Please join us for our emPOWERment Webinar on "Advocacy" with Lindsey Viscarra (State Policy Manager, National Organization for Rare Disorders). Are you passionate about making a difference in your community? Join Lindsey Viscarra, State Policy Manager at the National Organization of Rare Disorders, to gain the skills and knowledge to effectively champion the issues that […]
Please join us at Top Golf Ontario for an educational breakfast with a Gettin' in the Game athlete followed by hitting bay time. Registration starts at 10:00AM. Thank you to CSL Behring for your sponsorship!
Please join us for an educational dinner, "Hear from a Gene Therapy Patient!" Learn more about gene therapy and the patient experience in an informational session. This live session will feature information about gene therapy as well as a question and answer segment with a patient and a Pfizer medical colleague. Thank you to Pfizer […]
“Involúcrense: divulgación y defensa de los trastornos sanguíneos” Todos tienen una historia para contar. Es importante que personas reales compartan sus experiencias con el fin de abogar por las personas de la comunidad con trastornos sanguíneos y por ellos mismos. Ganen confianza, mejoren las habilidades de comunicación y hagan conexiones. ¡Gracias a TAKEDA por su […]
About HFSC's 16th Annual Unite for Bleeding Disorders Walk & Health Fair Each year, the Hemophilia Foundation of Southern California hosts an annual Walk to raise crucial funds in support of our mission to “improve the quality of life and build community for those living with inherited bleeding disorders in Southern California.” 100% of all individual donations raised go […]
Join one of 7 small community gatherings to celebrate the end of the year! Click link for more details. For those with bleeding disorders and their immediate family only. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game! Thank you for choosing […]
2025 INDUSTRY FORUM The purpose of Industry Forum is to present information on new and pipeline products that treat rare bleeding disorders. Often the presentations are given directly by pharmaceutical companies and may include investigational therapies such as gene therapy. HFSC’s Medical Advisor is always present at this conference to answer any medical questions including […]
Rare Disease Day is the official international awareness-raising campaign for rare diseases observed annually on the last day of February. With over 300 million people globally living with a rare disease, we join hands across borders and amidst the 6000+ rare diseases to advocate for equitable access to diagnosis, treatment, care, and social opportunities. Our […]
We want to share an important update about Washington Days from the National Bleeding Disorders Foundation (NBDF). NBDF has announced changes to their Washington Days registration process including a shortened deadline and limited spaces for each state. The changes are as follows: Anyone living in the 9 counties (Orange, Riverside, San Bernardino, Los Angeles, Ventura, […]
Women’s bleeding issues continue to present specific challenges with diagnosis, treatment and access. Heavy menstrual bleeding can lead to anemia (low red blood cell count/low blood iron levels), with symptoms of fatigue, paleness, lack of energy and shortness of breath. Many women with bleeding disorders are also caregivers of a child with a bleeding disorder […]
HFA Symposium 2025 is coming to San Diego in 2025! Connect with your community at one of America's most beautiful locations! Valuable educational sessions for severes, milds, rares, and more. Rap sessions and information for men, women, parents and Spanish-speaking community members. Connect with friends, who are like family, and end with a fun Final […]
On April 17, 2025, the global bleeding disorders community will come together to celebrate World Hemophilia Day. This year’s theme is “Access for all: Women and girls bleed too”. Today, women and girls with bleeding disorders (WGBDs) are still underdiagnosed and underserved. The global bleeding disorders community has the power—and the responsibility—to change this. Through […]
