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WEBINAR INFORMATION "Discover a New Investigational Approach to VWD Treatment" Star Therapeutics’ is investigating a once-monthly subcutaneous prophylactic treatment for VWD called VGA039. If you or someone in your family has any type of VWD, please join us for an engaging session as Dr. Laura Guido, Head of Medical Affairs at Star Therapeutics, shares how […] |
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Información sobre el evento Todos tienen una historia para contar. Es importante que personas reales compartan sus experiencias con el finde abogar por las personas de la comunidad con trastornos sanguíneos y por ellos mismos. Ganen confianza,mejoren las habilidades de comunicación y hagan conexiones. Nota:La sesión se impartirá en español. PRESENTADORA: Annabelle Garcia ¡Gracias a […] |
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Washington Days, organized by the National Bleeding Disorders Foundation, is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. The Hemophilia Foundation of Southern California is now accepting applications to provide hotel and airfare assistance for community members to participate in the National Bleeding Disorders Foundation's […] |
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📅 Save the Date — March 12! Order Panda Express online and 28% of sales will be donated to HFSC 🐼❤️ 🛒 Online orders only (nationwide) 🔢 Use code 9011509 at checkout Enjoy a meal & give back to HFSC at the same time as part of Bleeding Disorders Awareness Month! |
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EVENT INFORMATION Women’s bleeding issues continue to present specific challenges with diagnosis, treatment and access. Heavy menstrual bleeding can lead to anemia (low red blood cell count/low blood iron levels), with symptoms of fatigue, paleness, lack of energy and shortness of breath. Many women with bleeding disorders are also caregivers of a child with a […] |
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Join us for a Community Dinner: Understanding HYMPAVZI (marstacimab-hncq) Join us for an educational session exploring a rebalancing treatment option for hemophilia. You’ll hear: The science behind rebalancing therapy Clinical trial data Safety information Information on administration Shared decision-making tips for patients and caregivers Speaker: Zuiho "Z" Taniguchi, Patient Navigator Understanding a Rebalancing Therapy […] |
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Teens! Are you in grades 9 - 12? Do you or a sibling or parent have a bleeding disorder? Then join BDCC for Future Leaders next March 21 - 24 in Sacramento! The Future Leaders Program is a youth advocacy training program by the statewide Bleeding Disorders Council of California. It provides leadership training and […] |
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Our health care is under threat, whether you get that care through Medi-Cal, ACA marketplace coverage, Medicare, or your employer. Even those with private insurance will not go unaffected as broad cuts and changes to our health system will impact everyone. This is the challenge of our time! We need everyone in our community, not […] |
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Educational Session on Hemlibra Hosted by Mark Siy (Genentech) | Speakers: Mark Siy (Genentech) and Patient Ambassador Gabe El Ranchero Mexican Food & Margaritas | 984 W Foothill Blvd Claremont CA 91711 For people with hemophilia A with or without factor VIII inhibitors What is HEMLIBRA? HEMLIBRA is a prescription medicine used for routine prophylaxis […] |
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This event is currently SOLD OUT. Please email info@hemosocal.org to be placed on the Waitlist. Thank you! AGENDA 4:30PM - Educational Presentation by Ivan Giron - "Overcoming Hemophilia with baseball. Fighting the word “NO” along the way." 6:30PM - Optional outing to Los Angeles Angels v Seattle Mariners - first pitch at 6:38PM with Saturday […] |
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