Join us for a Community Dinner in Bakersfield! HEMGENIX (ETRANACOGENE DEZAPARVOVEC-DRLB) The first and only FDA-approved gene therapy for hemophilia B. Speaker: Dr. Doris Quon This educational program offers you […]
Please join us for a Community Dinner in Lancaster! “Introducing Investigational Gene Therapy Clinical Trials for Hemophilia” Presented by Guillermo Campillo, Lead Patient Education Liaison, Spark Therapeutics Do you have […]
Event Canceled We regret to inform you that the Shaka Surf Fest and Beach Day 2024 on June 22 at Santa Monica Beach has been CANCELED due to health and […]
Men's Retreat 2024 July 13, 2024 | The Boathouse on the Bay | 190 N Marina Dr, Long Beach, CA 90803 Join us for our Men's Retreat at The Boathouse on […]
Camp Blood Brothers and Sisters at The Painted Turtle July 16-21, 2024 APPLY NOW at www.thepaintedturtle.org/apply Application Checklist: Clearance from Camper's Medical Provider Copy of most recent Progress Notes Immunization […]
Join us for our 10th Annual Educational Symposium! Agenda 8:30AM - Booths Open, Registration, Continental Breakfast 9:30AM - Childcare Check-In (ages 0-11, must pre-register; spaces are limited) 10:00AM - General […]
Please join us for an HFSC Community Dinner in San Luis Obispo! "Shared Decision Making" A partnership between patient (and/or care partner or caregiver) and healthcare provider Used to find […]
For all women (and those who identify as women) with bleeding disorders as well as their daughters, female spouses/partners, female caregivers/parents to those with bleeding disorders. El Paseo Inn | […]
Please join us for an HFSC Community Dinner in Buena Park! "Kinesiology Taping" Dr. Mike Zolo will be presenting on Kinesiology Taping – an interactive presentation where demonstrations of how […]
Hearing from real patients in their own words can be important. That’s why Pfizer is hosting a virtual informational session to hear about the gene therapy patient experience from someone […]
Familia de Sangre está AGOTADA. Haga clic en el enlace a continuación para agregar su grupo a la lista de espera. Acompáñenos en la conferencia sobre trastornos hemorrágicos de habla […]
“Science of Gene Therapy” With recent approvals of gene therapy in hemophilia, you may be wondering what is gene therapy and where is the science now? This educational session examines […]
