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X-WR-CALNAME:Hemophilia Foundation of Southern California
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DTSTART;VALUE=DATE:20260323
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UID:10000321-1774224000-1774310399@hemosocal.org
SUMMARY:Legislative Day 2026 (Bleeding Disorders Council of CA)
DESCRIPTION:Our health care is under threat\, whether you get that care through Medi-Cal\, ACA marketplace coverage\, Medicare\, or your employer. Even those with private insurance will not go unaffected as broad cuts and changes to our health system will impact everyone. \nThis is the challenge of our time!  We need everyone in our community\, not only our Future Leaders\, to show up on Legislative Day\, March 23rd\, at the State Capitol in Sacramento.  You may not have lived through health insurance lifetime caps\, denials for pre-existing conditions and other insurance challenges from the before ACA times.  However\, everyone can appreciate how difficult those times were for families unable to get insurance for their children with bleeding disorders or themselves as adults.  We need to speak up now so that legislators don’t turn back the clock to those times again.\nSign up today at https://www.bdcouncilca.org/event/legislative-day-2025/ \nNuestra atención médica está en peligro\, ya sea que la obtenga a través de Medi-Cal\, Covered California\, Medicare o su empleador.  Incluso si usted tiene un seguro privado\, se vería afectado ya que los amplios recortes y cambios en nuestro sistema de salud afectarán a todos. \n¡Este es el reto de nuestro tiempo! Necesitamos que todos los miembros de nuestra comunidad\, no solo nuestros jóvenes\, acudan al Día Legislativo\, el 23 de marzo\, en el Capitolio del Estado en Sacramento. Es posible que no haya vivido durante los años cuando  los límites de por vida de los seguros médicos\, las denegaciones por condiciones preexistentes y otros retos de los seguros amenazaban a nuestra comunidad antes de la ACA. Sin embargo\, todos podemos apreciar lo difícil que fue esa época para las familias que no podían obtener un seguro para sus hijos con desórdenes sanguíneos o para ustedes mismos como adultos. Tenemos que alzar la voz ahora para que los legisladores no vuelvan a retroceder a aquellos tiempos. \nInscríbase hoy mismo en https://bit.ly/InscribirseDiaLegislativo2026
URL:https://hemosocal.org/event/hcc-legislative-day-2026/
LOCATION:Sacramento\, CA\, Sacramento\, CA\, United States
CATEGORIES:BDCC
ATTACH;FMTTYPE=image/webp:https://hemosocal.org/wp-content/uploads/2025/12/2026-Leg-Day-Flyer-event-graphic-1-e1765914861270.webp
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DTSTART;VALUE=DATE:20260321
DTEND;VALUE=DATE:20260325
DTSTAMP:20260513T134726
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LAST-MODIFIED:20251216T195715Z
UID:10000319-1774051200-1774396799@hemosocal.org
SUMMARY:Future Leaders Program 2026 (Bleeding Disorders Council of CA)
DESCRIPTION:Teens!  Are you in grades 9 – 12? Do you or a sibling or parent have a bleeding disorder?  Then join BDCC for Future Leaders next March 21 – 24 in Sacramento! The Future Leaders Program is a youth advocacy training program by the statewide Bleeding Disorders Council of California.  It provides leadership training and develops advocacy skills for teens affected by bleeding disorders. Leading up to Legislative Day\, you will find out more about your role in the government process. Future Leaders also learn to tell their stories\, speak up and be effective advocates for themselves and their families.\nRight now health access in California is threatened –  We need YOUR  voice to convince legislators to preserve the programs like Medi-Cal\, CCS and GHPP that our community relies on! \nDon’t wait until after the holidays.  Apply today!  https://bit.ly/2026FutureLeadersApplication\nCurious and want to know more?  Watch our 2025 Future Leaders tell you more about their experiences on YouTube: Meet the 2025 Future Leaders!  https://youtu.be/N88W_iULyQg?si=Vk_b5bBkTddTPgh_
URL:https://hemosocal.org/event/2026-future-leaders-program-bleeding-disorders-council-of-ca/
LOCATION:Sacramento\, CA\, Sacramento\, CA\, United States
CATEGORIES:BDCC,HCC Future Leaders
ATTACH;FMTTYPE=image/jpeg:https://hemosocal.org/wp-content/uploads/2025/12/2026-Future-Leaders-IG-post-002-e1765914984677.jpg
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DTSTART;VALUE=DATE:20240316
DTEND;VALUE=DATE:20240320
DTSTAMP:20260513T134726
CREATED:20240105T233020Z
LAST-MODIFIED:20240105T233020Z
UID:10000175-1710547200-1710892799@hemosocal.org
SUMMARY:Hemophilia Council of California Future Leaders Program
DESCRIPTION:Become a Hemophilia Council of California Future Leader! Applications are due January 26\, 2024\nThe 2024 Future Leaders is a four day\, in person program in Sacramento. Teens come together from across the State. You meet other youth in the bleeding disorders community\, make new friends and have fun! Future  Leaders find inspiration among other teens to be bold. You share your voice where it matters most!\nThe Hemophilia Council of California’s (HCC’s) Future Leaders Program provides leadership training and develops advocacy skills for teens affected by bleeding disorders. Leading up to Legislative Day\, you will find out more about your role in the government process. You will also learn to be an effective advocate for yourself and your family.Future Leaders will attend a pre-Legislative Day program in person on March 16 and 17th. There you will find out how to tell your story to legislators. You will also learn to advocate for yourself and your family in other areas of your life.\nFuture Leaders take part in leadership building games and activities. Other fun highlights include a visit to the Capitol and team building games! Most importantly\, teens learn about the legislative process and how it affects you!During Legislative Day on March 18th\, Future Leaders take a lead role in legislative meetings! You will tell your story and advocate for important legislation at the State level.\nBefore leaving for home  on March 19th\, the day after Legislative Day\, you will have a chance to share your Legislative Day experiences and discuss how to keep advocating during the rest of the year.\n\nWhere does the program take place? \n\nPre-Legislative Day orientation is virtual on March 13th\nAll other aspects of Future Leaders and Legislative Day are In person\, Sacramento (subject to change based on public health & safety)\n\n\nAre you in high school? If you have a bleeding disorder or have a sibling or parent with one\, we hope you\napply! Join us this March for the Future Leaders Program!  Application is below-\n\nRequirements to Apply: \n\n You must be a high school student (9th – 12th grade) at the time of the program.\n You must have a bleeding disorder or be a sibling or child of a person with a bleeding disorder.\n You must be able to commit to participating in all parts of the program.
URL:https://hemosocal.org/event/hemophilia-council-of-california-future-leaders-program/
LOCATION:Sacramento\, CA\, Sacramento\, CA\, United States
CATEGORIES:HCC Future Leaders
ATTACH;FMTTYPE=image/png:https://hemosocal.org/wp-content/uploads/2024/01/FutureLeadersFlyer2024.png
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