Join us for a celebration of our unbreakable bond. The bleeding disorders community may be tied together by a diagnosis, but the connections go even deeper. Our 2025 One Family program celebrates the bonds that come from living with hemophilia—with people at home, on care teams, around the world—and how no one is ever alone. […]
"Qfitlia" - Join Sanofi for a dinner to explore the treatment of hemophilia A and B, with or without inhibitors, and to discuss how shared decision making with your healthcare provider can improve your hemophilia management experience. Thank you to Sanofi for your sponsorship!
Please join us for HFSC’s annual event where the community comes together to learn about updates and strategic goals of the foundation and exciting issues that span medical, psychological, and physical well-being. Come and welcome new community members and see old friends. HFSC also presents its annual awards and recognizes its prolific scholarship winners. We […]
Please join us for an educational lunch, where we will hear from patient speaker, Daniel, on "My Kovaltry® Conversation | Kovaltry® Antihemophilic Factor (Recombinant)." This event is for men and those who identify as men age 18+ with a bleeding disorder, spouse/partner to someone with a bleeding disorder, or parent/caregiver to someone with a bleeding […]
Please join us for an educational dinner, "CelebrVIIIte ALTUVIIIO." Thank you to Sanofi for your sponsorship!
Please join us for an educational dinner, "Experience Gene Therapy for Hemophilia - One Patient's Journey: Treatment Decision, Infusion and Beyond," with Billy Duckworth (BioMarin) and Clinical Trial Participant, Andrew S. Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A. Thank you to BioMarin for your sponsorship!
Join us for our 46th year of Camp Blood Brothers and Sisters! In partnership with and hosted by The Painted Turtle, our summer camp provides a safe and exciting camp experience for children ages 7-16 with a rare genetic blood disorder. Teens aged 17-18 are also welcome to attend camp as Leaders in Training (LIT). […]
At the Hemophilia Foundation of Southern California, we believe that students with bleeding disorders should receive an education equal to their peers and be encouraged to maintain as normal a school life as possible. All our students are different. Some students with bleeding disorders may have no issues with school throughout their lifespan while others […]
Join the National Bleeding Disorders Foundation’s premier event dedicated to the bleeding disorders community. This year’s Bleeding Disorders Conference (BDC) will be in Aurora, Colorado from August 21-23, 2025. More details and NBDF Registration link coming soon!
Únase a nosotros en la mayor conferencia de trastornos hemorrágicos de habla hispana del país. ¡Más detalles próximamente! Join us for the largest Spanish-speaking bleeding disorders conference in the country. Registration opens April 15!
