Please join us for an educational dinner, "CelebrVIIIte ALTUVIIIO." Thank you to Sanofi for your sponsorship! Parking: Please note that Public parking is owned and managed by Shoreline Village and available at a discounted rate with Shoreline Village validation. With Validation: $2.00 per hour for first 2 hours, $2.00 every additional 20 minutes Without Validation: $2.00 […]
Please join us for an educational dinner, "Experience Gene Therapy for Hemophilia - One Patient's Journey: Treatment Decision, Infusion and Beyond," with Billy Duckworth (BioMarin) and Clinical Trial Participant, Andrew S. Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A. Thank you to BioMarin for your sponsorship!
Join us for our Family Retreat 2025 in Silverado! Agenda 9:30AM - Industry Booths, Registration, Welcome10:30AM - Educational Sessions12:30PM - Lunch, Industry Booths1:30PM - Family Activities3:00PM - Event Ends~~~~~~~~~ Únase con nosotros para nuestra Retiro Familiar 2025 en Silverado. Agenda 9:30AM - Apertura de stands, inscripción 10:30AM - Sesión General 12:30PM - Almuerzo 1:30PM - Actividades Familiares3:00PM - […]
Please join us for our VWD Educational Forum on July 12! Agenda (Subject to Change): 10:00AM Registration 10:30AM VWD A to Z (Session will be offered in English and Spanish concurrently. Las sesiones se ofrecerán en inglés y español simultáneamente.) 11:30AM Community Connection and Break 12:00PM Lunch 1:00PM Beyond Bleeding Disorders Workbook (Session will be […]
Join us for our 46th year of Camp Blood Brothers and Sisters! In partnership with and hosted by The Painted Turtle, our summer camp provides a safe and exciting camp experience for children ages 7-16 with a rare genetic blood disorder. Teens aged 17-18 are also welcome to attend camp as Leaders in Training (LIT). […]
At the Hemophilia Foundation of Southern California, we believe that students with bleeding disorders should receive an education equal to their peers and be encouraged to maintain as normal a school life as possible. All our students are different. Some students with bleeding disorders may have no issues with school throughout their lifespan while others […]
Please join us for an educational dinner at Salvatore Restaurant in Montebello! HEMGENIX - Steps to Treatment Thank you to CSL Behring for your sponsorship!
Join the National Bleeding Disorders Foundation’s premier event dedicated to the bleeding disorders community. The National Bleeding Disorders Foundation's 77th annual Bleeding Disorders Conference will take place from August 21-23, 2025. We hope you join us in Aurora, Colorado for our premiere three-day event designed to connect, educate, and empower those in the Bleeding Disorders […]
Únase a nosotros en la mayor conferencia de trastornos hemorrágicos de habla hispana del país. ¡Más detalles próximamente! Join us for the largest Spanish-speaking bleeding disorders conference in the country.
Join fellow community members for engaging educational discussions, impactful presentations from expert speakers, and dedicated time to connect with event sponsors who support the bleeding disorders community. Whether you're a patient, caregiver, or advocate, this retreat is for you. AGENDA 3:30PM - Registration Opens 4:00PM - 5:30PM - Welcome and Industry Booths Open 5:30PM - […]
Please join us for an educational dinner, "It's a Feeling. If you Know You Know," with Mark Siy (Genentech ACM) and Patient Ambassador, Louis. Thank you to Genentech for your sponsorship!
Shared Decision Making Shared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team, discuss therapy considerations, and find quality sources of information. Thank you to Pfizer for […]