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Events

HFSC Community Dinner: Raising Resilience

Cafe Roma 1020 Railroad Ave, San Luis Obispo, CA, United States

Please join HFSC at Cafe Roma in San Luis Obispo for a Community Dinner, "Raising Resilience." Explore aspects of resilient behavior and thoughts, learn how to build resilience, and discuss how resilience may play a part in hemophilia management. Thank you to Sanofi for sponsoring this dinner!

HFSC Community Dinner: “A Focus on Mental Well-Being”

Frugatti's 600 Coffee Rd, Bakersfield

Please join HFSC in Bakersfield for a Community Dinner, "A Focus on Mental Well-Being." Mental health is a state of well-being and is an important topic to talk about for everyone, including those living with a bleeding disorder. This dinner will discuss ways to navigate mental health, as it includes our emotional, psychological, and social […]

HFSC Community Dinner: “Understanding Gene Therapy Research and its Potential Application to Hemophilia”

Palenque 3737 Main St #100, Riverside, CA, United States

Please join HFSC at Palenque in Riverside for a Community Dinner, "Understanding Gene Therapy Research and Its Potential Application to Hemophilia." This presentation will help understand genetics; look at what investigational gene therapy is meant to do; review history, past research, and some challenges of gene therapy; and, consider the potential of gene therapy research […]

HFSC Women’s Community Dinner: Tell Your Story

Solita 7631 Edinger Ave, Huntington Beach, CA, United States

Please join HFSC in Huntington Beach for a Women's Community Dinner, "Tell Your Story!" Living with hemophilia means that you will often have to advocate for yourself. Learn how to tell your story by crafting meaningful and compelling personal messages. Thank you to Sanofi for sponsoring this dinner. Parking: Parking in plaza lot.

HFSC Community Dinner: Guiding Young Person with Hemophilia to Independence

Gino's Italian Restaurant 44343 Challenger Way, Lancaster, CA, United States

Join us at Gino's Italian Restaurant in Lancaster for a Community Dinner on "Transitioning: Guiding a Young Person with Hemophilia Towards Independence." This interactive, engaging, and practical program discusses helpful tips and resources for beginning or reinforcing a successful transition to self-management—ideal for both parents and their son with hemophilia. Thank you to Bayer for […]

HFSC Community Dinner: “Caregivers, Make Yourself a Priority”

Viva LaPasta! Kitchen of Italy 525 Country Club Dr, Simi Valley

Please join HFSC in Simi Valley for a Community Dinner, "Caregivers, Make Yourself a Priority." This presentation explores how it is okay to say no sometimes, even as a caregiver to a child with a bleeding disorder. This program discusses the importance of making time for yourself as a caregiver. Thank you to CSL Behring […]

HFSC Community Dinner – Santa Barbara

Convivo 901 E Cabrillo Blvd, Santa Barbara, CA, United States

Join us for a Community Dinner in Santa Barbara! Factor Up: Discover the Possibility of Higher Factor VIII Levels for Longer Learn about the importance of Factor VIII levels and what a first-in-class treatment could mean for your management plan. Thank you to Sanofi for your sponsorship!  

HFSC Community Dinner – Riverside

Palenque 3737 Main St #100, Riverside, CA, United States

Please join us for a community dinner! "My Journey to Jivi with Austin Caldwell" Thank you to Bayer for your sponsorship!

HFSC Community Dinner – Monterey Park – Spanish Session

Luminarias 3500 W Ramona Blvd, Monterey Park, CA, United States

Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A.  Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Dr. Vanessa K. Salinas-Luna Pediatric Hematology Center for Inherited Blood Disorders and Andrew W.  Clinical Trial Participant Thank you to BioMarin for your sponsorship!  […]

HFSC Community Dinner – Monterey Park – English Session

Luminarias 3500 W Ramona Blvd, Monterey Park, CA, United States

Join us for a Community Dinner in Monterey Park! Learn more about ROCTAVIAN™ (valoctocogene roxaparvovec-rvox), for adults with severe hemophilia A.  Hear one person's experience with ROCTAVIAN Learn what's possible with ROCTAVIAN See how you could get started today Presented By: Billy Duckworth  Sr. Account Manager, Gene Therapy BioMarin Pharmaceutical, Inc. and Andrew W.  Clinical […]

HFSC Community Dinner – Bakersfield

DoubleTree by Hilton Bakersfield 3100 Camino del Rio Court, Bakersfield, CA, United States

Join us for a Community Dinner in Bakersfield! HEMGENIX (ETRANACOGENE DEZAPARVOVEC-DRLB) The first and only FDA-approved gene therapy for hemophilia B. Speaker: Dr. Doris Quon This educational program offers you and your family members the opportunity to: Learn about HEMGENIX, the first and only gene therapy approved for hemophilia B Gain insightful information and deepen […]

HFSC Community Dinner – Lancaster

La Papillon 858 W Lancaster Blvd, Lancaster, CA, United States

Please join us for a Community Dinner in Lancaster! “Introducing Investigational Gene Therapy Clinical Trials for Hemophilia” Presented by Guillermo Campillo, Lead Patient Education Liaison, Spark Therapeutics Do you have questions about the clinical trial process for hemophilia gene therapy research? Join us for a 45-minute interactive session which dives into the journey of considering, […]