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Events

Family Retreat Weekend

Pali Mountain Retreat 30778 CA-18, Running Springs, CA, United States

Join us for our Family Retreat Weekend at the Pali Retreat Center in the San Bernardino National Forest.  HFSC invites families living with a rare bleeding disorder to enjoy a weekend in the mountains for family camp. Sample activities for kids and parents include a campfire, arts and crafts, ropes course, archery, and talent show. Teen and parent […]

HFSC Community Dinner – Monterey Park – Spanish Session

Luminarias 3500 W Ramona Blvd, Monterey Park, CA, United States

Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A.  Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Dr. Vanessa K. Salinas-Luna Pediatric Hematology Center for Inherited Blood Disorders and Andrew W.  Clinical Trial Participant Thank you to BioMarin for your sponsorship!  […]

HFSC Community Dinner – Monterey Park – English Session

Luminarias 3500 W Ramona Blvd, Monterey Park, CA, United States

Join us for a Community Dinner in Monterey Park! Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A.  Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Billy Duckworth  Sr. Account Manager, Gene Therapy BioMarin Pharmaceutical, Inc. and Andrew W.  Clinical […]

HFSC Community Dinner – Bakersfield

DoubleTree by Hilton Bakersfield 3100 Camino del Rio Court, Bakersfield, CA, United States

Join us for a Community Dinner in Bakersfield! HEMGENIX (ETRANACOGENE DEZAPARVOVEC-DRLB) The first and only FDA-approved gene therapy for hemophilia B. Speaker: Dr. Doris Quon This educational program offers you and your family members the opportunity to: Learn about HEMGENIX, the first and only gene therapy approved for hemophilia B Gain insightful information and deepen […]

HFSC Community Dinner – Lancaster

La Papillon 858 W Lancaster Blvd, Lancaster, CA, United States

Please join us for a Community Dinner in Lancaster! “Introducing Investigational Gene Therapy Clinical Trials for Hemophilia” Presented by Guillermo Campillo, Lead Patient Education Liaison, Spark Therapeutics Do you have questions about the clinical trial process for hemophilia gene therapy research? Join us for a 45-minute interactive session which dives into the journey of considering, […]

Shaka Surf Fest and Beach Day

Santa Monica Beach 2701 Barnard Way Santa Monica, CA 90405 2701 Barnard Way, Santa Monica, CA

Registration will open soon! Join us in Santa Monica for surf lessons and a fun family day at the beach! Surfing lessons are available for kids ages 5+ for a nominal administrative fee of $5/child and no experience is needed (Note: participants must know how to swim). **THIS EVENT IS FOR COMMUNITY MEMBERS WITH BLEEDING […]

Camp Blood Brothers and Sisters at The Painted Turtle

The Painted Turtle 17000 Elizabeth Lake Road, Lake Hughes, CA, United States

Camp Blood Brothers and Sisters at The Painted Turtle July 16-21, 2024 APPLY NOW at www.thepaintedturtle.org/apply Application Checklist: Clearance from Camper's Medical Provider Copy of most recent Progress Notes Immunization Record (please note - COVID-19 vaccine is no longer required) Camper Health History Medication List Allergies (if any) 2024 TPT Policy Forms (available on The […]

Familia de Sangre 2024 – ¡Registración para Familia de Sangre YA ESTÁ ABIERTA!

Anaheim Marriott 700 W Convention Way, Anaheim, CA, United States

¡Registración para Familia de Sangre YA ESTÁ ABIERTA! Acompáñenos en la conferencia sobre trastornos hemorrágicos de habla hispana más grande del país. Regístrese antes del 30 de junio para precios “Early Bird.” Para obtener más información e inscribirse, visite: www.familiadesangre.org Precios de inscripción La inscripción “Early Bird”: 1 de mayo al 30 de junio (Precio […]

Unite for Bleeding Disorders Walk & Health Fair

About HFSC's 16th Annual Unite for Bleeding Disorders Walk & Health Fair Each year, the Hemophilia Foundation of Southern California hosts an annual Walk to raise crucial funds in support of our mission to “improve the quality of life and build community for those living with inherited bleeding disorders in Southern California.” 100% of all individual donations raised go […]