Celebrate World Hemophilia Day and Learn to be a Stronger Advocate! Grab your best Red outfit for our Light It Up Red Fashion Show, and play our Booth Trivia Game for a chance to win prizes! Each household will receive a $50 Walmart gift card after attending the event. Schedule8:30 -10:00amBooths Open – Play Our […]
"What's New in Legislative Advocacy?" Speakers: Hemophilia Council of CA, and Nathan Schafer, MSW, Vice President of Public Policy, NHF. Join HFSC for our first webinar in our emPOWERment Webinar Series on Wednesday, February 9! PLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD We'll be meeting virtually through ZOOM and will send you a link to […]
Join HFSC for our second webinar in our emPOWERment Webinar Series on Wednesday, March 23! PLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD "Surgical Interventions for Pain" Speaker: James Luck, Jr., MD, Director of Surgical Services and Rehabilitation, Orthopaedic Hemophilia Treatment Center Dr. Luck is a board-certified orthopedic surgeon specializing in hemophilia disorders, bone and soft […]
"The Power of Empowerment" Sponsored by Sanofi Genzyme. Learn about acknowledging strengths, embracing individuality, establishing supporting partnerships, and more. PLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD We'll be meeting virtually through ZOOM and will send you a link to access the discussion after registration (you can use your phone or laptop). Please reach out to […]
"Estate Planning for people with Chronic Disorders," Steven P. Beltran, Esq. Trust and Estate Planning can sound intimidating or complicated, however parents of children with rare diseases should consider their importance. For example, if you die without a will in California, the care and destiny of your minor children will be out of your control […]
What does it mean to be “financially well?” What steps can you take to achieve financial wellness in today’s stressful environment? In this workshop, we’ll review: • The impact of fixed money mindsets and how changing our stories around money can change our actions (and our lives) • The power of values-based spending • A […]
"Mild Matters," Bekah Heckathorne, RN Mild bleeding disorders are sometimes regarded as less serious, which is a barrier for some people when seeking diagnosis and care. Learn about the changing landscape of mild bleeding disorders, types of mild bleeding disorders and issues patients face, how to determine if a person is having a bleeding episode, […]
"California Insurance Programs," presented by Annabelle Garcia, Takeda California Insurance Programs: This module discusses California-specific insurance programs such as California Children’s services, the Genetically Handicapped Persons Program, and Marketplace insurance. Annabelle Garcia, BCH Annabelle Garcia received her Bachelor in Community Health at the Department of Public Health Sciences from New Mexico State University in Las […]
Presented by Rev. Cazandra Campos-MacDonald Our stories are powerful. Various aspects of our journey can change lives when we share our experiences. You don’t have to be on a stage to share your story. Life-changing moments happen when you least expect it. Cazandra will: • Empower you as you identify the significant aspects of your […]