WOW! What an incredible turnout we had at our 2023 Family Retreat, "Hemochella"! We are overjoyed to share that 33 amazing families, with a total of 114 attendees, came together for an unforgettable weekend! Our family retreat provided the perfect opportunity to...
CONGRATULATIONS TO OUR 2023 HFSC AWARD WINNERS! VOLUNTEER OF THE YEAR - Linda Clement MEDICAL PROFESSIONAL OF THE YEAR - Dr. Amit Soni ADVOCATES OF THE YEAR - Karlyn Johnson Brown & Langston Brown FUNDRAISER OF THE YEAR - Dr. Doris Quon and Team Ortho Walkers
Rigoberto “Rigo” Garcia, has been named the new Executive Director of the Hemophilia Foundation of Southern California based in Pasadena, CA. He brings over 18 years of experience in health education, leadership and outreach and a commitment to ensuring marginalized...
HFSC is working on identifying strategic priorities around unmet needs that will best serve the future of the Bleeding Disorders Community within the nine counties that HFSC services. It is important that we gather as much information so that HFSC can best serve your...
Kim has made the decision to resign her role as Executive Director. She has a daughter with multiple rare and life limiting conditions and is at a time when she needs to focus more on the wellbeing of her daughter. As a true professional, and because of the best...
https://youtu.be/uFiyKNvqE3M ¡Venga a ver al galardonado Mariachi Arcoíris de Los Ángeles presentarse el viernes 17 de septiembre en Familia de Sangre, la conferencia de habla hispana más grande del país para los desórdenes sanguíneos! Regístrese aquí:...
Today there was an announcement by the U.S. Food and Drug Administration (FDA) placing a hold on Sigilon Therapeutics’ phase 1/2 study of SIG-001 in patients with severe or moderately severe hemophilia A. Click here for the full story.
Hemophilia Treatment Centers Western States Regional conference 2021: compassionate, brilliant and dedicated minds coming together for 3 days to discuss best practices and the best care for us! Thank you for all you do!! We need to support our HTCs and ensure their...
Hemophilia Federation of America (HFA) is pleased to offer free Mental Health First Aid training through an internationally renowned program by the National Council for Behavioral Health as part of HFA’s 2021 Mental Health and Wellness Initiative. Register for a FREE...
The American Society of Hematology (ASH), in collaboration with the International Society on Thrombosis and Haemostasis (ISTH), National Hemophilia Foundation (NHF), and World Federation of Hemophilia (WFH), has developed clinical practice guidelines on the diagnosis...