Please join us for a Community Dinner in Lancaster! “Introducing Investigational Gene Therapy Clinical Trials for Hemophilia” Presented by Guillermo Campillo, Lead Patient Education Liaison, Spark Therapeutics Do you have questions about the clinical trial process for hemophilia gene therapy research? Join us for a 45-minute interactive session which dives into the journey of considering, […]
Event Canceled We regret to inform you that the Shaka Surf Fest and Beach Day 2024 on June 22 at Santa Monica Beach has been CANCELED due to health and safety concerns over elevated water quality levels reported by the Los Angeles County Public Health. The safety and well-being of our community members are our […]
Men's Retreat 2024 July 13, 2024 | The Boathouse on the Bay | 190 N Marina Dr, Long Beach, CA 90803 Join us for our Men's Retreat at The Boathouse on the Bay in Long Beach! For all men (and those who identify as men) age 18+ with bleeding disorders as well as spouses/partners, caregivers/parents to those with […]
Camp Blood Brothers and Sisters at The Painted Turtle July 16-21, 2024 APPLY NOW at www.thepaintedturtle.org/apply Application Checklist: Clearance from Camper's Medical Provider Copy of most recent Progress Notes Immunization Record (please note - COVID-19 vaccine is no longer required) Camper Health History Medication List Allergies (if any) 2024 TPT Policy Forms (available on The […]
Join us for our 10th Annual Educational Symposium! Agenda 8:30AM - Booths Open, Registration, Continental Breakfast 9:30AM - Childcare Check-In (ages 0-11, must pre-register; spaces are limited) 10:00AM - General Sessions; Teen Program 12:00PM - Backpack Distribution, Boxed Lunch, Sponsor Booths open; Childcare Pick up 1:30PM - Event Concludes
Please join us for an HFSC Community Dinner in San Luis Obispo! "Shared Decision Making" A partnership between patient (and/or care partner or caregiver) and healthcare provider Used to find therapies that are the best fit, lifestyle changes that are effective but also realistic options for care that are cost effective Uncovers patient treatment goals […]
For all women (and those who identify as women) with bleeding disorders as well as their daughters, female spouses/partners, female caregivers/parents to those with bleeding disorders. El Paseo Inn | 11 E Olvera St. Los Angeles CA 90012 - and - Dodger Stadium | 1000 Vin Scully Dr. Los Angeles CA 90012 Join us for […]
Please join us for an HFSC Community Dinner in Buena Park! "Kinesiology Taping" Dr. Mike Zolo will be presenting on Kinesiology Taping – an interactive presentation where demonstrations of how to tape the shoulder, elbow, wrist, neck, low back, knee, and ankle will be performed while discussing the indications during acute injury. Taping will be […]
Hearing from real patients in their own words can be important. That’s why Pfizer is hosting a virtual informational session to hear about the gene therapy patient experience from someone who has received it. This session will feature information on gene therapy as well as questions and answers with a patient, led by a Pfizer […]
Familia de Sangre está AGOTADA. Haga clic en el enlace a continuación para agregar su grupo a la lista de espera. Acompáñenos en la conferencia sobre trastornos hemorrágicos de habla hispana más grande del país. Regístrese antes del 30 de junio para precios “Early Bird.” Para obtener más información e inscribirse, visite: www.familiadesangre.org Precios de […]
“Science of Gene Therapy” With recent approvals of gene therapy in hemophilia, you may be wondering what is gene therapy and where is the science now? This educational session examines how gene therapy is delivered into the body, what happens afterwards, what makes it a potential treatment option in hemophilia, and who might be a […]
Please join us to celebrate the Hemophilia Foundation of Southern California's 70th Anniversary! 5:00PM-7:00PM: Check-In and Cocktail Reception 7:00PM-8:30PM: Dinner 8:30PM-9:30PM: Award Ceremony 9:30PM: Guest Check-Out 10:00PM: Event Concludes