PAIN MATTERS Pain can affect everyday life for people with hemophilia. Lean about pain management options and tools to help talk about pain with health care providers. Thank you to Novo Nordisk for your sponsorship! Gift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 […]
CREATING GOALS, UNDERSTANDING THE SCIENCE AND COMMUNICATING WITH YOUR HEALTHCARE TEAM • Please join us for a presentation about creating goals, understanding the science of gene therapy, and communicating with your healthcare team • Hear firsthand from someone who has undergone gene therapy for hemophilia B Thank you to CSL Behring for your sponsorship! Gift […]
YOUR TIME TO THRIVE: HARNESS THE POWER OF JOY Join us for an educational program for patients and caregivers about how to harness the power of Joy - a skill that can help attendees stay positive while navigating change. This program was developed in partnership with University of Pennsylvania Positive Psychology Center. Thank you to […]
GAME ON Empowers young adults with hemophilia A to be accountable for their treatment, stay healthy, maintain insurance coverage, and plan for college and a career afterward. Thank you to Bayer for your sponsorship! Gift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) […]
Art of Gratitude - Explore how practicing gratitude can support well-being for those with chronic conditions by creating a personal, gratitude-inspired painting. Thank you to Sanofi for your sponsorship! Gift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate […]
Family Connection Better communication as a family living with hemophilia is possible. Topics covered in this overview include learning to manage care, communication outside of the the immediate family, use of social media, and disclosure at work and school. Role play activities are integrated into the presentation to make it engaging. Thank you to Pfizer […]
LET'S PLAY BLEEDING DISORDERS FAMILY FEUD! Thank you to Octapharma for your sponsorship! Gift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!