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X-WR-CALDESC:Events for Hemophilia Foundation of Southern California
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DTSTART;VALUE=DATE:20260304
DTEND;VALUE=DATE:20260307
DTSTAMP:20260525T142755
CREATED:20251215T183849Z
LAST-MODIFIED:20251215T183933Z
UID:10000320-1772582400-1772841599@hemosocal.org
SUMMARY:Washington Days 2026 - Hotel and Airfare Scholarship Application (National Bleeding Disorders Foundation)
DESCRIPTION:Washington Days\, organized by the National Bleeding Disorders Foundation\, is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. \nThe Hemophilia Foundation of Southern California is now accepting applications to provide hotel and airfare assistance for community members to participate in the National Bleeding Disorders Foundation’s Washington Days\, taking place March 4-6. 2026. \n\nApplications will be reviewed by the Review Committee and awarded based on advocacy history\, chapter event participation\, and county residency.\nIf applicant is a minor\, they must have a parent/guardian attend with them. A section below includes Parent/guardian’s information.\nThe deadline for submitting completed applications is December 15\, 2025.\nNOTE: Number of applicants accepted depends on funding available.\nIf you have any questions\, please contact Rigo Garcia at rigo@hemosocal.org.\nNOTE\n\nIf applicant is a minor\, the minor will share a room with their parent/guardian who is attending with them.\nApplicant must sign up for Washington Days directly with the National Bleeding Disorders Foundation (NBDF)\nIf applicant isn’t awarded a scholarship\, but is still planning on attending\, applicant must pay for their own room and airfare.
URL:https://hemosocal.org/event/washington-days-2026-hotel-and-airfare-scholarship-application-national-bleeding-disorders-foundation/
LOCATION:Washington\, DC\, Washington\, DC\, United States
CATEGORIES:NBDF Washington Days
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2025/12/WA-Days-Image.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260312
DTEND;VALUE=DATE:20260313
DTSTAMP:20260525T142755
CREATED:20260211T190815Z
LAST-MODIFIED:20260211T191114Z
UID:10000329-1773273600-1773359999@hemosocal.org
SUMMARY:SAVE THE DATE - PANDA EXPRESS FUNDRAISER
DESCRIPTION:📅 Save the Date — March 12!\nOrder Panda Express online and 28% of sales will be donated to HFSC 🐼❤️\n🛒 Online orders only (nationwide)\n🔢 Use code 9011509 at checkout\nEnjoy a meal & give back to HFSC at the same time as part of Bleeding Disorders Awareness Month!
URL:https://hemosocal.org/event/save-the-date-panda-express-fundraiser/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2026/02/STD-English-Panda-Express.png
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260314T100000
DTEND;TZID=America/Los_Angeles:20260315T110000
DTSTAMP:20260525T142755
CREATED:20251212T194146Z
LAST-MODIFIED:20260220T003140Z
UID:10000318-1773482400-1773572400@hemosocal.org
SUMMARY:Women's Retreat 2026
DESCRIPTION:EVENT INFORMATION \nWomen’s bleeding issues continue to present specific challenges with diagnosis\, treatment and access.  Heavy menstrual bleeding can lead to anemia (low red blood cell count/low blood iron levels)\, with symptoms of fatigue\, paleness\, lack of energy and shortness of breath. Many women with bleeding disorders are also caregivers of a child with a bleeding disorder and self-care can be challenging. This retreat presents an opportunity to carve out time for yourself\, laugh with your blood sisters and learn how to advocate for your own treatment. \nAGENDA (subject to change) \nSATURDAY\, MARCH 14\, 2026 \n10:00AM  – Registration and Sponsor Booths \n12:00PM – Welcome & Presentation\, Lunch \n1:30PM – Breakout Sessions \n4:00PM – Hotel Check-In \n6:00PM – Dinner & Presentation \n7:30PM – Reception \n8:30 PM – Event ends for the day \nSUNDAY\, MARCH 15\, 2026 \n8:00AM – Sponsor Booths \n9:30AM – Breakfast & Presentation – Amber Federizo\, DNP – “Herstory: Unseen Bleeding\, Visible Consequences” – This informative session will explore Herstory throughout history\, the impact of gender bias on diagnosis and treatment\, the importance of recognizing bleeding disorders in women\, and more. \n11:30AM – Closing Remarks\, Event Ends; Hotel Check-Out by 12:00PM \n*This event is intended for girls/women/those who identify as women age 11+. If you would like to discuss including a younger participant\, please call the HFSC office! 626-765-6656 |  \n*Este evento está dirigido a niñas/mujeres/personas que se identifican como mujeres mayores de 11 años. Si desea hablar sobre la posibilidad de incluir a una participante más joven\, llame a la oficina de HFSC. 626-765-6656
URL:https://hemosocal.org/event/womens-retreat-2026/
LOCATION:The Westin South Coast Plaza\, 686 Anton Blvd\, Costa Mesa\, CA\, 92626\, United States
CATEGORIES:Women's Retreat
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260319T183000
DTEND;TZID=America/Los_Angeles:20260319T203000
DTSTAMP:20260525T142755
CREATED:20260130T174801Z
LAST-MODIFIED:20260224T211826Z
UID:10000326-1773945000-1773952200@hemosocal.org
SUMMARY:HFSC Community Dinner - Riverside
DESCRIPTION:Join us for a Community Dinner: Understanding HYMPAVZI (marstacimab-hncq)\nJoin us for an educational session exploring a rebalancing treatment option for hemophilia. \nYou’ll hear: \n\nThe science behind rebalancing therapy\nClinical trial data\nSafety information\nInformation on administration\nShared decision-making tips for patients and caregivers\n\n  \nSpeaker: Zuiho “Z” Taniguchi\, Patient Navigator \nUnderstanding a Rebalancing Therapy Option for Hemophilia: In this session\, we’ll dive into a rebalancing treatment option. From how it works to clinical trial learnings\, you’ll gain the latest information to help you or your loved ones understand this treatment option with confidence. \nThank you to Pfizer for your support!\n \n 
URL:https://hemosocal.org/event/hfsc-community-dinner-riverside-2/
LOCATION:Palenque\, 3737 Main St #100\, Riverside\, CA\, 92501\, United States
CATEGORIES:HFSC Community Dinner
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2026/01/HFSC-Community-Dinner-Palenque.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260321
DTEND;VALUE=DATE:20260325
DTSTAMP:20260525T142755
CREATED:20251215T182737Z
LAST-MODIFIED:20251216T195715Z
UID:10000319-1774051200-1774396799@hemosocal.org
SUMMARY:Future Leaders Program 2026 (Bleeding Disorders Council of CA)
DESCRIPTION:Teens!  Are you in grades 9 – 12? Do you or a sibling or parent have a bleeding disorder?  Then join BDCC for Future Leaders next March 21 – 24 in Sacramento! The Future Leaders Program is a youth advocacy training program by the statewide Bleeding Disorders Council of California.  It provides leadership training and develops advocacy skills for teens affected by bleeding disorders. Leading up to Legislative Day\, you will find out more about your role in the government process. Future Leaders also learn to tell their stories\, speak up and be effective advocates for themselves and their families.\nRight now health access in California is threatened –  We need YOUR  voice to convince legislators to preserve the programs like Medi-Cal\, CCS and GHPP that our community relies on! \nDon’t wait until after the holidays.  Apply today!  https://bit.ly/2026FutureLeadersApplication\nCurious and want to know more?  Watch our 2025 Future Leaders tell you more about their experiences on YouTube: Meet the 2025 Future Leaders!  https://youtu.be/N88W_iULyQg?si=Vk_b5bBkTddTPgh_
URL:https://hemosocal.org/event/2026-future-leaders-program-bleeding-disorders-council-of-ca/
LOCATION:Sacramento\, CA\, Sacramento\, CA\, United States
CATEGORIES:BDCC,HCC Future Leaders
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2025/12/2026-Future-Leaders-IG-post-002-e1765914984677.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260323
DTEND;VALUE=DATE:20260324
DTSTAMP:20260525T142755
CREATED:20251216T171715Z
LAST-MODIFIED:20251216T194951Z
UID:10000321-1774224000-1774310399@hemosocal.org
SUMMARY:Legislative Day 2026 (Bleeding Disorders Council of CA)
DESCRIPTION:Our health care is under threat\, whether you get that care through Medi-Cal\, ACA marketplace coverage\, Medicare\, or your employer. Even those with private insurance will not go unaffected as broad cuts and changes to our health system will impact everyone. \nThis is the challenge of our time!  We need everyone in our community\, not only our Future Leaders\, to show up on Legislative Day\, March 23rd\, at the State Capitol in Sacramento.  You may not have lived through health insurance lifetime caps\, denials for pre-existing conditions and other insurance challenges from the before ACA times.  However\, everyone can appreciate how difficult those times were for families unable to get insurance for their children with bleeding disorders or themselves as adults.  We need to speak up now so that legislators don’t turn back the clock to those times again.\nSign up today at https://www.bdcouncilca.org/event/legislative-day-2025/ \nNuestra atención médica está en peligro\, ya sea que la obtenga a través de Medi-Cal\, Covered California\, Medicare o su empleador.  Incluso si usted tiene un seguro privado\, se vería afectado ya que los amplios recortes y cambios en nuestro sistema de salud afectarán a todos. \n¡Este es el reto de nuestro tiempo! Necesitamos que todos los miembros de nuestra comunidad\, no solo nuestros jóvenes\, acudan al Día Legislativo\, el 23 de marzo\, en el Capitolio del Estado en Sacramento. Es posible que no haya vivido durante los años cuando  los límites de por vida de los seguros médicos\, las denegaciones por condiciones preexistentes y otros retos de los seguros amenazaban a nuestra comunidad antes de la ACA. Sin embargo\, todos podemos apreciar lo difícil que fue esa época para las familias que no podían obtener un seguro para sus hijos con desórdenes sanguíneos o para ustedes mismos como adultos. Tenemos que alzar la voz ahora para que los legisladores no vuelvan a retroceder a aquellos tiempos. \nInscríbase hoy mismo en https://bit.ly/InscribirseDiaLegislativo2026
URL:https://hemosocal.org/event/hcc-legislative-day-2026/
LOCATION:Sacramento\, CA\, Sacramento\, CA\, United States
CATEGORIES:BDCC
ATTACH;FMTTYPE=image/webp:https://hemosocal.org/wp-content/uploads/2025/12/2026-Leg-Day-Flyer-event-graphic-1-e1765914861270.webp
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260326T180000
DTEND;TZID=America/Los_Angeles:20260326T200000
DTSTAMP:20260525T142755
CREATED:20260219T003255Z
LAST-MODIFIED:20260220T173043Z
UID:10000332-1774548000-1774555200@hemosocal.org
SUMMARY:HFSC Community Dinner - Claremont
DESCRIPTION:Educational Session on Hemlibra\nHosted by Mark Siy (Genentech) | Speakers: Mark Siy (Genentech) and Patient Ambassador Gabe\nEl Ranchero Mexican Food & Margaritas | 984 W Foothill Blvd Claremont CA 91711\nFor people with hemophilia A with or without factor VIII inhibitors\nWhat is HEMLIBRA?\nHEMLIBRA is a prescription medicine used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children\, ages newborn and older\, with hemophilia A with or without factor VIII inhibitors. What is the most important information I should know about HEMLIBRA? HEMLIBRA increases the potential for your blood to clot. People who use activated prothrombin complex concentrate (aPCC; Feiba ® ) to treat breakthrough bleeds while taking HEMLIBRA may be at risk of serious side effects related to blood clots. \nThese serious side effects include:\n• Thrombotic microangiopathy (TMA)\, a condition involving blood clots and injury to small blood vessels that may cause harm to your kidneys\, brain\, and other organs\n• Blood clots (thrombotic events)\, which may form in blood vessels in your arm\, leg\, lung\, or head\nPlease see Important Safety Information\, including Serious Side Effects\, as well as the accompanying HEMLIBRA full Prescribing Information and Medication Guide. \nThis program\, sponsored by Genentech\, will not provide medical advice. Speak with your healthcare provider if you have questions about your medical condition or treatment. [CEMs] are Genentech employees. [CEMs] do not provide medical advice. \nWhat is the most important information I should know about HEMLIBRA? (continued)\nCarefully follow your healthcare provider’s instructions regarding when to use an on-demand bypassing agent or factor VIII\, and the dose and schedule to use for breakthrough bleed treatment. If aPCC (Feiba® ) is needed\, talk to your healthcare provider in case you feel you need more than 100 U/kg of aPCC (Feiba® ) total. Your body may make antibodies against HEMLIBRA\, which may stop HEMLIBRA from working properly. Contact your healthcare provider immediately if you notice that HEMLIBRA has stopped working for you (eg\, increase in bleeds). The most common side effects of HEMLIBRA include: injection site reactions (redness\, tenderness\, warmth\, or itching at the site of injection)\, headache\, and joint pain. These are not all of the possible side effects of HEMLIBRA. You can speak with your healthcare provider for more information.\nWhat else should I know about HEMLIBRA?\nSee the detailed “Instructions for Use” that comes with your HEMLIBRA for information on how to prepare and inject a dose of HEMLIBRA\, and how to properly throw away (dispose of) used needles and syringes.\n• Stop taking your prophylactic bypassing therapy the day before you start HEMLIBRA\n• You may continue taking your prophylactic factor VIII for the first week of HEMLIBRA\nHEMLIBRA may interfere with laboratory tests that measure how well your blood is clotting and create an inaccurate result. Speak with your healthcare provider about how this may affect your care.\nThese are not all of the possible side effects of HEMLIBRA. Speak to your healthcare provider for medical advice about side effects.\nSide effects may be reported to the FDA at (800) FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Genentech\nat (888) 835-2555.\nPlease see Important Safety Information\, including Serious Side Effects\, as well as the accompanying\nHEMLIBRA full Prescribing Information and Medication Guide. \nThank you to Genentech for your sponsorship!
URL:https://hemosocal.org/event/hfsc-community-dinner-claremont/
LOCATION:El Ranchero Mexican Food\, 984 W. Foothill Blvd\, Claremont\, CA\, 91711\, United States
CATEGORIES:HFSC Community Dinner
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