2025 INDUSTRY FORUM The purpose of Industry Forum is to present information on new and pipeline products that treat rare bleeding disorders. Often the presentations are given directly by pharmaceutical companies and may include investigational therapies such as gene therapy. HFSC’s Medical Advisor is always present at this conference to answer any medical questions including […]
Rare Disease Day is the official international awareness-raising campaign for rare diseases observed annually on the last day of February. With over 300 million people globally living with a rare disease, we join hands across borders and amidst the 6000+ rare diseases to advocate for equitable access to diagnosis, treatment, care, and social opportunities. Our […]
We want to share an important update about Washington Days from the National Bleeding Disorders Foundation (NBDF). NBDF has announced changes to their Washington Days registration process including a shortened deadline and limited spaces for each state. The changes are as follows: Anyone living in the 9 counties (Orange, Riverside, San Bernardino, Los Angeles, Ventura, […]
Women’s bleeding issues continue to present specific challenges with diagnosis, treatment and access. Heavy menstrual bleeding can lead to anemia (low red blood cell count/low blood iron levels), with symptoms of fatigue, paleness, lack of energy and shortness of breath. Many women with bleeding disorders are also caregivers of a child with a bleeding disorder […]
HFA Symposium 2025 is coming to San Diego in 2025! Connect with your community at one of America's most beautiful locations! Valuable educational sessions for severes, milds, rares, and more. Rap sessions and information for men, women, parents and Spanish-speaking community members. Connect with friends, who are like family, and end with a fun Final […]
On April 17, 2025, the global bleeding disorders community will come together to celebrate World Hemophilia Day. This year’s theme is “Access for all: Women and girls bleed too”. Today, women and girls with bleeding disorders (WGBDs) are still underdiagnosed and underserved. The global bleeding disorders community has the power—and the responsibility—to change this. Through […]
Please join us for HFSC’s annual event where the community comes together to learn about updates and strategic goals of the foundation and exciting issues that span medical, psychological, and physical well-being. Come and welcome new community members and see old friends. HFSC also presents its annual awards and recognizes its prolific scholarship winners. We […]
Join us for our 46th year of Camp Blood Brothers and Sisters! In partnership with and hosted by The Painted Turtle, our summer camp provides a safe and exciting camp experience for children ages 7-16 with a rare genetic blood disorder. Teens aged 17-18 are also welcome to attend camp as Leaders in Training (LIT). […]
Join the National Bleeding Disorders Foundation’s premier event dedicated to the bleeding disorders community. This year’s Bleeding Disorders Conference (BDC) will be in Aurora, Colorado from August 21-23, 2025. More details and NBDF Registration link coming soon!
Únase a nosotros en la mayor conferencia de trastornos hemorrágicos de habla hispana del país. ¡Más detalles próximamente! Join us for the largest Spanish-speaking bleeding disorders conference in the country. More details coming soon!
