Please join us for a World Hemophilia Day celebration in Burbank! _____ Únase con nosotros a nuestro para nuestra celebración WHD 2024 en Burbank.
Join us for a Community Dinner in Santa Barbara! Factor Up: Discover the Possibility of Higher Factor VIII Levels for Longer Learn about the importance of Factor VIII levels and what a first-in-class treatment could mean for your management plan. Thank you to Sanofi for your sponsorship!
Join us for a Bleeders Reaching Out ("BRO") group outing to TOP GOLF in El Segundo! "Turning Stumbling Blocks into Stepping Stones" Perry thinks of himself as a very lucky guy - but he's also a firm believer that people make their own luck. Growing up with Hemophilia A, Perry was told many times by […]
Join us for our Family Information Day and Annual Meeting on May 4, 2024. Thank you for your interest in Family Information Day 2024. The event is currently SOLD OUT. Please contact Omar Torres, Outreach Coordinator, to be placed on the waitlist. (omar@hemosocal.org or 626-765-6656)
In this interactive session we'll discern your goals and break down how to make then a reality, including identifying the skills you'll need and how to build them.
Please join us for a community dinner! "My Journey to Jivi with Austin Caldwell" Thank you to Bayer for your sponsorship!
Join us for our Family Retreat weekend on Saturday, June 1 to Sunday, June 2 at Pali Retreat Center near Lake Arrowhead. Registration coming soon!
Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A. Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Dr. Vanessa K. Salinas-Luna Pediatric Hematology Center for Inherited Blood Disorders and Andrew W. Clinical Trial Participant Thank you to BioMarin for your sponsorship! […]
Join us for a Community Dinner in Monterey Park! Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A. Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Billy Duckworth Sr. Account Manager, Gene Therapy BioMarin Pharmaceutical, Inc. and Andrew W. Clinical […]
Join us for a Community Dinner in Bakersfield! HEMGENIX (ETRANACOGENE DEZAPARVOVEC-DRLB) The first and only FDA-approved gene therapy for hemophilia B. Speaker: Dr. Doris Quon This educational program offers you and your family members the opportunity to: Learn about HEMGENIX, the first and only gene therapy approved for hemophilia B Gain insightful information and deepen […]
Please join us for a Community Dinner in Lancaster! “Introducing Investigational Gene Therapy Clinical Trials for Hemophilia” Presented by Guillermo Campillo, Lead Patient Education Liaison, Spark Therapeutics Do you have questions about the clinical trial process for hemophilia gene therapy research? Join us for a 45-minute interactive session which dives into the journey of considering, […]
Registration will open soon! Join us in Santa Monica for surf lessons and a fun family day at the beach! Surfing lessons are available for kids ages 5+ for a nominal administrative fee of $5/child and no experience is needed (Note: participants must know how to swim). **THIS EVENT IS FOR COMMUNITY MEMBERS WITH BLEEDING […]