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HFSC is constantly advocating for the needs of the rare bleeding disorders community at both the state and federal level.


Future Leaders Program

Hemophilia Council of California’s (HCC) Future Leaders Program: HFSC collaborates with HCC who hosts the Future Leaders Program which provides leadership training and advocacy tools for teens and young adults affected by bleeding disorders. Leading up to annual Legislative Day, Future Leaders gain understanding and skills on their role in the government process, insurance and programs that support care, educational opportunities, and how to be an effective advocate. Participants hear from statewide and national healthcare leaders, learn self-reliance, connect with their peers, meet with legislators at the State Capitol, have fun and find inspiration to share their voice where it matters most.

Learn more about the Future Leaders Program

Legislative Day (Sacramento)

This important day of advocacy provides a chance for individuals, families and allies of the bleeding disorders community to come together and share a united voice. Attendees will speak with key state Senators and Assembly members and their respective aides to provide information about bleeding disorders and issues facing the bleeding disorders community.

Learn more about Legislative Day (Sacramento)

Washington Days

The National Bleeding Disorders Foundation hosts this annual lobbying event in early Spring, where bleeding disorders advocates from around the country convene in Washington, DC. The gathering is an opportunity for all in our community to convey to elected officials and Congressional staffers the way federal legislation and funding impact their lives. Each year, HFSC sponsors a group of young adults or teen leaders to attend this life-changing event.

Learn more about Washington Days

Legislative Advocacy Resources

HFSC believes that almost anyone can be a strong advocate. Here are some tips and tools that will help you win your case. If you have a pressing issue and would like to speak to your local legislator and need help, contact the HFSC office and ask to speak to Michelle Kim, Executive Director.

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