HFSC Community Dinner in Santa Barbara, Sponsored by Novo Nordisk About this event Join us for a LIVE in-person Community Dinner Come an enjoy a wonderful evening with an educational presentation from Novo Nordisk at Harry's Plaza Cafe in Santa Barbara! NOTE: free parking in the plaza Per HFSC policy, upon arrival all attendees are […]
Grupo de Mujeres Enlazadas de la Fundacion de Hemofilia del Sur De California Únase a nosotros para una presentación educativa para el el Grupo de Mujeres Enlazadas: "Comprensión de la investigación sobre terapia génica y su potencial aplicación en la hemofilia” presentado por Spark Therapeutics Especialmente para aquellas mujeres, madres, cuidadoras y abuelas que están […]
2022 Family Retreat! Enjoy a weekend and connect with other families with bleeding disorders while having fun, challenging yourself to the ropes courses, hiking, competing in a talent show, swimming, IV Infusion training, strengthening relationships, eating smores at a campfire and singing karaoke! Summer campers will have an opportunity to get to know each other […]
Join us in the Palmdale area for a community Dinner sponsored by Sanofi. "Celebrating Connection in Our Hemophilia Community." Presented by Albert Maffei, Sanofi. Celebrate how blood brings us together. Hear from community members, share your own hopes and dreams for the hemophilia community, and explore how to support and empower one another. Per HFSC […]
Join us at the well known restaurant, Tamayo, for a community Dinner sponsored by Bayer! "Giving Voice to your Strength," Presented by Lisa Gonzalez, Bayer. This session will offer parents, caregivers and spouses a space to share their hemophilia experiences, shift their mindset and acknowledge their power. NOTE: free street parking Per HFSC policy, upon […]
Its time for: HFSC's SHAKA SURF FEST! Join your bleeding disorders family for a day at the beach. Enjoy fun in the sun, sand castles and surfing lessons! Surfing lessons are available for kids ages 5+ for a nominal administrative fee of $5/child and no experience is needed (must know how to swim). We are […]
"Estate Planning for people with Chronic Disorders," Steven P. Beltran, Esq. Trust and Estate Planning can sound intimidating or complicated, however parents of children with rare diseases should consider their importance. For example, if you die without a will in California, the care and destiny of your minor children will be out of your control […]
Únase a nosotros para una presentación educativa para el el Grupo de Mujeres Enlazadas: "Empoderamiento de la mujer: esta charla de HELLO explora la conciencia y la defensa de las mujeres, cómo los trastornos hemorrágicos impactan de manera única en la salud de las mujeres y las formas en que las mujeres funcionan como cuidadoras […]
What does it mean to be “financially well?” What steps can you take to achieve financial wellness in today’s stressful environment? In this workshop, we’ll review: • The impact of fixed money mindsets and how changing our stories around money can change our actions (and our lives) • The power of values-based spending • A […]
APPLICATIONS NOW OPEN!/HERMANOS Y HERMANAS DE SANGRE DEL CAMPAMENTO @The Painted Turtle ¡APLICACIONES YA ESTAN ABIERTAS Please don't wait as spaces are limited. Siblings should apply to sibling camp week as spaces are reduced due to Covid precautions/Por favor, no espere ya que los espacios son limitados. Los hermanos deben postularse para la semana del […]
Registration for this event is now closed. Please email Cynthia at cynthia@hemosocal.org if you would like to attend. Thank you! Please join HFSC for our 8th Annual Back to School Education Symposium! Students in attendance will receive a backpack and school supply gift card. Saturday, August 6, 2022 8:30 a.m.-1:30 p.m. Pasadena City College 170 […]
"Mild Matters," Bekah Heckathorne, RN Mild bleeding disorders are sometimes regarded as less serious, which is a barrier for some people when seeking diagnosis and care. Learn about the changing landscape of mild bleeding disorders, types of mild bleeding disorders and issues patients face, how to determine if a person is having a bleeding episode, […]
