Join us for a LIVE in-person BRO Gathering sponsored by BioMarin. Join our BRO (Bleeders Reaching Out) Meeting for men ages 13+ with bleeding disorders and fathers/father-figures of children with bleeding disorders . Come an enjoy a delightful evening with an educational presentation from BioMarin and planning for future BRO gatherings at the famous steak […]
Join HFSC and Dr. Akshat Jain, MD, FAAP, MPH for a global day of awareness and recognition of our brother and sisters around the world. PLEASE WEAR YOUR BEST RED OUTFIT! Each family will receive an HFSC goody bag with $25 Walmart gift card. Space is limited and first come, first served! AGENDA: 5-6pm: Registration, […]
"The Power of Empowerment" Sponsored by Sanofi Genzyme. Learn about acknowledging strengths, embracing individuality, establishing supporting partnerships, and more. PLEASE REGISTER ONLY 1 PERSON per HOUSEHOLD We'll be meeting virtually through ZOOM and will send you a link to access the discussion after registration (you can use your phone or laptop). Please reach out to […]
HFSC invites you to our annual meeting, "Family Information Day" on April 30, 2022 at the Ehler's Event Center in Buena Park! Family Information Day is an annual event held to educate, inform, and support the bleeding disorders community in Southern California. Attendees ages 3+ will receive a ticket to Knott's Berry Farm to use […]
HFSC Community Dinner in Santa Barbara, Sponsored by Novo Nordisk About this event Join us for a LIVE in-person Community Dinner Come an enjoy a wonderful evening with an educational presentation from Novo Nordisk at Harry's Plaza Cafe in Santa Barbara! NOTE: free parking in the plaza Per HFSC policy, upon arrival all attendees are […]
Grupo de Mujeres Enlazadas de la Fundacion de Hemofilia del Sur De California Únase a nosotros para una presentación educativa para el el Grupo de Mujeres Enlazadas: "Comprensión de la investigación sobre terapia génica y su potencial aplicación en la hemofilia” presentado por Spark Therapeutics Especialmente para aquellas mujeres, madres, cuidadoras y abuelas que están […]
2022 Family Retreat! Enjoy a weekend and connect with other families with bleeding disorders while having fun, challenging yourself to the ropes courses, hiking, competing in a talent show, swimming, IV Infusion training, strengthening relationships, eating smores at a campfire and singing karaoke! Summer campers will have an opportunity to get to know each other […]
Join us in the Palmdale area for a community Dinner sponsored by Sanofi. "Celebrating Connection in Our Hemophilia Community." Presented by Albert Maffei, Sanofi. Celebrate how blood brings us together. Hear from community members, share your own hopes and dreams for the hemophilia community, and explore how to support and empower one another. Per HFSC […]
Join us at the well known restaurant, Tamayo, for a community Dinner sponsored by Bayer! "Giving Voice to your Strength," Presented by Lisa Gonzalez, Bayer. This session will offer parents, caregivers and spouses a space to share their hemophilia experiences, shift their mindset and acknowledge their power. NOTE: free street parking Per HFSC policy, upon […]
Its time for: HFSC's SHAKA SURF FEST! Join your bleeding disorders family for a day at the beach. Enjoy fun in the sun, sand castles and surfing lessons! Surfing lessons are available for kids ages 5+ for a nominal administrative fee of $5/child and no experience is needed (must know how to swim). We are […]
"Estate Planning for people with Chronic Disorders," Steven P. Beltran, Esq. Trust and Estate Planning can sound intimidating or complicated, however parents of children with rare diseases should consider their importance. For example, if you die without a will in California, the care and destiny of your minor children will be out of your control […]
Únase a nosotros para una presentación educativa para el el Grupo de Mujeres Enlazadas: "Empoderamiento de la mujer: esta charla de HELLO explora la conciencia y la defensa de las mujeres, cómo los trastornos hemorrágicos impactan de manera única en la salud de las mujeres y las formas en que las mujeres funcionan como cuidadoras […]
