“Science of Gene Therapy” With recent approvals of gene therapy in hemophilia, you may be wondering what is gene therapy and where is the science now? This educational session examines how gene therapy is delivered into the body, what happens afterwards, what makes it a potential treatment option in hemophilia, and who might be a […]

Please join us at Top Golf Ontario for an educational breakfast with a Gettin' in the Game athlete followed by hitting bay time.  Registration starts at 10:00AM. Thank you to CSL Behring for your sponsorship!

Please join us for an educational dinner, "Hear from a Gene Therapy Patient!" Learn more about gene therapy and the patient experience in an informational session. This live session will feature information about gene therapy as well as a question and answer segment with a patient and a Pfizer medical colleague. Thank you to Pfizer […]

"Qfitlia" - Join Sanofi for a dinner to explore the treatment of hemophilia A and B, with or without inhibitors, and to discuss how shared decision making with your healthcare provider can improve your hemophilia management experience. Thank you to Sanofi for your sponsorship!

Please join us for an educational dinner, "CelebrVIIIte ALTUVIIIO." Thank you to Sanofi for your sponsorship! Parking: Please note that Public parking is owned and managed by Shoreline Village and available at a discounted rate with Shoreline Village validation. With Validation: $2.00 per hour for first 2 hours, $2.00 every additional 20 minutes Without Validation: $2.00 […]

Please join us for an educational dinner, "Experience Gene Therapy for Hemophilia - One Patient's Journey: Treatment Decision, Infusion and Beyond," with Billy Duckworth (BioMarin) and Clinical Trial Participant, Andrew S. Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A. Thank you to BioMarin for your sponsorship!

Please join us for an educational dinner at Salvatore Restaurant in Montebello! HEMGENIX - Steps to Treatment Thank you to CSL Behring for your sponsorship!

Please join us for an educational dinner, "It's a Feeling. If you Know You Know," with Mark Siy (Genentech ACM) and Patient Ambassador, Louis. Thank you to Genentech for your sponsorship!

Shared Decision Making Shared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team, discuss therapy considerations, and find quality sources of information. Thank you to Pfizer for […]

Información sobre el evento Todos tienen una historia para contar. Es importante que personas reales compartan sus experiencias con el finde abogar por las personas de la comunidad con trastornos sanguíneos y por ellos mismos. Ganen confianza,mejoren las habilidades de comunicación y hagan conexiones. Nota:La sesión se impartirá en español. PRESENTADORA: Annabelle Garcia ¡Gracias a […]

Join us for a Community Dinner: Understanding HYMPAVZI (marstacimab-hncq) Join us for an educational session exploring a rebalancing treatment option for hemophilia. You’ll hear: The science behind rebalancing therapy Clinical trial data Safety information Information on administration Shared decision-making tips for patients and caregivers   Speaker: Zuiho "Z" Taniguchi, Patient Navigator Understanding a Rebalancing Therapy […]

Educational Session on Hemlibra Hosted by Mark Siy (Genentech) | Speakers: Mark Siy (Genentech) and Patient Ambassador Gabe El Ranchero Mexican Food & Margaritas | 984 W Foothill Blvd Claremont CA 91711 For people with hemophilia A with or without factor VIII inhibitors What is HEMLIBRA? HEMLIBRA is a prescription medicine used for routine prophylaxis […]