner
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231206T180000
DTEND;TZID=America/Los_Angeles:20231206T200000
DTSTAMP:20260525T210811
CREATED:20231110T003628Z
LAST-MODIFIED:20231129T154853Z
UID:10000267-1701885600-1701892800@hemosocal.org
SUMMARY:Snowflake Dinner - Rancho Cucamonga
DESCRIPTION:Please join us for a festive community educational dinner\, “Being Prepared for a Hemophilia A Emergency\,” white elephant gift exchange\, crafts\, and more!\nGift cards will be distributed to those ages 0-18.\nThank you to Bayer for your sponsorship! \nThank you to Craft & Gift Card sponsor\, InfuCare! 
URL:https://hemosocal.org/event/snowflake-dinner-rancho-cucamonga/
LOCATION:The Old Spaghetti Factory\, 11896 Foothill Blvd\, Rancho Cucamonga\, CA\, 91730\, United States
CATEGORIES:Snowflake Festival Dinner
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231205T180000
DTEND;TZID=America/Los_Angeles:20231205T200000
DTSTAMP:20260525T210811
CREATED:20231110T003611Z
LAST-MODIFIED:20231110T012154Z
UID:10000266-1701799200-1701806400@hemosocal.org
SUMMARY:Snowflake Dinner - Burbank
DESCRIPTION:Please join us for a festive community educational dinner\, “Gene Therapy\,” white elephant gift exchange\, crafts\, and more!\nGift cards will be distributed to those ages 0-18.\nThank you to CSL Behring for your sponsorship! 
URL:https://hemosocal.org/event/snowflake-dinner-burbank/
LOCATION:Castaway Burbank\, 1250 East Harvard Rd\, Burbank\, CA\, 91501\, United States
CATEGORIES:Snowflake Festival Dinner
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231204T180000
DTEND;TZID=America/Los_Angeles:20231204T200000
DTSTAMP:20260525T210811
CREATED:20231110T003539Z
LAST-MODIFIED:20231110T003539Z
UID:10000265-1701712800-1701720000@hemosocal.org
SUMMARY:Snowflake Dinner - Santa Barbara
DESCRIPTION:Please join us for a festive community educational dinner\, “Let’s Play\, Bleeding Disorder Family Feud!” white elephant gift exchange\, crafts\, and more!\nGift cards will be distributed to those ages 0-18.\nThank you to Octapharma for your sponsorship! 
URL:https://hemosocal.org/event/snowflake-dinner-santa-barbara/
LOCATION:Harry’s Plaza Cafe\, 3313 State St\, Santa Barbara\, CA\, 93105\, United States
CATEGORIES:Snowflake Festival Dinner
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231203T160000
DTEND;TZID=America/Los_Angeles:20231203T183000
DTSTAMP:20260525T210811
CREATED:20231109T215803Z
LAST-MODIFIED:20231110T012252Z
UID:10000262-1701619200-1701628200@hemosocal.org
SUMMARY:Snowflake Dinner - Bakersfield
DESCRIPTION:Please join us for a festive community educational dinner\, “Understanding Gene Therapy Research and Its Potential Application to Hemophilia\,” white elephant gift exchange\, crafts\, and more!\nGift cards will be distributed to those ages 0-18.\nThank you to Spark Therapeutics for your sponsorship! 
URL:https://hemosocal.org/event/snowflake-dinner-bakersfield/
LOCATION:Flame & Fire Brazilian Steakhouse\, 12814 Stockdale Hwy\, Bakersfield\, CA\, 93314\, United States
CATEGORIES:Snowflake Festival Dinner
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231130T180000
DTEND;TZID=America/Los_Angeles:20231130T200000
DTSTAMP:20260525T210811
CREATED:20231110T003512Z
LAST-MODIFIED:20231110T003512Z
UID:10000264-1701367200-1701374400@hemosocal.org
SUMMARY:Snowflake Dinner - Monterey Park
DESCRIPTION:Please join us for a festive community educational dinner\, “Big Goals\, Small Steps\,” white elephant gift exchange\, crafts\, and more!\nGift cards will be distributed to those ages 0-18.\nThank you to Sanofi for your sponsorship!
URL:https://hemosocal.org/event/snowflake-dinner-monterey-park/
LOCATION:Luminarias\, 3500 W Ramona Blvd\, Monterey Park\, CA\, 91754\, United States
CATEGORIES:Snowflake Festival Dinner
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231128T180000
DTEND;TZID=America/Los_Angeles:20231128T200000
DTSTAMP:20260525T210811
CREATED:20231110T003458Z
LAST-MODIFIED:20231115T024100Z
UID:10000263-1701194400-1701201600@hemosocal.org
SUMMARY:Snowflake Dinner - Riverside
DESCRIPTION:Please join us for a festive community educational dinner\, “The Science Behind Gene Therapy\,” white elephant gift exchange\, crafts\, and more!\nGift cards will be distributed to those ages 0-18.\nThank you to BioMarin for your sponsorship! 
URL:https://hemosocal.org/event/snowflake-dinner-riverside/
LOCATION:Mamma Mia Restaurant and Bar\, 10971 Magnolia Ave\, Riverside\, CA\, 92505\, United States
CATEGORIES:Snowflake Festival Dinner
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231104T100000
DTEND;TZID=America/Los_Angeles:20231104T140000
DTSTAMP:20260525T210811
CREATED:20230804T004059Z
LAST-MODIFIED:20230804T151258Z
UID:10000167-1699092000-1699106400@hemosocal.org
SUMMARY:2023 Unite for Bleeding Disorders Walk
DESCRIPTION:About SoCal’s 15th Annual Unite for Bleeding Disorders Walk\nEach year\, the Hemophilia Foundation of Southern California hosts an annual Walk to raise crucial funds in support of our mission to “improve the quality of life and build community for those living with inherited bleeding disorders in Southern California.” 100% of all individual donations raised go directly to HFSC’s services and programs.\nPlease consider starting a team\, joining an existing team\, or making a donation\, in support of: \n\nAdvocacy and Access to Care\nEducational and Support Programs\nEmergency Financial Assistance\nCamp Blood Brothers & Sisters\nScholarships\nResearch\n\nAny amount you raise will make a huge difference and will help us continue to assist\, advocate\, and serve those living with bleeding disorders in Southern California. \nTHANK YOU! \nCada año\, la Fundación de Hemofilia del Sur de California organiza una Caminata anual para recaudar fondos cruciales en apoyo de nuestra misión de “mejorar la calidad de vida y construir una comunidad para quienes viven con trastornos de la coagulación hereditarios en el sur de California”. El 100% de todas las donaciones individuales recaudadas van directamente a los servicios y programas de HFSC. \nConsidere comenzar un equipo\, unirse a un equipo existente o hacer una donación\, en apoyo de la abogació y el acceso a la atención\, programas educativos y de apoyo\, investigación y el campamento de Camp Blood Brothers & Sisters. Cualquier cantidad que recaude marcará una gran diferencia y nos ayudará a continuar asistiendo\, abogando y sirviendo a las personas que viven con trastornos hemorrágicos en el sur de California. \n¡GRACIAS! \nWhen making a donation via check\, please be sure to make checks payable to Hemophilia Foundation of Southern California and please include the name of the Team or Individual Walker you are supporting. Checks may be sent to: \nCuando haga una donación mediante cheque\, asegúrese de hacer los cheques pagaderos a la Fundación de Hemofilia del Sur de California e incluya el nombre del Equipo o Caminante individual que está apoyando. Los cheques pueden enviarse a: \nHemophilia Foundation of Southern California \nAttn: Walk \n959 E. Walnut Street\, Suite 114 \nPasadena\, CA 91106 \nQuestions? Please contact Michele Warner\, Director of Development\, at mwarner@hemosocal.org or 310-415-2390. \n¿Preguntas? Por favor de contactar a Michele Warner\, Directora de Desarrollo\, at mwarner@hemosocal.org o 310-415-2390. \nWe can’t wait to see you on November 4 at Whittier Narrows! ¡Estamos ansiosos por verlos el 4 de noviembre en Whitter Narrows!
URL:https://hemosocal.org/event/2023-unite-for-bleeding-disorders-walk/
LOCATION:The Meadows at Whittier Narrows\, 751 S. Santa Anita Ave.\, South El Monte\, CA\, 91733\, United States
CATEGORIES:Unite for Bleeding Disorders Walk
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2023/08/10FB52E1-0EEE-6F60-AF5DA22BB48255A6.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231102T180000
DTEND;TZID=America/Los_Angeles:20231102T200000
DTSTAMP:20260525T210811
CREATED:20231004T205609Z
LAST-MODIFIED:20231004T205609Z
UID:10000169-1698948000-1698955200@hemosocal.org
SUMMARY:Cena de Mujeres Enlazadas por Sangre  - "Las mujeres importan en trastornos de la sangre"
DESCRIPTION:                                                                                                      \nÚnase con nosotros en Luminarias en Monterey Park para una cena de mujeres 2 de noviembre a las 6PM: “Las mujeres importan en trastornos de la sangre.”\nLas mujeres con trastornos hemorrágicos se enfrentan a desafíos únicos los cuales a menudo no son reconocidos o subestimados. Entender algunos de los desafíos especiales que enfrentan las mujeres con trastornos hemorrágicos e identificar opciones para el apoyo emocional dentro de la comunidad.\nEstacionamiento: Gratuito en el estacionamiento.\n¡Gracias a Takeda por patrocinar esta cena!
URL:https://hemosocal.org/event/cena-de-mujeres-enlazadas-por-sangre-las-mujeres-importan-en-trastornos-de-la-sangre/
LOCATION:Luminarias\, 3500 W Ramona Blvd\, Monterey Park\, CA\, 91754\, United States
CATEGORIES:Mujeres Enlazadas por Sangre Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2023/09/luminarias.jpg
END:VEVENT
END:VCALENDAR