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  • World Hemophilia Day Celebration – Burbank

    Castaway Burbank 1250 East Harvard Rd, Burbank, CA, United States

    Please join us for a World Hemophilia Day celebration in Burbank! _____ Únase con nosotros a nuestro para nuestra celebración WHD 2024 en Burbank.

  • HFSC Community Dinner – Santa Barbara

    Convivo 901 E Cabrillo Blvd, Santa Barbara, CA, United States

    Join us for a Community Dinner in Santa Barbara! Factor Up: Discover the Possibility of Higher Factor VIII Levels for Longer Learn about the importance of Factor VIII levels and what a first-in-class treatment could mean for your management plan. Thank you to Sanofi for your sponsorship!  

  • BRO Outing – Top Golf (El Segundo)

    Top Golf El Segundo 400 S Pacific Coast Hwy, El Segundo, CA, United States

    Join us for a Bleeders Reaching Out ("BRO") group outing to TOP GOLF in El Segundo! "Turning Stumbling Blocks into Stepping Stones"  Perry thinks of himself as a very lucky guy - but he's also a firm believer that people make their own luck. Growing up with Hemophilia A, Perry was told many times by […]

  • SOLD OUT – Family Information Day and Annual Meeting 2024

    Knott's Hotel 7675 Crescent Ave, Buena Park, CA, United States

    Join us for our Family Information Day and Annual Meeting on May 4, 2024. Thank you for your interest in Family Information Day 2024. The event is currently SOLD OUT.  Please contact Omar Torres, Outreach Coordinator, to be placed on the waitlist. (omar@hemosocal.org or 626-765-6656)

  • HFSC Community Dinner – Riverside

    Palenque 3737 Main St #100, Riverside, CA, United States

    Please join us for a community dinner! "My Journey to Jivi with Austin Caldwell" Thank you to Bayer for your sponsorship!

  • Family Retreat Weekend

    Pali Mountain Retreat 30778 CA-18, Running Springs, CA, United States

    Join us for our Family Retreat Weekend at the Pali Retreat Center in the San Bernardino National Forest.  HFSC invites families living with a rare bleeding disorder to enjoy a weekend in the mountains for family camp. Sample activities for kids and parents include a campfire, arts and crafts, ropes course, archery, and talent show. Teen and parent […]

  • HFSC Community Dinner – Monterey Park – Spanish Session

    Luminarias 3500 W Ramona Blvd, Monterey Park, CA, United States

    Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A.  Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Dr. Vanessa K. Salinas-Luna Pediatric Hematology Center for Inherited Blood Disorders and Andrew W.  Clinical Trial Participant Thank you to BioMarin for your sponsorship!  […]

  • HFSC Community Dinner – Monterey Park – English Session

    Luminarias 3500 W Ramona Blvd, Monterey Park, CA, United States

    Join us for a Community Dinner in Monterey Park! Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A.  Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Billy Duckworth  Sr. Account Manager, Gene Therapy BioMarin Pharmaceutical, Inc. and Andrew W.  Clinical […]

  • HFSC Community Dinner – Bakersfield

    DoubleTree by Hilton Bakersfield 3100 Camino del Rio Court, Bakersfield, CA, United States

    Join us for a Community Dinner in Bakersfield! HEMGENIX (ETRANACOGENE DEZAPARVOVEC-DRLB) The first and only FDA-approved gene therapy for hemophilia B. Speaker: Dr. Doris Quon This educational program offers you and your family members the opportunity to: Learn about HEMGENIX, the first and only gene therapy approved for hemophilia B Gain insightful information and deepen […]

  • HFSC Community Dinner – Lancaster

    La Papillon 858 W Lancaster Blvd, Lancaster, CA, United States

    Please join us for a Community Dinner in Lancaster! “Introducing Investigational Gene Therapy Clinical Trials for Hemophilia” Presented by Guillermo Campillo, Lead Patient Education Liaison, Spark Therapeutics Do you have questions about the clinical trial process for hemophilia gene therapy research? Join us for a 45-minute interactive session which dives into the journey of considering, […]

  • EVENT CANCELED: Shaka Surf Fest and Beach Day

    Santa Monica Beach 2701 Barnard Way Santa Monica, CA 90405 2701 Barnard Way, Santa Monica, CA

    Event Canceled We regret to inform you that the Shaka Surf Fest and Beach Day 2024 on June 22 at Santa Monica Beach has been CANCELED due to health and safety concerns over elevated water quality levels reported by the Los Angeles County Public Health. The safety and well-being of our community members are our […]