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PRODID:-//Hemophilia Foundation of Southern California - ECPv6.16.2//NONSGML v1.0//EN
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X-WR-CALDESC:Events for Hemophilia Foundation of Southern California
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DTSTART;TZID=America/Los_Angeles:20231014T090000
DTEND;TZID=America/Los_Angeles:20231014T130000
DTSTAMP:20260525T194502
CREATED:20231004T205641Z
LAST-MODIFIED:20231004T205641Z
UID:10000171-1697274000-1697288400@hemosocal.org
SUMMARY:HFSC Hike
DESCRIPTION:HFSC Hike\nSaturday\, October 14\, 2023 | 9:00AM-1:00PM\nElysian Park West Loop Trail\nTrailhead: 1025 Elysian Park Dr. Los Angeles CA 90012\nThe great outdoors is for YOUR community in this accessible invitation to a local hiking spot. For individuals\, friends\, and families\, please join your fellow bleeding disorders community members at the Elysian Park West Loop for a hike\, fun activities\, and lunch. The loop is “generally considered an easy route and is a 2.3-mile loop trail which takes an average of about an hour to complete.”\nThank you to Gut Monkey for your sponsorship!
URL:https://hemosocal.org/event/hfsc-hike/
LOCATION:Elysian Park West Loop Trail\, 1025 Elysian Park Dr\, Los Angeles\, CA\, 90012
CATEGORIES:HFSC Hike
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/10/Hike_Website.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230928T180000
DTEND;TZID=America/Los_Angeles:20230928T200000
DTSTAMP:20260525T194502
CREATED:20230815T233918Z
LAST-MODIFIED:20230815T233918Z
UID:10000168-1695924000-1695931200@hemosocal.org
SUMMARY:HFSC Community Dinner: "Caregivers\, Make Yourself a Priority"
DESCRIPTION:Please join HFSC in Simi Valley for a Community Dinner\, “Caregivers\, Make Yourself a Priority.” This presentation explores how it is okay to say no sometimes\, even as a caregiver to a child with a bleeding disorder. This program discusses the importance of making time for yourself as a caregiver.\nThank you to CSL Behring for sponsoring this dinner.\nNote: Event will be outside on the patio so please dress accordingly.
URL:https://hemosocal.org/event/hfsc-community-dinner-caregivers-make-yourself-a-priority/
LOCATION:Viva LaPasta! Kitchen of Italy\, 525 Country Club Dr\, Simi Valley\, 93065
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/08/patio-photo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230923T093000
DTEND;TZID=America/Los_Angeles:20230923T130000
DTSTAMP:20260525T194502
CREATED:20230515T230441Z
LAST-MODIFIED:20230802T194707Z
UID:10000260-1695461400-1695474000@hemosocal.org
SUMMARY:Shaka Surf Fest and Beach Day
DESCRIPTION:Join us in Santa Monica for surf lessons and a fun family day at the beach! Surfing lessons are available for kids ages 5+ for a nominal administrative fee of $5/child and no experience is needed (must know how to swim).\n\n**THIS EVENT IS FOR COMMUNITY MEMBERS WITH BLEEDING DISORDERS AND THEIR IMMEDIATE FAMILY ONLY**\nEvent Day Details:  \n9:30am: Registration \n10:00am-12:00pm: Surf Lesson Session \nLessons $5.00 per person. Registration will be first come\, first served.  \n12:00pm: Lunch Served \nParking: $10 in South Lot 5\, 2701 Barnard Way\, Santa Monica\, CA 90405. Look for the Aqua Surf tents on the beach!  \nFood: Lunch and snacks will be provided!  \nSurfers: Surfers CANNOT be late for the lesson which will begin strictly on time. Please do not sign up if you are unsure you will be unable to fulfill the reservation as spaces are limited. Have a bleeding disorder and on prophy? Please take your prophy dose in the morning prior to your surf lesson and bring an extra emergency dose in a cooler with supplies! \nBeach Day Ticket: Bring your blanket and some sunscreen\, and enjoy a day at the beach!  \n** HFSC collects data from visitors to this site. Information collected is entered into the HFSC database. The visitor will be placed on a list to receive HFSC e-mail communications (HFSC once a month event notices and any other notices of importance to the bleeding disorders community and others)\, as well as occasional communications by regular mail. Visitors who do not wish to receive communications from HFSC have the opportunity to opt out at any time.\n——– \nÚnase con nosotros en Santa Mónica para tomar clases de surf y pasar un divertido día familiar en la playa. Clases de surf están disponibles para niños mayores de 5 años por un costo administrativo de $ 5 / niño y no es necesario tener experiencia (debe saber nadar). \n**ESTE EVENTO ES SÓLO PARA MIEMBROS DE LA COMUNIDAD CON TRASTORNOS HEMORRÁGICOS Y SU FAMILIA INMEDIATA **. \nDetalles del día del evento:  \n9:30am: Registro \n10:00am-12:00pm: Sesión de Clases de Surf \nLas clases cuestan $5.00 por persona. La registración será por orden de llegada.  \n12:00pm: Almuerzo servido \nEstacionamiento: $10 en South Lot 5\, 2701 Barnard Way\, Santa Monica\, CA 90405. Busca las carpas de Aqua Surf en la playa.  \nComida: ¡Almuerzo y aperitivos serán proporcionados!  \nSurfistas: Los surfistas NO PUEDEN llegar tarde a la clase que empezará a la hora estricta. Por favor\, no se registre si no está seguro de que será capaz de cumplir con la reserva\, como los espacios son limitados. ¿Tiene un trastorno hemorrágico y en profilaxis? ¡Por favor\, tome su dosis de profilaxis en la mañana antes de su clase de surf y traiga una dosis extra de emergencia en una hielera con los suministros! \nEntrada para el día de playa: ¡Traiga su manta y algo de crema solar\, y disfrute de un día en la playa!  \n** El HFSC recopila datos de los visitantes de este sitio. La información recogida se introduce en la base de datos del HFSC. El visitante será incluido en una lista para recibir comunicaciones de HFSC por correo electrónico (avisos de eventos de HFSC una vez al mes y cualquier otro aviso de importancia para la comunidad de trastornos hemorrágicos y otros)\, así como comunicaciones ocasionales por correo ordinario. Los visitantes que no deseen recibir comunicaciones de la HFSC tienen la oportunidad de darse de baja en cualquier momento.
URL:https://hemosocal.org/event/shaka-surf-fest-and-beach-day/
LOCATION:Santa Monica Beach 2701 Barnard Way Santa Monica\, CA 90405\, 2701 Barnard Way\, Santa Monica\, CA\, 90405
CATEGORIES:Surf Fest
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/05/Image20230802124501.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230921T180000
DTEND;TZID=America/Los_Angeles:20230921T200000
DTSTAMP:20260525T194502
CREATED:20230719T173314Z
LAST-MODIFIED:20230719T173314Z
UID:10000164-1695319200-1695326400@hemosocal.org
SUMMARY:HFSC Community Dinner: Guiding Young Person with Hemophilia to Independence
DESCRIPTION:Join us at Gino’s Italian Restaurant in Lancaster for a Community Dinner on “Transitioning: Guiding a Young Person with Hemophilia Towards Independence.”\nThis interactive\, engaging\, and practical program discusses helpful tips and resources for beginning or reinforcing a successful transition to self-management—ideal for both parents and their son with hemophilia.\nThank you to Bayer for sponsoring this dinner!\n**THIS EVENT IS FOR COMMUNITY MEMBERS WITH BLEEDING DISORDERS AND THEIR IMMEDIATE FAMILY ONLY**\nParking: Free in the lot.
URL:https://hemosocal.org/event/hfsc-community-dinner-guiding-young-person-with-hemophilia-to-independence/
LOCATION:Gino’s Italian Restaurant\, 44343 Challenger Way\, Lancaster\, CA\, 93535\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/07/Screenshot-2023-07-06-094256.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230908T160000
DTEND;TZID=America/Los_Angeles:20230910T110000
DTSTAMP:20260525T194502
CREATED:20230411T211809Z
LAST-MODIFIED:20230814T234821Z
UID:10000256-1694188800-1694343600@hemosocal.org
SUMMARY:Familia de Sangre
DESCRIPTION:Familia de Sangre \nConferencia 2023\n8-10 de septiembre\nAnaheim Marriott\nRegistración está abierta!\nVisite: www.familiadesangre.org
URL:https://hemosocal.org/event/familia-de-sangre-2/
LOCATION:Anaheim Marriott\, 700 W Convention Way\, Anaheim\, CA\, 92802\, United States
CATEGORIES:Familia de Sangre
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/04/FDS-Sponsors-As-of-8.14.2023.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230831T180000
DTEND;TZID=America/Los_Angeles:20230831T200000
DTSTAMP:20260525T194502
CREATED:20230701T003337Z
LAST-MODIFIED:20230701T003542Z
UID:10000163-1693504800-1693512000@hemosocal.org
SUMMARY:HFSC Women's Community Dinner: Tell Your Story
DESCRIPTION:Please join HFSC in Huntington Beach for a Women’s Community Dinner\, “Tell Your Story!” \nLiving with hemophilia means that you will often have to advocate for yourself. Learn how to tell your story by crafting meaningful and compelling personal messages. \nThank you to Sanofi for sponsoring this dinner. \nParking: Parking in plaza lot.
URL:https://hemosocal.org/event/hfsc-womens-community-dinner-tell-your-story/
LOCATION:Solita\, 7631 Edinger Ave\, Huntington Beach\, CA\, 92647\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2023/06/solitahuntington.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230823T190000
DTEND;TZID=America/Los_Angeles:20230823T203000
DTSTAMP:20260525T194502
CREATED:20230803T230030Z
LAST-MODIFIED:20230803T231742Z
UID:10000165-1692817200-1692822600@hemosocal.org
SUMMARY:emPOWERment Webinar Series: Disaster Preparedness
DESCRIPTION:Join us for our August emPOWERment Webinar\, “Disaster Preparedness” on Wednesday\, August 23\, 2023\, at 7:00PM. \nSPEAKER: CJ COOK \nCJ Cook is currently employed by Inland Counties Regional Center as Manager of Community Engagement\, serving over 52\,000 adults and children with developmental and intellectual disabilities in San Bernardino and Riverside Counties. As Manager of Community Engagement\, he oversees IRC community relations\, Language Access and Cultural Competency (LACC)\, emergency services\, and Service Access and Equity. He is also charged with addressing the disparity in the purchase of services through the successful implementation of Community-Based Organization programs\, which receive grant funding from the State of California Department of Developmental Services. \nCJ is a December 2\, 2015\, terrorist attack survivor. The events of 12/2/2015 acted as a catalyst for him to complete a Doctorate in Business Administration (DBA) with a Specialization in Homeland Security\, Leadership\, and Policy from Northcentral University\, San Diego. His dissertation\, titled\, “Investigating Emergency Operational Procedures and Protocols in the Regional Center System in California: A Qualitative Explanatory Case Study\,” explored the barriers in disaster preparedness within the Regional Center System of Care. \n**THIS EVENT IS FOR COMMUNITY MEMBERS WITH BLEEDING DISORDERS AND THEIR IMMEDIATE FAMILY ONLY**\nPLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD. We’ll be meeting virtually through ZOOM and will send you a link to access the discussion after registration (you can use your phone or laptop). Please reach out to us if you need technological assistance with ZOOM via email at laura@hemosocal.org or call 626-765-6656.
URL:https://hemosocal.org/event/empowerment-webinar-series-disaster-preparedness/
LOCATION:CA
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/08/DisasterPrep.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230812T150000
DTEND;TZID=America/Los_Angeles:20230812T220000
DTSTAMP:20260525T194502
CREATED:20230803T231642Z
LAST-MODIFIED:20230803T231642Z
UID:10000166-1691852400-1691877600@hemosocal.org
SUMMARY:BRO Event: Dodgers Game
DESCRIPTION:Join BRO Group for an educational session\, sponsored by Octapharma\, at Traxx Restaurant\, followed by a Dodgers game! Dr. Mike Zolo will be presenting on Kinesiology taping – an interactive presentation where demonstrations of how to tape the shoulder\, elbow\, wrist\, neck\, low back\, knee\, and ankle will be performed while discussing the indications during acute injury. Taping will be demonstrated how to reduce swelling\, improve range of motion\, and improve overall stability to reduce pain. \n**THIS EVENT IS FOR OUR BRO COMMUNITY MEMBERS WITH BLEEDING DISORDERS ONLY. **\nBRO Criteria: Male individuals with bleeding disorders and male caregivers and siblings\, including men\, boys\, and those who identify as male. \nEvent Day Details: \nAt 3pm\, we will meet at Traxx Restaurant for dinner and an educational session on Kinesiology taping. We will then take the Dodger Express Shuttle to the Dodger Stadium to enjoy a Dodger game vs. Colorado Rockies. \nLocation 1: Traxx Restaurant (located inside LA Union Station); 800 N Alameda St \, Los Angeles\, CA 90012 \nParking: Parking is $8 at Union Station lots. \nFood: Traxx Restaurant \nTime: 3pm to 5pm \nTransportation to Dodgers Stadium: Free Dodger Express Shuttle \nLocation 2: Dodger Stadium; 1000 Vin Scully Ave\, Los Angeles\, CA 90012 \nTime: 6pm onward \nThank you to Octapharma for sponsoring this event!\n** HFSC collects data from visitors to this site. Information collected is entered into the HFSC database. The visitor will be placed on a list to receive HFSC e-mail communications (HFSC once a month event notices and any other notices of importance to the bleeding disorders community and others)\, as well as occasional communications by regular mail. Visitors who do not wish to receive communications from HFSC have the opportunity to opt out at any time.\n——–\nÚnase al grupo BRO para una sesión educativa con Octapharma en Homebound Brewhaus seguida de un juego de los Dodgers. Crystal Higgins hará una presentación sobre el vendaje kinesiológico; una presentación interactiva con demostraciones de cómo vendar el hombro\, el codo\, la muñeca\, el cuello\, la parte baja de la espalda\, la rodilla y el tobillo mientras se discuten las indicaciones durante una lesión aguda. El vendaje se demostrará cómo reducir la hinchazón\, mejorar la amplitud de movimiento\, y mejorar la estabilidad general para reducir el dolor.\n**ESTE EVENTO ES SÓLO PARA LOS MIEMBROS DE NUESTRA COMUNIDAD BRO CON TRASTORNOS HEMORRÁGICOS. **\nCriterio BRO: Hombres con trastornos hemorrágicos y cuidadores masculinos y hermanos\, incluidos los hombres\, los niños y los que se identifican como hombres. \nDetalles del día del evento: \nA las 3 pm\, nos reuniremos en un Traxx Restaurant para la cena y una sesión educativa sobre Kinesiología taping. A continuación\, tomaremos el Dodger Express Shuttle al Dodger Stadium para disfrutar de un partido de los Dodgers contra los Colorado Rockies. \nLugar 1: Traxx Restaurant (situado dentro de LA Union Station); 800 N Alameda St \, Los Angeles\, CA 90012 \nEstacionamiento: El estacionamiento cuesta $8 en los estacionamientos de Union Station. \nComida: Traxx Restaurant \nHora: de 3pm a 5pm \nTransporte al estadio de los Dodgers: Transporte gratuito Dodger Express \nLugar 2: Dodger Stadium; 1000 Vin Scully Ave\, Los Angeles\, CA 90012 \nHora: 6pm en adelante \nGracias a Octapharma por patrocinar este evento.\n**El HFSC recoge datos de los visitantes de este sitio. La información recogida se introduce en la base de datos de HFSC. El visitante será incluido en una lista para recibir comunicaciones de HFSC por correo electrónico (avisos de eventos de HFSC una vez al mes y cualquier otro aviso de importancia para la comunidad de trastornos hemorrágicos y otros)\, así como comunicaciones ocasionales por correo ordinario. Los visitantes que no deseen recibir comunicaciones de la HFSC tienen la oportunidad de darse de baja en cualquier momento.
URL:https://hemosocal.org/event/bro-event-dodgers-game/
LOCATION:Traxx\, 800 N Alameda St\, Los Angeles\, CA\, 90012\, United States
CATEGORIES:BRO Gathering
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2023/07/dodgers4-800x267-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230805T083000
DTEND;TZID=America/Los_Angeles:20230805T133000
DTSTAMP:20260525T194502
CREATED:20230515T231237Z
LAST-MODIFIED:20230803T231957Z
UID:10000261-1691224200-1691242200@hemosocal.org
SUMMARY:9th Annual Back to School Symposium
DESCRIPTION:Sold Out! Contact Omar at omar@hemosocal.org to be put on our wait list. \n ¡Vendido! Por favor\, contacta a Omar a omar@hemosocal.org para inscribirte en nuestra lista de espera.\nPlease join HFSC for our 9th Annual Back to School Education Symposium! Students in attendance will receive a backpack and school supply gift card.\n**THIS EVENT IS FOR COMMUNITY MEMBERS WITH BLEEDING DISORDERS AND THEIR IMMEDIATE FAMILY ONLY**\nEvent Day Details: \nCal Poly Pomona \n60 Kellogg Drive \nPomona\, CA 91768 \nParking:  \nParking $4 in the Cal Poly Pomona lot \nFood: \nLight breakfast and lunch to-go will be provided  \nYouth Program: Children ages 5-11 have the option to be checked in to our Youth program. If you choose not to register your child or if your child does not qualify for the youth program\, please be aware that you are responsible for your child at all times during the program. \nTeen Program: Teens will receive a campus tour of Cal Poly Pomona. Young adult ages 12-18 have the option to participate in our Teen Program. If your teen does not wish to attend the program\, please be aware that you are responsible for your teen at all times during the program. \n** HFSC collects data from visitors to this site. Information collected is entered into the HFSC database. The visitor will be placed on a list to receive HFSC e-mail communications (HFSC once a month event notices and any other notices of importance to the bleeding disorders community and others)\, as well as occasional communications by regular mail. Visitors who do not wish to receive communications from HFSC have the opportunity to opt out at any time.\n——– \nAcompañe a HFSC en nuestro 8º Simposio anual de regreso a la escuela. Los estudiantes que asistan recibirán una mochila y una tarjeta de regalo para material escolar.\n**ESTE EVENTO ES SOLO PARA MIEMBROS DE LA COMUNIDAD CON TRASTORNOS HEMORRÁGICOS Y SUS FAMILIARES DIRECTOS**.\nDetalles del día del evento: \nCal Poly Pomona \n60 Kellogg Drive \nPomona\, CA 91768 \nEstacionamiento:  \n$4 en el estacionamiento de Cal Poly Pomona \nComida: \nSe servirá un desayuno ligero y comida para llevar \nPrograma para adolescentes: Los niños de 5 a 11 años tienen la opción de registrarse en nuestro programa juvenil. Si usted decide no registrar a su hijo o si su hijo no califica para el programa de la juventud\, por favor\, tenga en cuenta que usted es responsable de su hijo en todo momento durante el programa. \nTeen Program: Los adolescentes recibirán un tour del campus de Cal Poly Pomona. Los jóvenes de 12 a 18 años tienen la opción de participar en nuestro Programa de Adolescentes. Si su adolescente no desea asistir al programa\, por favor\, tenga en cuenta que usted es responsable de su hijo en todo momento durante el programa. \n** El HFSC recopila datos de los visitantes de este sitio. La información recogida se introduce en la base de datos de HFSC. El visitante será incluido en una lista para recibir comunicaciones de HFSC por correo electrónico (avisos de eventos de HFSC una vez al mes y cualquier otro aviso de importancia para la comunidad de trastornos hemorrágicos y otros)\, así como comunicaciones ocasionales por correo ordinario. Los visitantes que no deseen recibir comunicaciones de la HFSC tienen la oportunidad de darse de baja en cualquier momento.
URL:https://hemosocal.org/event/9th-annual-back-to-school-symposium/
LOCATION:Cal Poly Pomona\, 60 Kellogg Drive\, Pomona\, CA\, 91768
CATEGORIES:Back to School
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/05/eventbrite-crayons.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230727T180000
DTEND;TZID=America/Los_Angeles:20230727T200000
DTSTAMP:20260525T194502
CREATED:20230505T232359Z
LAST-MODIFIED:20230727T162903Z
UID:10000258-1690480800-1690488000@hemosocal.org
SUMMARY:HFSC Community Dinner: "Understanding Gene Therapy Research and its Potential Application to Hemophilia"
DESCRIPTION:Please join HFSC at Palenque in Riverside for a Community Dinner\, “Understanding Gene Therapy Research and Its Potential Application to Hemophilia.” \nThis presentation will help understand genetics; look at what investigational gene therapy is meant to do; review history\, past research\, and some challenges of gene therapy; and\, consider the potential of gene therapy research for those living with hemophilia. \nThank you to Spark Therapeutics for sponsoring this dinner!
URL:https://hemosocal.org/event/hfsc-community-dinner-understanding-gene-therapy-research-and-its-potential-application-to-hemophilia/
LOCATION:Palenque\, 3737 Main St #100\, Riverside\, CA\, 92501\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2023/05/Palenque.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230712T190000
DTEND;TZID=America/Los_Angeles:20230712T203000
DTSTAMP:20260525T194502
CREATED:20230525T232915Z
LAST-MODIFIED:20230525T232915Z
UID:10000162-1689188400-1689193800@hemosocal.org
SUMMARY:HFSC emPOWERment Webinar: "Advocating in the ER"
DESCRIPTION:Join us for our July emPOWERment Webinar\, “Advocating in the ER” on Wednesday\, July 12 at 7:00pm. \nHaving to advocate for yourself or a loved one’s care can be difficult\, especially in an urgent situation! This workshop will cover how to prepare in advance for an emergency\, and provide information to help you navigate difficult situations that you may encounter when you are in the emergency room. \nSpeaker: Lena Volland\, NHF \nPlease register one person per household. \n**THIS EVENT IS FOR COMMUNITY MEMBERS WITH BLEEDING DISORDERS AND THEIR IMMEDIATE FAMILY ONLY**
URL:https://hemosocal.org/event/hfsc-empowerment-webinar-advocating-in-the-er/
LOCATION:CA
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/05/eventbrite-photo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230608T183000
DTEND;TZID=America/Los_Angeles:20230608T200000
DTSTAMP:20260525T194502
CREATED:20230506T000648Z
LAST-MODIFIED:20230509T165632Z
UID:10000259-1686249000-1686254400@hemosocal.org
SUMMARY:HFSC Community Dinner: "A Focus on Mental Well-Being"
DESCRIPTION:Please join HFSC in Bakersfield for a Community Dinner\, “A Focus on Mental Well-Being.” \nMental health is a state of well-being and is an important topic to talk about for everyone\, including those living with a bleeding disorder. This dinner will discuss ways to navigate mental health\, as it includes our emotional\, psychological\, and social well-being. \nThank you to Novo Nordisk for sponsoring this dinner!
URL:https://hemosocal.org/event/hfsc-community-dinner-a-focus-on-mental-well-being/
LOCATION:Frugatti’s Italian Restaurant\, 8109 Brimhall Rd\, Bakersfield\, 93312
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/04/Untitled-design-24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230602T160000
DTEND;TZID=America/Los_Angeles:20230604T110000
DTSTAMP:20260525T194502
CREATED:20230405T222201Z
LAST-MODIFIED:20230405T222201Z
UID:10000255-1685721600-1685876400@hemosocal.org
SUMMARY:HFSC Retreat: Hemochella
DESCRIPTION:Please note: Childcare will not be provided for babies ages 0-4. \nJoin us for our 2023 Family Retreat!\nEnjoy a weekend and connect with other families with bleeding disorders while having fun\, challenging yourself to the ropes courses\, hiking\, basketball\, TALENT SHOW IS BACK!\, strengthening relationships\, and eating smores at a campfire! Summer campers will have an opportunity to get to know each other prior to Camp Blood Brothers and Sisters! \nCheck in is at Friday\, June 2\, 2023 at 4:00pm and Check out is Sunday\, June 4\, 2023 at 11:00am. \nPali Retreat Center has a limited number of beds available for our group and we welcome all immediate family members LIVING IN THE HOUSEHOLD of the person with a bleeding disorder. Priority will be given to families who complete the pre-registration here and \n1. Are recently diagnosed and \n2. Have never attended a family retreat \nThis year’s retreat is $10 per person for the weekend (ages 2 and under free). Once you are pre-registered here\, we will send you the remaining forms and application to complete. \nRefunds are available if requested before May 5\, 2023. \nPlease register only if you are able to attend for the full weekend. Please expect to bring your own bedding (i.e. sleeping bags and pillows) and toiletries. HFSC will provide all food\, beverages and snacks. Food is not allowed in the cabins. Refrigeration available in dining room for medication storage. Please arrive no later than 8pm though we will not be able to provide dinner to anyone arriving after 6:30pm. o \n** HFSC collects data from visitors to this site. Information collected is entered into the HFSC database. The visitor will be placed on a list to receive HFSC e-mail communications (HFSC once a month event notices and any other notices of importance to the bleeding disorders community and others)\, as well as occasional communications by regular mail. Visitors who do not wish to receive communications from HFSC have the opportunity to opt out at any time. \n———————————————————————— \nNota: No habrá servicio de guardería para bebés de 0 a 4 años. \n¡Únase a nosotros en nuestro Retiro Familiar 2023! \n¡Disfruta de un fin de semana y conéctate con otras familias con trastornos hemorrágicos mientras te diviertes\, te retas a la tirolesa\, circuitos de cuerdas\, senderismo\, baloncesto\, ¡VUELVE EL SHOW DE TALENTOS!\, fortaleces relaciones y comes s’mores en una fogata! Los campistas de verano tendrán la oportunidad de conocerse antes del Campamento Blood Brothers and Sisters. \nLa entrada es el viernes\, 2 de junio de 2023 a las 4:00pm y la salida es el domingo\, 4 de junio de 2023 a las 11:00am. \nPali Retreat Center tiene un número limitado de camas disponibles para nuestro grupo y damos la bienvenida a todos los miembros de la familia inmediata que VIVEN EN EL HOGAR de la persona con un trastorno hemorrágico. Se dará prioridad a las familias que completen la preinscripción aquí y \n1. Han sido diagnosticados recientemente y \n2. Nunca han asistido a un retiro familiar \nEl retiro de este año cuesta $10 por persona para el fin de semana (menores de 2 años gratis). Una vez que esté pre-registrado aquí\, le enviaremos los formularios restantes y la solicitud para completar. \nHay reembolsos disponibles si se solicitan antes del 5 de mayo de 2023. \nPor favor\, inscríbase sólo si puede asistir el fin de semana completo. Por favor\, traiga su propia ropa de cama (es decir\, sacos de dormir y almohadas) y artículos de tocador. HFSC proporcionará toda la comida\, bebidas y aperitivos. No se permite llevar comida a las cabañas. Hay refrigeración disponible en el comedor para guardar la medicación. Se ruega llegar a más tardar a las 20.00 horas\, aunque no podremos ofrecer la cena a quienes lleguen después de las 18.30 horas. \n** El HFSC recopila datos de los visitantes de este sitio. La información recogida se introduce en la base de datos del HFSC. El visitante será incluido en una lista para recibir comunicaciones por correo electrónico de HFSC (avisos de eventos de HFSC una vez al mes y cualquier otro aviso de importancia para la comunidad de trastornos hemorrágicos y otros)\, así como comunicaciones ocasionales por correo ordinario. Los visitantes que no deseen recibir comunicaciones de la HFSC tienen la oportunidad de darse de baja en cualquier momento. \n\n** HFSC recopila datos de los visitantes de este sitio. La información recopilada se ingresa en la base de datos HFSC. El visitante será colocado en una lista para recibir comunicaciones por correo electrónico de HFSC (avisos de eventos de HFSC una vez al mes y cualquier otro aviso de importancia para la comunidad de trastornos hemorrágicos y otros)\, así como comunicaciones ocasionales por correo ordinario. Los visitantes que no desean recibir comunicaciones de HFSC tienen la oportunidad de darse de baja en cualquier momento.
URL:https://hemosocal.org/event/hfsc-retreat-hemochella/
LOCATION:Pali Mountain Retreat\, 30778 CA-18\, Running Springs\, CA\, 92382\, United States
CATEGORIES:Family Retreat
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/04/HEMOCHELLA_eventbrite.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230523T180000
DTEND;TZID=America/Los_Angeles:20230523T200000
DTSTAMP:20260525T194502
CREATED:20230405T221809Z
LAST-MODIFIED:20230425T230759Z
UID:10000254-1684864800-1684872000@hemosocal.org
SUMMARY:HFSC Community Dinner: Raising Resilience
DESCRIPTION:Please join HFSC at Cafe Roma in San Luis Obispo for a Community Dinner\, “Raising Resilience.” \nExplore aspects of resilient behavior and thoughts\, learn how to build resilience\, and discuss how resilience may play a part in hemophilia management. \nThank you to Sanofi for sponsoring this dinner!
URL:https://hemosocal.org/event/hfsc-community-dinner-2/
LOCATION:Cafe Roma\, 1020 Railroad Ave\, San Luis Obispo\, CA\, 93401\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2023/03/caferoma.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230517T190000
DTEND;TZID=America/Los_Angeles:20230517T203000
DTSTAMP:20260525T194502
CREATED:20230425T230641Z
LAST-MODIFIED:20230425T230700Z
UID:10000257-1684350000-1684355400@hemosocal.org
SUMMARY:emPOWERment Webinar: Higher Factor Activity Levels Matter
DESCRIPTION:Join us for “Factor Fluency: Higher Factor Activity Levels Matter.” \nJoin HFSC for our May webinar in our emPOWERment Webinar Series on Wednesday\, May 17 starting at 7pm PST. \nLearn why factor activity levels matter. The more you know about you factor activity levels\, the better you can manage your hemophilia. \nThank you Sanofi for sponsoring this webinar. \nPLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD \nWe’ll be meeting virtually through ZOOM and will send you a link to access the discussion after registration (you can use your phone or laptop). Please reach out to us if you need technological assistance with ZOOM via email at laura@hemosocal.org or call 626-765-6656. \nThis educational webinar is open to people with genetic bleeding disorders and their immediate family only.
URL:https://hemosocal.org/event/hfsc-empowerment-webinar-higher-factor-activity-levels-matter/
LOCATION:CA
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2023/04/https___cdn.evbuc_.com_images_500902379_17325029179_1_original.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230510T180000
DTEND;TZID=America/Los_Angeles:20230510T200000
DTSTAMP:20260525T194502
CREATED:20230301T190236Z
LAST-MODIFIED:20230306T211343Z
UID:10000160-1683741600-1683748800@hemosocal.org
SUMMARY:HFSC Women's Community Dinner
DESCRIPTION:Join us at Maggiano’s in Costa Mesa for a Women’s Community Dinner\, sponsored by Takeda! \n“Emotional Health and Well-being: Exploring the Mind-Body Connection” This presentation explores how living with a bleeding disorder can affect one’s general mental health and well-being\, and how emotional health can affect someone’s quality of life. \nNOTE: free parking  \n** HFSC collects data from visitors to this site. Information collected is entered into the HFSC database. The visitor will be placed on a list to receive HFSC e-mail communications (HFSC once a month event notices and any other notices of importance to the bleeding disorders community and others)\, as well as occasional communications by regular mail. Visitors who do not wish to receive communications from HFSC have the opportunity to opt out at any time.
URL:https://hemosocal.org/event/hfsc-community-dinner/
LOCATION:Maggiano’s Little Italy\, 3333 Bristol St\, Costa Mesa\, CA\, 92626\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2022/08/Maggiano.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230506T090000
DTEND;TZID=America/Los_Angeles:20230506T130000
DTSTAMP:20260525T194502
CREATED:20230209T234829Z
LAST-MODIFIED:20230209T234829Z
UID:10000159-1683363600-1683378000@hemosocal.org
SUMMARY:HFSC Family Information Day 2023
DESCRIPTION:HFSC invites you to our annual meeting\, “Family Information Day” on May 6\, 2023 at the Sheraton Cerritos Hotel!\nFamily Information Day is an annual event held to educate\, inform\, and support the bleeding disorders community in Southern California. \nAttendees ages 3+ will receive a ticket to Knott’s Berry Farm . \n**THIS EVENT IS FOR COMMUNITY MEMBERS WITH BLEEDING DISORDERS AND THEIR IMMEDIATE FAMILY ONLY** \nEvent Day Details: \nParking: Parking is FREE at the Hotel. \nFood: Lunch will be provided. HFSC will do our best to accommodate food restrictions that are noted in the registration. \nYouth Program: Children ages 5-12 have the option to be checked in to our Youth program. If you choose not to register your child or if your child does not qualify for the youth program\, please be aware that you are responsible for your child at all times during the program. \nTickets to Knott’s Berry Farm will be distributed ONLY after the event is completed in its entirety and ONLY for members attending the educational sessions. If you are not present at the event\, unfortunately\, we cannot give you a ticket. \n** HFSC collects data from visitors to this site. Information collected is entered into the HFSC database. The visitor will be placed on a list to receive HFSC e-mail communications (HFSC once a month event notices and any other notices of importance to the bleeding disorders community and others)\, as well as occasional communications by regular mail. Visitors who do not wish to receive communications from HFSC have the opportunity to opt out at any time.
URL:https://hemosocal.org/event/hfsc-family-information-day-2023/
LOCATION:Sheraton Cerritos Hotel\, 12725 Center St\, Cerritos\, CA\, 90703
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/02/SnoopyWoodstock.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230430T180000
DTEND;TZID=America/Los_Angeles:20230430T200000
DTSTAMP:20260525T194502
CREATED:20230301T193733Z
LAST-MODIFIED:20230301T193733Z
UID:10000252-1682877600-1682884800@hemosocal.org
SUMMARY:HFSC World Hemophilia Day: Palm Springs
DESCRIPTION:Join HFSC at Eight4Nine in Palm Springs to celebrate World Hemophilia Day!\nWear your best RED outfit!\nThank you to Sanofi for sponsoring this dinner.
URL:https://hemosocal.org/event/hfsc-world-hemophilia-day-palm-springs/
LOCATION:Eight4Nine Restaurant & Lounge\, 849 North Palm Canyon Dr\, Palm Springs\, CA\, 92262\, United States
CATEGORIES:World Hemophilia Day
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/03/Eight4Nine_PalmSprings.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230420T190000
DTEND;TZID=America/Los_Angeles:20230420T203000
DTSTAMP:20260525T194502
CREATED:20230315T011527Z
LAST-MODIFIED:20230315T011527Z
UID:10000253-1682017200-1682022600@hemosocal.org
SUMMARY:emPOWERment Webinar: Nutrition & Health Outcomes with Cooking Presentation
DESCRIPTION:Join HFSC for our April webinar in our emPOWERment Webinar Series on Thursday\, April 20 starting at 7pm PST. \nPLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD \nWe’ll be meeting virtually through ZOOM and will send you a link to access the discussion after registration (you can use your phone or laptop). Please reach out to us if you need technological assistance with ZOOM via email at laura@hemosocal.org or call 626-765-6656. \nThis educational webinar is open to people with genetic bleeding disorders and their immediate family only.
URL:https://hemosocal.org/event/empowerment-webinar-nutrition-health-outcomes-with-cooking-presentation/
LOCATION:CA
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/03/Fruit.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230416T180000
DTEND;TZID=America/Los_Angeles:20230416T200000
DTSTAMP:20260525T194502
CREATED:20230301T193155Z
LAST-MODIFIED:20230301T193155Z
UID:10000161-1681668000-1681675200@hemosocal.org
SUMMARY:HFSC World Hemophilia Day: Burbank
DESCRIPTION:Join HFSC at The Castaway Burbank for for a global day of awareness and recognition of our brothers and sisters around the world.\nPLEASE WEAR YOUR BEST RED OUTFIT!\nThank you to Sanofi for sponsoring this event.
URL:https://hemosocal.org/event/hfsc-world-hemophilia-day-burbank/
LOCATION:The Castaway Burbank\, 1250 East Harvard Rd\, Burbank\, CA\, 91501\, United States
CATEGORIES:World Hemophilia Day
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/03/CastawayBurbank.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230318T110000
DTEND;TZID=America/Los_Angeles:20230319T110000
DTSTAMP:20260525T194502
CREATED:20230104T181602Z
LAST-MODIFIED:20230104T181602Z
UID:10000155-1679137200-1679223600@hemosocal.org
SUMMARY:IGNITE: HFSC Women's Retreat
DESCRIPTION:HFSC Welcomes You! IGNITE YOUR HEALTH!\nBreak away from your routine and invest in self care with sisterhood\, education and rejuvenation. Renew your passion for priorities in your life that matter: health\, family\, and goals. The bleeding disorders community of women is ready to IGNITE – you bring the fuel\, we’ll bring the SPARK!  \nWe’ll be gathering in person for HFSC’s Women’s and Teen Girls Retreat at the Marriott Irvine Spectrum Hotel. For women and teen girls ages 12+ (including female identifying) with bleeding disorders\, or caregivers or partners of those with bleeding disorders. Space is limited! \nThough masking indoors is not currently required\, HFSC highly encourages all participants to continue to mask at all times when not actively eating or drinking to prevent the spread of COVID\, flu\, and other respiratory illnesses. If you or anyone in your household is experiencing any symptoms of respiratory illness such as coughing\, wheezing\, shortness of breath\, runny nose\, temperature greater than 100.4 degrees F\, loss of sense of taste or smell\, please let us know you are unable to attend. \nSingle Room Registration: $30.00 \nShared Room Registration: $15.00 *Shared Room within your household only\, maximum of four people per room* \nDay Attendee (Please join us on both Saturday and Sunday): Free (no hotel room) \nParking is FREE (validated by HFSC) \nUnderstanding that times are difficult for many families\, please contact HFSC at events@hemosocal.org to discuss a fee waiver application. \nWHAT TO BRING: \nComfortable clothing\, toiletries\, factor\, and any other medications needed. Refrigerators are available in each room. Some meals will be served outside with heat lamps\, so bring a jacket! \nIn order to create a special time for women and teen girls only\, thank you for not bringing children to the event space.   \nSaturday\, March 18\, 2023\n11:00am-12:00pm: Registration \n12:00pm-12:30pm: Ice Breaker \n12:30pm-1:30pm: Lunch (served outside) \n1:30pm-4:00pm: Breakout Sessions \n4:00pm: Check Into Hotel \n6:30pm: Dinner Presentation (served outside) \nSunday\, March 19\, 2023\n8:00am-10:30: Breakfast\, Plenary Presentation (served outside) \n11:00am: Check out from Hotel
URL:https://hemosocal.org/event/ignite-hfsc-womens-retreat/
LOCATION:Marriott Irvine Spectrum\, 7905 Irvine Center Dr\, Irvine\, CA\, 92618\, United States
CATEGORIES:Women's Retreat
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2021/04/ignite.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230301T190000
DTEND;TZID=America/Los_Angeles:20230301T200000
DTSTAMP:20260525T194502
CREATED:20230125T191706Z
LAST-MODIFIED:20230301T190121Z
UID:10000158-1677697200-1677700800@hemosocal.org
SUMMARY:BRO Discussion
DESCRIPTION:We want to hear from you!\nJoin our webinar for an informal discussion about what programs and topics you would like to see at BRO events!\n 
URL:https://hemosocal.org/event/12204/
LOCATION:CA
CATEGORIES:BRO Gathering
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/01/hear.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230215T190000
DTEND;TZID=America/Los_Angeles:20230215T200000
DTSTAMP:20260525T194502
CREATED:20230125T191408Z
LAST-MODIFIED:20230125T191408Z
UID:10000157-1676487600-1676491200@hemosocal.org
SUMMARY:Mujeres Enlazadas por Sangre: ¡Queremos escuchar de ti!
DESCRIPTION:¡Queremos escuchar de ti!\n¡Únase a nuestro seminario web para tener una discusión informal sobre qué programas y temas le gustaría ver en los eventos de Mujeres Enlazadas!
URL:https://hemosocal.org/event/mujeres-enlazadas-por-sangre-queremos-escuchar-de-ti/
LOCATION:CA
CATEGORIES:Mujeres Enlazadas por Sangre Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2023/01/Esc.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230208T190000
DTEND;TZID=America/Los_Angeles:20230208T203000
DTSTAMP:20260525T194502
CREATED:20230125T191023Z
LAST-MODIFIED:20230125T191023Z
UID:10000156-1675882800-1675888200@hemosocal.org
SUMMARY:emPOWERment Webinar: What's New in Legislative Advocacy?
DESCRIPTION:Join HFSC for our first emPOWERment Webinar of 2023! \n“What’s New in Legislative Advocacy?” Speakers: Lynne Kinst\, Executive Director\, Hemophilia Council of CA\, and Josie Gamez\, Government Relations Manager\, NHF. \nJoin HFSC for our first webinar in our emPOWERment Webinar Series on Wednesday\, February 8 starting at 7pm PST. \nPLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD \nWe’ll be meeting virtually through ZOOM and will send you a link to access the discussion after registration (you can use your phone or laptop). Please reach out to us if you need technological assistance with ZOOM via email at laura@hemosocal.org or call 626-765-6656. \nThis educational webinar is open to people with genetic bleeding disorders and their immediate family only. YOU MUST BE ON THE WEBINAR no later than 7:10PM to receive a $20 Amazon gift card. One gift card per household. THESE GIFT CARDS ARE FOR HFSC Community Members only.
URL:https://hemosocal.org/event/empowerment-webinar-whats-new-in-legislative-advocacy/
LOCATION:CA
CATEGORIES:emPOWERment
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2023/01/Untitled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230121T090000
DTEND;TZID=America/Los_Angeles:20230121T133000
DTSTAMP:20260525T194502
CREATED:20221108T222719Z
LAST-MODIFIED:20221108T222719Z
UID:10000153-1674291600-1674307800@hemosocal.org
SUMMARY:HFSC 7th Annual Industry Forum
DESCRIPTION:Join us for our 7th Annual Industry Forum in person at Pasadena City College! Attend breakout sessions with companies of your choice and learn about pipeline and newer products to treat your bleeding disorder. \nSign up for the virtual HTC Townhall on January 18th from 7-8pm PST with our three Medical Directors from our local HTCs here: https://2023hfscpipelineproducts.eventbrite.com \nAgenda \n9:00-10:30am: Light Breakfast\, Booths Open\, Registration\, Welcome \n10:30am-12:30pm: Breakout Sessions (choose four 20 minute classes) \n12:30-1:00pm: Closing Session\, Lunch to Go\, Ticket Distribution \nThank you for arriving by 10:00 a.m. and attending all breakout sessions in order to receive your Six Flags Ticket! \nChild Care Program: Ages 5-11: Youth Program \nTeens Program Ages 12-17 \nRegistration is limited to 6 people per family\, if you have more people in your immediate family\, please contact us at 626-765-6656. Thanks! THIS EVENT IS ONLY OPEN TO IMMEDIATE FAMILY MEMBERS! \nPer HFSC policy and NHF guidelines\, all attendees ages 12 and older are required to present proof of COVID-19 vaccination or a negative COVID-19 test result within 72 hours prior to entry. All attendees are encourage to wear masks/face coverings at all times\, regardless of vaccination status\, unless actively eating or drinking. \nTHANK YOU FOR WEARING YOUR MASK INDOORS AT ALL TIMES. MASKS WILL BE PROVIDED IF YOU FORGET YOURS\nAll attendees age 3 and above who arrive by 10:00 a.m. will receive a ticket to Valencia Six Flags Magic Mountain. Attendees must attend all breakout sessions. \nParking is $2 in the PCC Lot\, Breakfast and Lunch Served! Community Members and Immediate Family Only. Some sessions will be provided in Spanish. \n________________________
URL:https://hemosocal.org/event/hfsc-7th-annual-industry-forum/
LOCATION:Pasadena City College\, 1570 East Colorado Boulevard\, Pasadena\, CA\, 91106\, United States
CATEGORIES:Industry Forum
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2021/12/industry-forum-products.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230118T190000
DTEND;TZID=America/Los_Angeles:20230118T200000
DTSTAMP:20260525T194502
CREATED:20221108T222709Z
LAST-MODIFIED:20230104T180832Z
UID:10000152-1674068400-1674072000@hemosocal.org
SUMMARY:Industry Forum Pipeline Products Webinar
DESCRIPTION:Extended Half Life Products\, Non-Factor Replacement Therapies and Gene therapy: what does this mean? Join us for our Town-Hall Webinar with our local Hematologists to learn more about what is coming in the bleeding disorders sphere.
URL:https://hemosocal.org/event/industry-forum-pipeline-products-webinar/
LOCATION:CA
CATEGORIES:Industry Forum
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2021/12/industry-forum-products.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221218T110000
DTEND;TZID=America/Los_Angeles:20221218T150000
DTSTAMP:20260525T194502
CREATED:20221108T222637Z
LAST-MODIFIED:20221108T222637Z
UID:10000251-1671361200-1671375600@hemosocal.org
SUMMARY:BRO Holiday Gathering (Men + Teens\, Fathers + Father Figures)
DESCRIPTION:Join our BRO (Bleeders Reaching Out) Meeting for men ages 18+ with bleeding disorders and fathers/father-figures of children with bleeding disorders. Teens are invited too. We’ll hang out and play games\, have a good laugh and eat good food!\nLunch and Drinks provided\nPlay our White Elephant game! Bring a wrapped item $10-$20 to exchange with other attendees! \nHow to Play: \n\nEach player brings one or more wrapped gifts to contribute to a common pool\nPlayers draw numbers to determine what order they will go in\nThe first player selects a gift from the pool and opens it\nThe following players can choose to either pick an unwrapped gift from the pool or steal a previous player’s gift. Anyone who gets their gift stolen in this way can do the same – choose a new gift or steal from someone else.\n\n  \nNOTE: This gathering will be held outside. Please bring a sweater or jacket.\nParking: Free Street Parking is available\nPer HFSC policy and NHF guidelines\, all attendees ages 12 and older are required to present proof of COVID-19 vaccination or a negative COVID-19 test result within 72 hours prior to entry. All attendees are encourage to wear masks/face coverings at all times\, regardless of vaccination status\, unless actively eating or drinking. \n** HFSC collects data from visitors to this site. Information collected is entered into the HFSC database. The visitor will be placed on a list to receive HFSC e-mail communications (HFSC once a month event notices and any other notices of importance to the bleeding disorders community and others)\, as well as occasional communications by regular mail. Visitors who do not wish to receive communications from HFSC have the opportunity to opt out at any time. \n___________________________ \nÚnase a nosotros para una reunión navideña de BRO en vivo en persona\nÚnase a nuestra reunión BRO (Bleeders Reaching Out) para hombres mayores de 18 años con trastornos hemorrágicos y padres / figuras paternas de niños con trastornos hemorrágicos. Los adolescentes también están invitados. ¡Pasaremos el rato y jugaremos\, nos reiremos y comeremos bien!\nSe proporciona almuerzo y bebidas.\n¡Juega a nuestro juego White Elephant! ¡Traiga un artículo envuelto de $ 10 a $ 20 para intercambiar con otros asistentes! \nCómo jugar: \n\n\n\nCada jugador trae uno o más obsequios envueltos para contribuir a un fondo común.\n\n\n\n\nLos jugadores sacan números para determinar en qué orden irán.\n\n\n\n\nEl primer jugador selecciona un regalo del grupo y lo abre.\n\n\n\n\nLos siguientes jugadores pueden elegir entre elegir un regalo sin envolver del grupo o robar el regalo de un jugador anterior. Cualquiera a quien le roben su regalo de esta manera puede hacer lo mismo: elegir un nuevo regalo o robarle a otra persona.\n\n\n\nNOTA: Esta reunión se llevará a cabo al aire libre. Por favor traiga un suéter o chaqueta.\nEstacionamiento: Estacionamiento gratuito en la calle disponible \nDe acuerdo con la política de HFSC y las pautas de NHF\, todos los asistentes mayores de 12 años deben presentar un comprobante de vacunación contra el COVID-19 o un resultado negativo de la prueba de COVID-19 dentro de las 72 horas anteriores a la entrada. Se recomienda a todos los asistentes a usar máscarillas/coberturas faciales en todo momento\, independientemente del estado de vacunación\, a menos que estén comiendo o bebiendo activamente. \n** HFSC recopila datos de los visitantes de este sitio. La información recopilada se ingresa en la base de datos HFSC. El visitante será incluido en una lista para recibir comunicaciones por correo electrónico de HFSC (notificaciones de eventos de HFSC una vez al mes y cualquier otra notificación de importancia para la comunidad de trastornos de la coagulación y otros)\, así como comunicaciones ocasionales por correo regular. Los visitantes que no deseen recibir comunicaciones de HFSC tienen la oportunidad de optar por no participar en cualquier momento.
URL:https://hemosocal.org/event/bro-holiday-gathering-men-teens-fathers-father-figures/
LOCATION:Goals Soccer Center\, 699 S Barranca Ave\, Covina\, CA\, 91723\, United States
CATEGORIES:HFSC Snowflake Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2022/11/Goals-Covina.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221213T180000
DTEND;TZID=America/Los_Angeles:20221213T200000
DTSTAMP:20260525T194502
CREATED:20221108T222625Z
LAST-MODIFIED:20221122T004746Z
UID:10000250-1670954400-1670961600@hemosocal.org
SUMMARY:HFSC Snowflake Dinner: Santa Barbara
DESCRIPTION:Join HFSC at our in-person Snowflake Dinner in Santa Barbara sponsored by Spark Therapeutics! Due to COVID precautions\, HFSC will be hosting smaller gatherings to celebrate the end of the year. We’ll be providing some bleeding disorders education and then playing games with prizes. All children and teens 18 and under in attendance will receive a $25 Amazon gift card. Please note this dinner is limited to the patient with a bleeding disorder and their immediate family only. \nPer HFSC policy and NHF guidelines\, all attendees ages 12 and older are required to present proof of COVID-19 vaccination or a negative COVID-19 test result within 72 hours prior to entry. All attendees are encourage to wear masks/face coverings at all times\, regardless of vaccination status\, unless actively eating or drinking. \nPlay our White Elephant game! Bring a wrapped item $10 or less to exchange with other attendees! \nHow to Play: \n\nEach player brings one or more wrapped gifts to contribute to a common pool\nPlayers draw numbers to determine what order they will go in\nThe first player selects a gift from the pool and opens it\nThe following players can choose to either pick an unwrapped gift from the pool or steal a previous player’s gift. Anyone who gets their gift stolen in this way can do the same – choose a new gift or steal from someone else.\n\nThank you Spark Therapeutics for your support of this dinner program! For questions\, please call HFSC at 626-765-6656. \n________________________________________________________ \n¡Únase a HFSC en nuestra Cena en persona en Santa Barbara patrocinada por Spark Therapeutics! Debido a las precauciones de COVID\, HFSC organizará reuniones más pequeñas para celebrar el fin de año. Proporcionaremos algo de educación sobre trastornos hemorrágicos y luego jugaremos juegos con premios. Todos los niños y adolescentes de 18 años o menos que asistan recibirán una tarjeta de regalo de Amazon de $ 25 en lugar de un regalo este año. Tenga en cuenta que esta cena se limita al paciente con un trastorno hemorrágico y su familia inmediata únicamente. \nDe acuerdo con la política de HFSC y las pautas de NHF\, todos los asistentes mayores de 12 años deben presentar un comprobante de vacunación contra el COVID-19 o un resultado negativo de la prueba de COVID-19 dentro de las 72 horas anteriores a la entrada. Se recomienda a todos los asistentes a usar máscarillas/coberturas faciales en todo momento\, independientemente del estado de vacunación\, a menos que estén comiendo o bebiendo activamente. \n¡Juege a nuestro juego White Elephant! ¡Traiga un artículo envuelto de $ 10 o menos para intercambiar con otros asistentes! \nCómo jugar: \n\nCada jugador trae uno o más obsequios envueltos para contribuir a un fondo común.\n\n\nLos jugadores sacan números para determinar en qué orden irán.\n\n\nEl primer jugador selecciona un regalo del grupo y lo abre.\n\n\nLos siguientes jugadores pueden elegir entre elegir un regalo sin envolver del grupo o robar el regalo de un jugador anterior. Cualquiera a quien le roben su regalo de esta manera puede hacer lo mismo: elegir un nuevo regalo o robarle a otra persona.\n\n¡Gracias Spark Therapeutics por su apoyo a este programa! Si tiene preguntas\, llame a HFSC al 626-765-6656.
URL:https://hemosocal.org/event/hfsc-snowflake-dinner-santa-barbara/
LOCATION:Stella Mare’s Bistro\, 50 Los Patos Way\, Santa Barbara\, CA\, 93108\, United States
CATEGORIES:HFSC Snowflake Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2022/11/stella-mare.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221208T180000
DTEND;TZID=America/Los_Angeles:20221208T200000
DTSTAMP:20260525T194502
CREATED:20221122T004931Z
LAST-MODIFIED:20221122T004931Z
UID:10000154-1670522400-1670529600@hemosocal.org
SUMMARY:HFSC Snowflake Dinner: Riverside
DESCRIPTION:Join HFSC at our in-person Snowflake Dinner in Riverside sponsored by NovoNordisk! Due to COVID precautions\, HFSC will be hosting smaller gatherings to celebrate the end of the year. We’ll be providing some bleeding disorders education and then playing games with prizes. All children and teens 18 and under in attendance will receive a $25 Amazon gift card. Please note this dinner is limited to the patient with a bleeding disorder and their immediate family only. \nPer HFSC policy and NHF guidelines\, all attendees ages 12 and older are required to present proof of COVID-19 vaccination or a negative COVID-19 test result within 72 hours prior to entry. All attendees are encourage to wear masks/face coverings at all times\, regardless of vaccination status\, unless actively eating or drinking. \nPlay our White Elephant game! Bring a wrapped item $10 or less to exchange with other attendees! \nHow to Play: \n\nEach player brings one or more wrapped gifts to contribute to a common pool\nPlayers draw numbers to determine what order they will go in\nThe first player selects a gift from the pool and opens it\nThe following players can choose to either pick an unwrapped gift from the pool or steal a previous player’s gift. Anyone who gets their gift stolen in this way can do the same – choose a new gift or steal from someone else.\n\nThank you NovoNordisk for your support of this dinner program! For questions\, please call HFSC at 626-765-6656. \n________________________________________________________ \n¡Únase a HFSC en nuestra Cena en persona en Ontario patrocinada por NovoNordisk! Debido a las precauciones de COVID\, HFSC organizará reuniones más pequeñas para celebrar el fin de año. Proporcionaremos algo de educación sobre trastornos hemorrágicos y luego jugaremos juegos con premios. Todos los niños y adolescentes de 18 años o menos que asistan recibirán una tarjeta de regalo de Amazon de $ 25 en lugar de un regalo este año. Tenga en cuenta que esta cena se limita al paciente con un trastorno hemorrágico y su familia inmediata únicamente. \nDe acuerdo con la política de HFSC y las pautas de NHF\, todos los asistentes mayores de 12 años deben presentar un comprobante de vacunación contra el COVID-19 o un resultado negativo de la prueba de COVID-19 dentro de las 72 horas anteriores a la entrada. Se recomienda a todos los asistentes a usar máscarillas/coberturas faciales en todo momento\, independientemente del estado de vacunación\, a menos que estén comiendo o bebiendo activamente. \n¡Juege a nuestro juego White Elephant! ¡Traiga un artículo envuelto de $ 10 o menos para intercambiar con otros asistentes! \nCómo jugar: \n\nCada jugador trae uno o más obsequios envueltos para contribuir a un fondo común.\n\n\nLos jugadores sacan números para determinar en qué orden irán.\n\n\nEl primer jugador selecciona un regalo del grupo y lo abre.\n\n\nLos siguientes jugadores pueden elegir entre elegir un regalo sin envolver del grupo o robar el regalo de un jugador anterior. Cualquiera a quien le roben su regalo de esta manera puede hacer lo mismo: elegir un nuevo regalo o robarle a otra persona.\n\n¡Gracias NovoNordisk por su apoyo a este programa! Si tiene preguntas\, llame a HFSC al 626-765-6656.
URL:https://hemosocal.org/event/hfsc-snowflake-dinner-riverside-2/
LOCATION:Mamma Mia Restaurant and Bar\, 10971 Magnolia Ave\, Riverside\, CA\, 92505\, United States
CATEGORIES:HFSC Snowflake Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2022/11/MammaMia.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221208T180000
DTEND;TZID=America/Los_Angeles:20221208T200000
DTSTAMP:20260525T194502
CREATED:20221108T222610Z
LAST-MODIFIED:20221108T222610Z
UID:10000249-1670522400-1670529600@hemosocal.org
SUMMARY:HFSC Snowflake Dinner: Pomona
DESCRIPTION:Join HFSC at our in-person Snowflake Dinner in Ontario sponsored by Sanofi ! Due to COVID precautions\, HFSC will be hosting smaller gatherings to celebrate the end of the year. We’ll be providing some bleeding disorders education and then playing games with prizes. All children and teens 18 and under in attendance will receive a $25 Amazon gift card. Please note this dinner is limited to the patient with a bleeding disorder and their immediate family only. \nPer HFSC policy and NHF guidelines\, all attendees ages 12 and older are required to present proof of COVID-19 vaccination or a negative COVID-19 test result within 72 hours prior to entry. All attendees are encourage to wear masks/face coverings at all times\, regardless of vaccination status\, unless actively eating or drinking. \nPlay our White Elephant game! Bring a wrapped item $10 or less to exchange with other attendees! \nHow to Play: \n\nEach player brings one or more wrapped gifts to contribute to a common pool\nPlayers draw numbers to determine what order they will go in\nThe first player selects a gift from the pool and opens it\nThe following players can choose to either pick an unwrapped gift from the pool or steal a previous player’s gift. Anyone who gets their gift stolen in this way can do the same – choose a new gift or steal from someone else.\n\nThank you Sanofi for your support of this dinner program! For questions\, please call HFSC at 626-765-6656. \n________________________________________________________ \n¡Únase a HFSC en nuestra Cena en persona en Ontario patrocinada por Sanofi! Debido a las precauciones de COVID\, HFSC organizará reuniones más pequeñas para celebrar el fin de año. Proporcionaremos algo de educación sobre trastornos hemorrágicos y luego jugaremos juegos con premios. Todos los niños y adolescentes de 18 años o menos que asistan recibirán una tarjeta de regalo de Amazon de $ 25 en lugar de un regalo este año. Tenga en cuenta que esta cena se limita al paciente con un trastorno hemorrágico y su familia inmediata únicamente. \nDe acuerdo con la política de HFSC y las pautas de NHF\, todos los asistentes mayores de 12 años deben presentar un comprobante de vacunación contra el COVID-19 o un resultado negativo de la prueba de COVID-19 dentro de las 72 horas anteriores a la entrada. Se recomienda a todos los asistentes a usar máscarillas/coberturas faciales en todo momento\, independientemente del estado de vacunación\, a menos que estén comiendo o bebiendo activamente. \n¡Juege a nuestro juego White Elephant! ¡Traiga un artículo envuelto de $ 10 o menos para intercambiar con otros asistentes! \nCómo jugar: \n\nCada jugador trae uno o más obsequios envueltos para contribuir a un fondo común.\n\n\nLos jugadores sacan números para determinar en qué orden irán.\n\n\nEl primer jugador selecciona un regalo del grupo y lo abre.\n\n\nLos siguientes jugadores pueden elegir entre elegir un regalo sin envolver del grupo o robar el regalo de un jugador anterior. Cualquiera a quien le roben su regalo de esta manera puede hacer lo mismo: elegir un nuevo regalo o robarle a otra persona.\n\n¡Gracias Sanofi por su apoyo a este programa! Si tiene preguntas\, llame a HFSC al 626-765-6656.
URL:https://hemosocal.org/event/hfsc-snowflake-dinner-pomona/
LOCATION:Pomona Valley Mining Co.\, 1777 Gillette Rd\, Pomona\, CA\, 91768\, United States
CATEGORIES:HFSC Snowflake Dinner
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2022/11/Pomona.jpg
END:VEVENT
END:VCALENDAR