We invite you to learn more about the Hemophilia Foundation of Southern California, explore bleeding disorders, and connect with your community. Open to families who are new to Southern California or have a newly diagnosed family member. Please reach out to Omar Torres, HFSC Outreach Coordinator, for registration link at omar@hemosocal.org or 626-765-6656. If your […]
Women’s bleeding issues continue to present specific challenges with diagnosis, treatment and access. Heavy menstrual bleeding can lead to anemia (low red blood cell count/low blood iron levels), with symptoms of fatigue, paleness, lack of energy and shortness of breath. Many women with bleeding disorders are also caregivers of a child with a bleeding disorder […]
HFA Symposium 2025 is coming to San Diego in 2025! Connect with your community at one of America's most beautiful locations! Valuable educational sessions for severes, milds, rares, and more. Rap sessions and information for men, women, parents and Spanish-speaking community members. Connect with friends, who are like family, and end with a fun Final […]
Join us for a celebration of our unbreakable bond. The bleeding disorders community may be tied together by a diagnosis, but the connections go even deeper. Our 2025 One Family program celebrates the bonds that come from living with hemophilia—with people at home, on care teams, around the world—and how no one is ever alone. […]
Join us for a celebration of our unbreakable bond. The bleeding disorders community may be tied together by a diagnosis, but the connections go even deeper. Our 2025 One Family program celebrates the bonds that come from living with hemophilia—with people at home, on care teams, around the world—and how no one is ever alone. […]
"Qfitlia" - Join Sanofi for a dinner to explore the treatment of hemophilia A and B, with or without inhibitors, and to discuss how shared decision making with your healthcare provider can improve your hemophilia management experience. Thank you to Sanofi for your sponsorship!
Please join us for HFSC’s annual event where the community comes together to learn about updates and strategic goals of the foundation and exciting issues that span medical, psychological, and physical well-being. Come and welcome new community members and see old friends. HFSC also presents its annual awards and recognizes its prolific scholarship winners. We […]
Please join us for an educational lunch, where we will hear from patient speaker, Daniel, on "My Kovaltry® Conversation | Kovaltry® Antihemophilic Factor (Recombinant)." This event is for men and those who identify as men age 18+ with a bleeding disorder, spouse/partner to someone with a bleeding disorder, or parent/caregiver to someone with a bleeding […]
Please join us for an educational dinner, "CelebrVIIIte ALTUVIIIO." Thank you to Sanofi for your sponsorship! Parking: Please note that Public parking is owned and managed by Shoreline Village and available at a discounted rate with Shoreline Village validation. With Validation: $2.00 per hour for first 2 hours, $2.00 every additional 20 minutes Without Validation: $2.00 […]
Please join us for an educational dinner, "Experience Gene Therapy for Hemophilia - One Patient's Journey: Treatment Decision, Infusion and Beyond," with Billy Duckworth (BioMarin) and Clinical Trial Participant, Andrew S. Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A. Thank you to BioMarin for your sponsorship!
Join us for our Family Retreat 2025 in Silverado! Agenda 9:30AM - Industry Booths, Registration, Welcome10:30AM - Educational Sessions12:30PM - Lunch, Industry Booths1:30PM - Family Activities3:00PM - Event Ends~~~~~~~~~ Únase con nosotros para nuestra Retiro Familiar 2025 en Silverado. Agenda 9:30AM - Apertura de stands, inscripción 10:30AM - Sesión General 12:30PM - Almuerzo 1:30PM - Actividades Familiares3:00PM - […]
Please join us for our VWD Educational Forum on July 12! Agenda (Subject to Change): 10:00AM Registration 10:30AM VWD A to Z (Session will be offered in English and Spanish concurrently. Las sesiones se ofrecerán en inglés y español simultáneamente.) 11:30AM Community Connection and Break 12:00PM Lunch 1:00PM Beyond Bleeding Disorders Workbook (Session will be […]