Hearing from real patients in their own words can be important. That’s why Pfizer is hosting a virtual informational session to hear about the gene therapy patient experience from someone […]
Familia de Sangre está AGOTADA. Haga clic en el enlace a continuación para agregar su grupo a la lista de espera. Acompáñenos en la conferencia sobre trastornos hemorrágicos de habla […]
“Science of Gene Therapy” With recent approvals of gene therapy in hemophilia, you may be wondering what is gene therapy and where is the science now? This educational session examines […]
Please join us to celebrate the Hemophilia Foundation of Southern California's 70th Anniversary! 5:00PM-7:00PM: Check-In and Cocktail Reception 7:00PM-8:30PM: Dinner 8:30PM-9:30PM: Award Ceremony 9:30PM: Guest Check-Out 10:00PM: Event Concludes
Please join us for our emPOWERment Webinar on "Advocacy" with Lindsey Viscarra (State Policy Manager, National Organization for Rare Disorders). Are you passionate about making a difference in your community? […]
Please join us at Top Golf Ontario for an educational breakfast with a Gettin' in the Game athlete followed by hitting bay time. Registration starts at 10:00AM. Thank you to CSL […]
Please join us for an educational dinner, "Hear from a Gene Therapy Patient!" Learn more about gene therapy and the patient experience in an informational session. This live session will […]
“Involúcrense: divulgación y defensa de los trastornos sanguíneos” Todos tienen una historia para contar. Es importante que personas reales compartan sus experiencias con el fin de abogar por las personas […]
About HFSC's 16th Annual Unite for Bleeding Disorders Walk & Health Fair Each year, the Hemophilia Foundation of Southern California hosts an annual Walk to raise crucial funds in support of our mission […]
Join one of 7 small community gatherings to celebrate the end of the year! Click link for more details. For those with bleeding disorders and their immediate family only. Make […]
2025 INDUSTRY FORUM The purpose of Industry Forum is to present information on new and pipeline products that treat rare bleeding disorders. Often the presentations are given directly by pharmaceutical […]
Rare Disease Day is the official international awareness-raising campaign for rare diseases observed annually on the last day of February. With over 300 million people globally living with a rare […]
