Please join us for a Community Dinner in Lancaster! “Introducing Investigational Gene Therapy Clinical Trials for Hemophilia” Presented by Guillermo Campillo, Lead Patient Education Liaison, Spark Therapeutics Do you have questions about the clinical trial process for hemophilia gene therapy research? Join us for a 45-minute interactive session which dives into the journey of considering, […]
Please join us for an HFSC Community Dinner in San Luis Obispo! "Shared Decision Making" A partnership between patient (and/or care partner or caregiver) and healthcare provider Used to find therapies that are the best fit, lifestyle changes that are effective but also realistic options for care that are cost effective Uncovers patient treatment goals […]
Please join us for an HFSC Community Dinner in Buena Park! "Kinesiology Taping" Dr. Mike Zolo will be presenting on Kinesiology Taping – an interactive presentation where demonstrations of how to tape the shoulder, elbow, wrist, neck, low back, knee, and ankle will be performed while discussing the indications during acute injury. Taping will be […]
“Science of Gene Therapy” With recent approvals of gene therapy in hemophilia, you may be wondering what is gene therapy and where is the science now? This educational session examines how gene therapy is delivered into the body, what happens afterwards, what makes it a potential treatment option in hemophilia, and who might be a […]
Please join us at Top Golf Ontario for an educational breakfast with a Gettin' in the Game athlete followed by hitting bay time. Registration starts at 10:00AM. Thank you to CSL Behring for your sponsorship!
Please join us for an educational dinner, "Hear from a Gene Therapy Patient!" Learn more about gene therapy and the patient experience in an informational session. This live session will feature information about gene therapy as well as a question and answer segment with a patient and a Pfizer medical colleague. Thank you to Pfizer […]
"Qfitlia" - Join Sanofi for a dinner to explore the treatment of hemophilia A and B, with or without inhibitors, and to discuss how shared decision making with your healthcare provider can improve your hemophilia management experience. Thank you to Sanofi for your sponsorship!
Please join us for an educational dinner, "CelebrVIIIte ALTUVIIIO." Thank you to Sanofi for your sponsorship! Parking: Please note that Public parking is owned and managed by Shoreline Village and available at a discounted rate with Shoreline Village validation. With Validation: $2.00 per hour for first 2 hours, $2.00 every additional 20 minutes Without Validation: $2.00 […]
Please join us for an educational dinner, "Experience Gene Therapy for Hemophilia - One Patient's Journey: Treatment Decision, Infusion and Beyond," with Billy Duckworth (BioMarin) and Clinical Trial Participant, Andrew S. Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A. Thank you to BioMarin for your sponsorship!
Please join us for an educational dinner at Salvatore Restaurant in Montebello! HEMGENIX - Steps to Treatment Thank you to CSL Behring for your sponsorship!
Please join us for an educational dinner, "It's a Feeling. If you Know You Know," with Mark Siy (Genentech ACM) and Patient Ambassador, Louis. Thank you to Genentech for your sponsorship!
Shared Decision Making Shared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team, discuss therapy considerations, and find quality sources of information. Thank you to Pfizer for […]