Art of Gratitude - Explore how practicing gratitude can support well-being for those with chronic conditions by creating a personal, gratitude-inspired painting. Thank you to Sanofi for your sponsorship! Gift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate […]
Family Connection Better communication as a family living with hemophilia is possible. Topics covered in this overview include learning to manage care, communication outside of the the immediate family, use of social media, and disclosure at work and school. Role play activities are integrated into the presentation to make it engaging. Thank you to Pfizer […]
LET'S PLAY BLEEDING DISORDERS FAMILY FEUD! Thank you to Octapharma for your sponsorship! Gift cards will be provided for kids ages 0-18. Make sure to bring a white elephant gift valued at $10 (wrapped) if you want to participate in our White Elephant Game!
UPDATE: Industry Forum Goes Virtual HFSC’s Industry Forum is moving to an ONLINE ONLY EVENT making it easier for all to attend. After thoughtful consideration of our community and the current environment, our Board of Directors has decided to transition the Industry Forum from an in-person event to a virtual format. This change will allow […]
WEBINAR INFORMATION "Discover a New Investigational Approach to VWD Treatment" Star Therapeutics’ is investigating a once-monthly subcutaneous prophylactic treatment for VWD called VGA039. If you or someone in your family has any type of VWD, please join us for an engaging session as Dr. Laura Guido, Head of Medical Affairs at Star Therapeutics, shares how […]
Información sobre el evento Todos tienen una historia para contar. Es importante que personas reales compartan sus experiencias con el finde abogar por las personas de la comunidad con trastornos sanguíneos y por ellos mismos. Ganen confianza,mejoren las habilidades de comunicación y hagan conexiones. Nota:La sesión se impartirá en español. PRESENTADORA: Annabelle Garcia ¡Gracias a […]
Washington Days, organized by the National Bleeding Disorders Foundation, is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. The Hemophilia Foundation of Southern California is now accepting applications to provide hotel and airfare assistance for community members to participate in the National Bleeding Disorders Foundation's […]
📅 Save the Date — March 12! Order Panda Express online and 28% of sales will be donated to HFSC 🐼❤️ 🛒 Online orders only (nationwide) 🔢 Use code 9011509 at checkout Enjoy a meal & give back to HFSC at the same time as part of Bleeding Disorders Awareness Month!
EVENT INFORMATION Women’s bleeding issues continue to present specific challenges with diagnosis, treatment and access. Heavy menstrual bleeding can lead to anemia (low red blood cell count/low blood iron levels), with symptoms of fatigue, paleness, lack of energy and shortness of breath. Many women with bleeding disorders are also caregivers of a child with a […]
Join us for a Community Dinner: Understanding HYMPAVZI (marstacimab-hncq) Join us for an educational session exploring a rebalancing treatment option for hemophilia. You’ll hear: The science behind rebalancing therapy Clinical trial data Safety information Information on administration Shared decision-making tips for patients and caregivers Speaker: Zuiho "Z" Taniguchi, Patient Navigator Understanding a Rebalancing Therapy […]
Teens! Are you in grades 9 - 12? Do you or a sibling or parent have a bleeding disorder? Then join BDCC for Future Leaders next March 21 - 24 in Sacramento! The Future Leaders Program is a youth advocacy training program by the statewide Bleeding Disorders Council of California. It provides leadership training and […]
Our health care is under threat, whether you get that care through Medi-Cal, ACA marketplace coverage, Medicare, or your employer. Even those with private insurance will not go unaffected as broad cuts and changes to our health system will impact everyone. This is the challenge of our time! We need everyone in our community, not […]