emPOWERment Webinar Series: “Big Goals, Small Steps”
Online Event
In this interactive session we'll discern your goals and break down how to make then a reality, including identifying the skills you'll need and how to build them.
(626) 765-6656
Loading view.
Events
HFSC Community Dinner – Riverside
Palenque 3737 Main St #100, Riverside, CA, United StatesPlease join us for a community dinner! "My Journey to Jivi with Austin Caldwell" Thank you to Bayer for your sponsorship!
Family Retreat Weekend
Pali Mountain Retreat 30778 CA-18, Running Springs, CA, United StatesJoin us for our Family Retreat Weekend at the Pali Retreat Center in the San Bernardino National Forest. HFSC invites families living with a rare bleeding disorder to enjoy a weekend in the mountains for family camp. Sample activities for kids and parents include a campfire, arts and crafts, ropes course, archery, and talent show. Teen and parent […]
HFSC Community Dinner – Monterey Park – Spanish Session
Luminarias 3500 W Ramona Blvd, Monterey Park, CA, United StatesLearn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A. Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Dr. Vanessa K. Salinas-Luna Pediatric Hematology Center for Inherited Blood Disorders and Andrew W. Clinical Trial Participant Thank you to BioMarin for your sponsorship! […]
HFSC Community Dinner – Monterey Park – English Session
Luminarias 3500 W Ramona Blvd, Monterey Park, CA, United StatesJoin us for a Community Dinner in Monterey Park! Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A. Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Billy Duckworth Sr. Account Manager, Gene Therapy BioMarin Pharmaceutical, Inc. and Andrew W. Clinical […]
HFSC Community Dinner – Bakersfield
DoubleTree by Hilton Bakersfield 3100 Camino del Rio Court, Bakersfield, CA, United StatesJoin us for a Community Dinner in Bakersfield! HEMGENIX (ETRANACOGENE DEZAPARVOVEC-DRLB) The first and only FDA-approved gene therapy for hemophilia B. Speaker: Dr. Doris Quon This educational program offers you and your family members the opportunity to: Learn about HEMGENIX, the first and only gene therapy approved for hemophilia B Gain insightful information and deepen […]
HFSC Community Dinner – Lancaster
La Papillon 858 W Lancaster Blvd, Lancaster, CA, United StatesPlease join us for a Community Dinner in Lancaster! “Introducing Investigational Gene Therapy Clinical Trials for Hemophilia” Presented by Guillermo Campillo, Lead Patient Education Liaison, Spark Therapeutics Do you have questions about the clinical trial process for hemophilia gene therapy research? Join us for a 45-minute interactive session which dives into the journey of considering, […]
EVENT CANCELED: Shaka Surf Fest and Beach Day
Santa Monica Beach 2701 Barnard Way Santa Monica, CA 90405 2701 Barnard Way, Santa Monica, CAEvent Canceled We regret to inform you that the Shaka Surf Fest and Beach Day 2024 on June 22 at Santa Monica Beach has been CANCELED due to health and safety concerns over elevated water quality levels reported by the Los Angeles County Public Health. The safety and well-being of our community members are our […]
BRO Men’s Retreat
The Boathouse on the Bay 190 N Marina Dr, Long Beach, CA, United StatesMen's Retreat 2024 July 13, 2024 | The Boathouse on the Bay | 190 N Marina Dr, Long Beach, CA 90803 Join us for our Men's Retreat at The Boathouse on the Bay in Long Beach! For all men (and those who identify as men) age 18+ with bleeding disorders as well as spouses/partners, caregivers/parents to those with […]
Camp Blood Brothers and Sisters at The Painted Turtle
The Painted Turtle 17000 Elizabeth Lake Road, Lake Hughes, CA, United StatesCamp Blood Brothers and Sisters at The Painted Turtle July 16-21, 2024 APPLY NOW at www.thepaintedturtle.org/apply Application Checklist: Clearance from Camper's Medical Provider Copy of most recent Progress Notes Immunization Record (please note - COVID-19 vaccine is no longer required) Camper Health History Medication List Allergies (if any) 2024 TPT Policy Forms (available on The […]
10th Annual Educational Symposium – “Back to School”
Cal State Los Angeles - Golden Eagle Building 5151 State University Dr, Los Angeles, CA, United StatesJoin us for our 10th Annual Educational Symposium! Agenda 8:30AM - Booths Open, Registration, Continental Breakfast 9:30AM - Childcare Check-In (ages 0-11, must pre-register; spaces are limited) 10:00AM - General Sessions; Teen Program 12:00PM - Backpack Distribution, Boxed Lunch, Sponsor Booths open; Childcare Pick up 1:30PM - Event Concludes
HFSC Community Dinner – San Luis Obispo – “Shared Decision Making”
Cafe Roma 1020 Railroad Ave, San Luis Obispo, CA, United StatesPlease join us for an HFSC Community Dinner in San Luis Obispo! "Shared Decision Making" A partnership between patient (and/or care partner or caregiver) and healthcare provider Used to find therapies that are the best fit, lifestyle changes that are effective but also realistic options for care that are cost effective Uncovers patient treatment goals […]