Please join HFSC in Simi Valley for a Community Dinner, "Caregivers, Make Yourself a Priority." This presentation explores how it is okay to say no sometimes, even as a caregiver to a child with a bleeding disorder. This program discusses the importance of making time for yourself as a caregiver. Thank you to CSL Behring […]
Join us for a Community Dinner in Santa Barbara! Factor Up: Discover the Possibility of Higher Factor VIII Levels for Longer Learn about the importance of Factor VIII levels and what a first-in-class treatment could mean for your management plan. Thank you to Sanofi for your sponsorship!
Please join us for a community dinner! "My Journey to Jivi with Austin Caldwell" Thank you to Bayer for your sponsorship!
Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A. Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Dr. Vanessa K. Salinas-Luna Pediatric Hematology Center for Inherited Blood Disorders and Andrew W. Clinical Trial Participant Thank you to BioMarin for your sponsorship! […]
Join us for a Community Dinner in Monterey Park! Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A. Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Billy Duckworth Sr. Account Manager, Gene Therapy BioMarin Pharmaceutical, Inc. and Andrew W. Clinical […]
Join us for a Community Dinner in Bakersfield! HEMGENIX (ETRANACOGENE DEZAPARVOVEC-DRLB) The first and only FDA-approved gene therapy for hemophilia B. Speaker: Dr. Doris Quon This educational program offers you and your family members the opportunity to: Learn about HEMGENIX, the first and only gene therapy approved for hemophilia B Gain insightful information and deepen […]
Please join us for a Community Dinner in Lancaster! “Introducing Investigational Gene Therapy Clinical Trials for Hemophilia” Presented by Guillermo Campillo, Lead Patient Education Liaison, Spark Therapeutics Do you have questions about the clinical trial process for hemophilia gene therapy research? Join us for a 45-minute interactive session which dives into the journey of considering, […]
Please join us for an HFSC Community Dinner in San Luis Obispo! "Shared Decision Making" A partnership between patient (and/or care partner or caregiver) and healthcare provider Used to find therapies that are the best fit, lifestyle changes that are effective but also realistic options for care that are cost effective Uncovers patient treatment goals […]
Please join us for an HFSC Community Dinner in Buena Park! "Kinesiology Taping" Dr. Mike Zolo will be presenting on Kinesiology Taping – an interactive presentation where demonstrations of how to tape the shoulder, elbow, wrist, neck, low back, knee, and ankle will be performed while discussing the indications during acute injury. Taping will be […]
“Science of Gene Therapy” With recent approvals of gene therapy in hemophilia, you may be wondering what is gene therapy and where is the science now? This educational session examines how gene therapy is delivered into the body, what happens afterwards, what makes it a potential treatment option in hemophilia, and who might be a […]
Please join us at Top Golf Ontario for an educational breakfast with a Gettin' in the Game athlete followed by hitting bay time. Registration starts at 10:00AM. Thank you to CSL Behring for your sponsorship!
Please join us for an educational dinner, "Hear from a Gene Therapy Patient!" Learn more about gene therapy and the patient experience in an informational session. This live session will feature information about gene therapy as well as a question and answer segment with a patient and a Pfizer medical colleague. Thank you to Pfizer […]
