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Events

Gettin’ In the Game

Top Golf Ontario 1050 N Archibald Ave, Ontario, CA, United States

Please join us at Top Golf Ontario for an educational breakfast with a Gettin' in the Game athlete followed by hitting bay time.  Registration starts at 10:00AM. Thank you to CSL Behring for your sponsorship!

HFSC Community Dinner: “Hear from a Gene Therapy Patient”

The Hacienda 1725 College Ave, Santa Ana, CA, United States

Please join us for an educational dinner, "Hear from a Gene Therapy Patient!" Learn more about gene therapy and the patient experience in an informational session. This live session will feature information about gene therapy as well as a question and answer segment with a patient and a Pfizer medical colleague. Thank you to Pfizer […]

HFSC Cena de Mujeres Enlazadas por Sangre

El Paseo Inn 11 E Olvera St, Los Angeles, CA

“Involúcrense: divulgación y defensa de los trastornos sanguíneos” Todos tienen una historia para contar. Es importante que personas reales compartan sus experiencias con el fin de abogar por las personas de la comunidad con trastornos sanguíneos y por ellos mismos. Ganen confianza, mejoren las habilidades de comunicación y hagan conexiones. ¡Gracias a TAKEDA por su […]

Unite for Bleeding Disorders Walk & Health Fair

The Meadows at Whittier Narrows 751 S. Santa Anita Ave., South El Monte, CA, United States

About HFSC's 16th Annual Unite for Bleeding Disorders Walk & Health Fair Each year, the Hemophilia Foundation of Southern California hosts an annual Walk to raise crucial funds in support of our mission to “improve the quality of life and build community for those living with inherited bleeding disorders in Southern California.” 100% of all individual donations raised go […]

Snowflake Dinners

Join one of 7 small community gatherings to celebrate the end of the year! Click link for more details. For those with bleeding disorders and their immediate family only. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game! Thank you for choosing […]

2025 Industry Forum

Pasadena City College 1570 East Colorado Boulevard, Pasadena, CA, United States

2025 INDUSTRY FORUM  The purpose of Industry Forum is to present information on new and pipeline products that treat rare bleeding disorders. Often the presentations are given directly by pharmaceutical companies and may include investigational therapies such as gene therapy. HFSC’s Medical Advisor is always present at this conference to answer any medical questions including […]

SAVE THE DATE: Rare Disease Day 2025

Rare Disease Day is the official international awareness-raising campaign for rare diseases observed annually on the last day of February. With over 300 million people globally living with a rare disease, we join hands across borders and amidst the 6000+ rare diseases to advocate for equitable access to diagnosis, treatment, care, and social opportunities. Our […]

NBDF’s Washington Days

We want to share an important update about Washington Days from the National Bleeding Disorders Foundation (NBDF). NBDF has announced changes to their Washington Days registration process including a shortened deadline and limited spaces for each state. The changes are as follows: Anyone living in the 9 counties (Orange, Riverside, San Bernardino, Los Angeles, Ventura, […]

Women’s Retreat 2025

Sheraton Grand Los Angeles 711 S Hope St, CA, United States

Women’s bleeding issues continue to present specific challenges with diagnosis, treatment and access.   Heavy menstrual bleeding can lead to anemia (low red blood cell count/low blood iron levels), with symptoms of fatigue, paleness, lack of energy and shortness of breath. Many women with bleeding disorders are also caregivers of a child with a bleeding disorder […]

SAVE THE DATE: HFA Symposium 2025

Sheraton San Diego Hotel & Marina 1380 Harbor Island Dr, San Diego, CA, United States

HFA Symposium 2025 is coming to San Diego in 2025! Connect with your community at one of America's most beautiful locations! Valuable educational sessions for severes, milds, rares, and more. Rap sessions and information for men, women, parents and Spanish-speaking community members. Connect with friends, who are like family, and end with a fun Final […]

SAVE THE DATE: World Hemophilia Day 2025

On April 17, 2025, the global bleeding disorders community will come together to celebrate World Hemophilia Day. This year’s theme is “Access for all: Women and girls bleed too”. Today, women and girls with bleeding disorders (WGBDs) are still underdiagnosed and underserved. The global bleeding disorders community has the power—and the responsibility—to change this. Through […]

SAVE THE DATE: Family Information Day 2025

Knott's Hotel 7675 Crescent Ave, Buena Park, CA, United States

Please join us for HFSC’s annual event where the community comes together to learn about updates and strategic goals of the foundation and exciting issues that span medical, psychological, and physical well-being. Come and welcome new community members and see old friends. HFSC also presents its annual awards and recognizes its prolific scholarship winners. We […]