Rare Disease Day is the official international awareness-raising campaign for rare diseases observed annually on the last day of February. With over 300 million people globally living with a rare disease, we join hands across borders and amidst the 6000+ rare diseases to advocate for equitable access to diagnosis, treatment, care, and social opportunities. Our […]
2025 INDUSTRY FORUM The purpose of Industry Forum is to present information on new and pipeline products that treat rare bleeding disorders. Often the presentations are given directly by pharmaceutical companies and may include investigational therapies such as gene therapy. HFSC’s Medical Advisor is always present at this conference to answer any medical questions including […]
We want to share an important update about Washington Days from the National Bleeding Disorders Foundation (NBDF). NBDF has announced changes to their Washington Days registration process including a shortened deadline and limited spaces for each state. The changes are as follows: Anyone living in the 9 counties (Orange, Riverside, San Bernardino, Los Angeles, Ventura, […]
Panda Express will donate 28% of sales to the Hemophilia Foundation of Southern California in support of those living with and who are affected by inherited bleeding disorders in Southern California! WHEN: Thursday, March 13, 2025 WHERE: Available at Panda Express Locations nationwide: www.pandaexpress.com HOW: Online orders ONLY - Apply code 9002092 in the Fundraiser […]
We invite you to learn more about the Hemophilia Foundation of Southern California, explore bleeding disorders, and connect with your community. Open to families who are new to Southern California or have a newly diagnosed family member. Please reach out to Omar Torres, HFSC Outreach Coordinator, for registration link at omar@hemosocal.org or 626-765-6656. If your […]
Women’s bleeding issues continue to present specific challenges with diagnosis, treatment and access. Heavy menstrual bleeding can lead to anemia (low red blood cell count/low blood iron levels), with symptoms of fatigue, paleness, lack of energy and shortness of breath. Many women with bleeding disorders are also caregivers of a child with a bleeding disorder […]
HFA Symposium 2025 is coming to San Diego in 2025! Connect with your community at one of America's most beautiful locations! Valuable educational sessions for severes, milds, rares, and more. Rap sessions and information for men, women, parents and Spanish-speaking community members. Connect with friends, who are like family, and end with a fun Final […]
Join us for a celebration of our unbreakable bond. The bleeding disorders community may be tied together by a diagnosis, but the connections go even deeper. Our 2025 One Family program celebrates the bonds that come from living with hemophilia—with people at home, on care teams, around the world—and how no one is ever alone. […]
Join us for a celebration of our unbreakable bond. The bleeding disorders community may be tied together by a diagnosis, but the connections go even deeper. Our 2025 One Family program celebrates the bonds that come from living with hemophilia—with people at home, on care teams, around the world—and how no one is ever alone. […]
"Qfitlia" - Join Sanofi for a dinner to explore the treatment of hemophilia A and B, with or without inhibitors, and to discuss how shared decision making with your healthcare provider can improve your hemophilia management experience. Thank you to Sanofi for your sponsorship!
Please join us for HFSC’s annual event where the community comes together to learn about updates and strategic goals of the foundation and exciting issues that span medical, psychological, and physical well-being. Come and welcome new community members and see old friends. HFSC also presents its annual awards and recognizes its prolific scholarship winners. We […]
Please join us for an educational lunch, where we will hear from patient speaker, Daniel, on "My Kovaltry® Conversation | Kovaltry® Antihemophilic Factor (Recombinant)." This event is for men and those who identify as men age 18+ with a bleeding disorder, spouse/partner to someone with a bleeding disorder, or parent/caregiver to someone with a bleeding […]