Join fellow community members for engaging educational discussions, impactful presentations from expert speakers, and dedicated time to connect with event sponsors who support the bleeding disorders community. Whether you're a patient, caregiver, or advocate, this retreat is for you. AGENDA 3:30PM - Registration Opens 4:00PM - 5:30PM - Welcome and Industry Booths Open 5:30PM - […]
Please join us for an educational dinner, "It's a Feeling. If you Know You Know," with Mark Siy (Genentech ACM) and Patient Ambassador, Louis. Thank you to Genentech for your sponsorship!
Shared Decision Making Shared decision making is a partnership between people with hemophilia and their care teams that may help them better manage their condition. This interactive session covers how to take an active role as part of your treatment team, discuss therapy considerations, and find quality sources of information. Thank you to Pfizer for […]
Each year, the Hemophilia Foundation of Southern California hosts an annual Walk to raise crucial funds in support of our mission to “improve the quality of life and build community for those living with inherited bleeding disorders in Southern California.” 100% of all individual donations raised go directly to HFSC’s services and programs. Please consider starting a team, joining […]
PAIN MATTERS Pain can affect everyday life for people with hemophilia. Lean about pain management options and tools to help talk about pain with health care providers. Thank you to Novo Nordisk for your sponsorship! Gift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 […]
THIS DINNER IS SOLD OUT - Please email info@hemosocal.org to be added to the waitlist. Thanks! CREATING GOALS, UNDERSTANDING THE SCIENCE AND COMMUNICATING WITH YOUR HEALTHCARE TEAM • Please join us for a presentation about creating goals, understanding the science of gene therapy, and communicating with your healthcare team • Hear firsthand from someone who […]
YOUR TIME TO THRIVE: HARNESS THE POWER OF JOY Join us for an educational program for patients and caregivers about how to harness the power of Joy - a skill that can help attendees stay positive while navigating change. This program was developed in partnership with University of Pennsylvania Positive Psychology Center. Thank you to […]
THIS DINNER IS SOLD OUT – Please email info@hemosocal.org to be added to the waitlist. Thanks! GAME ON Speaker: Carter Anderson Empowers young adults with hemophilia A to be accountable for their treatment, stay healthy, maintain insurance coverage, and plan for college and a career afterward. Thank you to Bayer for your sponsorship! Gift cards […]
Art of Gratitude - Explore how practicing gratitude can support well-being for those with chronic conditions by creating a personal, gratitude-inspired painting. Thank you to Sanofi for your sponsorship! Gift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate […]
Family Connection Better communication as a family living with hemophilia is possible. Topics covered in this overview include learning to manage care, communication outside of the the immediate family, use of social media, and disclosure at work and school. Role play activities are integrated into the presentation to make it engaging. Thank you to Pfizer […]
LET'S PLAY BLEEDING DISORDERS FAMILY FEUD! Thank you to Octapharma for your sponsorship! Gift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!
UPDATE: Industry Forum Goes Virtual HFSC’s Industry Forum is moving to an ONLINE ONLY EVENT making it easier for all to attend. After thoughtful consideration of our community and the current environment, our Board of Directors has decided to transition the Industry Forum from an in-person event to a virtual format. This change will allow […]