Please join us for an educational dinner, "Hear from a Gene Therapy Patient!" Learn more about gene therapy and the patient experience in an informational session. This live session will feature information about gene therapy as well as a question and answer segment with a patient and a Pfizer medical colleague. Thank you to Pfizer […]
“Involúcrense: divulgación y defensa de los trastornos sanguíneos” Todos tienen una historia para contar. Es importante que personas reales compartan sus experiencias con el fin de abogar por las personas de la comunidad con trastornos sanguíneos y por ellos mismos. Ganen confianza, mejoren las habilidades de comunicación y hagan conexiones. ¡Gracias a TAKEDA por su […]
About HFSC's 16th Annual Unite for Bleeding Disorders Walk & Health Fair Each year, the Hemophilia Foundation of Southern California hosts an annual Walk to raise crucial funds in support of our mission to “improve the quality of life and build community for those living with inherited bleeding disorders in Southern California.” 100% of all individual donations raised go […]
Join one of 7 small community gatherings to celebrate the end of the year! Click link for more details. For those with bleeding disorders and their immediate family only. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game! Thank you for choosing […]
Rare Disease Day is the official international awareness-raising campaign for rare diseases observed annually on the last day of February. With over 300 million people globally living with a rare disease, we join hands across borders and amidst the 6000+ rare diseases to advocate for equitable access to diagnosis, treatment, care, and social opportunities. Our […]
2025 INDUSTRY FORUM The purpose of Industry Forum is to present information on new and pipeline products that treat rare bleeding disorders. Often the presentations are given directly by pharmaceutical companies and may include investigational therapies such as gene therapy. HFSC’s Medical Advisor is always present at this conference to answer any medical questions including […]
We want to share an important update about Washington Days from the National Bleeding Disorders Foundation (NBDF). NBDF has announced changes to their Washington Days registration process including a shortened deadline and limited spaces for each state. The changes are as follows: Anyone living in the 9 counties (Orange, Riverside, San Bernardino, Los Angeles, Ventura, […]
Panda Express will donate 28% of sales to the Hemophilia Foundation of Southern California in support of those living with and who are affected by inherited bleeding disorders in Southern California! WHEN: Thursday, March 13, 2025 WHERE: Available at Panda Express Locations nationwide: www.pandaexpress.com HOW: Online orders ONLY - Apply code 9002092 in the Fundraiser […]
We invite you to learn more about the Hemophilia Foundation of Southern California, explore bleeding disorders, and connect with your community. Open to families who are new to Southern California or have a newly diagnosed family member. Please reach out to Omar Torres, HFSC Outreach Coordinator, for registration link at omar@hemosocal.org or 626-765-6656. If your […]
Women’s bleeding issues continue to present specific challenges with diagnosis, treatment and access. Heavy menstrual bleeding can lead to anemia (low red blood cell count/low blood iron levels), with symptoms of fatigue, paleness, lack of energy and shortness of breath. Many women with bleeding disorders are also caregivers of a child with a bleeding disorder […]
HFA Symposium 2025 is coming to San Diego in 2025! Connect with your community at one of America's most beautiful locations! Valuable educational sessions for severes, milds, rares, and more. Rap sessions and information for men, women, parents and Spanish-speaking community members. Connect with friends, who are like family, and end with a fun Final […]
Join us for a celebration of our unbreakable bond. The bleeding disorders community may be tied together by a diagnosis, but the connections go even deeper. Our 2025 One Family program celebrates the bonds that come from living with hemophilia—with people at home, on care teams, around the world—and how no one is ever alone. […]