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HFSC Community Dinner – Monterey Park – Spanish Session

Luminarias 3500 W Ramona Blvd, Monterey Park, CA, United States

Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A.  Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Dr. Vanessa K. Salinas-Luna Pediatric Hematology Center for Inherited Blood Disorders and Andrew W.  Clinical Trial Participant Thank you to BioMarin for your sponsorship!  […]

HFSC Community Dinner – Monterey Park – English Session

Luminarias 3500 W Ramona Blvd, Monterey Park, CA, United States

Join us for a Community Dinner in Monterey Park! Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A.  Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Billy Duckworth  Sr. Account Manager, Gene Therapy BioMarin Pharmaceutical, Inc. and Andrew W.  Clinical […]

HFSC Community Dinner – Bakersfield

DoubleTree by Hilton Bakersfield 3100 Camino del Rio Court, Bakersfield, CA, United States

Join us for a Community Dinner in Bakersfield! HEMGENIX (ETRANACOGENE DEZAPARVOVEC-DRLB) The first and only FDA-approved gene therapy for hemophilia B. Speaker: Dr. Doris Quon This educational program offers you and your family members the opportunity to: Learn about HEMGENIX, the first and only gene therapy approved for hemophilia B Gain insightful information and deepen […]

HFSC Community Dinner – Lancaster

La Papillon 858 W Lancaster Blvd, Lancaster, CA, United States

Please join us for a Community Dinner in Lancaster! “Introducing Investigational Gene Therapy Clinical Trials for Hemophilia” Presented by Guillermo Campillo, Lead Patient Education Liaison, Spark Therapeutics Do you have questions about the clinical trial process for hemophilia gene therapy research? Join us for a 45-minute interactive session which dives into the journey of considering, […]

EVENT CANCELED: Shaka Surf Fest and Beach Day

Santa Monica Beach 2701 Barnard Way Santa Monica, CA 90405 2701 Barnard Way, Santa Monica, CA

Event Canceled We regret to inform you that the Shaka Surf Fest and Beach Day 2024 on June 22 at Santa Monica Beach has been CANCELED due to health and safety concerns over elevated water quality levels reported by the Los Angeles County Public Health. The safety and well-being of our community members are our […]

BRO Men’s Retreat

The Boathouse on the Bay 190 N Marina Dr, Long Beach, CA, United States

Men's Retreat 2024 July 13, 2024 | The Boathouse on the Bay | 190 N Marina Dr, Long Beach, CA 90803 Join us for our Men's Retreat at The Boathouse on the Bay in Long Beach! For all men (and those who identify as men) age 18+ with bleeding disorders as well as spouses/partners, caregivers/parents to those with […]

Camp Blood Brothers and Sisters at The Painted Turtle

The Painted Turtle 17000 Elizabeth Lake Road, Lake Hughes, CA, United States

Camp Blood Brothers and Sisters at The Painted Turtle July 16-21, 2024 APPLY NOW at www.thepaintedturtle.org/apply Application Checklist: Clearance from Camper's Medical Provider Copy of most recent Progress Notes Immunization Record (please note - COVID-19 vaccine is no longer required) Camper Health History Medication List Allergies (if any) 2024 TPT Policy Forms (available on The […]

10th Annual Educational Symposium – “Back to School”

Cal State Los Angeles - Golden Eagle Building 5151 State University Dr, Los Angeles, CA, United States

Join us for our 10th Annual Educational Symposium! Agenda 8:30AM - Booths Open, Registration, Continental Breakfast 9:30AM - Childcare Check-In (ages 0-11, must pre-register; spaces are limited) 10:00AM - General Sessions; Teen Program 12:00PM - Backpack Distribution, Boxed Lunch, Sponsor Booths open; Childcare Pick up 1:30PM - Event Concludes

HFSC Community Dinner – San Luis Obispo – “Shared Decision Making”

Cafe Roma 1020 Railroad Ave, San Luis Obispo, CA, United States

Please join us for an HFSC Community Dinner in San Luis Obispo! "Shared Decision Making" A partnership between patient (and/or care partner or caregiver) and healthcare provider Used to find therapies that are the best fit, lifestyle changes that are effective but also realistic options for care that are cost effective Uncovers patient treatment goals […]

SOLD OUT – HFSC Women’s Group Dodgers Game Outing

El Paseo Inn 11 E Olvera St, Los Angeles, CA

For all women (and those who identify as women) with bleeding disorders as well as their daughters, female spouses/partners, female caregivers/parents to those with bleeding disorders. El Paseo Inn | 11 E Olvera St. Los Angeles CA 90012 - and - Dodger Stadium | 1000 Vin Scully Dr. Los Angeles CA 90012 Join us for […]

SOLD OUT – HFSC Community Dinner – Buena Park – “Kinesiology Taping”

Medieval Times 7662 Beach Blvd, Buena Park, CA, United States

Please join us for an HFSC Community Dinner in Buena Park! "Kinesiology Taping" Dr. Mike Zolo will be presenting on Kinesiology Taping – an interactive presentation where demonstrations of how to tape the shoulder, elbow, wrist, neck, low back, knee, and ankle will be performed while discussing the indications during acute injury. Taping will be […]

emPOWERment Webinar Series: Gene therapy information session featuring Pfizer

Online Event

Hearing from real patients in their own words can be important. That’s why Pfizer is hosting a virtual informational session to hear about the gene therapy patient experience from someone who has received it. This session will feature information on gene therapy as well as questions and answers with a patient, led by a Pfizer […]